UMC9 - Staging, Treatment type and next steps

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I wanted to start this off by saying that the appointment didn't go as well as we'd expect but then that would scare the living daylights out of you and of me having to watch it back - the appointment itself was terrible but the results were... good? Can I say good if they confirmed that I do have cancer? Stage 2A is good though, if you are looking at a really sh!tty scale where all the options are bad but you need a "not so bad" option.
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10 сен 2024

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Комментарии : 257

@mrennie5158 6 месяцев назад

2a SCC these days has an encouraging outlook for success of treatment, the Castle Hill team will plan to blast it into remission and keep it there so get ready for really gruelling treatment Mandy but you’ll bring a positive attitude to this and I promise, if you keep your chin up, you will do much better coping with this. Don’t let arrogant medical staff get to you, I’m not making excuses for him it’s just that as a nurse myself, I tend to find the more blasé the consult, the less worried the medic is, if that’s any help. Not an excuse, just an insight! Hand over any worry to your caseworker and shelve the anxiety in between appointments, and you and John get planning the days out, the treats, big and small, and find a mindfulness course to train your mind to keep itself healthy through this. You can do this 💖 Try not to worry about John, give him practical jobs he can do for you 🙂

@katewilliams4876 6 месяцев назад

Wonderful advice. Yes, she is strong and positive!!

@lisashannon4233 6 месяцев назад

Ahh!! Such a brilliant comment and great advice xx

@motorhomers-r-us 6 месяцев назад

Mandy’s worry’s will be for John not herself X

@Gillby47 6 месяцев назад

I think your experience at the hospital should be shown to medical trainees to remind them that it may be just a job to them but to you it is a devastating meeting.Good luck with your treatment plan lovely lady.🌹

@Peace2All123 5 месяцев назад

❤❤🎉🎉😂😊xx

@marcusoutdoors4999 5 месяцев назад

John will be your rock. I sat along side my wife through every Chemo and radiotherapy. My wife had a very tough regime of radiotherapy and Cisplatin chemo. Cisplatin is very tough so you need to treat it like a marathon and focus 100% on just getting through. Maggies provided great support. As a warning, if you get too tired, they will have to pause treatment, that is bad. My wife had a very similar cancer and she made it through, but others tried to carry on with their lives and they had to pause treatment as their bloods showed they couldn’t carry on and had to have a break. 2A is great news. All things considered. As the carer for my wife, we met a lot of amazing people. And every day of treatment we thought she was a day closer to ringing the end of treatment bell that was very emotional. Love from Cumbria

@mrt4003 6 месяцев назад

Hey Mandy I’ve a few things to say. First of all well done on being so open. Talking about it really helps. I’ve been here with my wife, especially the kind of straight to the point, no emotion announcement of the diagnosis. Now my wife has been a nurse specialist for 26 yrs. she said they have to do it that way. Straight to the point without sugar coating it. Forums helped her immensely, chatting with people in similar situations. The waiting is the worst part. Once the treatment starts it all happens very fast, Infact bloody amazingly fast. You will get detailed info in time but at the moment a lot of work is going on behind the scenes. MDT meetings etc. There are lots of different medical specialists to involve. Oncology, radiology, surgeons and maybe even dieticians. Very complex meetings with very clever people. Its feels like your left in the dark but they are truly working on your treatment and recovery plan to give you the very best outcome. They are truly amazing people. Keep yourself busy, talk to likeminded people and before you know it will be a distant memory. Obviously the worry never goes away completely and it never will. Take care ❤

@thelmalewis7870 5 месяцев назад

Brilliant write up

@martinbguk 6 месяцев назад

My wife also got free prescriptions (for 3 years I think?), free parking at the hospital for a year (saves worrying about how many hours parking you need if treatment is delayed etc) and what I jokingly called the "Disney fast pass / access all areas" triage phone number. We had to call at 3am a couple of weeks into chemo (heart palpitations) and we were given priority one for paramedics. Another time she went neutropenic (5% of the average white blood cell count !!!) and had covid at the same time. We called triage and they said come to the hospital. It was 15 minutes away, by the time we arrived there was a single bed room isolation ward ready for her. Lots of folk will ask you (Mandy) how you are, very few will ask John how he is doing. From one engineer to another, go talk to someone who has knowledge of what you are going through (John). I took counselling, worth every moment.

@ericwatkins2554 6 месяцев назад

My wife got a breast cancer diagnosis in Nov 2015 and I totally understand the emotions both you and John are going through. Her consultant/surgeon had no bedside manner whatsoever and totally ignored me when I asked questions. However, he was a brilliant surgeon and that what really mattered. My wife was convinced that the comming christmas would be her last - that's what this diagnosis does. It makes you feel like the rabbit in the headlights, what can I do , where do I go, what is going to happen to me plus a multitude of other unanswered questions. I know what John is goig through - I've been there. You want want to protect your better half and want to support her but your not sure how to because there are no words or actions that can make it better. John's time will come when he can give you support and encouragment when you are going through your treatment and help you on the road to recovery. Both you and John are very positive and determined people and that strength will get you through this difficult time. Love to you both from us in West Wales.

@UKvet246 6 месяцев назад

The circumstances and manner which you were treated was totally incorrect, irrespective of the fact NHS are under pressure there are ways things should and shouldn't be done. Some of these people reach a certain status and they become oblivious to rudness and the fundementals of caring, don't accept it consider the next person in your situation. Sorry but such a meeting whilst others were present is totally wrong, and the conduct during the meeting was also wrong. Bless you thinking of you ❤💙❤💙❤💙❤💙❤💙❤💙❤💙❤💙❤💙❤💙❤💙

@pghoward 6 месяцев назад

Many, first off I can see from your body language you have risen out of the depths of where you were - brilliant! And rightly so because the diagnosis sounds as good as any bad news can be so good on you girl 😎 But the way it sounds you were treated is diabolical. When my wife was diagnosed with breast cancer the consultation was so different. It was just us, the consultant and the Macmillan nurse. Things were explained and SHE was the focus of the meeting. It sounds like your crowd had a total empathy bypass. So as I said, good on you both for dealing with it. Now concentrate on getting all the tests done, treatment started and most importantly heading out of the darkness and into the light of the rest of your life. ❤

@lyndamiller2623 6 месяцев назад

My consultant told me all the horrible things that might happen with side effects, but the thing I reacted to most was, I had to stay out of the sunshine for the full 6 months of Chemo, all through Summer and Autumn…when I said ‘oh no, I was looking forward to being outside all through Summer’ he just stared at me like I’d lost the plot… funny how you do react to things..enjoy your Saturday fun day..x

@katewilliams4876 6 месяцев назад

John has to look after himself. He is no good to you if he gets sick. Hugs,hugs hugs!!!!

@satur9 5 месяцев назад

When I was diagnosed with breast cancer, after a month of tests and stuff, the treatment started with half a year of taking hormone pills. Then I'd have my operation. That operation was first scheduled during the camper holiday in France. We told my doctor, and she said: your holiday comes first. You'be booked it, you're looking forward to it, and mental health is so important in this treatment. A happy patient will get better easier, so you go for it and we'll schedule the operation after that (I also had a slow growing tumor). So we had that camper holiday, really enjoyed it, and the day after we got back, preparations started for the surgery, and I had that 3 days later. So yes, do tell your oncologist/consultant/doctor about the holiday, and ask if you can have the treatment after it. It's better to start treatment well rested and in good spirits. Go for it 🙂

@jenniwarren8100 6 месяцев назад

So great to see you, Mandy ❤. Will be with you and John all the way, sending healing and wellbeing vibes every day. Stay strong both. Just know that anyone that follows you and John will be sending love and prayers (that includes hubby and me) ❤❤❤🙏🙏

@jillgreen9503 6 месяцев назад

And we love you too , i am going to book my smear tomorrow as i had the letter 2 months ago 🙈 You are such a strong lady and I really hope you have the best news for your next scan . Sending all my love and hugs to you and John xxxxx

@karenbushellakacozycornerq8890 6 месяцев назад

Talk to your case worker. When my Mum had pancreatic cancer every time we didn’t understand something we spoke to the caseworker and they took their time to explain. They took their time and would ring back a day later to see if we were ok with the information once it had taken it all in. They didn’t mind repeating any information. They couldn’t be more helpful ❤

@andrewsmith5639 6 месяцев назад

I'm totally in awe of you and John... even now you're thinking of others with your positive 'get yourself checked out' message... sending you love and positive vibes ❤

@elebelle51 6 месяцев назад

Wishing you a successful treatment, Mandy.

@debieastman 6 месяцев назад

I have wanted to write a message since hearing your news but I just didn't know what to say, and have probably rewritten messages over a dozen times, but I wanted to write something and to say what an inspiration you are. I'm not sure I would deal with it so well. You are so brave and have such a positive attitude. I admire you so much. I am going to book my smear test tomorrow as I am overdue. I had put it off because of many reasons but the main one being my 80 year old mum had a hysterectomy recently as she had cancer of the womb (she has been given the all clear😄), and it has worried me sick. But as you say, it's best to get these things checked out. But hearing you talk has given me the courage to face my fear and do it anyway. Bless you Mandy. I wish you all the very best with your treatment and recovery. ❤xx

@lesleypyke8554 6 месяцев назад

Well done Debie ❤ you stay strong too xx

@debieastman 6 месяцев назад

@@lesleypyke8554 ❤

@Yorkies-Travel 6 месяцев назад

I agree it’s not acceptable the way the news was delivered. I’m not surprised you feel the way you do! My heart goes out to you xx

@christineomara4787 5 месяцев назад

I had cervical cancer, I was 32 years old, I was devastated to bet told the news, my mum died a few weeks before so was already in a state of grief, she had cancer and was only in her fifties, I did think why is all this happening to me, I was so sad and then angry, kept all my thoughts n feelings bottled up. I had all the treatment you will be having,, 6 weeks every week day, and then the internal treatment, I was OK for the first 2 weeks of treatment but then the diarea started, I realised not to eat anything green, the extreme tiredness started so I slept a lot, when the treatment ended the radiation still keeps working so you will be tired for a while. It was gruelling, I know every emotion you are going through and sending you the biggest hug, I have watched all your vlogs from when you sold your house and moved into motorhome, so that's quite a while ago. I think you are such a lovely honest, kind person, sending you much love 😘xx

@sandradillon9927 5 месяцев назад

Wishing the well wishes Mandy. Cancer seems to attach the best people. You will be fine after treatment.

@marjoriewatton8546 6 месяцев назад

Stay positive Mandy. You have many well wishers rooting for you. Sending love and hugs💕

@karenmair5191 5 месяцев назад

Stay strong mandy, take each day as it comes to you once treatment starts...sending you hugs xx

@matryderadventures 5 месяцев назад

Hi Mandy. You are an absolute inspiration. There's no question that you are helping others by sharing this. Good luck with everything.

@faygal2 5 месяцев назад

Challenge them. That is appalling in this day and age. It will make them pull up short. Unless people do that they will carry on being like that. Don’t make excuses for the Mandy. You can be too understanding xx I am saying this as a retired Nurse !

@craigberesford726 6 месяцев назад

Hi Mandy, it’s Craig the kitchen fitter I’m not sure if John told you but after I got him some hinges I took time out due to the fact I was diagnosed with bowel cancer I did make it quite public to my work colleagues at work and unbelievably two of them have come to being confident with issues that might point towards cancer so yeah making it public is important for yourself and other people. Good news is for me I’ve had an operation and it looks like it’s going to be successful. Keep your chin up and tell John to look after yourself because I know when I’ve got my diagnosis I think my wife struggled more with it than I did. Hope to see the show, if not look after yourself

@unadventurousmandy 5 месяцев назад

Ah Craig!! I’m so happy that your op will be successful ❤️ it is really important to not hide these things - say it loud and say it clear so others might not have to suffer the same. I can see John is struggling and I’ve bounced back a bit but he’s got some good support ❤️❤️

@craigberesford726 5 месяцев назад

@@unadventurousmandy hi Mandy it was great seeing you and John today would it be possible to ask you another accounting question as I’m uncertain about things we discussed would it be possible to email me I think John has my email address thanks sorry to bother you again regards craig

@unadventurousmandy 5 месяцев назад

It was lovely to talk to you today too, glad you are on the mend. If you pop an email to mandy@howaccounts.co.uk I’ll get back to you as soon as I can ❤️

@AfterTheRains 6 месяцев назад

Audiobooks helped me so much in hospital, when I had eye surgery, and I have never gone back to print. It could become a friend if you ever get tired and get bored.

@unadventurousmandy 6 месяцев назад

I’m looking at more of those now, I just have a thing about the narrators voice - I can be very picky 😂

@AfterTheRains 6 месяцев назад

@@unadventurousmandy Agreed. Narrators can make or break a book. I generally find reviewers comment on good or bad reviews and, if I haven’t listened to them before, I listen to the sample. A tip for Audible…if you have a membership plus kindle unlimited, you can often get the free kindle version and a reduced price on the audible version. Audible also have many free books included in your membership.

@dianne9146 6 месяцев назад

I started using audio books as a way of calming down the constant overthinking at night. I set the timer to stop the book after 45 mins and just re-start it if I’m still awake. I now listen when I do gardening, housework etc or any time my inner over thinker goes in to overdrive. I always listen to a sample before I buy, to check out the narrator’s voice. The Diana Gabaldon Outlander books are excellent and have got me through many a rough time.

@AfterTheRains 6 месяцев назад

@@dianne9146 I enjoy a good mystery and it’s a great distraction when cleaning. 😃

@suedentley5114 5 месяцев назад

Me too! There's nothing that would put me off more than the wrong voice @@unadventurousmandy

@claudieschmidt2353 6 месяцев назад

I think the word is "Champion"! He a good man and loves you dearly and you do him. Sending love and prayers! Claudie/Texas

@vivienne3757 6 месяцев назад

The Consultants I worked with were lovely and totally different to your experience, so sad that they made you feel like that. We use to let people record their visits so they could listen back as you always miss something. Once treatment starts you will find out how your body reacts, but you are a strong amazing lady so I know you will cope with this, understand that you are having low periods but enjoy your plans, they are as important. Tell John to make sure he gets the support he needs and doesn’t get forgotten as the family are just as important to. Take care of yourself and big hugs to you both💚xx

@Panzerman1951 6 месяцев назад

It's good to see you being so positive with the news that you have been given. Hopefully the PET scan will provide you with reassurance in the lead up to the start of treatment. I've recently had a bowel cancer scare and was on the 2 week pathway. Thankfully the colonoscopy showed no cancer but other problems that I can deal with. Stay strong. Our thoughts are with you both. Sid and Nicola, Rugby

@geoffcampbell7846 6 месяцев назад

Thank you for the update Mandy, its reassuring to listen to you explaining your thoughts and feelings, and to see your determination to get through this whilst thinking of everyone else is humbling and heartwarming. Enjoy the coming weekend and take care. 👋

@suekeane 6 месяцев назад

In Australia we have take home smear tests now which is wonderful. As a mum of a daughter who had breast cancer at 21, I had the same experience with her consultant but my mumma bear came out and shut all the chatter down, you will quickly learn to raise your voice and say please expain better i dont understand you have to advocte for you.

@alessia0064 6 месяцев назад

Hello Mandy, watching your vlogs has urged me to look something up. Just over thirty years ago I had a hysterectomy, my uterus and cervix where removed. This wasn't due to cancer but another reason. In the past thirty years I have never been called in to have my vagina/cavity checked. I looked it up and there is a test that can and should be done so I'll be making an appointment with my GP asap. If there are any other women watching and reading the comments that this may apply to who also didn't know I suggest you seek advise from your GP too. Continuing to send positive thoughts and prayers 🙏🙏🙏.

@jillianstanley989 5 месяцев назад

Big hugs Mandy . You are such a brave lady .

@LillianHenegar 5 месяцев назад

God bless you, Mandy. I am really sorry that how the doctors handled your one on one meeting. It's good to know that it's Stage 2A and treatable. I've been through treatment for breast cancer - at the end it was Stage 1A. I went through surgery, chemo, and radiation. I wouldn't worry just yet about weight loss until you start chemo - it depends on the drugs they use. Also, they usually do the radiation last. My biggest advice based on lessons learned: REST REST REST and drink lots of water. I believe our body needs rest, which should be your priority. We're lucky we live at a time that treatment for cancer has advanced so far. It's not fun, it's grueling, but you can do it. Good luck!!

@unadventurousmandy 5 месяцев назад

Ah I’m sorry you had to go through all that for your breast cancer but glad you’re still here to tell the tale. Chemoradiation is concurrent so I’ll have chemo and radiotherapy on the first day then 4 days of just radiation and that will last 5 weeks so my weight does need to stay the same. Resting won’t be so easy for me but I’ll be trying my best so I can kick this thing 💪🏻❤️

@LillianHenegar 5 месяцев назад

Wow! Chemo and radiation at the same time! Yikes. Re rest, remember your body is with you the rest of your life! Prioritize you! That said I know some find being able to work while going through treatment helped their sanity. ❤️❤️

@sallydavis1345 6 месяцев назад

You are an inspiration Mandy to everyone. I am glad you are willing to share both the ups and downs of this journey. That will be a help for others going thru the same or similar things. Stay strong and positive as best as you are able. We are supporting you and John in this life event.

@KarenHT397 6 месяцев назад

I worked for the NHS for many years and the appointment you had does not sound up to a standard I would expect. All the best for the future.

@samh1611 6 месяцев назад

Sending hugs Mandy and stay strong ❤️💐

@pamelarothwell1320 6 месяцев назад

Oh Mandy, you are so incredibly brave to share this with us all. You are in my thoughts... wishing you much positivity, love and best wishes xx❤❤

@wannabetravellers6391 6 месяцев назад

Mandy, you’ve got this, keep your chin up xx

@hosephine1 5 месяцев назад

My mom’s oncologist started out a meeting she thought was to discuss an operable non-cancerous brain tumor with “So you know you’re dying.” She didn’t. I did, because the American Red Cross flew me home from overseas to be with her, and the diagnosis was in the paperwork. She had inoperable liver cancer. The brain tumor got her to the hospital (she hated doctors) and the body scan found liver cancer along with a benign brain tumor. Doctors have to distance to survive, but they could try to at least attempt to see things from their patient’s viewpoint.

@unadventurousmandy 4 месяца назад

They do really need to get better at that - a simple little “do you know why you’re here today?”

@Wheres_wanda_wandering 6 месяцев назад

Thank you for sharing your experience. I wish you all the best for a speedy recovery. Take care Gill

@lorraineillingworth810 6 месяцев назад

Hi love are you under Mr Bosas at Castlehill as that's who I am under. Had my second round of chemo on Wednesday and so far no side effects lol. Can't believe when I watch your vlogs as we are both so similar as we both also got just one child and mines called Gemma and we both have one grandchild age 7 and we both found out we got same cancer although mine is stage 3c and can't be cured but can be treated. I Hooe I do see you at the queen's Centre when you go for your treatment. Love to you both John is so like my Bill as I think it's harder for them to accept it as we just have to don't we. I'm gonna shaving my head next week as I'm just starting to see bits coming out now but I've got my appointment on the 26th March with wig lady in castle hill oh when you go there book in at the mcmillan stand for a slot to get your wigs as they book up quick. Big hugs xxx

@Happyinmyautotrail 5 месяцев назад

Best wishes Lorraine ❤

@unadventurousmandy 5 месяцев назад

Ah Lorraine!! How uncanny we have all those similarities ❤️ I do hope I bump into you there, please say hi if you see me there.. thanks for the heads up (no pun intended) to book in for the wigs - I’ve booked my hair dressers for Monday coming and am going short short 🫣❤️

@lorraineillingworth810 5 месяцев назад

@@unadventurousmandy hi love sure will catch up with you if I see you. My hair started coming out yesterday and I did get a bit sad but Gemma my daughter shaved it all off as that's what I hate to see if women with big patches missing as it screams out frigging cancer but hubby said I've got a good shaped bald head so I'll rock it till I buy some wigs at hospital on the 26th. Good luck darling. Hope you do see Bosas as he is so nice big hugs love ❤ 😍 xxx

@julieclay9886 6 месяцев назад

Take care Mandy. Both of you are doing an amazing job of keeping everyone updated during a time that is extremely difficult for you. Keep strong xxx

@janetwilliams3110 6 месяцев назад

Bless you Mandy my heart goes out to you Your words are so heartfelt, kind, considerate and exactly as you say , get checked out, I’ve told my daughter who’s 49 and has had a lot of irregular bleeding and periods, get checked. We will be with you on your journey, love and hugs xx

@catherinethackray538 5 месяцев назад

Still sending peace and healing prayers x

@eirishemd 5 месяцев назад

Just finished a year long battle with stage 4b endometrial cancer. It’s a magical mystery tour so 😂enjoy the ride (if you can). Love and hugs❤️❤️

@robertcanning1888 6 месяцев назад

Omg mandy a send all my love. Get up to Scotland better treatment. That was so unproffesional in that room xx

@thelmalewis7870 5 месяцев назад

Hi Mandy What a brilliant video, i just stopped watching the Wales match against Italy. Because yr video is more important. Now you got all those plans, on your list, u might have to jingle them around but you do it. All this info you putting out to everyone about Cervical Cancer is amazing, because in 2002 ish we were never given loads of info. Well thank you its amazing info. You got a new bike i see, so when things get tough, pedal it away. ❤

@elizabethsad8023 6 месяцев назад

Hello lovely, one of the best things you can do now is to build yourself up with the best food possible your body will thank you for it & it will help with your treatment in coping. My friend who was treated in Castle Hill was so built up his consultant said to him it had stood him in good stead. Hope you can do this as you need your strength. Bless your dear heart & we all with you love. Hugs to John he’s a strong man & absolutely by your side. Love to you both 🩵🩷💐

@theremotenomads 5 месяцев назад

Thinking of you Mandy, I have booked my smear appointment x

@miggiecaff7963 5 месяцев назад

Mandy both you and John and the people that love you have a tough road ahead but you will get through it. Everyone is wishing you well and honestly even though we have never met , I am thinking of you both and your family and sending you bucket loads of warm hugs 🤗

@dafadowndilly8919 6 месяцев назад

Mandy, I admire your attitude in the way you are handling your cancer. I am appalled at the chattering background people who were in your consultation, and I certainly would have taken them to task. Don't underestimate how long the road to full recovery will be after your treatment. I, together with this community, am right there with you and John xxx

@shareenw3 5 месяцев назад

I am so sorry that your doctor had such horrible “bedside manner” while they were giving you news. Also - you deserve every good thing - even free meds! So, please believe this and if it frees up finances for other things then treat yourself, ok? You are a beautiful and wonderful human being and you and John both deserve all good things! Thoughts and prayers are with you and your daughter and everyone else who is struggling with this news - that you will have peace during the process and complete and full recovery! Much love!!! ❤❤❤

@deirdreoriordan744 6 месяцев назад

You're in good hands Mandy, there will be a whole team of experts working on your treatment and they really are amazing. Look after yourself ❤

@christinee3126 6 месяцев назад

Good luck with the treatment Mandy - let your medical team take the strain and concentrate on your overall physical and mental health. Do the walks, enjoy the daffodils, eat well, see the people you want to see and know one day you'll look back on this time and think yeah, i got through that, I'm awesome!

@CarolineTwilley 5 месяцев назад

I’m in awe at your strength! You guys are doing incredible don’t forget that. Saw you today in Harrogate and thought not going to bother you, I’m going to let you have quality time with your family and friends. I also thought you’re there buying some lunch and that lady taking your money has no idea what you’re going through. You show such courage. I just want to wish you all the very best. I live very local to Scunthorpe and know both hospitals too well I’m afraid. Your journey is long but take the strength from everyone to kick cancers arse!!! You got this….. ❤xx

@christines34 5 месяцев назад

Your the one thats amazing, your bravery and strength are amazing, your in my prays, both you John and your family. Keep positive, hugs to you all. ❤

@viv-i-vangoesforth 6 месяцев назад

thats the goodest of bad news, Mandy so on a scale 1-10 of bad a 3 is better than a 10 so thats good news. When the consultant was dictating, you absolutely had the right to interrupt. This is YOUR life! You have a right for due consideration and to be able to ask what may affect your life. Its not good!!! Anyhoo, main thing is, you are in the right place at the right time for treatment with a positive outcome. I think you're really brave and inspirational . I'm now only going to think of you as "Inspirational Mandy" and not "Unadventurious Mandy" I think you're brilliant. I'm glad you have a good and loving man in John by your side and you will prevail. My love to you both❤ - Kenny

@gailh3048 5 месяцев назад

Thank you for sharing another update Mandy. I’ve actually learned more from you than I did from my mum and her doctors when she had cervical cancer many years ago! We weren’t told as much in the 1980s. Mum is still going strong at 91 and no problems of recurrence. My friend who had breast cancer was offered massages, acupuncture, and reflexology while she was going through the treatment so take whatever you can get, it’s all about a holistic approach (My friend is cancer free now).

@grootjnr 5 месяцев назад

Good luck Mandy, I have been through this with my Mum. You are handling it so well, and it's great to see the positive way you guys are 💜

@jameslogan-vz2bz 5 месяцев назад

mandy im glad to hear its 2a cervical cancer thats been diagnosed with you and you do both you and john is let life take its course and be there for each other and support and more inportantly loved each other as you both do as seen in your utube videos and just life take its couse. Jim and love and best wishes to both of you xoxoxo

@shirleymurray2232 6 месяцев назад

Give yourself permission to be with the 'ups'.. and with the 'downs' Mandy. I feel that talking to us about it all is the right thing to do. Not every woman could do it.. but you have aways been an ambassador for women! Be gentle with yourself and know that you have the sisterhood at your back! ❤

@racheljohnson1705 5 месяцев назад

Mandy it feels like it’s a friend who going through this, I was so upset when I first heard. I wish there was something I could do to help. Tell John to look after himself too. Lots of love and hugs xxx

@suebolton2825 6 месяцев назад

Sorry to hear of your bad experience at Scunthorpe hospital - such a shame. Castle Hill will be brilliant and get you sorted in no time. I’m crossing everything and sending love and hugs. X🥰

@LindaKing-h7x 6 месяцев назад

You will beat this. It's a hard road but you will dig deep and navigate it. I had breast cancer 7 years ago. The treatment is pretty rough but at least I am here still and very grateful to be able to enjoy my grandchildren. This is a phase you are forced to go through but there will be many many brighter days to come. Sending love and positivity x

@lifeonthehighway6917 5 месяцев назад

From your recent hospital visit, it sounds like good encouraging news with the findings your Cancer is treatable, Brilliant, Hope your managing to enjoy the weekend at the Harrogate Show - Steve from Manchester

@oakie2727 5 месяцев назад

It was the same for my sister who has the same as you. After all the scans waited for another appointment to see specialist. Walked into a room with a woman sat there with McMillan lanyard and card around her neck, McMillan booklet in her hand. So she already knew before specialist entered room. Not much thought there is there. 🙄. Take care my lovely. X

@brendamanley5382 5 месяцев назад

Hi Mandy it was lovely meeting you and John today at Harrogate. Stay positive. When met and Ray had it we was each other's rock. Take care ❤

@mindyedwards2699 5 месяцев назад

Well articulated Mandy, i hope your next visit with the consultant is more helpful. Ask your case worker to reiterate anything you don't think they covered, that's what they are there for. Stay strong and positive and youll kick it into outer space never to be seen again. Stop worrying about everyone else, thus is your time for them to rally for you for a change, although i expect they are already doing that. Take care lovely lady x

@nataliehirstflores4376 6 месяцев назад

Stay strong Mandy….your positive mindset will get you through this! Based upon my own experience you will get more answers regarding your treatment/side effects from your Oncologist & Specialist Nurse. I had to attend prior to my radiotherapy, for a CT Scan and tattoos…. This CT Scan was sent to the Radiotherapy Planning Team and my treatment started about 2 weeks later. Listen to your body whilst having treatment and rest up as much as you can. My radiotherapy was over a shorter period of time and was a higher dose. I felt fine whilst attending but the tiredness hit me afterwards and lasted for around 8 weeks - afternoon siestas got me through! Ask about a free parking pass and they will also give you a form to complete so that you can get free prescriptions. Sending you very best wishes for your treatment journey…. ❤

@patrickcullen3410 5 месяцев назад

Stay strong Mandy you are a positive, lovely lady we are with you all the way ❤️

@franklivesey6266 6 месяцев назад

Mandy I think you are so right that your appointment could have been so much better and I'm sorry for that. I'm sure your case worker knows this but talk to her about it. You do appear to be stronger and more positive about this journey and I'm sure any further appointments will be more positive as you have a better idea of how things go. Stand up for yourself and/or get your caseworker to ask things for you, she will you know. As for the freebies take the lot. You've paid for them in taxes over the years 😀

@wanderinwilds 5 месяцев назад

Hi Mandy thanks for being so frank and honest about what’s going on with your treatment. I can’t believe the consultant treated you that way! No excuse tbh! 🙄 Keep your chin up as much as you can ❤ but I’m sure you will have your down days and that’s ok, it’s ok to cry and not bottle things up. 😊 Sending you and John lots of love 🥰 Debs and Mark 😘 xxx

@pamfreeman5197 6 месяцев назад

Eeee, bug...r ee Our Mandy, what an amazing pickle you are! Go sock it to 'em Little One. We're ALL with you (and John) all the way. We love you so much and, after all, it's love wot makes the world spin round and you have it here in spades. Much love, always, Pam xx

@colindean-xn4es 6 месяцев назад

Keep up the positivity Mandy - it’s so good to see you so strong it’s inspirational. It’s a shame your appointment wasn’t as you’d hoped but great they’re on it like they are … sending positive love and healing x

@faithshields1286 6 месяцев назад

Mandy you will save lives by giving all the advice on symptoms for cervical cancel without a doubt. I wasn’t aware of all the symptoms and have had a hysterectomy, so it wouldn’t affect me, but I will surely be passing the advice on. The hanging around is not nice and your life is turned upside down but stay as positive as you can. I know you have Macmillan who are fantastic, but try and find some other groups as this will be so helpful to you. Take care x

@bronniepaterson4694 5 месяцев назад

Well done Mandy ( and John) keep doing the good stuff…plan some nice things for later in the year. Simple things like a weekend away in a nice hotel,dinner and breakfast,seeing a show etc. You will most likely lose weight as you do not want to eat especially once the chemotherapy kicks in,again depending on what of chemotherapy cocktail you have,how bad the side effects are..( unfortunately there will be side effects),blisters,nausea,muscle weakness….most stop quickly once your body gets better and or use to the treatments…. Keep a positive attitude…and love in your heart. Sending you both love and prayers 👍🇬🇧

@tracyandian1335 5 месяцев назад

Thank you for sharing this difficult chapter with us. We've all had to do endure sad situations and unfortunately if the circumstances and surroundings are non sympathetic then it taints the whole situation further. Lessons still need to be learnt from this x

@annettejason2026 5 месяцев назад

Rooting for you Mandy - amazing you have found the strength to talk to us xxx

@TheDucksOnTour 5 месяцев назад

I think you are incredibly brave Mandy and it is so, so helpful for anyone else going through this. Stay strong lovely lady you are amazing. loads of love and hugs, From Carol xxx

@lisashannon4233 6 месяцев назад

You are incredible Mandy, sending you lots of love and healing vibes 🥰 Thank you so much for sharing your story and educating some of us 💖 xxx

@dawncrofts6687 6 месяцев назад

Keep planning xx just don’t confirm the dates so you can still have those things in the distance, knowing there is something nice after treatment x♥️. You and John have got each other as amazing support with us lot in the wings who will happily help in any way we can if you needed it. ❤❤❤ sending lots of love from Dawn in Devon

@user-vs5eo9qf6e 6 месяцев назад

Mandy I’m so proud of you even if I don’t know you! You and your John are champions ….hugs 🤗

@gillgiles8265 6 месяцев назад

I am so in awe of your positive outlook (even though you allude to the dark moments too). And John's reaction is totally normal. My husband is the same, checking to make sure I'm not doing too much and trying to do things that I feel capable of doing. So while it may be frustrating at times, it comes from a place of love. But I am saddened to read that your appointment with the consultant was not able to answer the questions you both had and that it wasn't in a more private setting. Why there were other people there makes no sense to me, especially as they were such a distraction. It's hard enough to take in information without others talking in the background. So I'm not sure I would feel as gracious as you about the situation. At the same time I do have sympathy for the pressure that NHS workers are under at the moment and think I would try to hold on to the perspective of the consultant wanting to protect his heart rather than not appreciating the trauma of the diagnosis for you and John. I wish you all the love and hope in the world. Thank you for taking the time to share your journey. ❤❤

@michellechapman6961 6 месяцев назад

Oh my goodness what cruel rudeness. Saying that as a retired nurse I always found that the more arrogant they are, they usually are brilliant at what they do. You are strong, amazing and you are positive. Food is important, it is medicine, try and do as much research as you possibly can on healing foods. I am sending you both the biggest of hugs.

@guimauve2000 6 месяцев назад

I'm so sorry you're going through this. I'll be following your progress, thinking of you, and hoping that you make a full recovery. Sending love, light, and hugs XXX

@iangiles7038 6 месяцев назад

Hi Mandy Don’t worry about how you feel you are on the normal emotional rollercoaster You are right the consultant’s bedside manner is not very good but the nurses when you start your treatment are brilliant My consultant never told me what stage my cancer was I had to ask him what the prognosis was which is the one me and my wife didn’t want to hear but the point blank answer he gave we new it was stage 4 and he did get me in a soon as bed was available You should be give a emergency card to phone 24 7 and that’s good cause I’ve used quite a few times and all that free parking believe me it’s safe’s you a fortune We had to phone the hospital car parking department to see how it works I’m still using the free parking during my 2 years of treatment and appointments and at £4 per hour or £15 per day you can see how soon the costs mount up ❤❤

@nickymercer4398 6 месяцев назад

Your grandson's birthday party is just the thing to take your mind of things for a while Mandy, have fun, and I hope your team wins 🥰 ❤

@user-oy8zk9ch5m 6 месяцев назад

Sending you both much love & positive thoughts. You will get through this taking one day at a time, the trip will be very rough at times, you already know that, but you will get through, you are stronger than you think. I cared for my husband through his Pancreatic cancer whilst I had breast cancer & very often didn't think I could do it but with the support of others I got through. RU-vid videos as a distraction were a saviour for us. Take care of yourselves & only do what you can, the rest can wait. Bronwyn ❤

@contactsuzi7096 6 месяцев назад

Hi Mandy, It's me Suzi. You don't need to reply. I'm just here to support you. A nurse clued us in on a tastier drink for keeping weight up. The bottled stuff was horrible. She said to get Carnation Instant Breakfast. My husband liked it so much he still drinks it. You just need tasy stuff with lots of calories or carbs...if it tastes good, indulge yourself! Also, chemo can change how things taste. Don't worry about it...keep trying other foods and drinks and stick with what tastes good. My only other comment might sound a bit strange: You get to set the rules of engagement in your consultations. I don't know what a caseworker is, but she/he seems to be perfectly placed to implement your requirements. For example, those other people in the room who no one introduced to you...I would have asked who they were and if they had no reason to be there, I would have asked them to leave...they were unforgiveable distractions...your caseworker could possibly do that for you. I would politely ask (or caseworker can) the consultant to please refrain from dictating until the meeting is finished (simply because this is your time). I alwys hand in a list of my questions in writing, I sit there with a pad and pencil taking notes. (I admit that I'm an assertive person, a retired senior manager and I don't like "slushy" meetings of any kind.) Sending you blessings. I have the utmost faith in you Mandy. As for John...my 50 years married to the same man I've learned that they need to feel useful, to do things, fix thngs, be the help mate extraordinaire....Be that John!!! Make Mandy 1,000 cups of tea! Love to you both.

@susansharples8555 6 месяцев назад

❤ your blessed to have John, I'm sure you are going to come through this hiccup (!!) in your life, I don't mean that flippantly, I have been through 3 kidney transplants and open heart surgery with my husband so I know what John is going through feeling like he wants to do more to help you, I have also been through the mill with my cervical smear , they found cancers cells which were treated back in 2000 🤞 I've been ok since then. We always try to make light of our health situation having been in a position of a Dr in ICU telling me my husband only had half an hour to live, thankfully the drugs they gave him as a last resort worked, 17 years later he's still with me, we look back on our journey and thing if theses things hadn't of happened we wouldn't have done the things we have done to make our lives more interesting. Sending love and Reiki healing to you and John ❤️❤️ xxx

@carolinebutterworth5563 6 месяцев назад

The treatment will be hard no doubt about it but just keep telling yourself it will work and you will get better, think of your family and they will pull you through. X

@wanderingbarnaby5011 5 месяцев назад

Just finished watching your video and you are amazing to keep sharing your journey. Unfortunately oncologists aren’t the best with their bedside manner but I think it’s their way of coping but you’re right they should be more respectful of the patient as it is new for you. Good luck with the PET scan will be keeping my fingers crossed that they find nothing. Sending you our love and thinking of you and John ❤❤❤❤

@sidonieroger9517 5 месяцев назад

Firstly I wish you the best of luck with your forthcoming treatment. You have been amazing in how you are dealing with this and I am full of admiration. I sincerely hope you have a more positive experience when you see the oncologist. It sounds like until now you have been with the surgical team but hopefully the oncology team will have more empathy and understanding of what you need to see you through this. I was a nurse in oncology so I am disturbed by the experience you have had so far. Also PET CTs are often required if someone is being considered for radical treatment, so it is a positive thing that you are having this. Good luck and try to stay strong x

@clearimages4120 5 месяцев назад

I've no doubt your videos are helping other people good on you both sending very best wishes and positive thoughts

@sherreegowns695 6 месяцев назад

So nice to see you and listen to your update. Very informative and delighted for you that the process seems to be moving along at a decent pace. Best of luck with your next scan - hope you have a blast with your grandson and family and that you have moments and hours of forgetting about cancer and having a peaceful mind for a while. Wishing you nothing but the best Mandy - you are courageous and brave and have managed the shock of all this with incredible calm. We all appreciate you so much Love and hugs to you - until the next one xoxox sg from southern Ontario 💕

@micro_adVANtures 6 месяцев назад

Very sorry to hear this Mandy. My own daughter went through an horrendous time with the nhs, and local authority combined. Upshot is after a long hard fought very expensive courtroom battle we are suing both the nhs and LA.

@sharonmayer7572 6 месяцев назад

Bless u x go with the flo 😊 try to do some normal stuff in the time u have between appointments and look after each other xx ur emotions mood feelings etc will change constantly and yes maybe mindfulness will help focus and rest x from what I have seen in the comments the team I’m sure will scoop u up once the actual Treatment starts - but having worked in healthcare for many years I agree as nurses we do pick up the pieces after some consultations with consultants - and more importantly reassuringly not all apt are the same. Perhaps feedback in writing how this experience made you both feel and make it a positive thing that can be learnt from - hopefully 😊

@Yvonneb_ 5 месяцев назад

I had a very bad experience with a smear it put me off for a long time, I have since had an apology from several Drs, Nurses and staff at my local Drs but it still should not have been like it was. Thinking of you Mandy and sending gentle hugs xx