Tips for Adults Living with Stargardt's Disease | Life, Legally Blind ◌ alishainc

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Here's the third and final instillment of my Stargardt's Series this time it's aimed at adults. Here I'll answer you FAQ's from hundreds of your emails!
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Alisha's Guide
This channel was created to share a passion for style, hair care and lifestyle related videos. Created, filmed and edited by a legally blind person, this guide is proof that you can overcome limitations.
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#alisha #lifelegallyblind #alishasadvice

Опубликовано:

13 сен 2024

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Комментарии : 30

@shadthaali1125 Год назад

I don't have the same disease, but I have another more rare (I think?!) disease called Best's Disease and have the same issues - loss of central vision but still have peripheral vision. It is super super hard and your positive attitude and solutions are really helping me deal with the changes that keep happening to my sight.

@alishainc Год назад

Oh wow, so sorry to hear you’re going through something similar. I hope that things get better for you. (easier is very unlikely) but you can still live life to the fullest. Sending love your way.

@deveshaeron4700 2 года назад

I m not alone,,,, hurreeyyy,,,

@marcelo.2734 Год назад

Thanks for the tips on Stargardt’s disease. I hope that the flickering of the lines - in your eye- is not an everyday occurrence. Hope that they find a drug that trick the cell or repair it to either cure the disease. Thanks for always staying positive and hope to more videos like this in the future. Paz 🇧🇷🇧🇷🇧🇷🇧🇷

@alishainc Год назад

thanks it's not every day luckily

@eVaniwithaV 6 лет назад

I was diagnosed in 2005, and they told me the same thing, a cure was being worked on and would come around in 5-10 years lol it's comical now, but like you said, don't hinge your life on waiting for a cure, as much as I wanted my life to go back to normal, the mental energy I put into trying to "go back" was taking away from me finding work arounds in my "now." Great video as always!

@alishainc 6 лет назад

Yeah it makes it easier when you shift your focus

@hubb123456 3 года назад

@@alishainc Oh, and I think you're awesome!!!!

@thelakesidefitnessstudio2629 Год назад

Amazing, just come across your channel, nice to hear about someone else with my condition doing so well. PMA is the most important thing with the condition, I work so hard, and had to completely change career after my diagnosis. For me that isolation is the hardest bit, and people just really don’t understand it, I’ve never met anyone else with the same condition as me. Despite this, I went into personal training and sports massage therapy, and I now own my own gym in the countryside in England, with over 150 clients, things are amazing… Keep up the good work ❤

@alishainc Год назад

Congrats on owning your own gym that's amazing and thank you for your super sweet words! I hope you're managing with the isolation the best you can

@LauraAnn1980 6 лет назад

I found out that I had "something" wrong with my retinas almost exactly a year ago. I got the official diagnosis of Stargardt in May. I was 37 then. I am 38 now. So I totally get the thinking about how life was before thing. That's REALLY hard for me at times. I dig the practicing mindfulness thing. I have a great therapist who is always encouraging me to practice my mindfulness skills and when I am stressing or getting really upset, taking 5 minutes to focus on my breath really helps. Last time I was examined I was 20/50 corrected in my left eye and 20/70 in my right. I just got progressive glasses to help with reading however I am starting to notice a decline. The progressive lenses are a bit disorienting plus work is super stressful and I have been dealing with pretty severe pain from my TMJ sp yeah.......lots of stress. Most days I dont think too much about Stargardt but on the days I do, well it's a struggle not to feel really sorry for myself. And I hate the flashing lights......soooooo annoying. I have had that since my diagnosis. And ETA, by ophthamologist at the National Institutes of Health here in the states told me to avoid Vitamin A rich foods and to wear sunglasses soooooo. You have to be pretty smart to work at NIH so I trust her.

@alishainc 6 лет назад

Thanks for sharing. I’m so happy you have a therapist that helps with mindfulness. It’s so important to be aware and present

@thehealingiris9568 6 лет назад

Very inspiring 💞

@j.staley7425 6 лет назад

Thanks Alisha for the encouragement!

@yvelynejoseph5858 3 года назад

It’s been 3 years. I’m so depressed, I cry every day I just don’t how to adjust. I’m 26 years old

@alishainc 3 года назад

I felt depressed at 25 too just know eventually you’ll find a way to adjust and adapt to your diagnosis. Look for a support system it’ll make a huge difference

@deveshaeron4700 2 года назад

I can connect with you and must say,,,,, it’s like getting hang till death punishment from god,,,,, having STARGARDT disease,,,,,,,,,,,

@alishainc 2 года назад

It's hard

@hannahmorgan2256 4 года назад

Hi Alisha! Thank you for sharing your experiences with us. I have a question about Stargardt's: Do you have color vision loss? If so, what does that look like for you?

@alishainc 4 года назад

It's getting harder to decree shades but I can still see them

@bridgetpanych2871 4 года назад

Thanks Alisha for sharing! I have Stargardt’s disease and often feel lonely or disconnected in social situations, because I can’t always see who I am talking to. Do you/anyone experience this also, or have any advice?

@alishainc 4 года назад

I feel that way most days. If I'm close to someone, I'll sit closer to them so I can actually see their face. Otherwise, I'll work twice as hard to be present and quiet my thoughts that wander when I can't make eye contact and I feel sad about it.

@bridgetpanych2871 4 года назад

Alisha's Guide Yes, that is exactly how I feel. Sometimes I find it difficult to focus when others are talking to me. Then I feel embarrassed to move closer, but that’s kind of a stupid reason to be embarrassed...now I think I am developing poor listening skills, and that sucks! I am really glad I stumbled across your video. I am vowing now to practice being more present. Thank you. :)

@ralbynb158 5 лет назад

I'm 25 and was diagnosed 3 years ago . I've had two kids since then and would love to know any tips for parents with the disease.. typical daily activities and struggles I encounter would be nice to know if tips of ways to get through these things easy .. I've found things which I have adapted myself to

@alishainc 5 лет назад

Thanks for sharing. Honestly I’d ont think I can give tips, I’m not s parent but hopefully a subscriber will seee this. Moment and have a suggestion

@cristinasalinas9075 5 лет назад

Just curious. Do you have ridges or lines on your nails?

@abishagayathri4883 6 лет назад

Thank You even me too Stargarts victim and taking acupuncture for the past 5 days May i know is acupuncture gives good result ??

@alishainc 6 лет назад

It did not for me but it may work for you

@devinmartinez316 5 лет назад

Just clicked on this video and long story short I'm 20 have had this since I was 8 n hsve been 20 400 pretty much as long as I could remember it n I growing up in school with this I did a lot of hiding my disease and never searched le reached out to anybody because the people I did know with vi www all fully blind or tbh a little weird nobody ever has gotten it but I would love to just have a conversation with you or something because your way more educated than me n I would lo w to talk to somebody who gets it lol ig:dmarthedude

@alishainc 5 лет назад

Ok you can message me If you haven’t already. I will always reply it might just take some time because it get a lot of messages but I will reply.