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Watch how a device in his chest helps manage his Parkinson’s disease 

CBC News
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CBC’s Harry Forestell takes us through his experience with having deep brain stimulation surgery. It’s a procedure that has helped him manage his Parkinson’s disease, but as he explains DBS is not for every patient.
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2 окт 2024

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Комментарии : 278   
@DaimyoDude
@DaimyoDude Год назад
When folks like you do things like this, it is a precious gift to everyone.
@OneThousandRats
@OneThousandRats Год назад
My grandfather had Parkinsons. He passed away in 2010. He lived a fairly full life and got into his 70s. I'm glad there are more options for people with Parkinsons now.
@LeePayne2310
@LeePayne2310 4 месяца назад
My grandfather lived with Parkinsons for over 25 years. We never got to see him smile. And as a young kid I didn't understand how he could be so happy in older pictures but seemed so sad now. He was a sweet and gentle soul, and wish he could have benefited from this ground breaking therapy.
@Shazam0527
@Shazam0527 Год назад
This treatment is truly astonishing, and you sir are a hero in my book for showing the rest of the world what you went through to get here. The amount of courage you have is commendable!
@bruth6138
@bruth6138 Год назад
Great video. I love hearing this kind of stuff from actual patients. Not from a pharma CEO or medical device CEO or politician. This is the proof. Fantastic.
@branthyatt9982
@branthyatt9982 7 месяцев назад
Right
@SuiLagadema
@SuiLagadema 6 месяцев назад
This brought me so much happiness. I knew about DBS but it always makes me smile to see somebody in which the treatment worked.
@lilihoms
@lilihoms Год назад
Thank you Harry for sharing your story, amazing what doctors and technology can achieve! god bless you all!!!
@annrubino6252
@annrubino6252 Год назад
Thank you so much for explaining some of the details of this miserable disease. Blessings to you and your family.
@edwardraaflaub5849
@edwardraaflaub5849 Год назад
Thank you Harry, I underwent this procedure over a year ago with Dr. Ron Leavy at Kingston General Hospital. We had been waiting for the new technology to be approved by Health Canada in time for my surgery. Fortunately as luck would have it I became the 2nd person in Canada to receive this marvelous technology. Your experience is identical to mine so in that way I feel very connected to your story.
@haroonshaikh8952
@haroonshaikh8952 Год назад
Hi, Edward. I want to know the complete address of the hospital and contact No of hospital as well doctors from where you have treated, if its possible for you please help me.
@bellabear653
@bellabear653 Год назад
@@haroonshaikh8952 Just google Kingston Hospital.
@SpiderxPunk
@SpiderxPunk Год назад
T-Cell therapy, a person paralyzed for 20 years able to walk again, DBS, and everything else being done... It's amazing. Medical science is really picking up and I am loving seeing stories like this. It gives me hope, and it warms my heart to see people like yourself able to regain their previous mobility/lifestyle.
@cornchipsnovemberland3565
@cornchipsnovemberland3565 Год назад
Beautiful story. Over the course of many years, I watched Parkinson's slowly take away bits of my father's life. I wish that he would have lived to see such incredible treatments. I have read quite a bit about DBS treatments, but this is best film I have seen showing the results. Thank you for sharing your story! My prayers are with you.
@maryjanegibson7743
@maryjanegibson7743 Год назад
God bless you, sir. You have helped all of us, even those without Parkinsons, because we now have a better understanding of what it is you and all Parkinsons patients have to deal with.
@samadhistate9637
@samadhistate9637 Год назад
Amazing outcome. You are so composed and articulate. What an inspiration to so many. So you still have take Levodopa, but now its 50% of what you previously had been taking.
@jeffmarr5540
@jeffmarr5540 Год назад
Wishing you all the best Harry. Stay positive.
@sonderexpeditions
@sonderexpeditions 5 месяцев назад
Science is beautiful. God bless Neurologists.
@sfjessy1
@sfjessy1 Год назад
Congratulations!! I have DBS for Essential Tremor which is many times mistaken for Parkinsons. The DBS has been absolutely life changing. The only thing I wondered afterward was ‘what in the world took me so long?’.
@frenchustube
@frenchustube Год назад
Did your insurance covered it?
@sfjessy1
@sfjessy1 Год назад
@@frenchustube yes
@OptimisticHominid
@OptimisticHominid Год назад
Thank you so much Harry and the CBC for making and sharing this story - it's just what I needed. Amazing! Thank you again.
@JohnWilliams-gy5yc
@JohnWilliams-gy5yc Год назад
Given the apparatus is very scary and the physiology is still unknown, however the result is very magical. I wish this could work long term for everyone. Wish the best for Harry.
@TealStarSusan
@TealStarSusan Год назад
Just excellent! I’m so pleased for you! I used to nurse and have seen many Parkinson’s sufferers and even have friends with it. It’s wonderful to see you before…. And after surgery and the fine tuning! Long May your better health continue! ❤
@johnnyllooddte3415
@johnnyllooddte3415 Год назад
my sister had it done TWICE.. she cried before the second surgery... she has advanced MS and is bedridden.. it didnt work for her
@jsharik2466
@jsharik2466 Год назад
This is amazing! We need to make this available worldwide. Just wish that it would work with everyone who has it. ❤
@MelroyvandenBerg
@MelroyvandenBerg Год назад
I would like to see this for tinnitus as well
@siuyinng8374
@siuyinng8374 Год назад
My sister had it done, it was life changing
@lwhitty721
@lwhitty721 Год назад
Amazing to see Harry - I wish you all the best!
@newworld6474
@newworld6474 Год назад
Great report! It is applicable to my situation. So is it ever effective more than 10 to 15 years? Dr. David Sinclair's (Harvard) research into reversing nerve damage and brain etc ... looks like a positive area to investigate for application to this problem too.
@proabhinav
@proabhinav Год назад
Hi Harry, Thank You for sharing your story with us. I hope things better for you and everyone who is battling this condition .. 🤗
@AshleyGrenstone
@AshleyGrenstone Год назад
Wow❤
@GrahamTodd-ca
@GrahamTodd-ca Год назад
1:16 "Scientists aren't sure how it works, or even why". No better illustration of how medical treatment & clinical research is only partly based on _theoretical models_ . Theoretically, humanity couldn't fly - even after those brothers with the bike shop learned how to do it. Amazing reportage. Also enjoying your interviews with Michael J. Fox 👍🏻
@zebre8568
@zebre8568 Год назад
Truly phenomenal
@lanlac3080
@lanlac3080 Год назад
this is so amazing, thanks for sharing. I'm sure Michael J Fox would be aware of this procedure, so would he benefit in having it done or is his PD too far in advance for him to benefit from it? MJF is such an incredible ambassador for PD, I wish him many more years forward.
@korenn9381
@korenn9381 Год назад
DBS, as said in the video, doesn't work for all parkinson's patients. Given MJF's involvement with research and living with the disease, I'm sure they've looked into it.
@FACINGPARKINSONS
@FACINGPARKINSONS 9 месяцев назад
Thanks for making this I just found out I have it I am 64
@adriannespring8598
@adriannespring8598 Год назад
Incredible!!! Thank you for your candid clarity!!! This should be standard treatment and asap for anyone eligible.
@karolanoble2858
@karolanoble2858 Год назад
Thank you for your video. I am in tears of joy for you and tears of hope for my brother-in-law who has PD. I am forwarding your video to my Sister so that they may research his options here in the USA. Thank you once again:) 🕊🌻
@Janet-pd5wd
@Janet-pd5wd 10 месяцев назад
Two 0f my coworkers had deep brain stomulaion now both are bed bound but am so happy it worked for you
@Lalaland-q2z
@Lalaland-q2z 8 месяцев назад
I took care of my lovely wife who died from late stage Parkinson's in 2022..she had this disease for 22 years but had no shaking . This DBS surgery for patients with dyskinesia/tremors is at best when it works does help for a time with tremor in some patients but it is not a permanent solution ,patient's have to be carefully screened for any latent psychiatric problems prior to the implant or psychosis can become an issue. I also know of patients in my PD support group who had little benefit from DBS implants..as I remember the device by itself costs 35 thousand dollars, that is before surgery fees.
@sheila7814
@sheila7814 8 месяцев назад
Wishing you the best Harry….. one question: have you noticed an increase in shaking/tremors once it is turned off? Is there any chance it actually speeds up the PD process?
@girlzglam5413
@girlzglam5413 Год назад
Commendable video!!!!!!!it's so relieving to see you back to normalcy!!!!may GOOD GOD SEND SOME CURE FOR THIS DISEASE...TATHATSU❤
@all3ykat79
@all3ykat79 Год назад
That's brilliant. Im glad this is finally available so you, and others, can now get such quality (control) back in your lives.
@christopherdawkins5392
@christopherdawkins5392 Год назад
Fantastic story! Thank you to all the great scientists, technicians, and surgeons who have their iginuity, persistence, and hard work mistaken for miracles.
@Mr.Pop0
@Mr.Pop0 Год назад
Does DBS alleviate the pain?
@JacobHoskins-c8x
@JacobHoskins-c8x 8 месяцев назад
Absolutely amazing to watch this.
@Uouttooo
@Uouttooo Год назад
Wonderful! Thank you!
@pwk22
@pwk22 7 месяцев назад
It seems like a great idea until you see the 200 foot, three-prong extension cord.
@chinko1953
@chinko1953 Год назад
The vibrating gloves from dr. Tass at Stanford university and the Cue1 vibrating chest pod from Charco now being sold in the UK and Europe use the same theory without brain surgery.....
@leewright6101
@leewright6101 Год назад
wow the diffrence is crazy,,
@alexrybin3798
@alexrybin3798 Год назад
Huge thanks scientists helping people with Parkinson and other diseases!!!! Thank you, Harry, for sharing. Wish you all the best!
@alexandertolmatskiy1
@alexandertolmatskiy1 Год назад
It a very beautiful thing to see myself healthy again after using remedy from Dr Ake on RU-vid, I finally got cured of my Parkinson's disease with his herbs med and I can tell how great my health has turned out so far. Thank you 🙏 ❤️
@BlondieSL
@BlondieSL Год назад
So I have to assume that this doesn't/didn't work for Michael J. Fox. I wonder if scientists are trying to discover why it doesn't work on some while it does work on others (to differing degrees, I guess). Being human is so difficult. sigh
@LAndre2874
@LAndre2874 11 месяцев назад
What a wonderful and amazing story I wish you all the best. The difference is night and day absolutely incredible the relief I see in your personality is just.. brings me to tears. Wish ya All the best
@renko9067
@renko9067 Год назад
Fantastic video. Thanks.
@Had2Listen
@Had2Listen Год назад
Absolutely well produced and informative look at DBS. Yes DBS can be an effective and life changing for some. In a PD support group I belong to we have 4 members with DBS and 2 currently undergoing evaluation. Also know a relative who had it done. Though definitely providing some relief, after a few years the folks I know had significant falling and balance problems along with loss of ability to speak clearly and loudly more so than most other people I know with PD. Just my opinion!! Hoping they solve the PD puzzle soon. Stay strong !!!
@anntodd1233
@anntodd1233 Год назад
What company's device was put in your brain? You should have them and your neurologist make some adjustments in your programing. Did you have it done for both sides of your body? If so, chances are there is some overlap between your left side of the brain and the right side. When they go in on the right side of the brain to correct the left, that is where the speech and balance are. If you adjust this, you may not get quite as much benefit from the tremors, but it is sure better than speech and balance problems. I had both sides done. My dominate side is on the right. I just had my left side done. During the placement they kept getting me to say things to check for speech problems. I didn't have any problem.My programing/activation is in a couple of weeks. My neurologist warned me that I may not get quite as good of results on the left side because we want to prevent the overlap problems. I don't care as long as there is improvement. Before any of this, I couldn't do everyday stuff. Thank goodness for my husband! My right side is great! The first time I held a sandwich and a drink, I just busted out crying. I think it took me a month or so to get used to be able to do normal things. It was life changing for me.
@reinux
@reinux Год назад
@@anntodd1233 That's fascinating. PD isn't part of my life, but it's always uplifting to hear of people's triumphs.
@ssap3717
@ssap3717 9 месяцев назад
Dont get caught in media hype. This surgery has many downfalls like loss of speech, balance and walking ability. Hardly anyone talks about infection risks during battery replacements. My fathers DBS system had to be removed completely after an infection during battery replacement and he was been bed ridden since. He flew to the surgery on his own. Lost his speaking ability after DBS. Doctors will blame decease progression if something goes wrong. So be aware.
@DB-uh7qw
@DB-uh7qw 7 месяцев назад
@@ssap3717I had it done almost three years ago. I have zero regrets.
@psiga
@psiga Год назад
I'm watching this right after the CBC Michael J Fox interview with Mr Forestell, right, and I'm trying to comprehend why Michael can't have this surgery too.
@Lalaland-q2z
@Lalaland-q2z 8 месяцев назад
His earlier brain surgery when he was younger made him a non candidate for DBS surgery also s it is not a cure , the effects in time diminish.
@themysticmuse
@themysticmuse Год назад
Im thrilled for this man!!
@couldwellbe4227
@couldwellbe4227 10 месяцев назад
Incredible. Thank you so much for sharing this and all the very best to you 😊
@georgiagalua6251
@georgiagalua6251 Год назад
Hi I am a Pilipina, was diagnosed parkinson disease since 2019, from that year up to 2022 Levodopa is effective but this June 2023 my Parkinson prgressed so much I am struggling of shortness of breath cannot sleep the whole night, Philippines has no facilities like you have. My question is how will I survive the long period of shortness of breath which I suffer much especially night time and suffering insomnia. Thank you if you can give me clarification. Thank you so much...
@audacyspectrum3612
@audacyspectrum3612 5 месяцев назад
The problem is not how to cure it, but how to avoid it from happening all together!"They" have that answer, but it wouldn't bring them revenew now would it...
@CBlargh
@CBlargh Год назад
Holy wow, that seriously looks like a cure.
@sheila7814
@sheila7814 8 месяцев назад
Not a cure, just a mask, but it is helpful for those that have this disease.
@ShamiTV2211
@ShamiTV2211 Год назад
Wow that's good. Amazing. Hello Guys! I'm patient of Dystonia and parkinson's. I have done DBS. But I'm not satisfied form my Doctor. Can anyone help me for this procedure. How to get this software they control DBS programmer
@RawFruitGuy
@RawFruitGuy 28 дней назад
So curious, are these probes stimulating dopamine production in your reward system? If so, do you feel changes in your mood or motivation levels?
@jamesmcmasters9392
@jamesmcmasters9392 Год назад
The dbs is trimming the noise
@OU812cheeto
@OU812cheeto Год назад
You don't need a device. My friend has been doing B1 therapy for about 2 months and now, I can't even tell she has Parky's! Minimal shaking, no facial "mask" and her gait is as normal as anyone else's. Honestly, it's like a miracle. I don't know why this isn't talked about more--probably because there's no money in it.
@alexandrawhitelock6195
@alexandrawhitelock6195 4 месяца назад
Highly simplistic. If this worked for everyone…they would do this.
@andyandcallie
@andyandcallie 4 месяца назад
@@alexandrawhitelock6195 It does work for everyone. The reason they don't do it is because they've never heard of it or, like you, they refuse to believe it.
@mikeodee1164
@mikeodee1164 10 месяцев назад
i would never have this done no way i have blephorspasm and meige movement disorder i take pills that help alot im able to function very well for the past several years
@PieterBreda
@PieterBreda Месяц назад
Having a life or not having a life worth living. What a miracle for this gentleman.
@lookingupwithwonder
@lookingupwithwonder 8 месяцев назад
Wow!!! Has Michael J Fox tried this?
@djayjp
@djayjp Год назад
Does one adapt to such stimulus over time...?
@nardalis4832
@nardalis4832 Год назад
Damn, I've heard about parkinsons how its a bad disease, but not its symptoms. I do periodically experience mild to heavy amount of hand/wrist tremors which makes it very hard to do anything. This guy, his whole body is just shaking furiously. I see now why people struggle to live with this disease. Anything you do is just gonna make you spill or trip ._.
@SmooveBee1
@SmooveBee1 День назад
I wish this had nothing to do with Canadian government or PBS, that is just heart breaking. We can do better as a nation.
@wxb200
@wxb200 Год назад
That's a really humble guy.
@lynnfulton1696
@lynnfulton1696 9 месяцев назад
I have had this and it worked for me. If given the chance, I would do it over and over again!!
@DonnaCsuti-ji2dd
@DonnaCsuti-ji2dd Год назад
Unfortunately no fix in long term I had a good friend had Parkinsons had the brain implant helped a lot but only about 3 or 4 years . He then continued downhill about and died in his mid 60s so unfortunately it does effect breathing ability eventually like lue garrick disease does..I wish they could figure out what causes these diseases .
@pamelakitchens5549
@pamelakitchens5549 Год назад
Is this done in United states
@allistairneil8968
@allistairneil8968 Год назад
This is one of the most interesting and heroic vids I've seen. Fantastic results, I hope he lives a happy life and inspires others.😊
@BoltzVideo
@BoltzVideo Год назад
Huge factors in the cause of Parkinson's disease are: 1) Vaccine injury impacting protein synthesis 2) Vaccine injury causing long term autoimmune issues in the brain
@Lalaland-q2z
@Lalaland-q2z 8 месяцев назад
B.S.
@GoProGoalieUzi
@GoProGoalieUzi Год назад
I was diagnosed at 40 in 2018. I have a dbs consultation appointment on the 31st
@kelseymathias3881
@kelseymathias3881 Год назад
best wishes!
@rahimanwa4318
@rahimanwa4318 9 месяцев назад
Did it work? How are you now?
@Medlife663
@Medlife663 9 месяцев назад
It’s amazing to see medical procedure helping patients to live a normal life ❤
@MyAngleFishing
@MyAngleFishing Год назад
Absolutely amazing✌️✌️🎣
@geometricart7851
@geometricart7851 Год назад
I wonder why Michael didn't opt for this treatment like 20 some odd years ago.
@mayaenviron2817
@mayaenviron2817 Год назад
NVIDIA RTX ON / RTX OFF The thumb nail got me
@billtodd999
@billtodd999 Год назад
can this help with essential tremors that are not Parkinson's?
@Electrobilia
@Electrobilia Год назад
Inspiring stuff.
@bellabear653
@bellabear653 Год назад
Great story you are a very brave man all people who have brain surgery are so brave. ❤
@James-wd9ib
@James-wd9ib Год назад
IRONY: Boomers are becoming cyborgs ahead of millenials take that, millenials
@SUNSHINE-me8gz
@SUNSHINE-me8gz Год назад
Someone should suggest this to Michael j fox surgery is a last resolution but it still should be researched by someone to see if it’s a necessary or a temporary solution
@garryswanson1595
@garryswanson1595 Год назад
Well, Michael J fox has had it done... so they know about it.
@kelseymathias3881
@kelseymathias3881 Год назад
@@garryswanson1595 it did not work for Michael?
@Lalaland-q2z
@Lalaland-q2z 8 месяцев назад
He did not have this procedure see why in my above comments..geez!
@anjfehr
@anjfehr Год назад
Why can't Michael J. Fox get this done?
@tovolume
@tovolume Год назад
That's what I'm wondering about and this guy you see in this video is the same guy interviewed Michael J. Fox
@BearbearbearbearbearbearRarrrr
These help people understand “disability” videos, should be taught in all schools. Anti stigma is rooted in smart content like this.
@alqadeeb
@alqadeeb 10 месяцев назад
Amazing
@meiwu-g8m
@meiwu-g8m 8 месяцев назад
Harry, my heartfelt happiness for you to regain tremor-free living! Thank you for being so brave to share your journey. Your story gives hope and options! Your testament will undoubtedly help more patients to receive improved outcomes!
@kikijewell2967
@kikijewell2967 Год назад
Amazing. Who could have ever figured this treatment could work when we don't really understand how it works? Wow.
@missthang4982
@missthang4982 Год назад
Omg!? That's amazing! Thank you so very much for allowing us to see what it's like when it's off and sharing your experience. Very honourable of you to help educate us. My love and light to you. Sudbury, Ontario, Canada 🇨🇦 ✌️
@susanszymanski4244
@susanszymanski4244 Год назад
Thank you for providing me with a way to teach others about Parkinson’s and DBS. I could never seem to explain it as well as you do.
@deborahwhit9583
@deborahwhit9583 Год назад
CANNABIS 😎
@MLStanleyK
@MLStanleyK 8 месяцев назад
TY!!!!!
@virginial.franco8450
@virginial.franco8450 10 месяцев назад
If ever: keep it going.❤
@TheRealDogfart
@TheRealDogfart Год назад
It's the difference between night and day. It's so satisfying to see you receive the benefits from DBS.
@yardsale
@yardsale 11 месяцев назад
Inspiring thank you for sharing your story. Had not heard of this treatment before!
@oBseSsIoNPC
@oBseSsIoNPC Год назад
Very fascinating when you have control over your disease, you get to turn it off and on even. This is a great example for how technology is so useful and great! Now let's figure out why Parkinsons occurs more and more often. I am guessing it all comes down to sugar, sleep, stress and how we use our bodies throughout the day.
@jovesheerwater
@jovesheerwater Год назад
Outstanding video Harry. Thank you.
@Nisha-kl8rl
@Nisha-kl8rl 5 месяцев назад
Parkinsonism no more! Thanks to Planet Ayurveda's phenomenal treatment! Feeling fantastic
@donaldrogers9509
@donaldrogers9509 5 дней назад
I had DBS for Essential Tremor in 2024 and recovering well, looking for work opportunities that have a bit of accomodations. It's really amazing how far this technology has progressed! Thanks for sharing!
@bran7134
@bran7134 Год назад
Is Michael J Fox not eligible for a DBS device?
@susanjaneleitner7670
@susanjaneleitner7670 2 месяца назад
Thank you for sharing your experience with me. I have Essential Tremors and boy is it challenging. I have stated to look into treatment and I am hopeful that I will be successful. Stay well. Stay strong. My best ….❤
@Butterflies-are-free
@Butterflies-are-free Год назад
💕 wow! Incredible! 💕
@jamesgerard9330
@jamesgerard9330 Год назад
look at the book, Going Somewhere, by Andrew Marino. I would contest by what is in this book that health care providers DO know why this works. Doctors are given their opinion, so it's not really untrue that 'doctors don't know why'.
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