Student pharmacist here: currently learning oncology drugs: all I have to say is oncology, and cancer are NOT black and white. It’s patient to patient, which you proved by sharing your story. Stability is everything when it comes to cancer, that or regression of disease, or remission. Cancer is a smart disease, and I think people don’t realize how complex it is, and there’s a reason why so many different treatments exist; it’s because of how many different kinds of cancers exist, but also when they become resistant to treatment, what can be used next. You’re strong, keep fighting!
She probably already knows all this because of what she has been going through. I am sure she also knows how complex cancer is and all the different kinds. Your comment kinda seems like you assume she didn't know these things?
@@Jerseyboondocks definitely not the intent with my comment. I was reiterating what she said, which is basically exactly what I’m learning right now. No assumptions were made here that she didn’t know these things.
You are completely correct, nothing is black and white especially with cancer. I never thought I would know so much about the complexities at my age (without going to school for it) but wow.. that’s all I have to save. It never fails to throw a curveball. #cancersucks
Hi Amanda! Thank you for sharing your story! Keep being positive and keep fighting on step at a time. I was diagnosed with Invasive Ductal Carcinoma on April 27, 2023. I am getting ready to have a double Masectomy with Diep Flap Surgery and am petrified. I tested positive for BRAC 1 gene so I will also need a hysterectomy after I recover from this surgery. My treatment will be based on what they find during the double Masectomy. I pray they caught it early…
Hi Amanda! I was diagnosed with TNBC and am now a year and a half into remission. TNBC is notorious for coming back. I fight anxiety daily! You are so positive and calm.. I strive to be that way. Your Dr sounds amazing and the results so positive. Sending you love and thank you for sharing this journey with all of us! ❤
🥀💙🥀 Your scan result is definitely is good news in my book, Amanda! 🥀💜🥀 I am Stage 2 breast cancer, 18 months post diagnosis and surgery) and walked 10 miles for a Memorial Day charity 🥀❤🥀 I honor you, as I count months too 🥀💛🥀
Hi Amanda, all my positive thoughts go to you, Although I am a man, I was diagnosed with stage 2 breast cancer and treated with 16 rounds of chemo, I had a genetic test done and they found a CDH1 mutation (that tipically gives stomach cancer but I got the breast one) so I am now living without a stomach since the first of march 2023- for the sake of prevention- , and taking tamoxifen. I have many sleepless nights but it is what it is, I am aware that I could become stage 4 one day as well, 30% of hormone positive cancer have the tendency to come back and to these days, they still don't know why. I hope they are gonna invest some more money in researches rather in many other meaningless things in this world. Big hugs from Europe, you're a strong woman
I also recognize the value of positivity, something that is often overlooked it seems. I find your energy to be soothing, uplifting and magnetic, an uncommon combination in my experience. You are wise to be safeguarding your personal space from negativity - I struggle with ptsd and have become extremely intolerant of negativity in any form as part of my management strategy. I now must ponder how many dimensions there may be. May you continue to defy the odds for a very long time, Amanda. Take care. Karen
Stage 4 with Mets. Ugh. Everything you say resonates with me. My last ct scan showed shrinkage. I should’ve been excited and I was for a moment but it honestly didn’t change my situation. Ya know? You got stable. People in our situation want stable. I’m very happy for you. I know I’m not in your shoes but I’m pretty close, now I forgot what I was going to say. Shit! Lol! Are they keeping you on the same treatment? Do you have a backup treatment? I’m so sorry you are going through this you are so wonderful. I have a ct scan tomorrow. Scared. I don’t read results on the portal because I am not trained to read them and I usually see the bad stuff. I wait for doctor to tell me what’s going on. I’ve been at this for 13 months. Feeling tired. Thank you for being here. I feel less a lone with you here.❤ my cancer is incurable, even if it were caught early. Thank you. Trying to keep my tears in. My nose gets runny a lot too.
There is something so radiant about you, even in these dark times. Your soul is so beautiful, so please don’t lose hope. You are touching many lives and giving the rest of us hope, in a life that may not have so much to be hopeful for right now 🥹♥️🤗🥰
Hi Amanda and Kayla! Hope you are enjoying this Memorial Day. Mentioning your own father and others was very good, so many people we need to stand up for, respect, and express our gratitude just like you said to do, dear Amanda! 🇺🇸😇 Thank you for sharing once again how things have been for you and where things are going now. You have so much on your mind and are trying so very hard to satisfy our needs to know, deliver what you know as clearly as someone in your complicated situation can, and yet to make sure we understand what you can tell is fluid, of varying shades, and comes with caveats. Your perceptions are what count. I will never argue that my reality closely matches yours! However you wish to express anything is your gold standard. Please don’t think and rethink and think again! There aren’t controversies except for those you and your medical team and close loved ones talk about, making decisions right for you and you alone. I follow you. I comment to let you know I hear you, that I am thinking of you and praying for you. In no way should I make your life any harder! You are grappling with words, explanations, interpretations, perceptions, what is and then again might not be! Please slow down and just be! That is the path to your daily recovery and a happy, peaceful, successful journey! Next update, Amanda, less stress on your pretty face please 🙏🏻. You don’t owe me a single thing, maybe just a moment or two of yourself and your precious time 🥰🌺👏🏼🌈
Love this beautiful,smart young lady. I’m glad your doctor explained this better. Those portals are made for doctors to read like you were saying so we only see what looks bad.
I'm thankful for your good news, thankful for your doctor's interpretation that your disease is stable and not progressing. It was a great idea to reach out to him about what you read and get an encouraging response. I've been in healthcare 35+ years and have seen how medicine is an art with results subject to the interpretation of the doctor reading them. In pathology we used to say you could show the same slide (specimen) to 3 docs and get 3 different diagnoses. Not wrong, just different shades or interpretations. Blessings to you and your loved ones- you're such a sweet soul and I feel privileged that you share this journey with all of us❤
I would go with the Drs analysis and it sounds like everything is stable. He wouldn’t tell you something he didn’t believe to be true. Thinking of you and sending positive vibes.
If anyone is infringing on your rights to conduct your life, the way that you determine is necessary, block them. I’m only here to listen to you and be a human being with love and compassion for you. This is how anyone who has comments to your vlogs should behave. ❤️
Thank you so much for letting us be a part of your journey. I feel like you are family I am praying for. 🙏 you are such a beautiful soul in this world. Being raw is beautiful, it's something many of us can relate to. It's nice to be positive but there are many times we are weak and emotional and angry etc and it's so refreshing that you are so real. Gentle hugs 🫂
You are so strong to share while you are suffering, please stay positive, I believe in miracles and I am praying for your miracle, thank you for sharing with the world.
I have been a RT (Imaging Rad Tech) for 38 years. Comparison exams are critical for patients with diseases that can progress (cancer, MS, pulmonary diseases)etc. If the radiologist did not have your prior exam at initial interpretation and then had your prior exam for comparison, I would trust their amended report. Radiologists use voice recognition software now so there can be mis spoken words. I wish you well with digesting all you are trying to deal with.
Good to see you ! The chemo i was on constantly made my eyes water ,and had Runny nose ,drove me mad,,think people thought i was crying all the time ,feel for you , we will fight this battle no matter what ! Total warrior ❤
I admire you so much for sharing your story on RU-vid!! I have thought about doing the same through my cancer journey, just can’t make my mind up!! You are so brave and a true inspiration for me especially doing and sharing what you do!! I am a peritoneal mesothelioma warrior, not the same cancer as you but cancer sucks either way!! Much respect sweet girl
I’m so proud of your positivity…..you have many more years because your positivity will get you through to many more years to come and I’m beyond grateful to have found you on here…..well wishes to you my friend 🥰
Hearing you now have bone cancer as well...i hope they have your pain under control. Its well known for being the most painful of cancers . So glad the scans were almost the same ...meaning very little growth. Sending you love, strength and prayers from wales uk. Bless you . 💚💚💚💚 Ps thanks for the captions , so useful for us hard of hearing folks. Thanks for making the time and effort for us ...when you are supposed to be resting ... You are amazing ...and a beautiful soul.. RU-vids captions are not all that great . Yours were much better . The age of tictoc has everyone adding captions..... Everyone loves them now... 😎👍
Dear Amanda, things are what it is. Nobody can change anything about that. Trust yourself😂 and yes, trust you're Dr. Enjoy your life for what is still left and be thankful for every day. Like you said, it can be 50 months. Make memories with your loved ones so they have something very special about you to remember you. You are going to be okay even if you're not okay. No matter where the cancer is, God has you in His hands. You are safe. Just get your heart and mind ready. ❤🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
Hey Amanda, you have a beautiful soul. Please don't be afraid to be yourself in these videos whether you are positive or not well. It's your story. I was diagnosed stage 3 lobular breast cancer around a month ago. They are desperate to do a single mastectomy even though I want both breasts. They said they can't offer reconstruction or won't be able to do radiotherapy. It sounds like you were able to drive back and forth your radiotherapy was that right? We have a family history of c, driven by hormones - ovarian, breast c etc. Just want to say "you are incredible. You are coping so much better than I have without any treatment yet. I had an MRI with contrast dye and after a couple of hours I was vomiting, nausea, dizzy spells and crying as I felt dreadful that evening. You have a big heart and soul." Following your journey from England UK and wishing you every ounce of luck, good health and best wishes. Xx
You are the sweetest! ❤want this damn disease to leave your body. Cancer sucks I know. It takes away the person you want to be. Some days so hard to function. Stay positive please. Prayers for you. Kathy Erie pa
I think your right to trust your doctor ❤ Only you know how your body feels, go with your gut feeling. Your amazing. ❤ Your doing amazing thank you for sharing 🙏
A pet scan lights up because of sugar attaching itself to the tumours. As well the pet scan does the entire body whereas the CT Scan is specific to a location.
I will pray for you. You know your body and disease and so does your doctor. Trust him or not he has your life in his hands. All decisions are yours, but listen to your doctor too and then make your decision. You are smart and beautiful, between your wife and other members of your family you need to do what you feel is right, this is your life. No one should try and change your mind and heart. Prayers will be coming I think of you often. May peace be with you and your family and doctors. Giny
I just came across your vlog today . I have small cell.lung cancer. I will take my last round of chemo this week and dread it. I love your perspective. I feel the same way about me and about trusting the docs.
Oh my heart. I just started watching your journey and I'm immediately attracted to your intelligence and strength wowwww girl I'm impressed just keep going 🎉❤
I look at this from two different perspectives. One as an orthopaedic trauma and emergency surgery nurse practitioner and two as a person but my opinion would still be the same. If I was in your position and it was noted that there is something small, but new, on a scan I personally would be inclined to say "OK, I'm going to stay with this treatment until the next scan. If the next scan still shows the same thing or there is something new there, we're changing treatment ". I'd have the same opinion professionally as well but these situations are always subjective. No two people think or feel the same so if you want to stop treatment and change to a different one, then do it. If you want to stick with it for a while and see, then do that. At the end of the day, we medical professionals are not there to dictate to you what is going to be done, we're there ro provide you with every ounce of information so you can make an informed decision about where you want to go with things
I agree with you, I also think that if there is no deterioration on the CT scan, then this treatment continuing until the next CT scan, because stabilization is also a result and the result is good. This means that the treatment inhibits the growth of metastases
@nataliaaustr6728 it's a tough one because the question also has to be asked: if you see one teeny tiny little patch that was not there before, can you consider that as "progression"? Medically, I think yes. That doesn't mean, necessarily, that it's progression which is going to cause huge problems or even any significant problem. That's something that always needs to be relayed to the person as well. I would say "there is a new patch but it's not significant because x,y,z". I actually get really bugged out when doctors say "I'm not worried". That's not good enough. You need to explain to the patient WHY you're not worried so you can then alleviate their fears. Most of the time, it's the fear of the unknown that drives the anxiety of cancer patients so the doctors need to help to alleviate some of those with explaining why they aren't worried.
Amanda I look forward to seeing you. My sister is facing the same thing. We never know what is coming next. On tredelvy now. Can we trust Dr knows best? We have no other choice. You are extremely important to me right now. Thank you so much for your vlogs. See you soon.
You are absolutely adorable. So very conscientious of you to give thanks to our fallen veterans especially when you are going through a difficult process yourself. My dad is a veteran also like your dad 🇺🇸 and came back. Is it possible for you to get different opinions from different doctors? Like second opinions? Sending you loads of hugs, also I like your idea of sharing your nighttime thoughts!
If you are using humidification on an oxygen concentrator, the water can back up into the nasal cannula. If this is an issue, you can request a water trap to stop this from happening.
