Understanding Sarcoidosis: A Visual Guide for Students

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This video contains a detailed and simplified explanation about sarcoidosis. We discuss the pathophysiology, presentation, investigations, complications and management of sarcoidosis.
CORRECTION Sarcoidosis can cause a facial nerve palsy, not a Bells palsy (which is an idiopathic facial nerve palsy) - thanks to David Pennell for pointing this out.
More written notes and diagrams about sarcoidosis are available on the website at www.zerotofinals.com/sarcoidosis.
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DISCLAIMER: This video is for education and entertainment only, and is not medical advice. This video should NOT be used for medical advice or to guide clinical practice. The Zero to Finals content should not be used in any way to guide medical decision making. Zero to Finals takes no responsibility for any actions taken or not taken based on the information provided. Local and national guidelines and senior clinicians are there to help you make decisions, not RU-vid videos. If you need medical advice or information, seek it from an appropriately trained and licenced doctor or healthcare provider that can address your individual needs. Zero to Finals cannot guarantee the accuracy of information in this video. Please highlight any errors you notice in the comments below - thank you.

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2 окт 2024

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Комментарии : 804

@lisaappell3090 5 лет назад

I’ve had this disease for 10 years. I was initially told I had lymphoma and after many difficult moments with family members, I received a very pleasant phone call saying it was sarcoidosis all along. The doc was so happy to tell me that, I felt relieved. Little did I know. Over the years I’be only met two other people with sarc. You’re video is an easy way for newly diagnosed sarc patients to understand what could be happening along with what is going to happen next. Sadly many people, including doctors aren’t familiar enough with this disease. Please continue to make more of these videos.

@ZeroToFinals 5 лет назад

Thanks Lisa

@bobbyking6886 5 лет назад

Lisa Appell - how do you feel now after 10 years of treatment? I’m a 50 year old male recently diagnosed. Thanks in advance.

@jgeph2.4 5 лет назад

I was diagnosed back in December 2018 . My family Dr along with a routine heart scan from my union diagnosed it before my actual Pulmonary Drs diagnosis was complete . Have to say I feel blessed after hearing some of the stories of people suffering a long time undiagnosed

@nusaibaqudat4612 4 года назад

Hope you all are doing well ❤

@Simplebe3 4 года назад

MATSSAKSVDOS

@chriselain36rakes89 2 года назад

I found out I had Sarcoidosis in 2000. I was a junior in high school. I remember at the time little was known about this disease. It’s nice to see other people who are familiar with this vicious illness. It takes so much from your body. I wish peace and blessings to anyone battling this.💪🏾🙏🏽💯

@jamiewilson5679 2 года назад

Did you get that "wet sock" feeling?

@doogiebear139 2 года назад

@@jamiewilson5679 I get it often and my wife looks at me like I'm crazy when I tell her about it

@jamiewilson5679 2 года назад

@@doogiebear139 it's SO weird.🤣

@red19700 2 года назад

Hi 😊 Sarcordosis is Awful And Hard to Deal with But for me it's Not just the Disease it's Self, it's the other issues like The Bad Service from The Oxygen Provider. It's getting treated as a Cigarette smoker and Not a Sarcordosis Patient who has a different Respiratory History because my Lung Disease is Not the SAME as someone who Smoke Cigarettes. If you Never Need Oxygen, you're LUCKY! God bless you and keep you healthy 💯

@doogiebear139 2 года назад

@@red19700 God bless, hope all is well.

@dnathan2018 2 года назад

I had Sarcoidosis when I was 18 yrs and 27 years old both times was identical symptoms it started with the lungs for a couple weeks and then a rash like hives on my legs. My heel was so sensitive and red. Gradually I started to feel pain on my joints and I couldn’t breath. The level of pain was 11 it was unbearable I couldn’t dressed my self I had my husband help me. They gave me steroids and asthma medicine inhaler. It lasted for three months with praying and Gods help it left. I still have breathing problems so I use Breo inhaler and that has help so much. I’m also felt alone with no one who heard of Sarcoidosis. I’m in my mi 40s and have to get tests every time I’m having difficulty of breathing so far I’m ok. Praying for you all.

@vincent_hall Год назад

Best of health. I hope your symptoms stay away for longer and longer periods.

@fantaztikbeatz Год назад

I'm glad you are doing much better. It's definitely a very serious thing to deal with some days are better than others! I just try to stay stronge and enjoy life!

@BARUCH6223 Год назад

@@Appygo7WHAT IS LUNCH NODULES

@chichi4431 Год назад

God will perfect it. What God cannot do does not exist.

@besttest8351 11 месяцев назад

Be heal forever

@amyniswanger7083 2 года назад

I have had cardiac sarcoidosis for 13 yrs. I am on prednisone, several heart meds, and have a pacemaker/defibrillator. I was diagnosed with a lung biopsy. I am in overall good health, exercise and eat a plant-based diet. I recommend National Jewish Hospital in Denver, CO where they treat many lung and autoimmune diseases including sarcoidosis.

@jaymesfunches8566 2 года назад

I just got a pacemaker/defibrillator a few months ago for my sarcoidosis and it saved my life twice. Battling this disease has been a real struggle for me.

@cynthiacollins5511 2 года назад

I am a black female 63yrs old, I found out I had sarcoidosis in 2001. I kept a constant dry cough, I had nodules that came on my outer skin. For two years I kept going to a neurologist, in my city. And they couldn't figure out what was going on. Until I asked to go to the IU Hospital in Indianapolis, the doctor there discovered in 3 days that I had sarcoidosis. It had start affecting my walk , like stiffness arthritis. Thank God they started treating me with prednisone steroid, and thank God today, I no longer have a constant cough. I am still under doctor's care, twice out of a year I have to see my neurologist. Doctor James is such an awesome doctor. Again I thank God that he allowed me to find a good doctor that understood what I was going through. Because a lot of people have sarcoidosis and think that is asthma, because it affects your breathing. So again thank God for good doctors that know about sarcoidosis.👏🏽👏🏽

@KiwikimNZ 2 года назад

I am a nurse who is fascinated by human biology and disease. Great video, easy to understand and informative! Thank you I will be subscribing! .

@wearingsa 2 года назад

This is what took my mom in 2014. We never say it coming. One day is was talking to her on the phone the next day I got a call she was gone. Losing a mother is tough but losing them w/o warning….😢😔

@creativequeen8371 2 года назад

I am very, very sorry you lost your mother. The shock must have been unbearable.

@laraejackson4115 2 года назад

I got this when I was about thirty. Had nearly every symptom you talked about. The doctors told me it would move from my lungs to other parts of my body until it took my life! I was treated with steroids, methotrexate and other drugs. I am now 82, and still Showa scarring in my lungs! My son inherited it from me. We both had it, plus both had to have an illeostomy because of ulcerated colitis. We have both had to have out rectums removed because of constant pain and bleeding. I was 21, my son was 18. No immune systems. I have severe rheumatoid arthritis too! It’s been a long sixty years for me! My son is now 64 and has suffered with these things for fifty years now. My other four children have been fine. No one in our family had ever had any of this! Guess we were just the lucky ones! Thanks for your explanations! Not much has changed, as they asked me if I had ever been in the deep south or lived in a basement. Told me it was more prevalent in black people. This was in 1969!

@creativequeen8371 2 года назад

My my...What a journey! LaRae, what you and your son have lived through...I don't mean this as a truth comment, but have you ever thought about writing your life story? It sounds like it would be very helpful to others, and may be cathartic for you and your soon. God's Blessings to you both 🙏🏾

@robertbrady6927 2 года назад

I was diagnosed with Sarcoid in 1983…it was treated with inhaled steroids…no issues since…also ran two marathons so my lungs are good

@danacaro-herman3530 2 года назад

@Robert Brady. God bless you Robert!! I have sarcoidosis and it's exhausting and painful. I'm praying for healing.

@islandkeymermaid9094 3 года назад

My BFF from childhood has sarcadosis. This disease is so unfair and difficult to DX....god bless all w sarcadosis.

@user-wx4sd1vr3l 5 лет назад

Thank you for posting the information on sarcoidosis. I had my biopsy 2 days ago, and the doctors suspect either sarcoidosis or lymphoma. While it was easy to find information on lymphoma, It was difficult for me to find any information on Sarcoidosis, and this video was a tremendous help. Thank you.

@MsJ_2023 3 года назад

Information for Sarcoidosis is definitely out there! 20+ years ago we didn't even internet. Google Sarcoidosis & only rely on reliable websites, Medical, Clinic, Hospital, Clinical Research. Good luck! Be Blessed! Be careful! Stay safe! 😷😷😷😷🙏🏾🙏🏾🙏🏾🙏🏾💜💜💜💜

@alankritghosh_007 2 года назад

@W how are you doing now?

@elliottholmes3785 2 года назад

I have a family member who's had it for a number of years there are so many things that you guys go through I've a little more understanding God's Blessings...

@miasheriepenn2897 2 года назад

Hi, my mother had it n I have learned all the ends n outs about it.. My mother went through so much. I can totally understand what you guys are going through love💕

@LillianArch 2 года назад

Thank you. This is a rare debilitating disease. Once thought might have it. Simple chest x-ray showed not. Instead a virus uncontrolled spreading dysfunction to most organs or at the least cysts on them. I checked out info on sarcoidosis and found the highest number of support groups in and around Seattle, WA. Some evidence suggests it's triggered by exposure to the mold found on evergreen trees. Praying for all those with immune diseases. Thank goodness doctors are much more knowledgeable and learning more all the time.

@deemueller6470 2 года назад

I had not heard that but it would make a bit of sense in my case. We had a live christmas tree one year (frazier fir). I was in medical care before Christmas. Everytime i coughed, it tasted like pine sol. It was a horrible start to the new year. My weird symptoms of lung and body issues came and went for years til i was sent to the cancer ctr after a spotted ct scan.

@ReezeRich1 2 года назад

Recently got it.. and guess where I live ...Seattle 😞😒🤦🏾‍♂️ just moved here from Chicago

@jamarie53 5 лет назад

I truly appreciated this presentation. It was simple, to the point and handled just about every scenario possible. It would be a good one for not only students, but present day doctors and is great for family and friends to watch to understand this disease. Thank you.

@ZeroToFinals 5 лет назад

So glad you like it Judith! Thanks for the positive feedback

@rachelo315 4 года назад

I have Sarcoidosis in my left eyelid after 3x draining a chalazion. I do not have it in my eye, and I also have it on my right cheek right after I started Plaquenil. My CT was clear for any granulomas elsewhere. I've been dealing with chalazion for 2 years. Somehow it developed into a sarcoid in my eyelid and started growing toward the back of my socket. I had a biopsy done and it blew up terribly. I started on 60mg of prednisone then on Plaquenil. My eyelid still isn't healed completely and kept reopening on and off as the sarcoid shrank and inflamed. I had my biopsy done in late January 2020 and it's now July 19th 2020. Please, please, do your research on this and don't just prescribe drugs. I've noticed with clean eating and turmeric my symptoms are so much better. I also started putting black castor oil on my face and the change overnight was amazing. Went from cherry red to light pink. Also, please know these meds cause major hair loss. Vitamins are very important as these steroids suck the life out of you. So it's terrible all the way around. Not only will you get moon face, weight gain, hair loss, vitamin deficiency, mood swings, depression, but you are also fighting the effects of the sarcoid and whatever deformity that causes. Then you get into self esteem. Not to mention if you have it in your lungs and you can't breathe or you feel your heart isn't working. Be sensitive to these patients please.

@imajokerimasmokerimamidnig7442 3 года назад

Wow.. I'm so glad I decided not too even try the presidone when I was diagnosed w/ scarciod in my lungs . I new it was bad but hair loss and moon face . no thank you , the weight gain was all i had too hear to say noway to it when my Dr was giving me the side effects .

@bronxchick2997 2 года назад

Thank you for sharing. It’s true we have to understand family when they have those symptoms you named and be patient. I pray God just heals everyone who is on this page! Jesus you still are in the healing business

@red19700 2 года назад

@@imajokerimasmokerimamidnig7442 I remember that day like it was yesterday . Because if the Doctor who I Seen back in 2007 would have Told me that if I didn't take the Prednisone I would be in the Emergency Room 1 years later. Instead of letting me Choose Not for because of the weight gain. I didn't know about the other Side effects. The Doctor didn't express the Seriousness of the disease. How Could he when he didn't have me take a Chest X-ray. 🤔 But He should have if he was a good doctor and do some blood test that day Of my doctor's appointment. Unfortunately I Suffered from that Lack of Care A lot

@red19700 2 года назад

@@imajokerimasmokerimamidnig7442 The weight gain was the Reason I didn't want to take Prednisone. Sarcoidosis was New and I felt Good. If I would have known what was coming and my Health was Getting bad I would have Taken the Prednisone at first. The Doctor Did NOT explain the importance of me taking the Prednisone to Slow down the disease Progress in my Lungs. Hell he didn't even talk about all the Side effects. He asked me how I was feeling and that's ALL. I Realize that my Health was Not in Good Hands. 6 months After the Doctor visit my health took a turn for the worst. I had Difficult Breathing so I Drove myself to the Emergency Room and was Admitted in 2007.. It's Been a Very Difficult Journey. I been through the Hair lost, Moon face, and I been on a Ventilator and I will keep Fighting not to Sleep with the Ventilator so I take the Prednisone and 🙏🏽 Ect There Needs to be MORE Focus on Sarcoidosis Patients 💯

@red19700 2 года назад

I was Never told by my Pulmonologist that I could take a Vitamin I have Brought Insure Protein drink but they are costly. 🤔 I'm thinking maybe the doctors didn't suggest me taking Vitamins because of the Prednisone. 🤔

@asafaust6774 2 года назад

Bernie Mack had pneumonia and sarcoidosis. He is missed.

@happyhannah680 2 года назад

He smoked a lot n would not quit

@debmadden4157 2 года назад

Bernie Mack was on prednisone for years. He passed over from having pneumonia. Pneumonia is treated with prednisone. Prednisone didn't combat the pneumonia coz his body was use to daily consumption of prednisone. I was dx with Lofgren Sarcoidosis the day after he passed. Scared the crap outta me. I'm very selective when I need to take prednisone. I wanna use it if things get bad like it did for Bernie. RIP

@janderson947 2 года назад

@@happyhannah680 he had a condition just stop it was more than just smoking in that case it wouldn't be as rare....

@happyhannah680 2 года назад

@@janderson947 I know my son has sarcoid also with cirrhosis from sarcoid

@asafaust6774 2 года назад

@@debmadden4157 Thanks for info.

@littlehuey5679 2 года назад

I have multiple organs involved and this video will really help my family understand what I’m facing !

@KiwikimNZ 2 года назад

Oh it’s very hard when you have a disease or illness that can make you feel so unwell, and it’s very hard for your family and friends to understand what you go through. I have a chronic regional pain syndrome which has made me so unwell, it’s been lonely and hard. This disorder sounds horrible. I’m so sorry you have this. I hope you have treatments and a good physician that is helping you ! Good luck

@MissIngrilicious100 2 года назад

My Mom was diagnosed with Sarcoidosis. It affected her lungs so bad, at one point we thought we were gonna lose her. But through God's mercy, she's still alive and with us, but, she's suffering daily. She has lost so much weight, she doesn't wanna go out anymore. This is a horrible disease, on top of that she developed shingles😭😭😭

@lovetonegirl 2 года назад

It definitely is my mom died from it it’s a horrible disease I hope the find a way to help your mom

@red19700 2 года назад

Hey I'm sorry to hear that your mom is having a very hard time with the disease. Trust me I know just how your Mom fells. I have been dealing with Sarcodosis Since 2008. And, it's been SO AWFUL ‼️ The first time I was Hospitalized, it was the Most Scariest Time for me and my Family. The Second Time Not as Much but still Difficult. 3rd Time Difficult and Annoyed at some of the Lazy Nurse and Bad Student Doctors. Every Hospital is Not a good Hospital. If you can TRY to Have Someone with you Around the Clock. I know it can't be done Now with COVID 19. But once it's Back to Normal in the Hospitals... please remember this for your Mom and yourself etc It's a Physical, Mental, Emotional Struggle with Limits on what you are Able to do. Tell your Mom to keep fighting and Never Stop ❤️💐

@red19700 2 года назад

Ensure is good for her immune health It's a good source of Proteins and Victims I hope she feels better 🙏🏽, 🙏🏽 🙏🏽

@red19700 2 года назад

Had she received a Shingles shot before I just fought out that the Shingles can come in 2 parts which means 2 Shots.

@chanelw1068 2 года назад

@@lovetonegirl my mom had this so onto of diabetes. I'm sure this contributed to her death in 2006.She got diagnosed with it in about 1995.

@valeriegjones 2 года назад

My nephew passed away from Sarcoidosis about 3 years ago. He was 35 or 36. He was asymptomatic for years. He coached two basketball teams. He actually found out he had it after playing full court basketball. He later couldn't breathe right so went to doctor. He told us the doctors were surprised he had been playing ball or running because his lungs were a mess. It's unbelievable how his health went down so fast. I think it was a year or so later that he passed away. He was my brother's youngest son. Very heartbreaking. He was a great guy who loved his baby daughter, his students and his community.

@aaronmcneil3484 2 года назад

Sorry for your loss. I have it as well. It keeps snatching my employment from me. First truly suffered from it the day after my 30th birthday. I'll be 50 in February. Been studying origins and human physiology along with being a pupil of holistic doctors, medicine, and lifestyle for about 4 yrs now. No pharmaceuticals whatsoever! Not even aspirin. But the disease reduced my vision from far better than 20/20 to blurred and cloudy with very annoying floaters. Then it attacked my skin above my ankles giving me terribly poor healing skin ulcers. I can't even begin to explain the intense pain at times. But I'm still doing diligence.

@moniquegreen7829 2 года назад

Sorry for your loss ❤🙏

@ssgferrell 2 года назад

Sorry your nephew past away. My sister is right now in icu with this. She is on a machine that works for her lungs. It affected her heart and kidneys. She is on a dialysis now. Can put her on the list till they get her kidneys together.. She was diagnosed back when she was like 18. She is over 60 it came back like 6 yrs ago. Her doctors at the fist hospital kept doing procedures which made it worst and then denied to put her on the list. Shit crazy

@bernadettehays453 2 года назад

I so sorry to hear this.😥 There have been a couple of cases of young people passing from sarcoidosis also here in the UK. So very sad. My sincerest condolences to you and your family. Sending you much love and hugs.💛

@creativequeen8371 2 года назад

I am so sorry. What a terrific loss. God Bless you.

@lyndayeadon6681 2 года назад

I have Sarcoidosis and Pulmonary Hypertension. One area that you did not mention is Vitamin D dysregulation. Very few doctors know of this and are continuing to prescribe Vitamin D to patients who do not require it leading to hypercalcemia. Maybe you could add this to your video. It is an excellent resource. Thanks.

@patsysterling9113 2 года назад

So you shouldn't take vitamin D with the sarcoidosis cause I take 50.000 mg a weak. I'm always sick with this disease. Don't understand it always in pain

@zinniahondoram3778 2 года назад

@@patsysterling9113 Ask your doctor to monitor it for you. It's not that you shouldn't take D exactly but it is true that people with Sarcoidosis can have problems with regulating it and if it gets too high it's dangerous.

@lottiestanley7696 2 года назад

@@patsysterling9113 You need to have the 1,25D checked. It is the one your body uses. The 25D is what doctors usually test. It is only the storage version, and is usually low in people with sarcoidosis… unless they’ve been supplementing with high doses of vitamin D. I have been on the Marshall Protocol for 17 years. It got me off of prednisone, and any immunosuppressants, and I now have a normal 1,25D and, can function more normally, in general… although age 73 is taking a toll 🙄

@allison5530 2 года назад

I have sarcoidosis, fortunately inactive,,what , about the vit d?

@deemueller6470 2 года назад

My vit D is always super low during the active episodes. That isn't always in every case.

@mimim6857 2 года назад

I have sarcoidosis and the inflammation has wreaked havoc on my joints. I was fortunate that I never developed disease in my lungs, but I did develop disease in my liver, bones and kidneys.

@nocapenzo3318 3 года назад

My biopsy is coming up and this guy not only informed me he scared the 💩 out of me

@alankritghosh_007 2 года назад

What was your results? And how are you doing now?

@nocapenzo3318 2 года назад

@@alankritghosh_007 I have idiopathic pulmonary hemosiderosis and my issues are still the same. I was prescribed micophenolic which is a immunosuppressive drug! Haven’t taken it because of Covid! Can’t be out here more vulnerable

@alankritghosh_007 2 года назад

@@nocapenzo3318 what is your age?

@ItsmeMsG 2 года назад

I'm not a student. My sister (black female, 49 years of age) passed away from this disease. She was to receive a lung transplant,, but didn't make it for this to hapoen. Thank you for sharing details and insight as we knew nothing about it.

@patsysterling9113 2 года назад

Sorry for your loss I feel the same way they are not educating us with this disease I can't work or do anything with this disease always in pain

@ItsmeMsG 2 года назад

@@patsysterling9113 I am so sorry to learn of your diagnosis and pain. You are in my prayers for complete healing and a testimony to others of the power and love of God. I pray that you be encouraged to continue your fight. Sending you a big hug!!

@patsysterling9113 2 года назад

Thank you that means a lot to me

@jamiewilson5679 2 года назад

So sorry for your loss.💛💚

@ItsmeMsG 2 года назад

@@patsysterling9113 💕

@canadianintheend 2 года назад

Thank you so much for sharing all this information to your students and the rest of us.💕

@Rocky57260 3 года назад

Feel lucky to have discovered this channel❤️

@rosewhaley 2 года назад

THANK YOU! I was diagnosed in 1987 (the age of 37 in my LUNGS and SKIN by 2 different doctors, I HEALED COMPLETELY 1994 ( I am now 2021 age 71- look like 40) My HEALING PROCESS I wrote all the DETAILS in my first book and about many others ILLNESSES I HAD. "The book without a name, you read you name it" and shared on my cable show "SELF AWARENESS" I AM GRATEFUL for my EXPERIENCES, I LEARNED a LOT ABOUT WHO I TRULY AM and MY DIVINE GIVEN POWER WITHIN that we all have we are all connected! I AM HELPING PEOPLE HEAL THEMSELF. "ANYTHING CAN BE HEALED!" LOVE, PEACE, and MORE BLESSINGS! ROSE WHALEY-RU-vid.

@atoxicsagittarius8708 2 года назад

How did you heal it

@jackcayman9217 5 лет назад

Super helpful, thanks! I have an exam tomorrow about systemic diseases and I just couldn't understand what the hell sarcoidosis was.

@ZeroToFinals 5 лет назад

Thanks Jack. Sarcoidosis is a hard one to get your head around!

@MrHeadbanger366 2 года назад

I was diagnosed in 2006. At the time, I didn't know what sarcoidosis was. It's been quite a learning experience.

@red19700 2 года назад

Hi, I never heard of Sarcordosis and like you It was New to Me. Sarcordosis has Brought me To my Knees and it has Change my Life in a Major way. And I could NOT get Through this without my Heavenly Father, Amen ❤️💯

@alankritghosh_007 2 года назад

@@red19700 how are you doing now?

@red19700 2 года назад

@@alankritghosh_007 Hi, I'm doing good Thank You for asking. It's taking a while to get to place where my fear is less and my Will for Life is Determined and A fight to get as Close to where my Health use to be. Praise God for his blessings, Amen.

@nancyheilman876 2 года назад

Thank you for this lesson. I kept waiting for you to talk about the spleen. I had a tumor the size of a grapefruit in my spleen. They removed the tumor and spleen whole since they didn't know what it was. HUGE incision and cancer was the first rule-out. Pathology came back as sarcoidosis. Prior to surgery I saw multiple specialists as part of the work-up (oncology, rheumatology, nephrology, ophthalmology, etc.). Now I understand better, knowing how unusual my presentation was.

@lottiestanley7696 2 года назад

Sarcoidosis can affect ANY body part.

@eve438 2 года назад

So sorry

@feleshakynard3848 2 года назад

I was diagnosed with Neurosarcoidosis in 1997 when I was 21 years old. I went paralyzed, and I had to learn to walk again. I now have it of the Brain, Spinal cord, Heart, & Lungs. I got a defibrillator at 30. My prayers go out to everyone battling this horrible disease or any auto immune diseases.🙏🏽🙏🏽🙏🏽

@cassandracraig3708 2 года назад

I am praying for comfort and complete healing upon you.

@zozansinde9610 Год назад

How did u find out

@pamelajohnson1993 Год назад

I have it in my lungs and eyes. I recently had a hip replacement and then 6 months later my knee replacement. I believe that it's starting to affect my joints. I need a Dr that specializes in sarc. Instead of me going to multiple different doctors

@jjlattimer8858 Год назад

I was diagnosed in 2008, mine is pulmonary.. Nasty disease, nice to see more info and im not alone..

@aliciamccallum3289 4 года назад

One of the best videos I've seen I've got pulmonary lung sarcoidosis.

@jamjamb123 4 года назад

Alicia McCallum can I ask how you found out this is one of the 4 my dr suspects I might have because of symptoms and positive Ana test . I’m getting more blood work tomorrow I’m actually scared

@zoraidaarboleda6212 2 года назад

Sarcoidosis patho, Dx and management was explained in a very clear way! Thank you!

@portiamatthews9654 2 года назад

Unfortunately, my oldest sister died from this disease in October 2000 at Northwestern Hospital, Chicago. As a family we donated her organs and tissues for further studies of this disease. We wanted others to learn more about it as well as studies about it because when she was diagnosed with it was back in the mid eighties by a dermatologist. Again only a few doctors was aware of this terrible disease and no regimented treatment for it. What I believe what really pushed this to the fore-front was the death of comedian Bernie Mack. Bernie Mack died at at the same hospital same ICU unit almost eight years later. Knowing that another family having to go through the same things as my family is unimaginable because I know that they wanted answers as well. Awareness, education, and medical treatment for those who have it was all I could think about. Everyone please know your family medical history and share it with other members. This is where awareness should begin and documented in your medical history. My best regards to everyone and their families.

@omanita7289 Год назад

In about 2 weeks I now if the diagnosis correct is. When that is the case 😭 is this the second diagnosis I passed on to one of the children lots of prayers for the grandkids. Diagnosed EDS 2019 age 53 and its also genetic, few months later Horner syndrome, 2009 infections in my lungs almost died sinds that time every year infections in the lungs and doctor couldn't find why. Heart attack in 2020. It's a scary time not to understand what wrong. Now I learned to now my body. Fever higher or lower temperature lot's of sleep and now stress. Hope for more awareness about this diagnosis. Learn Ehler Danlos, lung, brain, heart and Horner syndrome can be a connection to Sarcoidose. Because the diagnosis EDS already speciale care, hope don't need more. So lucky for all the things I still can do. Wishing everyone strength and sending blessings 🍀

@Mea_Davis-Sotonade Год назад

I'm so sorry for your loss. ,😢 My baby brother passed away this February 2023 at 34 ...9/12/23 he would have been 34 this week. It took a while to diagnose but he had a very bad case of it. So painfully sad and just still don't feel real 😢. Lesions all over. Just reeked havoc in multiple organs especially the lungs 🫁

@portiamatthews9654 Год назад

@@Mea_Davis-Sotonade I'm so sorry for your loss as well. I truly appreciate your response and sharing your thoughts about your personal experience with us. Gaye Nell was 39 years old at the time of her passing. You know how difficult it was watching your love one on artificial support. Watching your parents trying to wrap their minds around the facts of preparing to lose their first born daughter. It takes time to find a way to get through the loss of a loved one. Especially, special occasions such as birthdays, holidays and family get togethers. My advice will be to speak about all the happier times spent together, spread awareness about the disease. Setup a foundation with the name to help others. It's a journey believe me. May God continue to strengthen you and yours. Peace and blessings to you.

@laurelgirard8475 4 года назад

I’m not a med student, but I am a patient with Sarcoidosis. Thank you for the very clear, conscience, up to date video about “All Things” Sarc. It is hard to find info like this all in one place. Hats off to you and anyone else that contributed to this easy to understand, informative video.

@ZeroToFinals 4 года назад

Thanks for the great feedback! I am glad if it helped in some way

@lisagast4616 3 года назад

@Emily Halifax Thank you so much mines back I’m gonna need all the help I can get thank you for the information in and where is he located

@maheshnathyogi8106 3 года назад

@Emily Halifax Thank you. How can i get in nepal ?

@lisachandler9596 2 года назад

PRAYERS FOR HEALING 🙏

@joannlawery4258 2 года назад

Even though this video is 3 years old, I'm just discovering it now. I am a 69 year old black female and I have had sarcoidosis since the 1990s. It seems to attack every 10 years or so. I'm afraid though that it's flaring up again now. I've gotten it in my lungs, eyes and legs.thank you for this video it's very informative

@LoveFlatfootin1 5 лет назад

Great video! Could you make one on Sjogren's disease? Most doctors don't know enough about it even if it's the second most common autoimmune disease after rheumatoid arthritis.

@TamaEnergy 2 года назад

@@EmberFfin Its always interesting to here a patients perspective, Im a medical student and have come across Sjogrens multiple times in my studies, hopefully other students have had the same exposure :)

@MasterofScrutiny Год назад

My sister in law has Sjogrens. She eats no gluten at all and has really improved because of it. She was walking bent over, but now she stands up straight.

@hollins550 2 года назад

My mother passed away from this disease in 2013 on Easter Sunday. I watched my mom run her own cleaning business to letting it go and not being able to breathe. I'm grateful for the mother she was to me. Get ya rest my 💕

@cookie-gb3xn 2 года назад

🙏🏾❤🙏🏾

@wanderlustm.2959 Год назад

May her soul rest in Peace

@hollins550 Год назад

Thank you ladies💗

@kandisharris6309 2 года назад

I was diagnosed with Scarcoidosis after have my second child. Over the past 16 years I have had 5 eye surgeries, and been on many rounds of methotrexate. I have never met anyone that I didn't have to explain my condition to. I found this to be very useful and informative. Thank you.

@debadritachanda4863 2 года назад

My mother has been suffering from this for years. I am 18 and I have seen her go hospital and almost die so many times. This is very important and informative

@meyokkob458 2 года назад

My mom battled this illness for years she died from it

@debadritachanda4863 2 года назад

@@meyokkob458 that's so sad..late last year my mum was hospitalised for weeks..I had my finals then and there were times when it was evident that she might not come back and in your case, she didn't. I can understand your pain to some extent.. please stay strong! I am sure your mom loved you a lot and would want you to be happy!

@patriciahazeltine9986 2 года назад

I found this very interesting, having developed Sarcoidosis in 1986. Steroid treatment was successful, and within 6 months I was much better. I had Graves disease, and a thyroidectomy, my gallbladder removed, and complete hysterectomy. However still pretty healthy, at 67, despite morbid obesity. Not vaccinated...but have survived covid. Yay for antibodies! Thought you might find this interesting.

@ladybugsarah6671 2 года назад

Good for you!! No vax is the way to go! After I don't know how many months of oral steroids I had till, I felt like I was dying. So refused to take them anymore. I hate the things. I have thick mucous in my bronchial tubes that narrows the airways. So Mucinex DM 12 hr is my go to especially around flu and cold season. No vax for me either. If I get to heaven faster then so be it. lol I have fibromyalgia too. It's a real pain. Actually many multiple pains, all day every day, for years.

@patriciahazeltine9986 2 года назад

@@ladybugsarah6671 Thanks and you hang in there too, ladybug!!

@WW-kw3rt 2 года назад

My friend survived Covid as well, I met her 26 years ago, we were both pregnant, she had sarcoidosis then. Continued blessings.

@patriciahazeltine9986 2 года назад

@@WW-kw3rt blessings to you as well!!!❤

@teresaevans4840 2 года назад

Thank you,

@howtomedicate 5 лет назад

I was waiting for this video! Thanks a lot! 🔥

@ZeroToFinals 5 лет назад

Thanks! Was supposed to be out yesterday but this one took a lot of work and I couldn't get it done in time!

@howtomedicate 5 лет назад

@@ZeroToFinals I can imagine! You videos are always fantastic! Just keep putting quality above quantity!

@ZeroToFinals 5 лет назад

@@howtomedicate Thanks. Will do!

@melindamarch9381 2 года назад

Thank you 💕 for this my sister-in-law died from this( she was a chain smoker of those More long brown cigarettes) and my brother tried to explain it to me and now I understand YOUR explanation better than his . So again thanks.🙏🏾💯

@pixelhinatabecca989 2 года назад

Those long brown cigarettes are called Black's cigars. You will hear people ask for them at the gas stations as just "blacks".

@melindamarch9381 2 года назад

@@pixelhinatabecca989 no they're not, the cigarettes are called More , red pack regular ,green pack menthol . Maybe I left that part out. My bad.

@keyliyah33 2 года назад

My mother just passed away last month from Sarcoidosis. She did have the double lung transplant that was a success but developed other issue due to all the different medications. The decease also spread to her lymph nodes and stomach and caused blood clots that formed in her small intestines which cause 95% of it to die. By time doctors saw the necrosis of the small intestines it was already too late. For anyone dealing with this disease, God bless you may He heal your body.

@willowspiral7886 2 года назад

Very sorry for your loss

@IsaMoralesAl 2 года назад

So sorry for your loose!

@meyokkob458 2 года назад

My mom passed away from this disease as well….some say it’s from minuscule mold in the air homes, work place, etc…. They really don’t know. I’m sorry for your lost my mom suffered from this illness

@lanitaykelley8838 2 года назад

1 November 2021 Hi Rachel What is 'moon face? Thanks in advance.

@lanitaykelley8838 2 года назад

Condolences Keyliyah33

@This.Is.30-Mandie 2 года назад

My mom passed from it in ‘99 I miss her daily I wonder why she didn’t survive? All these folks commenting that they survived it all the way back from 1986. Why didn’t my mom survive it?

@happyhannah680 2 года назад

Sorry for your loss❤

@This.Is.30-Mandie 2 года назад

@@happyhannah680 thank you

@jacquelines3685 2 года назад

@@This.Is.30-MandieSo Sorry!! Lost my Beautiful Mom 4 years ago to Sarcoidosis.😔🙏🏾

@janejohnson3031 2 года назад

I be asking this same question

@ftshiona1 2 года назад

I am not in the medical field but I am curious to know if there has been a study regarding the corallation between Sarcoidosis and those with rh negative blood that never received the rohgam?? shot at birth.

@susanheagy3801 2 года назад

For the first time I have a name to put to it all. In my 20's I developed erethema nodosum but no doctors knew what to do about them. I discovered on my own stress increased them but if I took between 1000-2000 mg of Vit C regularly it kept them away. If I stopped, they came back. Now, 50 years later it is rare to get the lumps. Appreciate the info.

@agnesmudo5800 2 года назад

Hello Susan. Can you be specific in which vit C a person can take? I've been experiencing this for 4years now and doctors didn't help.

@susanheagy3801 2 года назад

Ester C of any high quality C; not thr cheap ones. 2000 mg day

@sandysue202 2 года назад

Thank you. My late husband had this and I could remember well all the various things you covered. His was pulmonary and also in his brain which caused a seizure. The prednisone helped so much but then caused its own set of problems.

@borgullet3376 2 года назад

sorry for your loss sandysue202. hoping you have solace and peace. - God Bless and Keep

@TeeNicole10 2 года назад

MAY HE IS RESTING WITH OUR FATHER WATCHING OVER YOU🙌🙏🏼

@davemartani1529 2 года назад

I gained weight with the Prednisone. I average 210 with my weight and taking the medication I gained 15 pounds. I cut the pill in half where it was scored and started taking half a pill and got down to 210 again. I never told my doctor that I cut the dosage and didn't have any side effects from cutting it. I tore up my lungs from coughing and now it's it gets too cold I wheeze until my body warms up.

@mara235 2 года назад

My husband had neurosarcoidosis for 27 years, he finally passed away from a massive stroke in 2016..it is a sad and terrible disease. I am so sorry you had to go through this with your husband.

@Cinnmon10 2 года назад

I watched this because I have Sarcoidosis. This was very informative and helpful. Thank you.

@red19700 2 года назад

Hi I have Sarcodosis in the Lungs for 14 years And it has been a life Changing full of Emotions, Struggles, Strength, and Mental & Physical Strength with a Huge dose of Prayers 🙏

@AmanKaur-yt7ru 4 года назад

U explained sarcadosis in very simple manner .kindly tell us about treatment also .

@lisagast4616 3 года назад

He did tell you about three different drugs they put you on prednisone first which that makes your life a living hell I don’t suggestion I was on it I have 42% bonus 25 compressed fracture’s and there’s two other medications I put you one Mine went into remission in eight years and now the damn things back and I just don’t think I could go through this again if I knew you guys would like to start a group I think it would really help us

@davidbjwolf Год назад

en doctor house lo nombran demasiado .. pero lo que puedo decir es que estoy aprendiendo más ... Es lo mejor

@paulaking588 2 года назад

I was in my thirties when I was diagnosed with it Never heard of it It was new to me An unforgettable headache turned into no sight in my left eye

@havanadaurcy1321 2 года назад

My uncle was 21 and believed it to be a response to a feral cat bite thinking he had a parasite which they carry.

@lillian-cyradeaville1061 3 года назад

I have recently been diagnosed with Sarcardosis Pulmonary Fibrosis. Pulmonary Embellism. Survived Pneumonia late May 2021. I have Asthma and Sleep Apnea. The Hospital is very kind to me. I can sing again. Very determined to beat it. Thank you for your Lesson. Kind Regards Cyra xx

@truthful1463 2 года назад

I almost died from this disease in 2000 in the Naval hospital. It is not a joke.

@Berky-db1dq 4 года назад

Thank you for this info. I am about 7 1/2 years out from transplant and that really brought together the info I had but with more logic to follow. I unfortunately had pulmonary hypertension and was listed around 2 1/2 years so I was really bad by the transplant but I made it through with very few issues. If you ever have time it would be interesting to hear about after the transplant. I was really great after the transplant but have lost a lot of energy since the surgery but still get along well on my own.

@wsyungin481 5 лет назад

Rip bernie mac😢😢

@je6874 4 года назад

Who?

@rhondajarvis6742 4 года назад

I didnt realize he had sarcoidosis

@hikingwithadhdbrain2022 2 года назад

I have sarcoidosis. It was detected due to enlarged lymph nodes in the pulmonary hilux. But with me, the sarcoidosis has never settled in the lungs themselves but my joints and my sinuses! I have already been diagnosed with degeneration of both hip joints and I am only in my mid-30s. All the joints in my body are affected by the Sarcoidosis! Nice that someone has made a video that explains well what this disease is! Greetings from Norway!

@xokizza Год назад

Oh my praying for you! I am in the minds of getting diagnosed with it. They’ve seen it on my chest x ray, blood work and now I’m going for a CT scan then biopsy for final diagnosis. I’m taking pulmicort and salbutamol for my shortness of breath and chest discomfort. 😰

@robertwatson818 2 года назад

Most cases are caused by exposure to electromagnetic radiation from various sources. Boilers, telecom work, certain types of military work, or anything that surrounds the person in an electromagnetic field over long periods of time.

@jamiewilson5679 2 года назад

No,it's of unknown etymology.

@robertwatson818 2 года назад

@@jamiewilson5679 Years ago it was promoted as occurring in black females over forty and certain Jewish peoples. Of late it is now known that people working in certain occupations will almost certainly come down with this disorder--service in the military, working on or around boilers (they are radioactive), working in the telecom industry, or working a job which exposes one to electromagnetic radiation over long periods of time. The connection is solid. I am 74, white have sarcoidosis and worked under all those conditions for many years. Research.

@robertamurphy1124 2 года назад

Thank you for this. I have had this for past 6 years. It started when Smart Meter was installed. Thought there was a correlation.

@mikegarrison7957 2 года назад

That's how iron man was created

@lemhendrix 2 года назад

Interesting. Years ago. I visited two doctors, unrelated issues. Both were former military physicians. We discussed my Sarc issue. Both disclosed possibly military exposure to disease. I am former Infantry. I was prescribed Prednisone to start. It's been over ten years now. Mild symptoms. Fortunately. UCSF and UC Davis doctors told me origins unknown. Thank you!

@Battyxdarko Год назад

Thank You for this information! I was just diagnosed. The Pulmonary Specialist said that the hip lesions, tonsil enlargement, lymph node enlargement & liver activity are NOT related...neither are the symptoms of my eyes/sinus...so I'm being referred to an ENT & Orthopedic. This video tells me that it actually all may be related to the sarcoidosis. I just got prescribed an oral steroid for 3 months. I have no other direction with this and the Doctor doesn't see me until these 3 months are up. I'm afraid.

@misssthannng11 Год назад

🙏🏾keep praying keep fighting keep informing yourself try to eat anti inflammatory foods as much as possible...keep on keeping on🙏🏾

@jaymoney6481 2 года назад

I had Sarcoid Since 2004 its February 2022 still dealing with it...was on prednisone for 7yrs had to get off that now I just take cough Syrup 🤷🏿‍♂️

@AwaisShabir 2 года назад

brief yet covering everything.. awesome video

@divyaramesh3848 4 года назад

Really great video, was super easy to understand! Love your website too!

@ZeroToFinals 4 года назад

Thank you!

@xrigtrk 2 года назад

I had this diease God healed me,Praise the Lord.

@jacquelines3685 2 года назад

🙏🏾🙏🏾🙏🏾

@cassandracraig3708 2 года назад

Amen

@beverlyannfrazier3528 2 года назад

HALLELUJAH GOD IS GOOD

@sugakookie6303 2 года назад

My mother has this, for some reason most doctors don’t seem to understand this…

@charlesgrahammacleodstuart510 2 года назад

Misdiagnosis is common place amount the GP community. That’s why they are called practitioners, they practice on us!!! The strangest thing about sarcoidosis is unless you are scanned for something else it is rarely found. Many live with it an entire lifetime without showing any symptoms whatsoever. Hope you mom is doing well.

@UKS12345 2 года назад

I’m a white women and I had it in the lungs during my mid 50s. Steroids I took caused me glaucoma and osteoporosis

@germainefisher1632 4 года назад

Outstanding video, very informative!

@tawanagunther5730 2 года назад

I have this it's hard sometimes my cough attacks it changes alot vision alot of things thank you for sharing ❤

@jacquelines3685 2 года назад

My Mom passed from Sarcoidosis 4 years ago....I know it's hereditary in some cases not all & I'm about to turn 60.. No symptoms so far🙏🏾

@debbieroberts5866 2 года назад

My Mom passed away from it too. My condolences to you. I'm always watching for signs of it also! So far so good.

@jacquelines3685 2 года назад

@@debbieroberts5866 So sorry about your Mom!❤️ Yes.. let's stay healthy and continue to monitor our health. I'll be praying 🙏🏾 for you my friend!

@wannellalawson4001 2 года назад

Yes family member can get disease. My sister had it first. I had it second. Niece had it third. Finally my son. It may not run in all families but it did in mine

@danacaro-herman3530 Год назад

@jacquelines3685. I'm 54 now but diagnosed when I was 52 years old. Difficult to breath, get winded. My nephew was diagnosed a year before me he was 34 or 35 at the time.

@cormegastarks8815 2 года назад

I was diagnosed about 6 years ago..my first symptoms were swollen salavia lymph nodes at my jaw bones...I looked like Alvin frm the chipmunks...this disease can be very depressing but lucky I been able to treat my sarcoidosis on my on by reading and studying everything I could about it ...a lot of things I can’t eat or drink but when it’s yr health at risk...you knw how the rest goes...

@alankritghosh_007 2 года назад

How are you doing now?

@cormegastarks8815 2 года назад

@@alankritghosh_007 doing well managing my symptoms very well...keep spreading the good word with these videos great job👍

@alankritghosh_007 2 года назад

@@cormegastarks8815 sounds good... Btw can you tell me what are the things you restricted eating?

@bethwert2606 2 года назад

You mean you can lie to your parents & you lie to your priest but don't lie to yourself... Thanks for forthrightness

@cormegastarks8815 2 года назад

@@bethwert2606 oooook…not sure Wht lane yr in…but oooook..

@charlesgrahammacleodstuart510 2 года назад

Our doctor believes working in warehouses is a possible reason for this lung issue. Both my wife and I worked in the aviation and shipping industry and while I have no symptoms, she has been diagnosed with Sarcoidosis I known that when I worked in that environment, my nose would upon blowing it would, for want of a better word shed black soot… Disgusting but it was a daily issue. It may be a possible cause, as many of my colleagues have been diagnosed.

@jamiewilson5679 2 года назад

Yeah,exposure to dust,or chemicals, that's probably how I got it.

@wannellalawson4001 2 года назад

I got Sarcoidosis in 1982. Got off prednisone 15yrs ago. When I first visited doctor he told me sarcoidosis does not run in families. This is not true. My sister got the disease in 1981 tn I got it in 1982. Several years later my niece got the disease. Two years ago my son got the disease. Doctor asked me had I been around chickens. I told them yes. Another doctor told me trees. Doctors do not know. While I was on prednisone it was hell. I had different sizes of clothing in my closet. I finally got off prednisone 15yrs ago. I go to doctor every year for check ups.

@laurasturdy3424 4 года назад

I have sarcoidosis in my lungs spleen and wind pipe and enlarged lymp nodes around my heart, I've got it on my skin as well I've just been for a heart scan at the weekend to check to see if it's inside my heart. This is a very informative video for people to try and understand this disease

@Sonotbearface 3 года назад

How would someone like you be affected by COVID-19

@babygurl2993 2 года назад

😒

@tessbell3426 2 года назад

How did you find out you have it in your windpipe. I’m curious because I had it in the lungs, I have swallowing problems, sometimes a feeling like I got the wind knocked out of me.

@anvayajadhav9766 4 года назад

This video was very helpful! Thank you so much💕

@IsaMoralesAl 5 лет назад

When listing the affected organ systems, do you know of any stomach/gi involvement? My diagnosis started with gi and stomach sarcoidosis. I still to this day have not heard anyone talk about this kind of sarcoidosis presentation.

@MsJ_2023 3 года назад

There's some research out there, but not updated enough far as I was concern. I was finally diagnosed with Ulterative Colitis & I wouldn't wish it on anyone. This week I start on Remicade Infusion for the Sarcoidosis, but it'll help the Ulterative Colitis! My body is full of inflammation! I can't do any peculiar diet because I have Hypercalcemia. Some of the foods listed for U.C. don't always work for me! Not a diabetic so insurance won't pay for dietitian. Good luck. Be Blessed! Be careful! Stay safe! 😷😷😷😷🙏🏾🙏🏾🙏🏾🙏🏾💜💜💜💜

@brittanyg2529 3 года назад

Any answers?? I believe my Gma has sarcoidosis & she has GI symptoms which probiotics seem to help. Also a mushroom supplement she got from a naturopath

@IsaMoralesAl 2 года назад

@@brittanyg2529 I got my diagnosis by biopsies of the GI. I have become vegan for the most part. I find digesting meats (chicken, beef, pork ect) hard and very painful. I do consume fish, shrimp and do ok. Like any other disease, some days are better than others. Supplement vise I take Vit E Vit D and a eye vitamin because I recently have started to loose my vision in my right eye(sarcodosis related). Best of luck, be well!

@princessag584 2 года назад

Thanks for explaining this. Someone close to me passed away within 2 weeks of lung cancer. I know he had been diagnosed with Sarcoidosis about 15 years prior to his death. I don’t think he had any follow up after the initial diagnosis and treatment.

@RG-hf4et 2 года назад

I have sarcoidosis. Why isn't theresarcoidosis specialists to help us?

@reginamcrae2531 2 года назад

My Dad passed away from Sarcoidosis and I have it now I wish he was here lil was known about this when he was diagnosed. They gave him 3 yrs to live he fought for 13 when complications from it killed him. I fight every day as well

@cassandraw2861 2 года назад

Praying for complete healing of this disease for you 🙏🏾

@mabondavis4838 3 года назад

hello, this is an informative video on sarcoidosis. my secretory was also suffering from this condition. she visited many hospitals but didnt get any relief. then one day she visited planet ayurveda and got sarco care pack. now she is fine

@1031Fannie 5 лет назад

Very detailed. Thank you!

@latishamcrae4900 2 года назад

This video is so great I have NEUROSARCOIDOSIS and it so 📌 point, thanks

@cassandraw2861 2 года назад

I was told by a doctor about 15 years ago I had sarcoidosis it showed on my chest X-ray they took biopsy came back negative Thank God

@orielgb 2 года назад

I was diagnosed with sub Dermal Sarcoidosis 4 years ago. I've had no treatment apart form my own input, via lots of Dark or black foods, aubergines, blackberries, blackcurrants. grapes, strawberries, and lots of smoothies made with those fruits, to which I added powdered Aronia Berry. Now it's much better, still some small lesions on my back and neck, but most of the large ones are gone.

@melvino8926 2 года назад

Hello do the black foods really help?

@rachelsullivan2926 2 года назад

@@melvino8926 not with the more progressive types or stages, at least not in my experience. Although, I am glad to hear it helps in some situations.

@christineheiser798 4 года назад

So helpful for me to bring this info to the doctors!

@dmondg3281 2 года назад

I always heard Dr.Gregory House talk about Sarcoidosis so I had to watch this video.

@michaelwilcox6669 2 года назад

I have it. I was 40 yrs old (2008) when I was diagnosed. I’m a white male and besides being over weight, I was in perfect health. Since then, I’m only using 36% lung capacity and I’ve been on 2liters of oxygen 24/7. I was on 4 liters but but I lost a lot of weight. God has been good to me!!!!!!

@cookie-gb3xn 2 года назад

🙏🏾💯🙏🏾

@Mea_Davis-Sotonade Год назад

😢 my baby brother passed away this February 2023 at 34 ... He would have been 35 this week 9/12/2023 . It took a while to diagnose but he had a very bad case of it. So painfully sad and just still don't feel real 😢. Lesions all over. Just reeked havoc in multiple organs especially the lungs 🫁

@mariateresalopez9833 2 года назад

Loved the video. Found it very informative. Never set foot in Medical School, would have liked to have applied. I believe this isn't the only disease that gets misdiagnosed and goes undetected or detected in different tangents. Meaning, gets interpreted in many wrong ways. The critical key points to this disease is to focus on age and those nodules on the skin. Amazing, because, with autoimmune disease difficency, certain symptoms can explain away other diseases, and have similarities to sarcoidosis. Keep up the informative videos. They are wonderful. I learned something today. m.t.lopez

@TheBlondebombshe11 4 года назад

This has been helpful however I am a i I i I I am white woman with it. I have it in my liver and I have it in my lungs. I’ve had it for more than 20 years so I don’t understand why people keep saying it goes away cause it doesn’t. It seems as the years go by I get sicker from sarcoidosis.

@ketherwhale6126 2 года назад

Tell them to get Sunshine daily and up their vitamin D intake greatly.

@taklyftet 2 года назад

Nice to know but as I have had sarcoidosis the last 10 years I can tell you that it doesn’t work.

@doogiebear139 2 года назад

@@taklyftet I feel like if I get to much sun it gets worse

@shannangillam5145 2 года назад

I was told not to take vitamin D with Sarcoidosis

@SquishyGamers25 3 года назад

I came here to research about this since a girl desperately made a community post on her channel about her mum who had it in her lungs, and she is scared she will die. I want to find a way to tell her it will be fine.

@jones2277 3 года назад

you're a good friend. my mom has it too. :(

@SquishyGamers25 3 года назад

@Adriele Torres I think so yeab

@SquishyGamers25 3 года назад

@@jones2277 thanks 🥺 Stay strong

@lucym5698 3 года назад

Very helpful. My fiance has lived with continuing with his busy lifestyle this for 30 years would be interested in long term such as this.

@lisagast4616 3 года назад

Unfortunately some people go through it smoothly and others go through hell and of course I am the one for per 5% goes through hell

@sexi07 3 года назад

Very clear information.. Ive had sarcoidosis since I was 11 and its nothing to joke about ... THANK YOU

@خبر_في_حدوتة Год назад

كيف حالك الأن

@hishamalnour9072 3 года назад

Very Useful.. Thank you so much

@geraldinemurphy9374 4 года назад

Very easy to understand video which explained a lot to me. I believe that I have had sarcoidosis since October 2017 and it was misdiagnosed as fibromyalgia. All the signs were there, red raised lumps in my shins and the breathlessness along with all the muscle and joint pain, CRP levels were high and still It took a mamogram one year later to even suggest sarcoidosis. My rheumatologist didn't know what to look for in the way of symptoms and when she was on holiday her replacement read my notes and sent me for a CT scan which showed lung, lymph node and spleen involvement. I was transferred to the chest clinic and in the transfer letter to my surgery it stated that there was no sign of the condition. which caused major problems when it came to shielding letters. The consultant I have now is a brilliant well informed doctor who has my complete trust in his decisions. Many patients have difficult journeys to get to this stage and I can only hope that with recognition of sarcoidosis symptoms, it will make it easier for future medics to recognise and treat this condition.

@TammyJean518 3 года назад

A lot of what you are saying has been my experience. I'm curious if you got a flu shot just before your symptoms in 2017? I, too, believe I have sarcoidosis(systemic), have been dx'd with fibromyalgia, but know that's not what I have. My Mom had systemic sarcoidosis. Unfortunately, she didn't get proper treatment and passed at 56 years young. I'm also curious to know what findings were found on mammogram? I have a nodule in breast that they've been following for 10 yrs now, plus lung and thyroid nodules and endless other symptoms that point to sarcoidosis, but can't find a doctor near me that understands sarcoidosis. Unfortunately, my ACE level is normal. I pray you and me both get proper diagnoses and treatment... hang in there!🙏🏻❤

@geraldinemurphy9374 3 года назад

Yes I had a flu Jag in 2017 just before all the symptoms appeared because I thought at first it was a reaction to the Jag, and then it didn't go away just got worse. Hope you are keeping well and be safe.

@funniful 5 лет назад

Thank you. I am Caucasian and I have sarcoidosis. Lungs, skin, kidneys, esophagus, stomach, spleen, pancreas. Thats what ive been told so far. Im in a lot of pain all the time. ☹️ Doctors here in rReno are not great. I cant work, so i cant afford insurance.

@jamjamb123 4 года назад

funniful wow I’m sorry I came across this while my dr is trying to figure out what I have he is thinking this or lupus . What state are you in maybe they have some type of Medicaid and try to get disability

@isaiahmoger3225 4 года назад

PA student. I appreciate your style. Thanks for all the content!

@ZeroToFinals 4 года назад

Really glad you like it!

@m.lchannel4049 3 года назад

It is absolutely helpful. Thanks ☺️

@cynthialiggins3206 2 года назад

Thank you for his information I’m being tested for this now

@alesiaw7048 2 года назад

Thank you so much! 💝

@thelmaking5056 2 года назад

I have battled saracadosis sence 2010 had part of lung removed.

@mrdman094081 2 года назад

Hold on a min, the cause is known to be low mineral reserves, mostly magnesium. Refill the mineral deficiencies and it goes away. Known for over 50 years.

@janeth3008 2 года назад

This is the first I've heard of this and I've spoken with countless specialists and my own research. Wish I saw this before my mother passed.

@smajd86 2 года назад

Citations please.

@taklyftet 2 года назад

Are you kidding me? We’re can I find a approved scientific research on the topic? As I now have had Sarcoidosis the last 11 years I think you comment can be quite misleading as I don’t think you know what you are talking about!

@zinniahondoram3778 2 года назад

First I've heard of it and My mineral's and magnesium have always been high to normal, never low. Please don't spread false information. If you have proof of a claim, please cite where this information is from so people can try to make an informed decision.