Two young boys' journey with rare genetic disease 

Those parents are truly incredible. They really show us we need to be thankful and grateful for the small positives in our lives. Grace and humility.

Lord heal these sweet children. Give mom and dad strength 🙏🏽

How devastating for the parents and for those poor children. No child deserves suffering like this, especially don’t deserve being in pain. Sending prayers.

Two amazing parents, those sweet boys are blessed to have you xx

How I wish I could take away this illness and let you enjoy full lives with your children. These boys are lovely, sweet, beautiful little children, and even if their illness is terrible, they themselves are a blessing. Our family too has lost a child to the same or very similar illness, with the same trajectory, and I have donated toward its cure and will continue to pray that a cure (or at least treatment) becomes available. Sending you love and wishing you enjoyment of the time that you have with your little ones. May you make many beautiful memories together.

Prayers for these two boys and their parents ❤❤❤

Sending love and hugs to all 4 of you. Such precious little boys. They are both so sweet and handsome. I cannot even start to understand what you go through on a day to day process. And I am sorry in advance for not really knowing what to say and I really hope what I do say is not taken wrong, I just wanted to say that I hope you are aware that both of your sons are very special little angels and I agree that you both were made to be their mom and dad. Keep living everyday and try to take in and enjoy every moment you can with them. And always remember that your family is and will always be a Special Family. You were given an amazing and great gift to be parents to 2 of the most treasured gifts anyone can ever be given. Many blessings and much love. 💜

I send you guys all my love!!!

Sending love and Prayers to you and your Family..

God bless this family!

Love. Prayers😢❤

So heartbreaking. 😢😢😢😢😢😢😢😢😢

Love and prayers to you all. Your doing a fantastic job

Sending love from my sister & I who have a different rare genetic disease. ❤

Have you tried natural therapies? Praying for you and your boys.

❤😢❤

😊😊❤❤

❤❤❤❤

Mine are dealing with this Kinda as well 😢😢😢😢❤❤😢

🙏🙏🙏🫂❤️

Please watch Andrew Womack, and the healing videos on there. I fully believe your boys can be completely healed. ✝️💜

I send you all my love.