Whoever can cure Tinnitus should win the Nobel Prize. It is that important. This is a worldwide problem affecting everyone in the space between their ears. A peaceful mind without Tinnitus multiplied by millions could possible mean a more peaceful world for everyone.
I was hearing mine before I even saw the video title, I'm still hearing it. It never seems to actually go away, but rather varies in intensity and tonight its goiglng strong.
The key word in the video title is "could", which usually means asking for more money for more research that usually goes nowhere. Every piece of news about a new research results ends with "more research is needed."
PLEASE, PLEASE continue your research. I developed tinnitus on top of multiple health problems. Sometimes I don’t think I can bear it another moment. I pray you find a cure.
I've had tinnitus problems since childhood, though it wasn't realised at the time, in the early 1980s I developed a severe thyroid problem and went on to develop pernicious anaemia (P.A.). P.A. is a condition whereby your body cannot absorb vitamin B12 from foodstuffs and can be deadly. To counter P.A. and ensure my body gets B12 I'm required to have B12 injections, which I had on a fortnightly basis until 2020. In 2020 I increased the frequency of my B12 injections to once every 5 days, within a month I noticed my tinnitus had significantly diminished. I am now into my third year of my every 5 days B12 injection regime and my tinnitus has diminished to the extent that it is almost imperceptible when it occurs, which is very rarely. Unbeknown to me tinnitus is one of the common symptoms of B12 deficiency. Vegans and vegetarians are also at risk of developing P.A. as they may not get enough B12 into their systems to provide them with a healthy life. If you've not had your B12 levels checked I suggest that you consider this action, it may prove to be something that will provide relief from your tinnitus condition. Good luck with your health and journey through life.
I can totally feel that i started hearing buzzing noises in my year around 2020 initially I panicked I used to wake up in nights and feel helpless and started questioning why me........?.......but now it's kind off managed some days are hard but sometimes I even forget I have it.......the only thing that worked for me is it to try ignoring it and not paying attention that doesn't mean you will not hear it but slowly slowly your mind will filter it out just like background noises.........the key point is MORE YOU NOTICE IT THE MORE BAD IT GETS.....................
my perpetual tinnitus was so loud it would wake me from sleep after 1 hour max. 0 hearing loss. 3x 0.5mg clonazepam helped dull the nervous system, significantly lowering the sound, otherwise i would have had no choice but to shotgun myself. also 2 day fasting clears the tinnitus but the moment i eat ANYTHING even liquid makes the tinnitus blaze.
Silence. Long sought after by many tinnitus sufferers but seldom found, and then only for short periods of respite. To sit outside at night and hear ... nothing. What a boon that would be. Thank you for your work, Kristin.
Dr. Barry, if you need humans to advance in your research, I will be delighted to be one of your volunteers. I want to experience silence at least the last years of my life!
I’m 60 and have had ringing in my ears since I was a small child. I used to worry whether or not it would drive me crazy. Now that I’m 60 I realize that it is annoying, but is not going to drive me crazy. Life goes on. But I do hope they find a cure so others won’t have to deal with this annoying ringing.
I'm 61 my tinnitus started around 12yo. I use background noise to deal with the ringing during the day and I've been able to sleep imagining I'm hearing the ocean.
I've actually befriended my tinnitus. I've named it Tinny and when it's really intense I say "Hey Tinny, I see you're here today." This attitude came about when I realized two things. One, I had tinnitus and it wasn't going away. Two, I could scream and tear my hair out and I would end up with a sore throat, less hair, and tinnitus. I have an affliction. As afflictions go, there are worse. I had a choice to hate it or love it. I won't say I've progressed all the way to love, but I hate it a lot less. Not sure if this helps you, but it does me so I thought I would share.
I've found this approach to work for me as well. I've also found that avoiding high salt, sugar, aspartame and stress can keep the volume at bay. Next time you consume unhealthy foods or experience high stress, take a listen. You may notice it gets worse. Minimizing these triggers can hopefully help you as it did for me.
Incredible work! I've been listening to tinnitus at 11,000hz for 30 years, and would love to one day hear the world again as it should be heard. Wishing you every success.
Just one frequency? There's always, like, 6 or 8 goin' in each ear ... and none of 'em musical. At least give me a pleasant Maj 7 chord or something ...
@@SgtSnausages same here, whistles and pulses competing in each ear, but I can say for certain that if I play 11,000 hz from RU-vid, everyone in the room covers their ears except me, saying "Is it playing a sound yet?" I would love to lose the tinnitus. I'm not feeling well today so it's double volume too! Ooh, maybe that's something that fits her theory.... headaches and louder tinnitus always happen together. They must have a connection.
Wow. Now I have a way to show someone what I hear. 11000 hz on RU-vid. I honestly can’t believe I never thought of looking for something like that myself. Thank you.
@@heatshield I installed a frequency generator app on my phone. When I played 8900hz at the same volume as the sound in my head my family all visibly winced. And when I have a headache, the volume increases by at least 2x.
We, tinnitus sufferers, need to create secured website which will allow us to give money to fund tinnitus research. Something with a number, to motivate us to give even more. And the money should be given to most promising solutions, to actually reduce or even eliminate tinnitus. Instead of being passive, we can now, thanks to internet and digitalisation, at our level, be part of the solution!
My mom is experiencing constant tinnitus since age 35, she's 68 now and only recently she heard this name and actually got some advice on treating it(making her feel a bit better about it)! She said that just getting to be understood by the doctor makes a huge change and knowing she's not alone in this world hearing this constant sound! Many thanks to all scientists and doctors learning more and more about it!🙏 Maybe one day people like my mom will be able to be completely free of this hearing issue!
My God, thank you for your passion on this topic. I've suffered from tinnitus for over 39 years. It has progress to the point where it seriously affects my strength and ability to carry on with regular activities. It has become so overwhelming and virtually impossible to live with. I'm so grateful that this video came to me. It is truly encouraging knowing that you are working diligently on a solution and that a conclusion is near. Thank you!!!!
I went into a bar in the summer of 1987 where a band I would describe as post-punk (or 4 guys who thought it was still 1976 maybe 😂) were playing at deafeningly loud volume. Me and my mate stayed long enough for a few beers and Ive had high pitched ringing in both ears ever since.
@@user-fed-yum I have actually heard some people say B12 can help. There are some people out there that think supplements and/or vitamins can help. I don't think the science supports any of this, but certainly couldn't hurt to try.
@@jimsimpson1006 My tinnitus is completely due to loud music. Both concerts then I got into car stereo. I had a stereo in my 90 CRX that could do over 120dB, and I routinely listened over 105db a lot. My left ear being closer to the left speakers in the door is worse than the right.
I remember being about 6 or 7 years old asking my mom what that sound was. My ears have rung every day, all day for as long as I can remember & it affects every conversation, every TV show, every movie, all music & sleep. Imagine never experiencing silence. I am very hopeful that it will be curable soon.
My dad suffers from tinnitus due to poor safety equipment at his prior job. I'm so hopeful for you both and anyone else having to deal with this condition.
For over 40 years, I have had a constant ringing after firing a pistol w/o hearing protection. Sometimes it’s not noticeable, sometimes it causes pain. I fear I will never hear the sound of silence.
I'm in the same boat, I've had a non stop ringing for as far back as I can remember. For the longest time I didn't know true silence was a thing, I thought this ringing was normal.
I cannot remember what it is like to not have a constant high pitched ringing in my ears. It never ever ends. If it were to end all of the sudden - I know for certain that I would cry. To just hear nothing again would be life-changing. I hope there is a cure one day - for all of us who must live with this.
@@amykelso2066I used to pray to God that at least before I die please grant me 10 minutes of silence. I pictured myself in a forest on a Mountain overlooking beautiful views. And nothing but quiet. Peace & quiet
I literally gave up sugar and began a keto diet, and my bad tinnitus went away completely...has been gone for 10 years, I'm still keto. Low carb has done other amazing things for me too but losing the tinnitus was one unexpected side effect I am grateful for.
But it does not work for everyone. I´ve been a carnivore for 6+ years and it healed everything but my tinnitus, unfortunately. Glad to know it´s possible for some people, though. :)
In reviewing the literature I found it disturbing that most treatments currently considered "effective" do not alleviate the tinnitus. Cognitive behavioral therapy, educational counseling and "habituation" are common treatments that have been studied. This only perpetuates the "learn to live with it" approach. Thank you for seeking the true root/roots of tinnitus. Please continue to disseminate your research so more care providers can be aware and more understanding about tinnitus.
Former lead singer in bands. I stood next to the drummer and keys. My tinnitus is outrageous and generally intolerable. It got so bad I began to lose my perception of pitch. My condition now includes clicks, pops and whizzing zips as well as the old ringing of 10+ pitches. If you can help me and people like me it would be a miracle. How can I find out more?
@@janedoe3043 Shore's Auricle device is likely to become available in the coming 2-3 years. That has demonstrated actual reduction in tinnitus, not just perception.
These are great news!! Thank you 🙏 I’ve been living with tinnitus for 20 years and I manage to cope with it even though I’m a drummer, taking many precautions, but I’ve adapted… still, what a delightful feeling it would be to be able to enjoy pure silence once again! What a dream!!
Thank you for researching tinnitus. Please continue. I have had to deal with this for most of my life and it is maddening. I honestly think that it has been a factor on my chronic depression. Here’s hoping that you find a way of getting rid of it in my lifetime so I can finally be at peace.
my perpetual tinnitus was so loud it would wake me from sleep after 1 hour max. 0 hearing loss. 3x 0.5mg clonazepam helped dull the nervous system, significantly lowering the sound, otherwise i would have had no choice but to shotgun myself. also 2 day fasting clears the tinnitus but the moment i eat ANYTHING even liquid makes the tinnitus blaze.
Mine is lifelong as well. I get rare moments where it goes silent, and it startles me. Momentary respite in the daily torturous screaming that never ends. White noise generators help me to a certain extent. Quiet spaces are deafening to me. Walking into my closet is almost head crushing. Like jackhammers on my skull.
@@5pilesI hear you. I’m in my 50s, had this high pitched constant pealing in my ears since I can remember. I was suicidal through much of my 20s and 30s. And 40s. I have no idea how I got through all that. I’ve tried all the tricks. Found a tone generator app and located one of the main tones (mine’s braided, a cluster of tones with several dominant and many subordinate frequencies). No change, though. Another comment said they’d had occasional relief. At this point, I don’t know what hearing would be like without the ringing. One foot in front of the other - you can do this.
I had an operation for a slipped disc in the neck and after the operation woke up without my tinnitus. Unfortunately it came back after 45 minutes. Still that was 45 minutes of bliss.
i have constant tinnutus in both ears since 2018, they became louder than ever in 2021 with the pandemic. now 2 year laters i don't hear them as much, idk if i just got used to them or if i'm being lucky but if you're struggling with tinnitus then know that they can reduce themselves with time and luck, stay positive and strong people ! also thank you Dr Kristin for you work, i hope one day anyone will be able to cure them like it is nothing but a simple cold.
Many of the medications given by doctors - are the cause for tinnitus!! I was put on blood pressure med that started my tinnitus, I changed meds but that did not make the tinnitus go away. 😢
How is god involved? Did the vatican or some church or temple or mosque give a multimillion grant for tinnitus research or what du you mean by "thank god?"
Keep up this research! I developed my Tinnitus at age 14 due to ear drum damage from having so many tube put in during my younger years. I am now 55 and I honestly cannot tell you what silence sounds like. More than 40 years of the continuous ringing, which in the last 5-6 years also started in my other ear. I would love to be able to have moments when someone says "sit silently and clear your mind" and I can understand what silence is.
Can i ask how you are doing? are you managing ok and getting on with life fine? Does it hinder you in any way, affect your sleep etc? I've had it 9 months constant like beeping morse code and have recently become ok with it during the day, but struggle at night as it appears so loud and noticeable. I still struggle with the concept that this is my life now.
The type of tinnitus I suffer with sounds like a summer night filled with crickets in the background… it’s annoying. Thank you for posting this video, i have hope for the future!
Mine sounded like crickets for the 40 years I've had tinnitus. Then I got a Moderna booster, and that night it was so loud I went outside to see what the noise was. It quieted back down to a more normal level, but the crickets were gone, and a more annoying high pitched sound took its place. I would like the crickets back. The booster also affected my voice.
I had powerful tinnitus that started when I was 20. Multiple frequencies both low and high. Omnipresent. "Nothing wrong with me." It dissipated a noticeable amount by 22 and by the grace of god was completely gone by 26. Also with no explanation. I pray for anyone afflicted and hope a cure is discovered.
Thank you so much for your work. I’ve suffered from it day and night for years and thought I was gonna lived with it for the rest of my life. This is really exciting news! Looking forward to the cure.
This is music to my ringing ears! I've been living with tinnitus for a very long time and I'm only 46. So long that I don't remember what silence sounds like. I would pay a LOT of money for a cure. Thank you so much for hosting this TEDx. You've given me some hope that I'll hear nothing again.
@@owntor1at 47, I've had tinnitus as long as I can remember. I'll be looking into this. It's also funny that my grandfather's name was John Leland Stanford Fancher.
My mother suffers terrible tinnitus in her left ear, almost never can she live without hearing it, not to mention she says it's so loud she almost cannot hear from her left ear, so thank you for doing this, I hope your works will be fruitful
I have tinnitus on my left ear only as well. The ENT doctor detected a slight hearing loss on the left ear and concluded that the tinnitus was related to the hearing loss.
I'm so glad so much research is being done on tinnitus. It seems like most information I find on tinnitus pairs it with hearing loss though. I do not have hearing loss. My hearing is actually excellent. But I have had tinnitus ever since going to physical therapy for some neck and shoulder pain I was having. The day she palpated my cervical spine almost 10 years ago is the last time I heard silence. I hope those of us who are tinnitus suffers without hearing loss will also benefit from the research being done. What I wouldn't give for a few moments of silence.
Have you mentioned this to your ENT doctor? Ever since I contracted this, I've felt there is a definite connection to tension/stress, especially in our cranial area, (particularly jaw, around the ears, & neck), as I've found some relief after deeply massaging at the back of my jaw, where it opens, and right next to my ear. It would make sense that aside from loud noise physically damaging our ear's ability to hear, that the volume also causes stress & tension to mount, and over time, or even in that moment, it may bring on the tinnitus. I know the night I got it, I was highly stressed & agitated, for after protecting my hearing (working as a musician) for 40 years, that the guitarists on stage with me that night, would play so overly-loud that it would cause the monitor speakers to howl & scream as the feedback would occur, really pissed me off. So much so, and it had been so long since I had to endure such volume, I totally forgot I had a great pair of earplugs in my sax case! My ear hurt for weeks afterwards, and I developed that hissing, which eventually spread to my other ear as well. The fact that having your spine palpitated directly led to your tinnitus, directly correlates to my sense of our nervous system, via the spine and cranium, playing a major role in this condition. If not the absolute cause, it definitely sounds like a trigger, and also an avenue to explore, as far as bringing a good level of relief, if not curing/preventing. Please reach out to a university or other research organization that is currently studying tinnitus, and tell them your story. You can easily find them via a web search, as some are already in stage II or III levels in their research. It's sad that such an intrusive condition has been around at least 50 years, & perhaps forever, yet only in more recent years, have more studies been launched. I'm sure that drug companies, seeing how large the market is, have jumped in with both feet.... Good luck, and you might want to find a top pro massage therapist who knows how to deal with releasing the jaw muscles (one familiar in treating clients with TMJ).
This is huge, keep it up. I can only guess that tinnitus is one of the most common afflictions in the US and especially one without as much public discourse as others.
Thank you for the talk and giving us an idea of your research and that of others. Please continue your research, many of us hope you’ll be very successful!
I suffer from the worse form of tinnitus and I suffer from it at night, every night. I wish people would take this more seriously. Apparently, it gets so bad for some people that they have damaged their ears or attempted/committed s u I c d e. It might not cause any physical issues. But, it can drive someone crazy.
I know 2 people that have thoughts because of tinnitus. One is a stranger I found online and the other is me myself. Even though both of us got a pretty understanding/supportive environment, going through it is still pretty hard. My only wish is that anyone suffering from tinnitus could get a full recovery soon.
Pulsatile Tinnitus. It’s the sound of pulsing. The reason it’s the most serious form because it can be life threatening for some people. Every few years I get scanned to see if I have any tumors. But, the pulsing can be caused by a number of things, not just the present of a tumor. It only happens when I’m going to sleep. So, I put some drops of castor oil in my ears and then put an earplug in. I can still hear it, but not as much. If you have any more questions, let me know. I’lol be happy to answer them and I’ll try my best to provide as much information as I can. ☺ @@jasond4752
I've had tinnitus as long as I can remember. I do not have hearing loss. I didn't know that ringing in my ears wasn't normal until my Mom mentioned to me as a child that my Dad was grumpy because he had a cold and that made his tinnitus louder. I asked what tinnitus was and then realised not everyone's ears made sound.
I don't feel like I have hearing loss either. I just notice I need to turn up the volume often, to drown out the noise, which others perceive as me going deaf. It's quite a battle at times...
I also thought that tinnitus was normal, since I have several chronic tinnitus since age 8. It was only at 13 years old that they became so loud I thought I was losing my hearing and that I started to tell my family about it. I also don't experience hearing loss, in fact I have an abnormally good hearing. This brings me hope that one day we'll get rid of these noises.
I'm exactly the same. I thought it was sound caused by blood flow. Mainly because tinnitus is always described as "Ringing" and my tinnitus is a high tone/hissing sound. Btw my hearing has been tested by an audiologist and was considered normal - no hearing loss
@@PaulG.x Same here. My hearing is excellent, except for the frequencies where the inner beep occurs (It can vary a bit). On those frequencies I was considered 'deaf' as I didn't hear the 'outside' beep. The inner one outbeeped it.
I hope that her research continues to bear fruit. If I could someday be healed of tinnitus, it would be a god send. Her speech and her awkwardness actually made me uncomfortable at first, so I'm glad I kept watching since what she said toward the end does bring hope to so many.
I think she was both very eager to share what she has uncovered and very nervous to give the talk! Glad she kept going and persisted, public speaking makes many people nervous
Considering I've lost hearing on my left ear completely and abruptly, and all that remains is tinnitus, this talk made my day. I don't know if I'll ever hear in stereo again, but being able to enjoy peaceful silence without "interference" will make me happy.
I had mild tinnitus for 10 years, but 2 years ago it exploded to a level I couldn't bear and I had a nervous breakdown. I was hearing multiple sounds at the same time, so loud, as if it was vibrating my soul. Since then it's settled down a bit, but it's a horrible condition and anyone that tells you otherwise has never had severe tinnitus. I will say that MILD tinnitus isn't that bad though. I guess like everything it's a matter of severity.
I have had that experience before. It was very nerve wracking. Hearing the ringing at multiple vibration levels at the same time, i went into panic mode. It settled down but I hear it now sometimes louder and constant. Normal day to day sounds don’t distract me from the tinnitus anymore
my perpetual tinnitus was so loud it would wake me from sleep after 1 hour max. 0 hearing loss. 3x 0.5mg clonazepam helped dull the nervous system, significantly lowering the sound, otherwise i would have had no choice but to shotgun myself. also 2 day fasting clears the tinnitus but the moment i eat ANYTHING even liquid makes the tinnitus blaze.
I'm glad you said this. I have suffered from tinnitus for over 2 decades, but in the first half of 2020 it quite suddenly got significantly worse. I have little doubt that there are reasons for that.
That is true. Levels can vary quite a bit. One problem with tinnitus is that nearly everyone has experienced mild, transient "ringing in the ears" and think that is what it is. However, moderate continuous tinnitus is far worse, and severe forms can be devestating and life-changing. Adaptation over time usually occurs, but it remains a daily challenge. Unfortunately, one sure way to increase the volume is to think of it or watch a TED talk about it 🤐 As others have said, I truly miss the sound of silence.
I LOVE your thought. Kind of me too. I “like” to think that the ring is the sound of this powerful computer brain humming and computing at light speeds ..
@@zugheysalcido oh really? Are you good at ignoring it then? I've had it for 9 months constant and it's like beeping morse code with varying tones on top. Very hard to ignore and at night i don't know how to ignore it.
@@APRBaller I had a eardrums Rupture like 2 months ago . Had infection and ottitis mastoiditis. Had surgery. Can’t hear well and the ringing got worse However I am able to ignore it most of time meditation helps a lot
My tinnitus is absolutely horrible and I’m really hoping the medical world can figure something out to give us some peace and relief. This is horrible.
Why wait for the medical world? Your doctor is probably reading up on his cancer, HIV and heart attack patients before worrying about your ears ringing. If there is a 80% cure in those thousands of papers, that's a pretty good enough cure rate. But any breakthrough cure will need years or decades of trudging through the FDAs bureaucracy to get to you. You have a computer and the ability to do internet research. Read those papers! Do it yourself.
@@StalkedByLosers I sleep with white noise on every night for past 7 years. It helps but my ringing is definitely louder than the white noise generator. The generator is at ballpark 50 decibels. My tinnitus is loud hissing and a couple of different kHz high pitched ringing. Sometimes I hear clicking sounds..occasionally it gets louder for a second then back to the regular volume…if it gets temporarily louder, why can’t it get temporarily (or permanently!!) quieter??? Those of us with chronic tinnitus would really love to find out about any new breakthroughs..
@phonkyfeel1 geeze. I have mild tinnitus but not that bad. When it gets bad, I suspect (call me nuts) that I'm hearing the electricity in the walls. Once it got so bad at night that I was hearing a modulation in the ringing. I focused in on it and I heard a woman talking on the phone, I swear. But that was the worst case, the ringing was so loud I could not hear anything else. I promptly went to the hearing center and they tested my hearing. I was hearing in super high pitched ranges above normal and could not hear lower frequencies in the human voice range. I told them I'm hearing the electricity in the walls and they looked at me scared. I came back for a followup a few weeks later and it had calmed down already and my hearing was back to normal
@@StalkedByLosers yours sounds uniquely bad. Glad to hear it went away. I think I’m a lifer…it’s been going on for a couple decades now at least (I’m in my upper 40’s). If medical insurance would pay more for assessment and possible treatments I’d put more effort into looking for help. It’s just going to be so expensive…added stress to the tinnitus. Anyways, hope your ringing stays away for good.
This makes sense because my chronic tinnitus seems to sometimes feel like its from further inside my head than my ears. That said, godspeed to you and the other researchers on finding if not a cure at least an alleviation or treatment.
my perpetual tinnitus was so loud it would wake me from sleep after 1 hour max. 0 hearing loss. 3x 0.5mg clonazepam helped dull the nervous system, significantly lowering the sound, otherwise i would have had no choice but to shotgun myself. also 2 day fasting clears the tinnitus but the moment i eat ANYTHING even liquid makes the tinnitus blaze. my tinnitus sounds like comes from the behind the eyes, lowering toward the upper neck.
I've got tinnitus, it's a bloody nightmare. I have to sleep with a fan on every night. And I have to take medication to help me go to sleep. I'm only 19
Pregabalin. Talk to your doctor. I have very bad tinnitus but it doesn't really bother me all that much. Like anything in life, you kind of get used to it.
Ohh honey, I’ve had it for over 35 years. I’ve learned to live with it. Some days it’s really horribly bad. But other days I completely forget about it. I don’t have hearing loss and I’ve never found help for it. You will work through it. I hope they find a cure or a way for you to cope with it. Just remember, you aren’t alone. Lots of us suffer from it. ❤
I've had Tinnitus for at least 20 years. I did panic a little bit when it first happened but since then I'm completely unaware of it the vast majority of the time. My hearing has dropped off to the point that I am told I need hearing aids (never bothered - just easier to say "what" :-). I meditate a lot. I've sometimes used it for meditation by focusing on the sound - if you feel a lot of anxiety about this work on acceptance, we all grow old, break down, and fail a bit at a time. In terms of the things that fail, this cause no pain, no real suffering that you don't create for yourself. This is the way things are, gain acceptance and it'll never bother you again. Try mediation, it will have a great positive impact on your life overall and this is but one small thing, but give it time - don't expect a few months or a year will get you there. It's only a curse if you label it that and keep that internal narrative going. Maybe one day they will find a cure, but it's not a big deal to me either way. Stop the victimization tape loops and save yourself a great deal of suffering. 😏 Best of luck to all.
I'm glad you have found acceptance, but keep in mind that although it's easy for you to say "what?", it's pretty annoying for other people who are speaking in a normal tone of voice to have to constantly repeat themselves. I've done a lot of caregiving for people who refuse to get hearing aids or refuse to use the ones they have! When it started to be my mom constantly making me repeat myself, I started encouraging her to go get a hearing test. Of course she didn't believe me at first, but she finally went and then got hearing aids, and after the adjustment period, everything is so much better. She found a really good audiologist who explained everything so well that it kept her motivated to get through the hard part. One thing we learned is that if you postpone getting hearing aids too long, those connections in your brain that are used for hearing can be lost. Sorry I don't remember the term right now, but I'm sure the audiologist will explain. You didn't want to put off getting hearing aids too long, because they don't come back. Also, the hearing aids might help your tinnitus. 🙂
@@carnation_cat You make some really good points, if I was to tell the whole story it would be that my mom died in Jan 2021 and had just gotten a $5K pair of hearing aids that even she told me I could have when she passed. Unfortunately I wasn't there when she died when my brother and his wife were having a glass of wine with her and was probably dead before she hit the floor. She was carted off ( It probably would have been my last concern even if I was there, which I wasn't). When I thought of it about a week later she had already been cremated when I was there in home where she died - calls to the ambulance service and the crematorium came up empty. A search for them in her house, I found the case and we recovered one on the floor near where she died, but the second one was never found. Honestly, I don't have that kind of money, I'm 67 living on SS now and much of what I got will go for my 12 YO daughters college fund. I love my daughter to death but could aptly be criticized for having a child that late in life and did it was my wife's desire and I selfishly thought I'd end up alone if I didn't enable that outcome - guilty but no regrets, it would be hard to imagine a better daughter. I took a reverse vasectomy and 3 tries at IVF which drained much of my savings. I've considered getting some of the $500 ones I've seen advertised, but when it was explained to me how they tune the the $5000 ones from my mother before she passed and the process to be very specific for a user another part of me thinks they are probably junk. I may start looking into the $500 ones, if they are 90% as good as the $5000 ones, I will try it. Frequently (especially in the Medical Industrial Complex as Ike warned us about) hype and overcharge are the name of the game to drain your account and put it in their account. I for decades bought several medicines I needed costing hundreds a month mail order from India and they all worked great for about 1/10th the price - I used to get really angry when you would see all these scare tactics in 60 minutes like interviews of people from the medical community "Exposing" the "Poison" that buying offshore can get you. I have no doubt it has happened, but it really was designed to keep you emptying your pockets.. So.. where do Pfizer, and all the big medical companies make the vast majority of their medicines? India of course.. and some in China. Okay, that only traveled about 10,000 miles from the original topic of my reply.. have a good one.
Having previously worked in EMS and having sirens directly overhead while in the cab of an ambulance, I can guarantee you that my tinnitus is from that career.
That certainly does happen, but for some of us, we've always had it and likely always will have it, barring an effective cure. In my case, it seems like it's because I've got super sensitive hearing and if I'm not actively listening to something then I've definitely got ringing in my ears. If I am listening to something, then there's a decent chance that I'll still have ringing in my ears. For whatever reason, the nerves that convey the signal just really like to activate for no particularly good reason. I guess they just want me to know that I could hear something if there was something to hear or they're trying to cover over the various other noises in the room.
This is incredibly valuable. I originally only thought tinnitus affected older generations... Until I started getting it several year ago - and learnt just how inconvenient it is to live with on a daily basis. Please continue the research and we'll hope and pray for a cure one day!
I developed hypertension in my 60's and my mild tinnitus exploded into a devastating condition, I didn't sleep for more than TEN weeks, I really thought that I could not survive. I finally got in touch with an audiologist. It was SUCH a relief, I cried when I found out there was a pathway out of the madness. The most important part of the treatment was when I was told that there was A LOT that could be done help deal with tinnitus.
There is SO much to be done. First get in to see an audiologist to get a proper assessment. Tinnitus has a base in the "fight or flight" mechanism and in the degradation of the hair cells in your ear. Get the proper explanation from the audiologist. For me learning to "ignore/minimize" the ringing was crucial. I'm sleeping again although I have occasional bad days. Seeing the audiologist was life changing.
I once had tinnitus, it started during a very psychologically difficult time for me and it was like a mosquito sound. So it continued for around 8 months. Then when it started to happen when i started to sleep in another house and I understood it's psychologic problem. Btw since childhood, mosquito sound has always created obsessive effect on me. Anyway I searched google and in a journal it was said that oxytocin deficiency is a reason for tinnitus. So I understood my problem. But because oxytocin sprays are not sold in my country, I searched for ways that men can increase oxytocin. Scientists found that looking at babies increased oxytoxin. I know it sounds weird but for a couple of days I looked at babies before I sleep. Second day tinnitus stopped and first 2 days I saw very chill and vivid dreams. After 3-4 days I stopped but tinnitus did never come back. Maybe it will be a cure for some of you. Gecmis olsun
Hmmm. Can you cite your sources of information. I’ve done tons of reading about tinnitus and never once read anything like you’ve stated. Also, it doesn’t just go away. Maybe you have something different.
@@phonkyfeel1 Hello. If you search "tinnitus oxytocin" on Google, sources will show up. But I have to add, I guess you're a drummer so your case might be different than mine. I can tell it worked for me because the tinnitus still haven't came back. Hope it helps
That was probably the most beneficial RU-vid video I've seen in 6 months.. How can I volunteer for human trials? My tinnitus is super annoying, and absolutely constant.. 24 hours a day for at least the last 3 decades.. I literally can not remember what it was like to have silence in my head.
20 years in a loud rock band gave me chronic tinnitus. It sounds like crickets constantly and its worse at night when there's no other sounds. If I wake up at 2 in the morning, that's it for me. There's no getting back to sleep it's so loud. I really hope this sort of research can produce a cure in my lifetime.
My tinnitus journey began after an ear infection, resulting in significant hearing loss and persistent ringing at 9.5 GHz. Despite initial struggles, I chose to face it with positivity. Life's challenges teach us to value every moment. 💪🏻😉
4 weeks for me so far, after viral inner ear infection, labrinthitis, an ER visit for severe acute dizziness, most hearing in left ear gone, muffled and tinnitus. Brain MRI next and high dose prednisone. Praying it all goes away. Sorry we're in same club.😢
I will sign up for whatever study you’d like! I always had incredible hearing, to the point that it was a party trick in my late teens and early 20s. But it was my mid to late 20s that things began to change… suddenly I couldn’t hear people sitting at the same table as me if the room was too loud, sitting I bed watching this video, I can hear my tinnitus. I now can’t sleep unless I have music playing.. And it has to be loud enough to block out the tinnitus.. but if this non invasive treatment can fix it, even temporarily, I am there! I believe they are using this kind of procedure to develop a treatment for depression?
Thank you for this light in the beeping dark. I'm in the constant tinnitus group since 1996, which started after a car accident. I really hope you can figure this out for all the generations to come.
I have chronic tinnitus. I'm so glad people are working on this. It can be a very hopeless and helpless feeling to know that I'll be hearing those tortured mosquitoes squealing away in my left ear until I die. What I've had to accept is that that sound will always be there, but the degree to which it bothers me varies greatly, so it's still worth living :)
my perpetual tinnitus was so loud it would wake me from sleep after 1 hour max. 0 hearing loss. 3x 0.5mg clonazepam helped dull the nervous system, significantly lowering the sound, otherwise i would have had no choice but to shotgun myself. also 2 day fasting clears the tinnitus but the moment i eat ANYTHING even liquid makes the tinnitus blaze. hang in there mate :(
@@5piles yah. Will do. I have enough appetite problems that I won't risk the fasting but I take teeny tiny bits of diazepam and it dulls it. I also find cbd helps with over catastrophizing. My herbalist recommends a gingko tincture and it's mildly effective, besides being a light nootropic When you don't have it it doesn't seem like a big deal but when it's just you and it in a dark room at 3am you realize what a nightmare that is... The endless sound. But there are highly effective ways to reframe. Even this video gave me the concept of "phantom sound" which gives it a mysterious trippiness instead of just being distressingly annoying
Thank you for your work. I am 64 and have tinnitus my entire life. My hearing always check out as perfect so at least I have that. But to know true silence would be a wonderful thing. For me, silence is not hearing anything else but that constant tone. It is difficult to describe to others what it is like and I have them think about a warm summer evening when either the crickets or cicadas are doing their thing. There is that constant, steady background noise that keeps the night air from being totally quiet. That is what I have only with perhaps a bit more electric "tone" than something like that which is organically generated. I wish you well in your research. Millions of us are counting upon you and your team.
Guess I'll just repeat what everyone else is saying... keep up the good work! Have had chronic tinnitus for about 25 years now. Would love to hear perfect silence again. For all those sufferers... hang in there!
As someone who suffers from tinnitus fairly regularly (especially when I lay down to go to bed at night), I've found that if you gently tap the back of your head with your fingers (where the ridge is at the back of your head -tap gently along that ridge for 20-30 seconds with your fingers, then stop ....then repeat) - doing this several times often relieves my tinnitus. I remember I once saw a video which gave instruction on how to do it, I can't remember why it works (something to do with the occipital lobe) but it does for me at least. If you also suffer, I'd highly recommend trying it.
Thank you so much for this info. I used to experience tinnitus as a result of my car accident and recently I don't. I have been listening to music, mostly classical music.
@@ewalichorowicz4614 Hope it helps for you! I've tried to find the video to paste a link, but can't find it anywhere. I feel more people should know about this - while I think it doesn't help everyone, it helps many and is worth knowing/sharing etc :)
Thanks. I tried this & it seemed to work. Not initially, but I tapped a bit harder & it seems to have quieted down a fair bit. Might just be placebo though. Still, if it works...
@@The0rs That's excellent news! I'm so glad this info has helped people like it helped me. My understanding is that it works for lots, but not all cases. If it doesn't work at first, just keep tapping for a short while :)
I am 42, have tinnitus since 21 so half of my life with this condition. I have forget, as many of you are, have the silence sounds. It is so nice to know that so many smart and dedicated people are trying to solve this problem, and that we will probably have a solution in, lets hope, near future.
No CURE. Millions of pathways in brain . Cannot pin point which is misfiring😡 . I feel ur frustration. Heres my story ; I had a sinus infection from AIR CONDITIONING in the ceiling, particles were breathed in at work. I have whooshing hissing beeping tones 4 over a year now. Blew nose hard and ears popped. Went deaf in right ear. Infection cleared with antibiotics(amoxicillin)from hospital. Right ear Hearing returns. Now this EMOTIONAL STRESS OF NOISE. Tried MASKING NOISES by headphones. 4 hours a day. Bit of a relief. Annoyingly Noise comes back. DR gave “brain blocker signal medication” didnt work, instead caused MEMORY PROBLEMS. THREW POISON TABLETS in THE BIN thats were they belong. Phoned hospital and was told Still on ENT waiting list. Appt due THIS Y E A R ? Lack of DR’s & regular strikes over pay. It seems the “almighty creator” has overlooked earnoise.
I’ve had tinnitus since serving in the Marine Corps. I hear it constantly. It makes it very hard to concentrate and even fall asleep. It drives me crazy.
I have got tinnitus after firing AK-74 (Kalashnikov) without hearing protection... Instructors were morons. 3rd day in the Ukrainian army and lost hearing + tinnitus FOREVER.
I have had tinnitus and high tone hearing loss for almost 50 years, following a scuba dive. After about 3 years the vertigo went away, and after more years I became habituated to it. How wonderful it would be to hear silence before I die. I have no expectations of that, but I hope this new research provides relief for younger generations. My advice would be, hang in there - you can get used to it.
Good to know there is some research in this area, even if it is still in the early stages. My tinnitus started around age 30, was intermittent in one ear, and slowly overtime progressed to being constant in both ears. Over the same period I have also experienced some progressive hearing loss, especially in the higher frequencies. I haven't reached the point of requiring hearing aids, but the tinnitus can definitely affect quality of life, and can, perhaps subjectively, feel worse or more noticeable during periods of stress. Hopefully an effective solution can be found for future generations. Good luck with your research.
I've had tinnitus absolutely continuously for 26 years. For most of that time, we've been plagued with ads for terribly disappointing treatments and, at worst, pure scams. This is the first time I've allowed myself a glimmer of hope of having the ringing stop before I die
Ive had tinnitus since May this year. Just randomly started one day. I had a virus that same week and the ENT thinks my audotory system was just damaged from the virus, resulting in tinnitus. When I'm busy and my mind is elsewhere, I forget about it completely. But entering a quiet room etc and it's like "I'm still here". It's definitely improved in the six months it's been there. There have been points recently where I swear for a few minutes it's either gone or so quiet it has no impact. Most days I'm positive, and I think about the prospect of it dissipating one day. Other days I just want to end it all, because the thought of living with this forever, or it getting worse, really scares me. Its so disappointing that for something which can really devastate people, there isnt a medical cure for it.
Susan Shore can help us. I had it since January 2015 after a virus… a cold with 38,3. It is still here. You will have good days and bad days. Its true. Now I’m 26yo. Stay strong, bro ❤
I clicked so fast! I have tinnitus and it’s pretty Loud. I have to sleep with the TV on or it actually drives me nuts. I’ve sat on the side of my bed and cried. I’m 62 & have had it for 6 years. I’d pay ANYTHING to alleviate it.
Tinnitus is permanent for me, and it seems also hereditary as my mother has it and my grandmother had it. It's worse when I'm not busy, probably because I am concentrating on something else. Quiet times are worst. Please keep up the good work Kristin. I'll volunteer as a case study any time you like.
Great talk! I've had tinitius longer than I can remember. I've "learned to live with it", at least to some degree. There are times that I can totally ignore it, but others (like now) that it's very pronounced. I can still "hear" normally, it's just a constant background...like 17year locusts on a medium volume.
Kristin Barry, I hope your research proves fruitful! I’ve suffered from tinnitus for nearly 40 years and I would dearly love to not experience this constant noise for even a short time. I’m in my seventies now and can only fall asleep if my brain is distracted by listening to music or RU-vid videos or tv.
A dentist caused my tinnitus from drilling too long while attempting a root canal. Its been years and its still as loud as then. I remember it took several months before my brain started to essentially ignore it and I was able to function again, sleep, etc. It tested my sanity all the same.
Thank you for the research! I suffer from tinnitus, but I have largely learned to adapt. I will say that even a less invasive, magnetic based therapy targeting the brain could have unintended side effect. Still, encouraging!
When my attention is elsewhere, I do not detect or register my constant tinnitus. When I am aware of it, I don’t let myself focus on it as something horrible or annoying. I noticed this same phenomenon as a child before I had tinnitus because we lived under a flight pattern. The planes would roar overhead, making conversation impossible, but if I wasn’t conversing or listening to anything, I was unaware that a plane was overhead. My brain tuned it out for me. Maybe there is a way to train the brain to tune out tinnitus all the time. Hypnosis or a new cognitive therapy. Not excited to apply magnetic forces to my brain.
I came up with this theory of tinnitus being a compensating phantom sound for myself several years ago and it definitely helped me making friends with it.
Same 😂 I'm used to it. Those with anxiety, like mom, focus on it and go to doctors, but in fact, if u just forget abt it, it goes away or let's say u dont pay attention to it !
I would guess your tinnitus is only moderate, not bad. Sometimes it seems so loud that I barely focus on other sounds. But yes, if I can take my mind off of it, it does seem to lessen.
@@davidhorizon8401 Have you tried those cricket videos here? I've found those help a lot. Otherwise, what has helped a lot for me in the past is trying to just use my auditory imagination and use up the capacity that the brain has to generate the sound in the first place. The more vividly I imagine the sound, the harder it is for my brain to make the ringing. I have no idea how well that works for others, but given that this is a psychosomatic disorder, it's not an unreasonable thing to try and as long as there isn't real hearing loss that needs to be treated, something that's unlikely to cause problems.
yeah I got it in '09, It drove me crazy for like 8 years, pretty loud, but something happened where my attention shifted and it doesn't bother me. I hear it very clearly right now paying attention to it, its bad, but I can let it go. Very grateful.
It has been a full year for me now, constant high-pitched ringing. My whole body feels like it has changed, constantly tense, much more anxiety. Thank you for your passion and research. Where can we sign up for human trials??? Keep on keeping on. It will save countless lives when a cure is found. Tinnitus can be truly unbearable and unescapable. Not a great combo.
