TRYING OUR FIRST WHEELCHAIR + AAC IS HERE ✨ SAHM DITL vlog 

I’m a training school psychologist who works with a lot of children with disabilities. And the way you talk so compassionately about Lucy and her independence, and assistive devices as support towards walking goals while understanding walking may not be in the cards has me sobbing tears of joy. You were destined to be Lucy’s mom, and it makes me so happy that we have advocates like you in the world ❤

Your dedication to raising awareness for her rare diagnosis is so heartwarming. Yall have done an amazing job!! I've enjoyed watching your family grow all these years.

Lucy’s development in her core strength is so evident when she’s sitting in the wheelchair! Go Lucy go!!!!

as an educator to people with disabilities, it is so comforting to see you both do everything you can to promote independence for Lucy. everything is such a process that you dedicate so much time to. and that is so commendable. thank you for being such amazing, proactive parents!!! 🤍

The way Lucy looks at you and Grant is so sweet.

As a speech therapist that works with AAC and students with disabilities this is so exciting to see her getting into all her equipment and you as parents supporting it all

Just in case y’all don’t hear this much(but honestly you should hear this EVERY DAY) you and Grant are such great parents!!

As an adult who requires a wheelchair occasionally, hearing how you talk about Lucy needing it is amazing. Your such an understanding parent who you can tell lives for Lucy!

Long-time follower, and was just thinking of how different life is for you now (like, who could have imagined it back when you were making videos in ye olden YT days?!) yet despite the life-altering challenges you have faced, you've somehow remained so genuine, determined, and positive. I am in awe of you and Grant and Miss Lucy (who is suddenly looking so grown up in her wheelchair?!) and appreciate your candor and openness in sharing your journey as a family. I know her story will help raise awareness, generate more funds for research and most importantly, improve quality of life for children and families who are also on this journey. Kudos to you all for being such tireless advocates. I work on the other side of the circle of life (with seniors) and I have such a deep appreciation for caregivers at all stages of life. It's HARD. x1000. Keep up the great work, Mom and Dad! Y'all rock. Big love from Dallas. Can't wait to see what's next in this beautiful life story!

Oh my goodness, Lucy is getting so tall! She’s absolutely precious. 🩷

I’m a speech therapist and was so thrilled to see the AAC for Lucy. She’s gonna pick up on it so quickly. So many parents resist the device but it’s so helpful giving kids a means to communicate as early as possible whatever that may be so that they don’t feel so frustrated and helpless when they need to express needs. I’m just so happy. You’re doing amazing Lucy and Grant too of course! 🌵💛

PT here - Lucy is flourishing!! Look at that sitting balance! She's interacting and communicating with you, Sam, her environment, etc. I love that you are looking into a wheelchair and gait trainer. I agree, this will only increase her independence, not hold her back!

As someone who has cp and is a full time wheelchair user, it’s awesome you’re getting Lucy a wheelchair so young! I used basically a stroller until I was in high school and I wish I had gotten a wheelchair sooner because it would have helped me with my independence.

Love seeing Lucy get set up with all of her devices for independence! I work in vocational rehabilitation but used to work in a supportive classroom. Much love to all of your through this journey!

Lucy is growing like a weed and she is such a bright, happy little girl!

So much has changed in your life since the days of sitting in your car vlogging while you were in college, and now that I've got to be an outsider that you allowed to get to know you and your family I just love seeing this chapter. I know you guys never expected it but you have embraced it and everything that you guys have gone through and what you have in front of you is just an amazing journey. You guys are so strong and you have such a beautiful daughter and I can't wait to see what she can show us. Your family is amazing thank you so much for letting us witness what you go through. I told so many people about Lucy's story ever since we got to "meet" her and I'll tell you what there are so many people rooting for her that have never even seen her❤

Lucy looked like she was ready to go with that wheelchair. She's just so cute. I'm so happy she's doing well. Do whatever you can to get any kind of help for her that you can. This way she will have all the opportunities. Sending you guys a great big hug!!

I love how gentle the kids were touching each others face. So cute. Glad to see you all doing well.

I love the update on the panel you're on! I also love seeing you guys show up for Lucy. Every single day. Fighting not only for her but others like her. It goes without saying that all kids deserve grown ups who love them and it fills my heart with joy to see you guys pushing so hard so consistently. Keep it up! ☀

It makes me so happy to watch her progress. My grandson is non verbal autistic and he communicates with his iPad. It was what was used in the school room for them to communicate. You are strong parents

I just feel like every day and every post I’m like go Lucy go just like an honorary auntie

Lucy is so absolutely beautiful and precious. You are blessed to have her and she is blessed to have you.

Seeing Lucy and her Cousin Sam is so precious! 💛

It’s so special and so touching to see your dedication to doing all that you can do to see that Lucy has every possible chance to be all that she can be. Go Lucy!

Lucy is such a little dolly! She's so full of joy! 🩷 She's so lucky to have such fierce and loving parents who are also her best advocates. 💪

Lucy is the perfect combo of you and grant. And she seems like she’s going to do really well in her wheel chair, she seems strong. Oh and Luna is so cute ❤

Idk how but I can’t imagine Lucy having any other name than Lucy. It’s just so perfect just like Lucy! Also, she favors Grant SO much!🥰💜💜💜

Lucy is blessed to have you both as her parents. I love how cute Lucy and her cousin play together. It's so nice to see the twins. TFS your DITL!

Congratulations Mary! Twins! Oh my Lord how special. Lucy is growing like a weed! From each time we see Lucy, i think she looks like Captain Grant. Then she looks exactly like Leigh Ann. She is just gorgeous

Omg her little smile when you woke her up from her nap to play with Sam 😭😭 she is such a sweetheart!! I love that you have found such a wonderful team to support Lucy, having her therapist there to help with selecting her mobility equipment is amazing! ❤

Lucy and her story, her development and your dedication remind me so much of my niece who was born with an extremely similar condition and rare disease, DYRK1A Syndrome. I remember when she got her walker, her AFO’s and her IPad. ❤️ I’ve been watching your vlogs for soooo many years (like Revlon lip stain days). You are a great mother and I feel like Lucy’s will and ambition will bring her so many new and exciting developments. Sending you all the love!

I'm an adult who got my first wheelchair 2 months ago due to my own worsening conditions. It has been the greatest tool to my own independence!! I can go to places like the library, the mall, or the museum where a lot of walking/standing is usually expected. It's so nice to know I get around without fatigue and other issues. I hope Lucy loves her wheels just as much! 👩‍🦽💖

My 10 month old daughter is Lucy's BIGGEST fan, she LOVED watching Lucy play 🤍

She’s so cute in that wheelchair. I hope she has many wonderful walks in it. ❤

What a little angel, Leigh Ann. So crazy to see how far youve come from your old days. Life is amazing.

Leignann you inspire me in so many ways. Your strength , determination and charisma I can just tell has already done so much for the awareness of stxbp1. I look forward to following your journey and continue to support you, the cause, and your family in anyway possible. You have always felt like a big sister to me

I have been a subscriber of yours for a long time and as a wheelchair user who was born with Spina Bifida it makes me so happy watching you advocate for your daughter's independence. You are a wonderful mom. ❤

so happy to see another vlog from you:) I love the energy you Lucy and grant bring to the world ❤

Gosh, it is like being reunited with an old friend. We have been with you all along. Thank you for sharing your journey, for being an advocate, and most importantly for sharing Lucy with us. Sending so much love to all of you.

A Leigh Ann and Lucy vlog??? Best way to start a week! That little girl is too dang cute! You're such a good mom, Leigh Ann. Granteroni isn't too bad himself 😉

Lucy is so adorable! You’re such a great mom. And I don’t know if it was just me but when I saw her in the wheelchair all I could think was I see her walking one day! I feel like she is so resilient and there is so much in the cards for her I’m sure! I’m so glad that you and grant are her parents! I’m a long time subscriber of yours and it’s so heartwarming to see you as a mom! ❤

Leighann, as a special education major I wanted to say how proud I am of your ability to understand Lucy's needs and your positive attitude for everything. We often hear that it is very difficult for many parents that have children with disabilities to be so forthcoming especially when their children are young. Your positivity in everything is contagious! I'm so glad Lucy is getting a wheelchair and AAC device as it will help her gain independence as you said. :))))

I absolutely squealed when I saw you posted. Love seeing Grant and Lucy and mom. You guys are truly making a difference. Yes. I watched Shiny Happy People. They need to add some more episodes. So interesting.

Oh I'm so interested to hear about your and Lucy's AAC and wheelchair journey! I just started a new job as an early support family services provider and we get a lot of medically complex kiddos who use various adaptive devices. It would be awesome to know how that works from a family's perspective because that isn't in our purview.

the work that you are doing is amazing! getting a dx code is BIG. (incredulous there isn’t one already!) Lucy is an indomitable spirit! god bless you and your beautiful family, congratulations for the twins!

It’s so amazing to see her progress! You both are truly doing an amazing job. I never had any doubts you’d be a wonderful mother, but it definitely shows! I hope you are all doing well!

She is so strong!! I don’t think I in all my 40 yrs, have ever had as much core strength as Lucy has at 2. She is such a strong and happy little girl

Thank you for continuing to share your journey with us. We are all rooting for Lucy and the entire Granteroni family ❤

Lucy's core strength seems it's really improved! Go Lucy!!!

Lucy’s eyes “communicate” so much ❤ Love watching her grow.

Your love for Lucy brought me to tears. You and Grant are both incredible parents and Lucy is simply amazing ❤.

As someone who grew up around an uncle that needed a wheelchair due to Muscular Dystrophy, it really warms my heart seeing how supportive you are of Lucy. A caring and loving family is crucial to overcome those disabilities and let her discover and be her best true self, in her own way. The wheelchair will give her a lot of independence! 💖

God definitely knew what he was doing when he entrusted Miss Lucy to you!

Yay! Wheelchairs are such a blessing. I have one. It really makes life so much easier. Lucy is so beautiful. I'm so excited to see your video. I just got out of surgery (successful!) and am waiting to go home. Needed a cute video to watch while I bide my time waiting for the transport out to the car. Lucy is the best! Love to Lucy and Luna and you and Granterooni!

Who's cutting the onions?! 🥺 Lucy is such a sweet angel. You guys are doing such an amazing job!

So excited she’s getting her AAC device!! That is HUGE ❤️ and it’s a game changer for sure! Go Lucy, and go Leighann! You are super mom 💪🏽

You, Grant and Lucy are all so amazing! Can’t help but tear up watching her be so strong and watching you talk about her ❤

First off I've been watching you for YEARS, love your channel. I wanted to thank you for bringing awareness not only to your daughters condition but to disabilities in general. I was born with Spina bifida. I got my first wheelchair around the same age as Lucy. To get me to learn to push myself my parents took me to the mall. I love your drive to get her to have as much independence as possible. You were meant to be her parents.

Yay! I literally paused my video I was watching when I got this notification, it's always a good day when Leigh Ann vlogs! Go Lucy go! You are so cute in your wheelchair and playing with Sam Bam ♥️

Such exciting updates. I love watching Lucy grow with your and Grant’s love. ❤

You and Lucy are my favorites! Can’t wait to see part 2! ❤❤❤❤❤

She's the sweetest. As always, sending you guys so much love and happiness ❤.

I’m so proud of you and Lucy!!! 🥹 you bring each other so much joy!

I feel it's no different then when i put my toddler in a walker to help her/ him learn to balance and walk. I think this will be good for Lucy. So happy to see you back and fingers crossed yall stay back. It's awesome to see her grow.

Your positivity just radiates and shines on to Lucy!! She is lucky to have you ❤

Crying as you’re talking about preparing your statement! Proud of Lucy, and proud of YOU 💛✨

Watching Lucy and Sam playing was so precious! ❤

Lucy is doing so good , you guys are amazing parents!

Thank you for all the updates! So glad to see you're all doing good. Lucy is a real fighter, and so are you!

So cool getting to see Lucy’s journey with stxbp1 and see her grow up and advance! Thank you for sharing with us 🤍

It's so good yo see you on RU-vid. Lucy has the best smile and beautiful blue eyes. All of her progress is so exciting! So is her new chair and communication tablet, that is so cool! I'd love to see it in use. Lucy is blessed to have such strong parents advocating for her and the entire community!

So happy to see you, Grant, lovely Lucy. my favorite Luna, your sweet mom, handsome Sam, the adorable twins and your smiling sister! Whew! Also excited to see Lucy’s development (what a cutie she is!) and all the new mobility devices coming her way. I’m sure she’ll be zooming around the house in no time!

Go Lucy! Amazing to see how strong you are! You have a huge cheering squad! 🎉

So many big things for Lucy and you guys too!! Go Lucy Girl!

I'm so proud of Lucy and can't wait to see all of her new accomplishments. Your dedication to Lucy is so heartwarming. 🩷

So happy to see you back to vlogging!! You seem to really enjoy sharing your new life with Lucy and I love watching you ☺️❤

Lucy looks like she is doing amazingggggg!!!! And she is so fricken cute. So happy to see you back 💞

This is all very exciting news for Lucy 🎊🎉🎊 She’s getting soo big and that smile is so contagious 🥰

I love seeing you guys advocate for Lucy and kiddos like her. You guys are such sweet parents and you can just see how much love is in your family.

shes doing ssoo good. its soo happy to c her thriving n cant wait to c her in the future. shes gonna do so good. shes absolutely precious. n u omg doing such a great job every single day with how u r with her. also luna bean omg ive missed her ive been watching since b4 u got her shes too kute.

I’m so happy for you. Lucy is making great strides in her progression. It’s very noticeable. ❤❤❤

Your whole family is gorgeous

Congratulations to your sister! All the babies are so cute, I can’t believe how big miss Lucy is getting! Major kudos for speaking to the the FDA and advocating for Lucy and her peers on that level, that is so dang cool! 💙

You guys are great parents and she is a great kid. So happy to see her thriving and growing into such a sweet, gorgeous and clever little cutie pie. Wishing you all the best of luck on your journey.

I think the gait trainer and wheelchair are both important. When Lucy gets tired using one, she still has the other!! Lucy is such a happy girl and I can’t wait to hear all the things she has to say with her new tool!! Amazing🥰🥰🥰

Love to see it it’s only 5 min of your day, the growth, the positivity, the educational part of Lucy’s life. It’s great to see it! Been here since pre Luna and I’m happy to be allowed to be (in a small way) part of your journey👌✨

It's great that you are able to vlog again. Lucy is adorable and you and Grant are wonderful advocates for her.

I’m a teacher of the visually impaired and it’s a joy to see students zip down the hallway in their gait trainers. Lucy is making so much progress. 💗👏🏻🙏🏼

Love a new vlog!! Lucy is such a precious little girl!

You guys are doing such an amazing job with Lucy. She is so lucky to have parents that are supporting her abilities and keeping an open mind with regard to stepping stones and final destinations. And you are both so lucky to have sweet Lucy showing you a new view of the world. So excited to see how her communication flourishes with her AAC device💕. Thank you for sharing with us all.

So happy to see a new Leighann and Lucy video in my feed!

Haven’t watched a vlog of yours in years and opening up and hearing you voice was like connecting with an old friend❤ I am so happy for you and how your family has grown, you all deserve all the best!

Wow! I am so proud of you LeighAnn! You are such a great advocate and are so passionate about Lucy and her diagnosis. Love you all. God Bless! 🥹😍

Aac devices are the best! My daughter has autism and she used it until she became verbal! So excited to see her new chair! Love an og follower ❤

Always love seeing you and Lucy girl! ❤

You and Grant are such loving, dedicated parents! I see a bright future for miss Lucy and family :) Oceans of love to you all! Congrats miss Mary on the twins!

Thank you for sharing Lucy with us again! She and her cousin playing together was just precious! I've tried several Osea products, all wonderful.

When she woke up from nap and her little smile waiting to see her visitors 🙂

You have so much optimism around Lucy and each of her wins! You are the reason she is doing as well as she is. I love your perspective on the wheelchair and just giving Lucy all the options so that she can experiment with what supports her at different stages. Here for you and your family always❤

I must say... i was so thrilled to see he standing on your story on IG. I know how much you both tried and how much Lucy has attained because she tries her best and beyond!! She is a fierce fighter!