The Teen Who Dies If He Falls Asleep

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A TEENAGER who suffers from an extremely rare condition means if he falls asleep unassisted - he dies.Liam Derbyshire was born with Ondine’s Curse, officially known as Congenital Central Hypoventilation Syndrome, which causes respiratory arrest due to a patient’s lungs not functioning when they are asleep. The condition, which affects less than 1500 worldwide, means the 17-year-old has to be plugged into a life support machine and watched by a carer every night to keep him alive. Doctors gave Liam just six weeks to live after birth, but later this year the young man from Gosport, South Hampshire, is turning 18 and has truly defied all odds.
Videographer / director: Kashfi Halford, Adam Prosser
Producer: Danny Baggott, Ruby Coote, Nick Johnson
Editor: Sonia Estal
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Опубликовано:

1 авг 2017

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Комментарии : 6 тыс.

@pikyokewong2556 6 лет назад

I thought he had to stay awake all the time

@MaryyChan03 6 лет назад

PIK YOKE WONG yeah. But then he would die

@tinusweetu5336 6 лет назад

Akylah Taylor are you stupid? For the average human, if you go 3 days without sleep, it can be fatal.

@adi4305 6 лет назад

Yeah but he Would Die then too...SO SAD *;-;*

@Rspsand07 6 лет назад

3 days?! Don't be ridiculous. You don't even start hallucinating at that point. My friends and I often go 3 or so days while no lifing video games. I think you were thinking of something else: it's when you don't drink anything for 3 days you can die.

@beckysberries4441 6 лет назад

PIK YOKE WONG Same

@Crim_Zen 5 лет назад

A friend of mine recently died from this. She had been battling it for over 30 years.

@fatimajunaid1480 3 года назад

😭😭🥺🥺

@indicolitearts8581 3 года назад

I pray your doing better now! God bless you and your friends family I know losing people is hard.

@ninaadbhat 3 года назад

rip

@faithviolet7810 3 года назад

Im so sorry

@lthv____ 3 года назад

☹️

@lilie9042 4 года назад

I love his mom Doctor: He wont survive for more than 6 weeks Mom: Game on >:)

@koorcJ 4 года назад

So true XD

@Scrunkles 3 года назад

C h a l l e n g e e x c e p t e d

@HeizouShikanoin 3 года назад

So this is how we’re playing it, eh?

@dogood4877 2 года назад

But doctors and medical science help him survive

@FunniEmi 2 года назад

@@dogood4877 his mom and dad didn’t give up tho

@teaganb4596 3 года назад

If anyone bully’s him... just so you know I’m COMING FOR YOU

@ReversedTech 3 года назад

When I last knew him back in junior school, no one bullied him, if they did... they'd have to get past me first considering I was like his best friend lol

@nicoletine 3 года назад

sounds mega fake

@JaggedBird 3 года назад

Want to borrow my claymore for that, Teagan?

@steviejrr 3 года назад

ur ard

@munk3064 3 года назад

Cap.

@trashgtaplayer1128 6 лет назад

What happens if the power goes out? Not a joke, a legitimate concern

@trashgtaplayer1128 6 лет назад

It's yuh girl mikkeai8908 Oh shit, I hope they have something. But more than likely his parents already have something like that

@oddballkimin 6 лет назад

I'm much more concerned if his parents pass away. Hopefully whoever looks after him next knows what to do and not fuck it up. Bless this boy though for being alive for so long and wonderful parents!

@forgottenpixel 6 лет назад

Backup battery. That device I would say 4-8 hours of battery life. If it went beyond that I am sure he would be arranged to be driven or flown to a hospital with power. And as a last resort probably generators - though if it were to come to that...I am sure they'd rather not think about it. I suppose they could hand vent him for a bit or literally keep him awake with medication for as long as possible. But of course that will have its limits too.

@fromanotherdayfilm 6 лет назад

I hope they have a generator

@CallCaliber 6 лет назад

oddballkimin that’s what I was thinking

@earlthegamer7429 2 года назад

The fact that he survived this long for this condition specifically is absolutely phenomenal for him.

@GalosDj06 2 года назад

Yoo I’m a sub

@GalosDj06 2 года назад

What a coincidence we met again lol

@Dennis-zo5qe 2 года назад

im cry

@peppermeat8059 2 года назад

i think its when the brain falls asleep its doesnt automatically send signals to the lungs to breathe or something

@NazriB 2 года назад

Lies again? Weak against nature

@The_D0C70R 2 года назад

Let’s hope he’s still ok with coronavirus and all. Best of luck to him. What a legend.

@TheAfrilazeeq 2 года назад

He has his own breathing machine, I'd say he have an advantage over us peasants.

@francesbale1409 2 года назад

@@123litera4 are you saying that Liam is better off dead? Cause that's a super low comment. He's got a loving family, interests, can go to school etc, seems to have a g good quality of life despite his condition. Please re-consider how you view disability because you have just dehumanised so many people. Thanks :) Have a nice day :)

@francesbale1409 2 года назад

@@123litera4 The thing is I do, and I know many others who suffer daily aswell. Im sorry you are going through terrible things. But like the rest of the population how we percieve ourselves and our disability is unique only to us. I would avoid expressing that youd rather die if you had someone else's disability because it is insulting no matter if you personally are disabled or not you can still dehumanise other people.

@francesbale1409 2 года назад

@@123litera4 p.s. don't assume other people are abled and just because you have a disability doesn't mean you are entitled to say things like this. Imagine how he or his parents would feel reading what you have said? From what we can see and I know we never know the full story but Liam looks to have a good life and no doubt he suffers but does he seem like he'd rather not live? Think before you speak. Have a nice day I do genuinely hope you can find something good in every day no matter how small. That helps me stay alive when I want to die but I would be so so hurt if someone said they'd rather die than live my life. That says my life not worth living. That is a really terrible thing to say.

@francesbale1409 2 года назад

@@123litera4 well done for not judging him for not killing himself and yeah if you want to have horrible thoughts I guess have a great time. Shame really but that's your perogative :)

@nicolewright8801 5 лет назад

Brave young man . Wish I could take it all away from him . God bless him take care buddie you are a strong young man 💙

@jeremyalexander8724 5 лет назад

U have the biggest heart ever!!!!

@nobodycaresnigga9146 4 года назад

Your the nicest human ever

@trud6346 3 года назад

God bless you Liam ♥️🧡💛💚💙💜

@ReversedTech 3 года назад

@@trud6346 :) I like people like you, I miss liam everyday lol, used to be best friends with him back in junior school, so want to catch up with him if I ever get the chance

@trud6346 3 года назад

@@ReversedTech you are so sweet

@sefia2171 5 лет назад

Mom: "18 years since we started this journey, you see." Dad: "yeah I don't regret any day of it." MY TEARS SUDDENLY FELL OFF😭 WHAT A GREAT PARENTS

@krazyhippy 4 года назад

Same!!!

@glitcher510 3 года назад

0098 Sefia Nabila Nur Azmi r/youngpeopleyoutube

@sefia2171 3 года назад

@@glitcher510 if you mean by my photo profile, no lol. i'm using a photo from a cute korean kid.

@Lollirama 3 года назад

0098 Sefia Nabila Nur Azmi T. No he’s saying that because you have a heart unlike him

@oofchimchim345 3 года назад

BENTLEYYYYYYY

@hannahridgeway7033 5 лет назад

Hurts my heart to imagine how he'll cope when his mother and father pass away, hopefully his close family will stand up and be prepared to keep him alive x

@gamert10121 3 года назад

He has siblings. So maybe when they pass away, his siblings could take care of him.

@ReversedTech 3 года назад

He should know by now how to operate the machine on his own, so their passing shouldn't be a problem

@lovedaddy1582 2 года назад

You're assuming that he'll live that long.

@viperbot5311 2 года назад

@crap698 2 года назад

@@lovedaddy1582 😥

@Tetodash 2 года назад

This is horrifying. I can’t imagine having to worry about this.

@equix5242 2 года назад

You late 🤣

@iris8760 2 года назад

@Friendly Facist have you ever heard of respect?

@1vanic 2 года назад

@Friendly Facist fr?

@ADMmachine 2 года назад

@Joe Lane Man's said they have a grandma name while being named Joe

@CSRL8 2 года назад

@Joe Lane He's still alive but ok

@joethegreat2633 5 лет назад

I love the way he talks, a soft voice that it penetrate the Heart!

@Shaddapho 3 года назад

❤️

@viperbot5311 2 года назад

@user-so3yw8tr1x 2 года назад

Is this even real? You'll die if you don't sleep

@idek9970 2 года назад

@@user-so3yw8tr1x did you even watch the video

@user-so3yw8tr1x 2 года назад

@@idek9970 a year ago and i can read the title and it says what it says. Why didn't he broke the record for being awake the longest?

@Boki2089 6 лет назад

I wish him the best of luck with his health, he just deserves better life.

@gilsey7910 6 лет назад

Boki Bokii he does very much I agree

@jomoland 6 лет назад

He seems to be very happy in life and surrounded by loving family and friends.

@dianakailini7891 6 лет назад

Boki Bokii 😞👏👏

@Boki2089 6 лет назад

Jorge Silva it would be better sometimes for some people, if they don`t write anything at all. I got only one word for you, >Health< that`s all what he needs, "life without treatments". And don`t get me wrong you`ve got your own opinion, i`ve got mine but sometimes think before you write something. Have a nice day 😉

@Boki2089 6 лет назад

Man you`ve got to be kidding me right!😂 😂 😂 What`s wrong with you? You`ve wrote all this, to make what, yourself more generous and more caring person then me or rest of us..Only point that is valuable, is that we wish him the best of luck with his own health.

@Twintouch1 6 лет назад

He is Very lucky to have very caring, supportive parents who love and take good care of him! 🙏

@ImmaShadowGirl 6 лет назад

Slowlikehoney Too yeah. mine would've abandoned me for sure. Maybe my mom would've stuck around for a few years but my dad would've thrown me in the trash can around the block the moment he'd have discovered I had a condition

@nano3735 6 лет назад

ImmaShadowGirl jeezus a bit too much eh?

@ImmaShadowGirl 6 лет назад

LEGENDARYRAIDER can't judge what you don't know :)

@saiyinrosegaming4105 6 лет назад

Slowlikehoney Too I dont

@minoriruba1828 6 лет назад

Slowlikehoney Too CARING? Aren't the parents the culprit who had sex and gave birth to him?

@_MC529 5 лет назад

This is why we need great healthcare So people as incredible as Liam get the best possible chance

@viperbot5311 2 года назад

@chezaidan 2 года назад

very true!

@amjan 2 года назад

Or maybe this is why we don't.

@spicynoodles2742 2 года назад

@@amjan So you want people to die?

@nitsu2947 2 года назад

Its more like healthcare for the desperate or the most needing ones. Because those are paid by taxpayers, you don't want your healthcare money go away to someone who is a repeated offender or iresponsible person. tbh im not one with the big brains or data. That was purely my opinion on it, i wouldn't completely disagree if someone was against it (some peoples just dont want health care because its paid for from tax and they don't want their money to be used by someone else)

@sammykenobi6307 2 года назад

I am currently 14 years old I was born with half a heart muscle. So I can certainly relate to making it unexpectedly far in life. And sincerely, I hope this boy is still out there, 22 years after his birth.

@baderx29 2 года назад

I hope you have a positive and happy life 🙏🏻🙏🏻❤️❤️

@sammykenobi6307 2 года назад

@@baderx29 me too.

@msjacksshipsadventures8382 2 года назад

I hope your okay

@sammykenobi6307 2 года назад

@@msjacksshipsadventures8382 me too

@The_German_reich 2 года назад

U dead yet

@xenaa5291 6 лет назад

One of the saddest things ever

@ihaveadegreeinmemes6377 6 лет назад

Nah

@bellaguillen2688 6 лет назад

That's sad I love when I sleep :/

@anonymousunicorn2678 6 лет назад

Alaya Thomas and then i saw your profile pic...smiling..

@xenaa5291 6 лет назад

Whats that mean

@xenaa5291 6 лет назад

I cant have any other profile pic

@zxiahfam6607 6 лет назад

I wish the best for him🙏💕

@trashgtaplayer1128 6 лет назад

BabyZay Channel you're hot af

6 лет назад

Dizzi Unicorn me too

@xd_skins1378 6 лет назад

Nejc Plesko me too

@the_2k_goat288 6 лет назад

Dizzi Unicorn I

@zxiahfam6607 6 лет назад

Undead Military GTA thank you💓

@mr.tiggers6378 2 года назад

Why would people dislike this? That’s just sad

@kennycarsonlove34 2 года назад

They dislike because they dislike the fact that if he falls asleep he dies

@neymarjr_. 2 года назад

a lot of people don't know the proper RU-vid etiquette, when they dislike its probably because they feel sad and feels bad but obviously they don't know that dislike is a negative thing, think of it as an happy and sad emoji.

@mr.tiggers6378 2 года назад

@SonicGamerGirl2006 Год назад

@@neymarjr_. I think I have a more appropriate reason WHY someone dislike this. They just simply don't care. 😬🫠

@coasters_bgw Год назад

@@Odditiz They don't - look the counter is at 0!

@MakotoWright 5 лет назад

Such amazing parents, making sure he lives and doesn’t focus on anything else. I feel sad for the boy, having to have equipment just to sleep, instead of a normal sleep.

@Shaddapho 3 года назад

😔

@KaciHazaCoolPhone 6 лет назад

100/10 best parents ever! Bless them all!

@joaopedrodemoura6492 6 лет назад

THE VID IS FAKE

@KaciHazaCoolPhone 6 лет назад

Raphael Miguel Balon You guys know what they say about arguing on the internet, right? Just leave it. Please.

@Sarfnic 6 лет назад

they don't give up, and keep on that happy face

@Sarfnic 6 лет назад

I think the guy was joking, I mean he did use full caps

@jessejive117 6 лет назад

Yea they’re great and an inspiration. I love these videos.

@pookster0442 6 лет назад

May god bless him with a long life and a happy life

@YangBalanceYin 6 лет назад

Parvesh Kumar God already gave this poor kid the middle finger.

@Subsandwich981 6 лет назад

God didn't do this. I don't know why people who believe in God, believe that God is the one responsible for shit like this. smh.

@garrettzucker100 6 лет назад

You enjoy that Young, the only logical dessication it to be religious or else you don't get into heaven if there is a God. I much rather go to heaven then hell, and if there is no god then its all the same anyways. Though personally I believe in a creator though maybe not exactly what the bible points out since its been corrupted slightly over time with wars and what not.

@youngsimbahh3433 6 лет назад

If there is a god I will happily march my ass down to hell.

@garrettzucker100 6 лет назад

Young I hope you enjoy that

@4ll1s0n8 2 года назад

His soul is so innocent and pure I just can’t. 🥺

@user-nc8re4hh4o 5 лет назад

Some of the best Lego builds I've seen! Hope somone finds a cure for ya soon man.

@Shaddapho 3 года назад

👍🏿

@dominicksansotta7173 2 года назад

I know this is heartbreaking to watch

@melbloom184 2 года назад

If he’s able to build everything can he build a Titanic ship of Legos and it’s 1000 pieces that maybe more

@jonaschan5667 5 лет назад

“The kid who dies if he falls asleep” Thumbnail - the kid sleeping

@thatguywhoruinedajoke325 5 лет назад

Jonas Chan he can sleep as long as he has that machine thingy

@jonaschan5667 5 лет назад

@@thatguywhoruinedajoke325 that means he can sleep

@thatguywhoruinedajoke325 5 лет назад

Jonas Chan yes

@thatguywhoruinedajoke325 5 лет назад

Jonas Chan the machine is keeping him alive while sleeping

@asdasd-tt2pz 5 лет назад

He Can sleep longer if He doesnt

@user-hm9mj1hc3j 6 лет назад

These are wonderful loving families including the understanding nephews we got here. God bless them

@tiredcitizenz1925 6 лет назад

加藤みずっち sad

@nizarziadeh8115 6 лет назад

加藤みずっち I

@mhmyuhh 6 лет назад

Not Ur Business god is what made earth, god made us, god gave us the intelligence to do science... Be glad you’re alive... thank god you’re alive... 😔

@nizarziadeh8115 6 лет назад

加藤みずっち l

@Kaleb_Talks 6 лет назад

You don’t need proof you moron

@0mg_abbyyy 3 года назад

I’m crying.. I feel so bad for this young man, hopefully he survives!

@afool8420 2 года назад

We have the same profile pick XD

@0mg_abbyyy 2 года назад

YAY :>

@TexasScorpioQueen 5 лет назад

God bless this young man😭😭😭 stories like this touch my heart 💓

@fifi_ophelia6222 5 лет назад

💓

@Shaddapho 3 года назад

❤️🧸

@josephjuice2452 2 года назад

💓💓

@AntManR95 2 года назад

Chocolate Goddess eh?

@racquelmitra4266 6 лет назад

I use to hate sleeping but after I watched this I cherished the fact that I could sleep without the thought of well just dying.. don't be ungrateful for what you have just be happy for what you have. Even if you have if you have a life threatening disease

@xxfortnite_kingx1459 6 лет назад

Racquel Mitra that is right

@kevboom2088 6 лет назад

Hate sleep? Try US college courses... only kids would say such a thing

@cartooninfinity3467 6 лет назад

Hate sleep... trust me in thankful for it XD

@rsar61 6 лет назад

Racquel Mitra i agree I use take walking and working for granted , I suffered a massive stroke 2years ago, it's by the grace of god that I survived my stroke lasted for 5hours before I was able to medical treatment god spared this sinners life

@aleidarivera8733 6 лет назад

Racquel Mitra true

@andygirl333 6 лет назад

I love the unconditional Love the parents have for their son and the love the son has for his parents, that close bond is so incredibly sweet♡

@alexandrabassols4410 6 лет назад

andygirl333 i

@101Volts 6 лет назад

@andygirl333 If I could favorite comments on here, I'd have favorited yours.

@RoboEpic 6 лет назад

ikr

@Olxthrosfr 5 лет назад

andygirl333 unlike my family

@syedmuaaztahir7138 2 года назад

This guy is a genius, he builds these brilliant models. He is extremely intelligent

@census3370 5 лет назад

What if there’s a power outage is there a backup generator?

@CR42069 5 лет назад

He ded

@jackstape598 5 лет назад

Census das tuff for him then

@Doors067 5 лет назад

then you wake him up

@hhds113 5 лет назад

Those machines are backed up on battery.

@heydaddy2471 5 лет назад

In my place power usually go away for weeks, it was one time it went away for 3 weeks, on normal day it usually go away 5-6 hrs in a day, they turn off the power every 3-4 hours, he won't survived a day here, cuz I never saw in my life when electricity didn't go in a whole day not a single day

@karissam96 6 лет назад

What a handsome, young man! He seems like a sweetheart and wish him all the best! xx

@king-yz5ok 6 лет назад

I know right! He's so adorable

@unstoppablechicken1699 6 лет назад

karissam96 ya he deserves a cure or something to help him with that case hopefully something can cure it fingers crossed like if u agree

@Shaddapho 3 года назад

❤️❤️❤️❤️❤️❤️❤️

@mimiloganson6137 2 года назад

@@king-yz5ok no he ain’t. He is handsome though

@mimiloganson6137 2 года назад

@@Shaddapho shut up with the red hearts

@realjayseven 6 лет назад

Oh man, I just pray that machine doesn't stop working.

@georgeu2081 6 лет назад

João Vítor yea the same or the power goes out in the middle of the night

@Africanfrogs 6 лет назад

True I'm sure they have some alert system or alarm if it does. They would just have to wake him up so he could breathe by himself

@KirkkoRS 6 лет назад

I can guess that they have somekind of UPS for that

@HM-uu9ug 6 лет назад

João Vítor im pretty sure they got extra for back up

@dxb8086 6 лет назад

_"I just pray that..."_ You also can cross your fingers. Same result, guaranteed...

@azwentertainment 3 года назад

Should be titled “the teen who dies without a ventilator while sleep” because sleep he do. Anyway he seem like a normal teen to me, looks great, able to walk, go outside, kick football, build LEGO, play PlayStation, have a caring family, seems a very good life and thankful for that :)

@mimiloganson6137 2 года назад

He’s not a teen. He’s a adult

@juanmanuelmoramontes3883 2 года назад

Anyway if he couldn't sleep at all the best would be euthanasia, as far as I know no sleep is mental torture.

@vaukest5888 2 года назад

@@juanmanuelmoramontes3883 Honestly lack of sleep due to high school makes me WISH I could be euthanized.

@thebrummierailenthusiasts5329 2 года назад

He is now a young adult now and I’m hoping he’s still continuing to survive

@JasonGafar 6 лет назад

I'm so so so so happy he's so fortunate to have these wonderful parents. His parents deeply love and care for him and it melts my heart. I wish him well on his journey.

@trippihippie7909 6 лет назад

Liam's story is amazing and inspiring. This is beautiful, and I am glad he is alive even if I don't know him.

@trippihippie7909 6 лет назад

Biker Boiy Thats horrible to say.

@josephsvlogs6137 6 лет назад

Biker Boiy so he had to commit suicide and he was bullied

@fortniteisawesome3838 6 лет назад

City girl

@fortniteisawesome3838 6 лет назад

I'm sorry I thout I was supposed do my name

@prinsesslonbon3659 6 лет назад

Candi Prince you. Are right

@NASCAR_Junk 2 года назад

Me: “Yeah, I pulled an all-nighter” This kid:

@TheBasicPersonSorta 2 года назад

He Has To Do A All Nighter Or Else He Will Die Without The Ventionr

@Rapper-zx7zs 4 года назад

I’m so glad he’s still going. I was wondering how we was doing.

@Shaddapho 3 года назад

❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️

@alexisalex702 2 года назад

How did you find updates about him? I would like to see good updates about him too :)

@evesrebornbabies4377 6 лет назад

He is a living miracle

@letters_from_paradise 6 лет назад

Not particularly, just ordinary science.

@athens_dio9741 6 лет назад

why he is a miracle?

@childabuse9798 6 лет назад

Doesn't seem like a miracle for a boy to have a condition like this lol.

@Imuetinyanosa 6 лет назад

+Jellytopbottem Deadbush The fact that he's alive, especially after the doctors said he would probably live only 6 weeks, is definitely a huge miracle! There is still hope that a cure will be found!

@JustinK1613 6 лет назад

They said no one knows how long he will live. A real miracle would be something that can't be explained. This is just a condition so rare that the doctors can't give an answer as to how long someone will survive. Survival rates are just based on data, more data means better answers.

@Jamieeee-ht7qk 6 лет назад

He's so adorable! 😊

@avahall3949 5 лет назад

I feel bad for him😔😢💔

@mango60888 5 лет назад

WatchJovitoTv did they say the disease was adorable? It seems more like a complement tbh. Edit: That comment was even posted a month ago and you now noticed it lol.

@mango60888 5 лет назад

Oh.

@mango60888 5 лет назад

WatchJovitoTv sorry then, usually my arguements are poop lmao.

@Wtahc 5 лет назад

WatchJovitoTv no?

@highfashionwins Год назад

Liam seems like such a sweet, kind soul. It's so unfair :(

@williamnield7133 2 года назад

This shows the love parents have for their children

@finster1968 2 года назад

Most parents, anyway. Unfortunately there’s plenty of people who need to be sterilized. I can’t imagine the worst parents (who abuse healthy children) dealing with something like this.

@freddy4584 6 лет назад

He seems like such a sweet guy, it’s great to see he has such a caring family

@Yusuketh443 2 года назад

©umring family

@jimmyturner6615 6 лет назад

At first i was like: WAIT WHAT !?!?! HE NEVER GOT TO SLEEP SINCE HE´S BORNE ? but then i realiced that he got help. Bless this boy :/

@stevensonstevenson5787 6 лет назад

Jimmy Turner

@jojorosa9933 6 лет назад

Sorry for your lost

@geesauce3850 6 лет назад

Bless him but i don't bless your spelling

@Shrekfromthehitmovieshrek 6 лет назад

Jimmy Turner he has, he has a machine which helps think as if he is sleeping in an iron lung

@myemail3148 6 лет назад

Same

@johnolivera2369 2 года назад

"Which one is your favorite, Liam?" "all of them to be fair" haha made me smile

@shreyakanojiya4744 Год назад

I hope he's still alive and good. Sending all the love and strength to his family and him. Wishing for the best for them and nothing less. Soo proud of all three of them for being soo strong and amazing. Truly an inspiring boy ❤️

@puppylover1276 6 лет назад

Damn, he's so brave! And I'm here sitting on my bed eating chips, scared like of everything 😂

@tiyakarapan734 6 лет назад

PuppyLover 12 Me too

@viengsamphet 6 лет назад

PuppyLover 12 me too

@Success_FuelYT 6 лет назад

damn now i want chips...

@dianakailini7891 6 лет назад

PuppyLover 12 😂😂😂

@wannabewriter5628 6 лет назад

PuppyLover 12 lol omg me too I feel so bad for him

@kageyamaslefthand329 6 лет назад

God bless all the people with all these conditions and keep them safe every second of each minute and hour

@patrickstokes67 5 лет назад

Liv Gillespie amen

@cbenn37yt6 5 лет назад

Why would God allow for him to have this condition in the first place? Lmao

@JD-lm2es 5 лет назад

cbenn37 YT i found the guy who knows nothing about religion^

@dylanr9131 5 лет назад

why does it have to be "god bless"? what if he is an atheist?

@ashlynndaniels1191 5 лет назад

Sir Bigdog we’ll just let people believe what they want.

@jasonlucero5808 5 лет назад

My heart broke as soon as I saw him with the machine. My prayers goes out to him and his family

@Shaddapho 3 года назад

Mine too

@Yusuketh443 2 года назад

you broke 😂

@jesusissogood5572 2 года назад

I thank God for sustaining Liam's life through the machines.

@jesusissogood5572 2 года назад

By the way, God loves you so much that He sent His only son Jesus to die for your wrongs so that you could be forgiven by God (who rose Jesus from the dead after 3 days). Accept Jesus into your life and as your Lord and Savior while you can! I am not forcing you to do so, but I STRONGLY encourage you to.

@lussor1 Год назад

God did nothing

@joekenorer 6 лет назад

This is one of the saddest things I've ever seen. I have an autistic 12 year old, and I've already mentally prepared myself to take care of him for the rest of his life. He's going into his teens soon and I don't know what to expect, I'm so terrified and sad for him that life has to be different. With Liam you add a few more years and Ondine's disease? I cannot imagine. I have to go cry about this and everything, excuse me.

@harlequindeer2142 6 лет назад

joekenorer I have an autistic brother and it is so hard to take care of him sometimes he is just too much for my mom and I. He is now 9 and it seems every year it gets harder and harder

@joekenorer 6 лет назад

My son was very difficult in his younger years, destroying things, eating raw meat out of the fridge at night, pooping in his pants, I worried that would always be how he was. But he changed a lot in the past 4-5 years. He's calmed down, isn't destructive, finally potty trained, but over all much more manageable and personable. He still won't hold a conversation, but he does talk and a lot and well, it's just usually scripting his favorite RU-vidrs.

@joekenorer 6 лет назад

Don't lose hope, he will change a lot as he gets older. In what ways will be hard to tell, but he will change.

@ashk4512 6 лет назад

I have autistic members in my family. The severeness ranges from person to person but they all mantain jobs and families of their own. Don't discourage and/or look down on your kid. He'll do great, no matter the struggles. Also, people with autism are extremely intelligent but rarely get the oppertunity to really showcase it. So let your kid explore his space around him and give him the tools so that he may figure out his strengths and weaknesses. A doctor once told me. "Neurotypical see a lot of trees together and think 'oh, that's a forest.' but people with autism look at the ground, they look at the flowers and mushrooms and from that base that it is indeed a forest." "people with autism are in no way less intelligent. they just view the world in a different light, and so, express themselves differently. Just because he is 'different' doesn't at all diminish his quality or life or make him less likely to succeed with his life. take care!

@harlequindeer2142 6 лет назад

joekenorer when did your so start talking ? Cause right now my brother can only manage saying one word and it’s not that audible

@lil6six774 6 лет назад

This is really heart breaking I want to cry I HOPE HE DOES NOT DIE

@jesusherrarte5763 6 лет назад

ak bangas HE WONT DIE WITHOUT LIVING A FULL HAPPY LIFE GOD WILL HELP HIM DAIKY AND NEVER LEAVE HIS SIDE AND HIS PARENTS ARE HONESTLY G's FOR BEING THERE ALL THE WAY NO MATTWR WHAT THISE DOCTORS SAID. GOD WILL AWLAYS KEEP BLESSING HIM LIKE HE BLESSES AL OF US AND WILL HELP OUT ALL THE WAY AMEN 🙏❤️😇🙏❤️😇🙏❤️😇🙏❤️😇.

@doctornobody9501 6 лет назад

Jesus Herrarte he's dead...

@imenviously 6 лет назад

Jason Bradley DONT SAY THAT HES NOT DEAD!!!!!!

@spongebobfan190 6 лет назад

Jason Bradley Go be an edgelord somewhere else please.

@bloobfish9246 6 лет назад

Jason Bradley no he's not

@youtubecristy4009 3 года назад

He would be so glad as he has this really caring parents.🥺 Hope he finds a cure as soon as possible 😔😢

@kristoferjakistam832 2 года назад

HUGE respect for parents. All his son life they are on alert to watch him and react if necessary. Respect from me.

@randomgamer4240 6 лет назад

I’m Just Glad That The Machine Has Worked All This Time

@tannernicholson2328 5 лет назад

Don't Capitalize Every Single Word, Thank You

@mrwhoannon300 5 лет назад

Tanner Nicholson are u lettercapitalizationist? Tut tut tut, what has society come to 😪

@ArseniiB 5 лет назад

Anyone noticed most people with birth defects and genetic diseases from europe

@wislata 5 лет назад

@THE metrobuskid Random Gamer those machines more likely have some kind of backup battery or something, ppl wont die in hospital if there is no electricity at the moment.

@pluto7026 5 лет назад

ArBuz Entertainment bruh

@theunicornmagic2357 6 лет назад

I wish he gets better and better

@-LegioPatriaNostra- 2 года назад

These parents and their strong son are everyday hero's! With love from The Netherlands!

@mantidream8179 2 года назад

These videos really put in perspective all the simple things we take for granted. Bless him and his parents.

@HFXmermaid 6 лет назад

it must be tricky for him if he accidentally has a nap

@tfi4310 6 лет назад

Raina Mermaid you get medication that prevents you from sleeping.

@havanacovington7405 6 лет назад

Raina Mermaid yea

@baldheadedassdex5246 6 лет назад

TheFireIndian Give him some aderall everyday. He'll never sleep

@akinsalih1235 6 лет назад

I'm pretty sure if he falls asleep his perents would probably notice and slap him up a bit. I'm just kidding 😂😂😂 he can live only for so long without oxygen.

@akinsalih1235 6 лет назад

Lisa Lisa I have one solution for ya, DRUGS. solves all ur problems

@soph7113 6 лет назад

Aww. I pray for him hes so adorable

@mayververgara7942 6 лет назад

Sophia amazing um which as a teen or as a baby?

@superdave354 6 лет назад

Mayver Vergara probably both

@Cruciatum 6 лет назад

Have the prayers worked yet?

@dean0730 6 лет назад

Thoughts and prayers caused this. The power was too strong and his body rejected it, you never ever seen my hero academia smh

@jessejive117 6 лет назад

Cruciatum You’ve gotta ask him. And she didn’t say she’s prayed for him to be cured. Maybe that he could fine a purpose for what he lives with and peace with it if he hasn’t. Your tiny little mind can’t think of anything else it’s okay ☺️

@boribbora 2 года назад

This makes us realise how tech can change our lives. He wouldn't be able to survive without the tech and his parents ❤

@richjustin06 2 года назад

Much respect to the parents and this boy who still manages to smile through the pain. Never take your health for granted. Stay strong young man 🙏

@4hesr6kefb3y- 5 лет назад

I wish I was his childhood friend, he’d be great to play with. He seems very sweet, I wish him the best.

@Shaddapho 3 года назад

@Sp00ky Ramen XD?!? THIS IS NOTHING TO LAUGH ABOUT!!! Or maybe its the fact that you were friends....... hmmmmmmmmmm.........

@Shaddapho 3 года назад

@@user-zi1ft1dd5t ok srry

@Shaddapho 3 года назад

😅

@rejim.philip9431 3 года назад

@@user-zi1ft1dd5t oooo

@rejim.philip9431 3 года назад

@@user-zi1ft1dd5t lol

@andregamer4life755 6 лет назад

people that dislike probably they don't want to see him suffer...

@christyholt6029 5 лет назад

Yeah Yes

@CR42069 5 лет назад

Did you like?

@SkippyMC 5 лет назад

You dislikr a video if you didn't LIKE it.

@scotthappy712 5 лет назад

Agreed the peeople who diliked have no heart

@rrocc 5 лет назад

@@SkippyMC the dislike button has many meanings to many people

@mysticmama_3692 2 года назад

This family is full of love and understanding. Its quite beautiful to see😍

@enau7691 5 лет назад

Thanks for sharing to this beautiful family

@MoniQue1995sco 6 лет назад

he seems like such a nice guy! bless him

@mackenziegallagher3693 6 лет назад

Poor kid I feel so sorry for him

@mackenziegallagher3693 6 лет назад

I love him soo much I cried

@judychang6660 6 лет назад

MacKenzie Gallagher me to

@haze6450 5 лет назад

Watching these videos truly make me sad, its sucks to see anyone go thought something like this. God Bless you and i hope all good things come your way. You deserve it, your strong adult and i give you all my prayers! Your are a amazing human being!

@yourmomforceutoplaywitheki2689 2 года назад

He looks like a nice guy, I hope he get through this

@israelgordocolorado3060 6 лет назад

I wish i could cure his condition ☹

@viengsamphet 6 лет назад

Marie Itzel Colorado so then try it Don't do nothing

@anthonydeluca6966 6 лет назад

I wish I could make everybody rich and happy. But that's not gonna happen, now is it?

@nadine537 6 лет назад

Marie Itzel Colorado maybe you can in the future...you never know

@coolkidmio1129 6 лет назад

He can wish it, and maybe try! Sam, ur comment was so bad and annoying..

@wendydickson3554 6 лет назад

Oh shut up guys you can't do nothing (u r lazy)

@A90sChick 5 лет назад

He’s very handsome and strong to get through this, as well as his loving family supporting him so much. This makes me joyous to know there’s still hope in the darkest of times when stuff like this happen to people. Prayers for him and to his family!

@Shaddapho 3 года назад

❤️🧡💛💚💙💜

@007shinette 4 года назад

What a lovely family they are ! It must be so worrying having to live with that ! I was especially impressed with Liams nephew who clearly loves his uncle ! Xx

@manatal4673 Год назад

Thank you for sharing these special moments and aspects of your journey together. Liam is motivational!!! It helps my understanding and empathy anyone with this lack of cerebral communicatory functions in people with this condition.

@sl6876 6 лет назад

I dunno why but I really wanna meet him, he seems like he would be my best friend (:

@philliphurtitz9246 6 лет назад

Because you have no friends.

@jackbeames7643 6 лет назад

Sam Leblanc he lives in my town. He’s my friends cousin

@Handkeliw 6 лет назад

Phillip Hurtitz just stop

@Yusuketh443 2 года назад

you can press emergency meeting to meet him

@txlentonline3791 6 лет назад

Hes a survivor, Hes a fighter, Hes beautiful ♡

@kyle-flora 6 лет назад

okay, but he ain't beautiful.

@raspberrygacha6924 6 лет назад

Jamtraxx his inner beauty

@Mars-uj9ye 6 лет назад

+Jamtraxx he's kind of charismatic More than you actually. Just watched your face D:

@svbretooth 3 года назад

I wish nothing more than the best for him...you've made it this far bud. Keep going. You have the fight in you. ❤

@travelbaseball13 2 года назад

Aww I feel so bad for him I hope he gets better praying for him and his family 🙏

@ima4248 5 лет назад

Imagine if he falls asleep accidentally, while watching a movie.

@Crepidarian 5 лет назад

I'd die instantly

@michaelao9672 5 лет назад

This sorta thing is what worries the mum of the boy I look after - when he's older and hanging out with friends, at home its not a problem but outside... So many possibilities

@LordRayken 5 лет назад

He would most likely wake up when he started suffocating.

@wislata 5 лет назад

@@LordRayken thats why he has that machine because he might not

@travissmith6001 5 лет назад

Or in class

@sisterstina3700 6 лет назад

God bless this boy ❤Only best wishes to him and his family!!

@beluga2771 2 года назад

He is incredible and phenomenal kid he is very kind and he has a voice of a Angel god bless you I hope you are still alive i didn't have seen a kid like this kindly kid

@nicholc7300 5 лет назад

What a clever lovely young man I wish him all the best in the future ❤️❤️

@DevinsDen 6 лет назад

Wow he built those legos? That really is amazing!

@jebushwplainview9453 6 лет назад

I see what you did there...

@MrFinalfantasy7ftw 6 лет назад

Chris Thomas I dont get it 🤔😅

@andrewlingo7614 6 лет назад

The lego set he is playing with in the video

@hiatusmode989 6 лет назад

Aww....He is so strong 😫😫😫.....Makes me cry

@Rondre 2 года назад

Damn is he awesome. Living for this long with his condition and even living a pretty normal life is awesome to see. I hope he can live long

@youssefhb9404 3 года назад

Bless these parents

@fuzuzafitness8354 6 лет назад

I hope all is well for him man. Prayers!!!!

@arandomchannel1101 6 лет назад

And if his parents are gone on sleep time? *dies*

@JanetStarChild 6 лет назад

Prayer does nothing, you damn fool.

@tommoore2012 6 лет назад

I can speak from personal experience that you're wrong Janet.

@cortster12 6 лет назад

If prayers work, then he doesn't need the breathing machine. Let's see how well he does with your prayers and no medical care.

@StridersBored 6 лет назад

Bose-Einstein Why do you gotta be a bum? Every time there's a comment like this there's people like you just spoiling everything with your own views. Just let it slide if you can :T

@Starkid1236offical 6 лет назад

I will be gladly to give him my Hornby trains boyo. :)

@chungdo8622 6 лет назад

Starkid 1236 I

@mitsuriii208 6 лет назад

Starkid 1236 Good lad

@chico373 6 лет назад

Starkid 1236 ii

@cinnamonwolfy3822 6 лет назад

Starkid 1236 what?

@shirley6067 6 лет назад

Starkid 1236 oh god, I have a dirty mind, I thought you said that u would give him your horny babies

@10kbeforeiuploadfirstvideo17 2 года назад

These are the best parents I’ve ever seen.

@sandyjohnson6706 5 лет назад

My heart goes out to this family and this young man.

@kamikamila 6 лет назад

You Should Never Die.. :( I Hope You Live a Long Healthy Life..

@josht5453 6 лет назад

Stupid question, but how did they discover this when he was a new born? I would have thought soon after being born he would have fallen asleep and passed away before anyone knew any better

@tfi4310 6 лет назад

Josh T devolops.

@uhohriver 6 лет назад

Josh T maybe they noticed he wasnt breathing when falling asleep because you dont imieditly die because of not breathing it takr a while from you to die from that (*at least I think I of course am stating what I think would be the case*) so maybe this continued on like maybe they kept an eye on him so then thry relized within time of him not breathing during sleep he would die? I dont truely have an answer of course please understand im saying what I think happened for them to figure out this man's condition. May he live a happy life

@average391 6 лет назад

When a new born is wel born they alway check on him for like a day to do test and he is not dead cuz if he was new born he wil sleep with a air mask man i know this and im 9 maybe my dad is a docter 😑

@havanacovington7405 6 лет назад

Josh T true

@havanacovington7405 6 лет назад

Smol potato true too

@acehole4788 2 года назад

Gosh I love his mum and dad. Bless their family. I'm not someone that often feels for others but I'm changing that. Stay safe everyone. Love is love 🤘

@ilovecrackers4112 2 года назад

I really hope he is okay. Such a brave man. Its these stories that give you hope that anything is possible. God bless him x

@eros4007 6 лет назад

This breaks my heart ):, My prayers goes out to him❤️

@Shaddapho 3 года назад

Mine too❤️

@israelp4462 6 лет назад

"His Tv, his playstaion" (SHOWS XBOX)

@101Volts 6 лет назад

"I'd like a large hamburger and a medium cola." "We have 5 kinds of cola: Root Beer, Ginger Ale, Coca Cola, Mountain Dew and Sprite; which cola would you like?"