This is a Lupus Flare // Chronic Pain//

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✨Here’s a little about me:
👉 I have been on this journey for several years. Although it took me a year to start realizing this was beyond my scope of care. I always hated Doctors, hospitals, & meds. When I finally sought help it took too long to get proper treatments and I went into a huge unforgiving flare that lasted at least two years.
🌟My formal diagnosis is Ehlers Danlos Syndrome (hEDS) w an overlay of Lupus. I also have the cormorbidies like PoTs, IBS, Fibro, Anxiety, and suspected MCAS (Phew, that was a mouthful).
To sum me up: ✨
🧿 I am cautiously optimistic, refusing to give in, but realistic in my approach. While documenting my journey💜
✨Let’s be friends!!
🌙I am on Insta: @_itscrazywonderful / _itscrazywonderful
🌟Twitter: @_crazywonderful / _crazywonderful
👉RU-vid: Crazy Wonderful / @crazywonderful
Blog: medium.com › @ItsCrazyWo...Crazy Wonderful - Medium
Email: officialcrazywonderful@gmail.com
🧿🤍
#selflovejourney
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#chronicillness #chronicpain #chronicallyill #invisibledisability #invisibleillness #spoonie #spoonielife #lupus #lupuswarrior #ehlersdanlossyndrome #edsawareness #ehlersdanlos #jointhypermobilitysyndrome #fibromyalgia #fibro #potssyndrome #mcas #motivation #disabledandproud #keepgoing💪 #mentalhealthmatters #mentalhealth #anxiety #autoimmunedisease #wordsofwisdom #autoimmunewarrior #inspiration #lupusawareness #depression

Опубликовано:

21 окт 2024

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Комментарии : 7

@premadimauro2691 2 месяца назад

I am sending you lots of healing love. Thank you so much for sharing you at your worst. We all think that we are the only ones that goes through this living with a chronic illness. Seeing someone else suffer assures me that I am not a whimp and that having a chronic illness is a very difficult life to live. It is hard enough to cope with the everyday constant pain then to escalate to another level of pain an sickness is an horrific experience. I pray that the flare will not last long and you will be back to your base level soon. Thanks again for sharing your experience!

@crazywonderful 2 месяца назад

I appreciate it. I really wasn’t sure about sharing. I’ll continue to record & see if I’m comfortable posting. I need to get back to my baseline. Trying to be patient.

@premadimauro2691 2 месяца назад

@@crazywonderful Take care of you the best that you can. It’s not easy, I know

@cathie-aussiegirl6547 2 месяца назад

I really appreciate videos exactly like this. It makes me feels less alone, and that I’m not the only one experiencing this. Do you follow ‘Through the looking glass’ ? Her name is Daniela, and although she doesn’t have Lupus like us, she has very bad fibromyalgia (me too) and back problems, and mast cells and other stuff, and every now again she shows or at least speaks of, especially in some of the slightly older videos her pain. I understand exactly how you are feeling but I’m lucky my two girls are now in their 30’s, but I did get really bad when they were in primary school. Have had different problems since I was14 though. Like I said on Instagram, we really are twinning at the moment, winter is usually my better season but not this year. Anyways, that was a novel, hope we both start feeling more ‘normal’ soon. Take care mate, oh, and I mean it, thank you for posting this. ❤️

@crazywonderful 2 месяца назад

I can’t tell you how much I appreciate you telling me this. Posting was a debate. Winter is usually a lot better for me too. Right now my worse pain is jn one localized area. The rest is manageable.