I have been diagnosed recently with cholangiocarcinoma adenocarcinoma after much pain in the right side and pain in the middle of my body by my gallbladder or liver area, much itchy skin and almost reddish urine and gassy feeling, after months i finally got jaundice and the pain was unbearable, finally went to hospital and had bile duct stent surgery and after 4 replacement stents over a years time.,They found cancer now. I just had my 1st oncologist visit, tomorrow is ct scans to stage the cancer. Thanks again, great video. HUGS and GOD bless you all 🤗.
My deepest condolences to everyone who has personal experience with this. My father also passed from this awful disease on the 30th December, after fighting it valiantly since diagnosis in the spring of 2022. I hope one day medicine can fight this better and no one has to go through this torment
My father passed away of this type of cancer on December 11. I wish anyone who is diagnosed much strength and prayers. RIP Dad. You fought the good fight.
@@CR53 I’m so sorry to hear about your father. My father lasted two years. He completely changed his diet and he underwent chemo plus radiation. I pray for comfort and strength. I’m so sorry.
My dad was diagnosed yesterday, cancer has spread to his liver already,he has lost so much weight and can't even walk or control his muscles. It's so sad, literally went from a very active 67years old to not being active in less than 2months. I'm just so sad
I was diagnosed with Cholangiocarcinoma in the Sumer of 2019. Exactly as this video shows I had an ERCP, stent, biopsy then surgery (full resection) The video was like listening to my history.
My sister was in surgery for 11 straight hours to remove the cancer. She was diagnosed with “Bio Duct” cancer. After 3 days she was sent home. The entire family couldn’t understand how the Chief of Surgeon In Gainesville Hospital, could send her home so quickly after 11 hours of surgery. She was at home for 2 days. And was airlifted from Tallahassee back to Gainesville Hospital. There was blood coming from her incision all over the place. It was horrible to watch her endure this. They took her back into surgery for another 5 hours. She did not make it through this surgery and died on November 18, 2023. How does a doctor think that sending a patient home after 11 hours of surgery within 3 days is permutable? I can’t wrap my head around this. It doesn’t make any sense. I’m so grief stricken 😢😢😢
I lost someone close to me to this cancer. It was very aggressive and horrible. She also had surgery and the doctor had discharge orders, when I asked him why he would send her home like that, he very calmly explained that he would rather her pass at home in comfort than in a cold, busy hospital.
@@heidihawthorne Oh wow that’s horrible!! I miss my sister so much! She’s the 3rd sibling I’ve loss in the past 10 years. I’m in grief counseling, thank god and it is helping. Thank you for your reply. This was so kind of you. We didn’t have no idea at all from the Dr. if it was aggressive. He didn’t communicate that to us. His bed side manner was less than desirable.
This is what killed my mother , she had blocked bile ducts after long time dealing with chromes disease and primary scolosing colangitus it was painful and for yrs doctors told her there was nothing wrong, it’s a sad disease to watch . Thank you for sharing this xox
@@ZeroToFinals yes they blew her bile ducts out a few times but in the end she could go to the bathroom the muscles died . She lost a tremendous amount of weight . My sister and I nursed her at home until she needed to be in a hospital from the final diagnosis.of cancer it was all to late we made her comfortable from diagnosis on her birthday to row end was 9 weeks . Thank you again because most people haven’t heard of it. I have advanced lupus and now tumours on my pancreas ,the tale end . I hope I feel the love she did at the end . Good luck young doctors you are our future xo o
My grandmother developed cancer of the gallbladder after many years of gallbladder disease. I was told later it is a very virulent cancer. She didn't live long after the diagnosis.
All to DR Jazaza on RU-vid for healing me of my hand disease that I have been living with for over 18years I thank you DR Jazaza spell on RU-vid for healing me🥰
My dad is gonna die from it probably within a week from now. He had a mild stroke in early July 2022 and basically totally recovered. Then in September had a worse one that affected some parts of his memory and slowed his walking down. About a week after the 2nd stroke blood work showed super high liver enzymes and a CT scan showed a liver tumor (not an alcoholic or anything like that) They took him off blood thinners so they could do the biopsy and then he had a much larger stroke that put him in the ICU with his right side paralyzed. I was worried it would happen when he went off the blood thinners. They did end up doing the biopsy though at least Now it's 4 days after the 3rd stroke and he's going into Hospice. He so thin and had been feeling much more tired in the few weeks between the 2nd and 3rd stroke. So we pretty much knew he didn't have much time left All I can say is at least it went fast and he never experienced much pain. And he would not have wanted to be paralyzed and have his brain scrambled the way it is right now and live years and years like that. So the fact that this cancer is killing him so quickly is a blessing in some ways. He's 72 and will never have to deal with dementia and I know that was always his biggest worry about aging so I'm glad about that Edit: he did have random hiccups for the past year or so and had lost weight. But he had gone on the keto diet and had lost weight from that also. So the weight loss all kind of blended together. until he got really thin in the past 4 months or so Long story short: the cancer caused 3 strokes in less than 4 months. And the cancer is going to kill him 3 weeks after the blood work and CT scan showed the tumor
@@davaj2008 thanks, in a lot of ways it's comforting that this cancer is so deadly. We can't look back and be like "if we caught it earlier maybe we could a done this treatment or another treatment" instead it's just like "ehh basically was going to kill him 100% of the time regardless of treatment"
On may 27th 2024, My brother is diagnosed with this nasty cancer but I am encouraging him for another option for treatment like Ayurvedic. And changing the lifestyle. I am not at all foolhardy.
My mum got diagnosed 13 may 2024. The tumors block the bile duct causing jaundice. Then the surgeon puts a Stent in the bile duct. Later the tumor grows and bleeds or pierces the liver arteries.. the patient bleeds to death which is what's my mum going thru now. Giving her blood transfusions but can't do it forever. It's a terrible cancer.
@@lhakpabhuti1514 on morphine so did effects of that are nausea constipation.. Can't eat cos bleeding in digestive tract. Weak and can't walk. With this cancer you run out of options fast. Tell your brother to follow Dr Seyfried approach basically in this video exactly from the get go. No time to waste. My mum was given 3 months to live but it's barely 2 months and already survival is a daily struggle..
My father passed away on 10th June due to this rare cancer. Their is no medical advancement to treat this. I just wish for anyone who is having this cancer is not to survive in pain. After all it's life.
@@lhakpabhuti1514 my mum passed away on the 13th August 2024 Tuesday night. Due to laying in bed blood clots formed and blocked circulation to her lower limbs, causing swelling and feet turning purple and oozing. The Dr said it might turn gangrene and have to amputate but she passed away two days after that. It's a terrible thing to reach the point where one hads to wish their parent passes on. This cancer is a trauma in so many ways.
My brothers got a 5cm tumour. Just had CT and MRI. Already told he cant have it cut away. Its palliatve chemo. Got a consultants appointment in 2 days. I feel its going to be bad news. Its growth is 1cm per month. 😢
Hi sir can you help me to know..? How armando's video are editing.... I am also a medical teacher and i like most your's and armando's method in entire youtube. So please help me and tell how he make video. I know your method(see from your 2nd channel "how to learn medicine") Thnaku sir
hello in advance, thank you for this very useful and interesting knowledge, allow me to ask a question here. what I want to ask is what sources you use to describe this great science. thank you very much
Dr. you made this deadly disease, easy to understand it. Thank you. But you may have added what are its basic reasons and in advanced stage why you have not focussed on multi systems of medicine to prevent it?
In one of my patient with Cholangiocarcinoma, the immunohistochemistry report shows MMR proficient tumor - microsatellite stable. Please guide what dose this mean?
Oooh God😟. I need to know something, I have had pain in my lower left stomach . I don't know what is the problem. Doctors have told me that it might be ulcers, but am not sure. It's been a year now . I feel alot of bubbles and gas originating from that very spot . I don't know what . If anyone knows this experience can reply my comment . Thank you.
My mother has been diagnosed with this and had no symptoms only very slight weight loss as she has been trying to loose weight anyway her cancer is contained but due to her age cannot operate offered chemotherapy has been told she won’t live longer than 2 years but I keep seeing people on here saying they died a few weeks later
