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The UK's First Kennedy's Disease Clinic 

Patani Stem Cell Lab
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Kennedy's Disease, also known as Spinal Bulbar Muscular Atrophy, is a rare form of Motor Neurone Disease that causes the progressive degeneration of both muscles and motor neurons, which are the nerves that instruct the muscles how to move.
In May 2016 the UK's first dedicated clinic for patients with Kennedy's Disease was set up at the National Hospital of Neurology and Neurosurgery at UCLH.
The clinic was established to give patients the opportunity to receive specialised clinical care, as well as to take part in clinical research programmes to test therapies and new therapeutics for a disease that currently has no proven effective treatment.
Contact for the clinic:
www.uclh.nhs.uk/ourservices/s...
Kennedy's Disease Research at UCL - Prof Greensmith
www.ucl.ac.uk/ion/departments...
Dr Fratta's research and clincs at UCL
pietrofrattalab.wordpress.com

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8 авг 2024

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Комментарии : 9   
@vikes51349
@vikes51349 6 лет назад
You can research on me your clinics look better than anything ive been in
@dis-easekennedy
@dis-easekennedy 4 года назад
i am a kennedy's disease patient, i was diagnos last year april 15,
@siargaomanor2305
@siargaomanor2305 3 года назад
Hello..youre from where..im also sufferring symtoms of kennedy disease..
@faywarne5215
@faywarne5215 11 месяцев назад
This came a year or two too late for my late father who lived into his 90,s. He often went to the local hospital for training purposes. Swallowing was a problem. I did not have children and it is hereditary.
@pamscawn1631
@pamscawn1631 2 года назад
「明確なメッセージ、明確な構造、理解しやすい、ありがとう」、
@karlfriederichTV
@karlfriederichTV Год назад
My father got his lab result today. In found out he has kennedy disease. Does it have a cure now ?. Please let us know 😭 from Siargao Philippines
@rushtk2112
@rushtk2112 11 месяцев назад
I know this is a old vid but I was wondering if anyone with it lost muscles at a fast rate. I am trying to get the VA to listen to civilian Neurologist. I am awaiting further testing.
@user-wj9fo2uj8t
@user-wj9fo2uj8t 10 месяцев назад
Сan tell you about my experience. Muscle loss is slow, but muscle fatigue is very high. Because of this, the quality of life decreases, because simple things become complicated. For example, I cannot hold a cat in my arms for a long time, because the muscles of my hands tire quickly. And this is only the least of all inconveniences
@lindseyvukmire486
@lindseyvukmire486 Год назад
Uk dreaming
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