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Updates from Dr. Wolfgang Singer on Spinal Fluid Biomarkers and Mesenchymal Stem Cells as Disease... 

Mission MSA
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Updates from Dr. Wolfgang Singer on Spinal Fluid Biomarkers and Mesenchymal Stem Cells as Disease Modifying Treatment for MSA

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4 окт 2024

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Комментарии : 6   
@nancycoy9510
@nancycoy9510 Год назад
Happy to see studies being on MSA being done. My dad died of it in 2021. A very debilitating disease. I now have atypical Parkinson's identified on dat scan. Rapid progression of ataxia etc in last two years. I see myself going my dad's route.
@adorysalvador2006
@adorysalvador2006 Год назад
I was diagnosed last year. I feel ataxia is eating me. Could you tell me the pain he experienced?
@nancycoy9510
@nancycoy9510 Год назад
@@adorysalvador2006 pain was not that bad till the last few months but he was bedridden for the last 1&1/2 years of his life. I took care of him till the last couple months when pain became an issue he went into hospice where he could have morphine. I am a RN. I have ataxia like him & you I feel like it has taken over my life too. I have great difficulty walking even a short distance, am uncoordinated, feel stiff & have some muscle pain. My symptoms have been increasing rapidly over the last two years. I feel for you prayers sent to you.
@adorysalvador2006
@adorysalvador2006 Год назад
@@nancycoy9510 nice “talking” with you here. I am having also difficulty in walking now and OH also. Sometimes I feel depressed because of this disorder. I turned 63 years old in April this year. My prayers go with you. I can sense you ‘re a fighter also. Keep fighting.
@adorysalvador2006
@adorysalvador2006 Год назад
@@nancycoy9510 May I say, my disorder is MSA-C. Hope their research helps us.
@laurietrepanier4655
@laurietrepanier4655 Год назад
Dear Nancy, My name is Laurie Trepanier. I was diagnosed with MSA-C in 2020. I experience the same symptoms you do. Bless you Laurie
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