Thank you for this. My general practitioner told me that the root of my issues was anxiety and that I just needed cognitive behavioral therapy. I pushed to see a neurologist out of my network and finally got the suggestions to take propranolol, nortryptaline and he was the one who recognized my hEDS along with my immunologist. Your information in this video helped me decide against Zolpidem (also prescribed by my GP) as I was worried about taking that living alone but also because of any residual impairment. I’m sincerely grateful for doctors who think outside the box to help us find a better quality of life. ❤
Is there anyone got Dysautonomia after getting Covid? I got the symptoms after omicron hit me. And I’m a foreigner is there anyway I can get treatment?
Many patients have reported being diagnosed with dysautonomia after having Covid. Check out our website for lots of great resources. Become informed and bring the Handout with you to an appointment and talk to your doctor of what you suspect. www.dysautonomiasupport.org/#
Can I use bisoprolol for the night time adrenaline? I am currently taking it in the morning, but my sleep is always extremely shallow. Will shifting this betablocker at bedtime help with the sleep?
I’m hyper mobile, have full body neuropathy and dysautonomia on top of a thirty year old spinal cord injury. Much of my pain these days is burning, which isn’t easy to control with medication, but for decades I had severe back and leg pain below my injury. I’ve also suffered for years with trigeminal neuralgia. Besides head to toe burning, I have neuropathic itch. All my peripheral nerves, inside and out, are sick. I’m finally having a sleep study in a few weeks. For more than fifteen years, I’ve only slept for three of four hour hours, at most, usually interrupted. Now it’s two- I go to sleep about 10PM, and wake up at midnight. When I’m falling asleep, there’s a revving of the heart and a need to vocalize if I don’t want to move. This is usually repetitive. These are DEFINITELY waking me up. Oddly, I’m wide awake after sleeping two hours and can’t recall any wake up process, I’m just awake again. If I happen to manage five hours or more, which happens a few times a month, THEN I’m tired. 🤷🏼♀️
Thank you! I never get deep sleep and have worn Fitbit for years. I had a sleep study ordered and had many surgeries so I will be getting it done. I was diagnosed with autonomic insufficiency when I was 17 and back then was treated with an alpha blocker. Well fast forward to now, I’m passing out at the dentist. ( I had a fast positive tilt table test when I was 17) 2 Dentists say I need a sedation dentist and must be put under. I can’t locate one. I can’t be put in a down position and need a lot of dental work done. My blood Pressure is 95/55.
as a mast cell patient (along with the rest :P) the discussion of gen 2 antihistamines being designed *not* to cross the BBB was just a huge epiphany. gonna have to try out some hydroxyzine. speaking of mast cells, anyone discovered a sleep monitor that doesn't induce skin irritation yet? because that has stopped me from using my garmin regularly (though i suspect it's less accurate anyway)
Propagating Benzodiazepines for sleep problems and saying he doesn’t experience tolerance and dependence. He might want to check in on numbers of benzo dependence and visit a rehab to see for himself.
What a great doctor who seems to actually listen to his patients and work with them, because after all we are the experts on us and the doctor is the expert on the disease. Great, informative presentation.
wait how was it that you tested a persons adrenaline through out the time ? also i stopped antidepressants around 10 months ago i was extremely anxious 24 /7 and my sleep changed . i would fall asleep but feel like im awake. id wake up with anxiety through the roof where i would have to shout just to feel slightly better. i was improving a little but covid hit me around a month ago and it set everything back in motion and i also got brain fog with it as well. its been told that long covid and acute covid causes neuro inflammation and long causes dysautonomia, i did see that i have a blood pressure drop when i stand up and my heart rate goes up about 35 ppm. do i have dysautonomia ? and how do i treat it ? i love the results you shown but with out sleep and non stop anxiety , no work . im not getting rest but I'm not really having too much work stress. what should i do? im in australia ..
