I watched the show first and then read the book. I was blown away at how different they were to the point that I had no idea that Rand was the central character 😂
Yup. When I turned 35 my body just stopped working. I was tried all the time, brain fog/memory problems, my joints were in constant pain, and I just had so many terrible symptoms. I was told that I was perfectly healthy and that I needed to see a therapist/psychiatrist. I was put on antidepressants, anti-anxiety medication and Adderall to help with my concentration. For two years, when all that medication didn't work they finally did my blood work and I learned that I had a thyroid disease. Turns out I wasn't crazy and there was a real medical issue causing all these issues and the medications I was given were never going to help fix what was actually wrong with me. Ladies, if I can give a bit of advice based on my experience: 1) Get a female doctor (sometimes even a female doctor won't listen to you but typically a female doctor will help more than a male doctor) 2) Have an advocate with you (whether that's a partner, a parent, a best friend because when you're sick it's very hard to advocate for yourself) and 3) Don't give up, you know yourself better than anyone and if they aren't listening go to a different doctor and go as many times as you possibly can because even if they send you away if you keep coming back they will have to do something eventually and there will be a record of it in your chart. Good luck to you, Emily! Health issues are difficult to go through. I hope you are feeling better really soon. Best wishes! And keep doing WOT reactions I loved it! I want to see what you think of the rest of the season!
Sounds so similar to my story, except for me it started much much younger, which I think made doctors not take me seriously and dismiss me even more so. One even told my mom I was faking it for attention, because "that's what girls of that age do". From the age of 12 I started to feel tired, pain, extremely constipated, depressed, I just overall felt unwell. Then while in university everything got so much worse, the brain fog and memory problems, I would literally fall sleep anywhere, I was always cold, I felt tired and awful all the time. Doctors would dismiss me because I looked healthy. I had to drop out of uni. Then in my 20s I self diagnosed hypothyroid based on my internet research. I had ALL the symptoms. My doctors still dismissed me and didn't believe me, and seemed annoyed at my "self diagnosing". Turns out I was correct and they were wrong though. Than one day, going to work, my brain fog was so bad that I saw normal words as symbols and couldn't read them till I concentrated on them enough. I felt like I was hallucinating. I was startled by this new symptom and made an appointment asap, my regular doctor wasn't in, but my gyno was covering for her. This was a good thing as she's the only doctor that finally listened to me and got me the proper lab work done. I was diagnosed with Hashimotos thyroiditis.
Glad you were able to persist and get it all sorted. 35 almost but a guy and went through similar stuff. I felt like I aged 15 years in a year. Turns out I had the testosterone of a 80 year old. I asked them to check it over a year before and they refused. Can’t imagine how much worse it would be when you’re a woman.
You predicting the Perrin plot killed me. This was exactly the same reactions my husband and I were having while watching this. We gave up after the first episode. SO MAD! They really stole a lot of the magic from the book.
WOW your health care issues mirror women everywhere. Anxiety and depression are the new “hysterical” for women. The medical gaslighting is CRAZY. 😒 glad you have some answers! Feel better!! ❤️❤️😂
I was diagnosed with stage 4 endometriosis after having a chocolate cyst removed from my ovary. I also had been constantly been treated for a UTI before I had a diagnosis, so it seems to be the doctor's go-to instead of actually listening to what women are saying! One doctor finally explained to me that the burning was from the nerves that had reached the surface of my skin due to years of inflammation, so I went on a nerve med to calm them down while the inflammation was tackled. It was the best decision I ever made to start that med and it was a miracle worker. Always push to get get answers and don't settle with a dumb explanation to get you out of the office, it's your health, not theirs. Best wishes to you!
It’s frustrating because if my family doctor doesn’t refer me to a specialist I don’t have many other options unless I pay out of pocket :/ I’m glad you got your answer and are feeling better!
@@BookswithEmilyFox It's called gabapentin. Once the inflammation went down, I used gabapentin for a few more months and then the burning pain faded. It helped so much so maybe talk to your doctor about it and see what he says. It's worth a try at least. Good luck!
I'm pretty sure I have endometriosis as well, but I'm just so incredibly frustrated, because instead of giving me a actual diagnosis and step by step plan for treatment, they just slap shitty birth control into my hand and send me on my way, and because of that, I'm now terrified of birth control, because it did NOT go well. And same for other health problems I have, they don't listen or care about what you're going through, they just want you to shut up, take meds, and keep giving them money for things that will never get better. I hate and mistrust all doctors for it.
@@cussundriakneal9904 I am in the process of trying to figure out if I have endometriosis. I didn’t have symptoms until I went off birth control, but since then the symptoms seem to be slowly getting worse. I have been considering going back in it to see if it will help, but what happened when you went on the pill?
As an endo ‘cyster’ I feel your pain. It’s bad enough being in pain and not sure what is going on with your body, but even worse when doctors dismiss your concerns constantly and throw antidepressants at you. I’ve been there so many times, and unfortunately the pandemic has made accessing health care here in Canada (I’m in NS) all that much harder & longer. If you want to know a bit more about endo, the history of it & what it actually is I highly recommend the podcast “This Podcast Will Kill You” and their recent episode on Endometriosis. It’s a comprehensive episode that goes into great detail. I’ve found it difficult to find books or articles that describe more of the medical ins and outs of the illness so I’ve found this podcast to be an amazing resource. Wishing you all the best💖💖
Perrin's wife was the most baffling change to me (though there were several). Even Sanderson advised them against that and they didn't listen. You're not missing much from the show, there were some good episodes but it just fell flat overall. Also sorry to hear about your health issues. Glad you finally got a doctor to listen, hoping for a speedy recovery.
So sorry to hear about your medical gaslighting! So ridiculous! Reminds me of Radium Girls (also Kate Moore ironically) where they just told them for years it wasn't radium poisoning and definitely not related to them working with radium paint... Sending you good vibes and hope for healing and feeling better :)
It really baffles me when I hear doctors in US and Canada go out of their way to not use ultrasound or MRI. I'm from Turkey (which is basically a third world country tbh), and every gynecologist looked at my uterus with ultrasound (both abdominal and pelvic) when I entered the door with any kind of problem. I really don't understand, it is so strange.
I'm very sorry to hear about this odyssey you had to go through with your health. I hope that the surgery will go smoothly and you can live your life to the fullest again!
So, I did love this vlog, a lot. It feels like just watching a friend talk and that made me happy. Also your valid Wheel of Time annoyance haha. But that docter talk made me so sad 😔 I can't believe that this is still happening so often in 21st Century. How?! Why do you have to be strong with words and very persistent to actually get the care you need. Thank you so much for sharing it with us, it will help other people to stand up for their own health care 💕
Girl, I'm so sorry to hear you're going through something like that. But I'm sure everything is going to be fine, you'll have the surgery and everything will go well and you'll be adopting cats and living the best life in no time. Don't put too much pressure on yourself! If you have to take some time off, we will wait for you to get better.
I agree that Persuasion is quite slow paced, probably one of Austen's slowest but in the end I found the build-up worthwhile. Glad you finally got the answers to your health issues, it all sounds crazy the hoops you had to jump through to get them, and getting it dealt with.
I hope you will get well soon. I had a similar issue almost 5 years ago. I fought 2 years to get proper treatment for my endometriosis. They didn't want to do the surgery because in my case it would make me infertile. I was fine with that- I was over thirty and didn't want kids anyway. I just wanted the pain, fatigue, and severe bleeding to stop. After changing my obgyn 4 times I finally found someone who was willing to help me and got me a appointment for surgery. Best decision ever! It wasn't a big deal. The day after I already walked my dogs. Wish you the best!
As a RN working in the OR, it is astounding how many women are told there is nothing "wrong" with them when there clearly is something going on. Glad you were able to get some answers and I hope your surgery goes well!
God! Watching you watch the series made me even more grateful for my decision of not reading books before the series/movies. I had such a great experience with the tv show, and I'm sure that I would still enjoy the book if I wanted to read it (I won't, because Matt for 500 pages? No, thanks). And Im so sorry you are going through your health problems. Not knowing what we have is awful. Hope you get better soon.
Emily! I organize my books exactly the same way. Kind of by genre mostly by vibes my favorites are center stage. I just don’t have any rainbow books. Omg after having watched the show and hearing your thoughts and predictions 👌🏼 top notch. Love it
I’m super late in catching up on your videos because grad school sucks but your endo diagnosis story resonated with me so much. It’s been such a journey dealing with gaslighting, pain, etc and although my symptoms are most bowel related and I also have adenomyosis I’ve had a lot of the same experiences. Similarly to you pelvic floor PT helped a lot, as did seeing a specialist that actually knew what they were doing (out of pocket ofc) and doing a ton of internet research because we need to do this shit ourselves to even find doctors that will listen 🙃 I’ve been avoiding excision surgery (and official diagnosis through surgery) because of the cost and the recovery but the more stories I hear the more I feel like I need to just do it to avoid things getting worse :( I hope your surgery goes well and gives you relief, endo and pelvic pain is the effing worst!
I’m so sorry about your medical issues. I had a herniated disc in my neck and struggled with bad pain and horrible headaches for years. Finally had surgery, and it made a HUGE difference. Those previous years, though, gave me a whole new perspective on people who suffer from chronic illnesses/conditions. It just really WEARS YOU DOWN after a while. I hope you are able to get the surgery done soon, and that it helps you as much as mine helped me. And the whole issue of women’s health being an afterthought, an irritation, etc. makes me livid!!!! 🤬
@@BookswithEmilyFox I live in a community that uses the heron as the neighborhood icon - symbol (they live and nest around here - see them all the time). Very clearly a heron. Herons look small and a bit odd when not flying but have a surprising wingspan for their size and look spectacular in flight.
I'm SO sorry you've had to go through this horrific experience with doctors 😔. I've also been unable to get a diagnosis for the longest time. Too unwell to work, fight the doctors and still waiting... I feel for anyone that is in similar situation. Hopefully we all get help soon enough ♥️.
Really sorry to hear how difficult it has been to sort out your health issues, Emily, but very happy for you to finally have a diagnosis and treatment in the works. I was also confused with the first couple of episodes of WoT after we read the book. It seems they changed a lot! I haven’t made it past the first two episodes. And lastly, great choice picking up Before They Are Hanged! Loved the rest of that series so much!
@@BookswithEmilyFox it’s not just the changes (I don’t actually care too much about the changes tbh). It’s the bad dialogue, the terrible pacing, the bad sets and lighting, and the most infuriating of all the inconsistencies like omfg that pissed me off so much lmao. I genuinely don’t care about the changes, I just wanted to watch something fun and adventurous, instead it felt dull and like a chore.
I think it's a good thing to shed light to this medical gaslighting problem and to talk about it and share our stories. When I was going through it I would have never guessed it was such a widespread problem. I was suffering horrible symptoms for years, from the age of 12 till my mid 20s, not being believed or taken seriously by doctors. One even told my mom I was probably making stuff up for attention. It finally got to the point where my brain fog was so bad that I felt like I was hallucinating. Luckily, the next time I went to see my general doctor, she wasn't there and my gyno that worked in the same offices was covering for her and she, of all the doctors I'd seen, actually listened to me. Although seemingly reluctantly so, she had me get the proper labs that confirmed that I had an autoimmune disorder that targets my thyroid(I knew for years I had hypothyroidism, but doctors always got mad that I was "self diagnosing" and thought I must be wrong because I'm not a doctor). I've mostly have experience with doctors being dismissive and rude to me, and it has created dislike and distrust of them for me.
Medical gaslighting can genuinely be so traumatic and I'm so sorry that you're dealing with it. I went to see an internal medicine doctor about trouble with my asthma and we spent 30 seconds discussing my breathing and then 20 minutes about how I was 40 pounds overweight (and not even putting it in context of its impact on asthma). Some of the worst things the doctor told me were to go on a 1000 calorie a day liquid diet that costs $500 a month, and to get off my antidepressants cause they probably were making me fat. When I said I hadn't made any efforts to diet so I'd do that first, she asked if I had an eating disorder that made it difficult to eat healthy. I said no I'm just lazy and order takeout and she said that was a form of an eating disorder. And of course my asthma didn't calm down for another month after the appointment. So now I haven't seen a doctor in a year cause I'm worried about something like that happening again.
I feel this so much. I had the panini illness in Jan 2020 and since them have had palpitations, pain, breathlessness etc. Finally saw q cardiologist after my asthma nurse (yeah I thought itbwas asthma) noted q resting pulse of 130. Cardiologist decided to spend his time talking qbout how fat I was. He spent most of his time trying to talkme into bariatric surgery. Fast forward to a month and a half ago and a 12 hour tachycardic event and a different hospitals cardiologist diagnosed me Postural orthostati Tachycardia Syndrome. Nothing to do with being fat happens to be a part of my nervous system malfunctioning. Medical gaslighting is either your fat or hysterical in women but in men their symptoms are paid attention to.
Emily, I wanted to wish you a lot of strength and a fast recovery, I know how hard and frustrating it can be to battle with the medical system, especially if you are not feeling well - it's a viscious circle.
I'm sorry to hear that you have been going through so much pain. Being sick can be very isolating even with loved ones around. I'm 41 and healthy and have just recently been diagnosed w/ vtach. (Heart arrhythmia) I find that joining a fb support group is very comforting. Hugs to you!
I actually really liked the scene with Moiraine and Lan in the bath! I thought it showed how close they are but it was completely platonic at the same time.
I haven't watched the WoT show, but I think I'm glad I skipped it. About the bath scene: I am wondering if the bath scene was based upon family bathing in Japan (not sure if it is/was practiced elsewhere). It was (is?) still very common to have the whole family in the same tub (mom, dad, kids, grandma, whatever), as long as everyone fits. You can see a family bath with a dad and his two daughters in Miyazaki's animated film, "Totoro." It's very sweet.
Omggg I just had that exact surgery 4 days ago after having my pain brushed off for years and am literally recovering watching your vids!! I had a 7 cm cyst on my left ovary, 4 cm cyst on my right, and stage 4 endometriosis. This recovery is no joke 😬 but don’t be worried, you’ll get through it!
I’m so sorry you have been going through so much. I completely understand the frustration of not being heard by doctors and being (often rudely) dismissed. I hope things get better for you. Also please don’t wait to long to get the cat. I have dealt with health problems and my parents surprised me with a puppy. Just having that little face and all the cuddles when I wasn’t feeling well. Pets don’t remove the health problems, but the do provide love and companionship which does help.
I’m sorry to hear about everything you’re going through. My sister has gone through that journey with endometriosis with multiple surgeries for cysts and finally a hysterectomy. Laparoscopic surgery is good if you’re able to get it - better recovery. Good luck - keep fighting
Omg I am so sorry you had to go through that. I have IBS AND a chronic bladder condition called Interstial Cystitis so I can relate to the bladder pain. Pelvic Floor Therapy and all that. Both my bowel and bladder just hate me at this point and I thought maybe it was endo but getting that diagnosed....nightmare. I hope you feel better!
Im really happy that you finally got taken seriously about your pelvic pain. Women are just not listened to when it comes to these things and I could rant for hours about it.
Thank you and same! I'm currently listening to "The Pain Gap" and one of the woman was talking about her experience with endometriosis... I'm just so mad -_-
Was diagnosed with endo and a cyst a yr ago after so long of having pain for 25 yrs down there. Couldn't believe that all the yrs of having a pap smear that at 38 yrs old that it took too long to notice I had an inverted uterus. Luckily I got the endoscopic surgery and it helped so much. Hopefully it works out for you!
My husband (who will never live this down) thought I was overreacting when I said we needed to leave a concert early and I needed to go to the hospital. Turns out my ovary twisted 3x because of a cyst. I had emergency surgery because apparently the pain was because things were essentially dying on the inside. I went through labor with my epidural not working and I would take that over having a twisted ovary.
There is an AMAZING episode of my favourite podcast, “This Podcast Will Kill You,” that covered Endometriosis last week! I learned so much about how many women have struggled and suffered to be diagnosed. Highly recommend if you’re interested in the medical side of it (which I always am when learning about things happening in my body.) Wishing you many healthy days to come. Thanks for sharing this information as I’m sure it will benefit many other people with uteruses who experience similar pain.
I really LOVE this podcast! And I work in a hospital lab dealing with a lot of the different bacteria covered on that podcast and I can say that the research and everything is extremely well done. Plus, the hosts are just so smart and funny.
Omg i know it's been so long but i have honestly lost track of your videos for a while so i got the medical updates in the wrong order but i still wanna say that that sounds awful & i'm sorry (& enraged) that this still happens. Hope you all the best and if it's worth anything it's always nice & fun to watch your videos & you got me excited about reading again
I actually quite enjoyed the wheel of time series. I have been watching with people who hadn't read the books and the changes actually helped them connect more and understand some things better. Sorry to hear about the medical situation and people gaslighting. Hope you don't have to wait too long for your operation
Thank you so much for sharing your health update. I really appreciate that you shared your experience with the doctors who were treating you as it's a good reminder that no knows your body better than yourself. I noticed that you mentioned you were experiencing low blood sugar and wondered if you were taking Metformin because it does lower blood sugar as it's commonly prescribed for polycystic ovary syndrome and type 2 diabetes. Thought I'd mention it Incase it was something you wanted to check out and could hopefully help with the sysptoms you're experiencing. Hope you get better soon🌸. Loved you and your channel for years and I always enjoy your videos. ♥️♥️
Omg, endometriosis is so painful ! I had a cyst removed too and I was diagnosed luckily because I had such sudden horrible pain once, I thought I could pass out. I'm so glad your problem was diagnosed finally! Tc and all the best fr your surgery!
Hi Emily, I am so sorry to hear about your struggles. It was really a big accomplishment on your part to get a diagnosis with how much you were ignored and gaslighted, so happy you have answers! I had similar issues with gynecologists, especially male doctors! I was told after a surgery that I shouldn't complain about pain "because women that give birth have it worse", I had to manage with just Ibuprofen when I had just been sliced open
I'm so very sorry you have been going through everything that you have. I had to have a radical hysterectomy due to ovarian cysts, which I had suffered with for years. So I really understand your journey. I know you're nervous but know that things can get better.❤
I was diagnosed with mild endometriosis. I had surgery to remove some scar tissue. I can only imagine how painful that was for you with an advanced case! I was miserable with a mild case. Just going on the pill helped my symptoms significantly which I’m thankful for. If you have any questions about the surgery I’d be happy to answer them. Hope you get it all under control soon.
That sounds like such a muck around the doctors didn't know what they were doing and I know the pain of chocolate cysts as I had 4 of them as I also had stage 4 advanced endometriosis so I know the pain. Once you have the surgery you will feel better. The surgery will most likely be laparoscopy but they give you a general and local anaesthetic to put you to sleep whilst in surgery. The recovery will be weeks but the pain will go. Sending healing vibes your way.
Oh gosh, I'm sorry you had to go through this, had a similar experience also with a cyst which I had for months and then when it was time to remove it, the doctor said I don't need any painkillers because female body was designed to withstand childbirth so I will be fine...🤬🤬 I hope everything goes well for you! 🤞❣️
I also have advanced endometriosis and have had two laparoscopic surgeries to remove chocolate cysts! Recovery took a few days each time! Hope it goes well for you!
So sorry you had to go through all of that, but glad you finally got a diagnosis! I had to put down Persuasion for now, it was making me feel slumpy as well. And personally, I wouldnt read Cytonic if you are already feeling slumpy, it was my most disappointing book of last year sadly :(
This is why I go to private clinics when I'm having any painful health issues. Yes, I have to pay, but at least everything moves super quickly, doctors are very attentive and you can have any tests you want. So sorry you're going through this! Hope that everything will be better soon💜
@@BookswithEmilyFox That really sucks. Are prices for medical procedures in Canada as high as in US? I quess one good perk of living in developing country is that prices for medical things aren't as high as they could be. At least for not super difficult ones.
After almost a year of dealing with symptoms of Overactive Bladder Syndrome, UTI tests, a urine culture, a gulcose test, a scope procedure that cost me thousands of dollars, and fighting with my insurance company because they wouldn't cover any OBS medication I found out that Allegra and other medications like it can cause muscle cramps/spams and fequent urniation. My GP and urologist didn't tell me that, my allergist did when I went in for a asthma check up. Stopped taking Allegra and I got better....still have medical bills to pay off though.
My brother had the exact same reaction to the first episode of WoT. 😂 He’s also currently reading book two. He said he’ll probably continue the show at some point but hasn’t watched more after episode 1, lol. Edited to add, as I have continued your video, that I feel your pain - literally. In college I had a chocolate cyst that ruptured, emergency surgery and diagnosed with advanced endometriosis. Before my official diagnosis I was also diagnosed with repeat UTIs. 🤦🏼♀️ Glad you finally have a diagnosis and hope you’re able to schedule your surgery soon.
I haven't read Persuasion yet. I did read Emma and liked it OK but didn't love it. I know I am in the minority!! Love your bookcases - we need some new ones. Your fantasy shelves are filled with all of my son's favor ite books! He's reading The Rage of DRagons now :) Ans he LOVED Oathbringer - I see it on your TBR shelf! I really loved Dark Matter. Oooh! And I spotted Replay - my favorite book of all time! Most people have never heard of it. Nice collection of Ruth Ware, too. We want to start watching Wheel of Time, too. We haven't watched Wheel of Time yet - I think we might enjoy it more because we haven't read the books! So sorry to hear about your health problems. As someone with chronic illness, I could relate to what you went through - good for you for advocating for yourself! And I get - I've been in survival mode for a while, too, due to a worsening of my chronic illness (doing better now). But I cleared out a cupboard this weekend! Hope you continue to improve - and enjoy your books!
I also had a cyst recently but thankfully it did flush out with my next cycle. But the pinching you mentioned...yep, I felt when it popped off to flush out 🙂 And I'm also floored how you had to wait so long for a GYN appointment when here in Austria they recommend to go at least once a year and my GYN does check-ups twice a year, all on my health insurance. Having to wait that long with symptoms like this...mind-boggling really
omg! Im so sorry about the medical shit, exactly what happened to me!!! I went LONG time with horrible back pain and was literally had a psychologist come to me in the hospital lol I was so upset I just stormed off. but eventually got ultrasound and my gallbladder was badly infected lol.. so had to get that out right away etc just because I was younger doesnt mean my pain wasnt real O.o its so shit ! (im in canada too) you REALLY have to advocate for yourself and harass them til you get your answers lol 100% .. so happy you have answers and hopefully youll feel better soon
As for the medical part of your vlog…I feel you so much. I actually had a similar experience with doctors not really taking me that seriously because *I looked healthy* and the random blood test they were doing were ok. Now my symptoms were different. I just couldn’t eat. At ALL. It just wouldn’t stay in. For what turned out to be almost A YEAR. I was traveling in NZ at the time, (I’m from France) so that probably didn’t help that I was a foreigner but let me tell you I was not impressed with NZ care. Turned out…in the last couple of months, I ended up losing 25kg. Did not look healthy at all at the end of it. Had to fly back to France barely standing. And even then, I had a nurse in the hospital in France dating to suggest after I explained everything that I did it on purpose to lose weight (I was looking very thin), that hospital send me home with a scanner prescription (the only blood test they did was « fine » still. 2 more days get an appointment, and finally I’m heard because the imagine showed my transit system blocked (totally rotting btw). The doctor that admitted me still doubted me when I told him my story and pain I was in. But mostly, having barely eaten for a year, I was just so so tired. At that point they still didn’t know what I was, but I got surgery a few days later. Verdict (relèvent to your story): ENDOMETRIOSIS everywhere pretty high up in my bowel (which was very damaged). They scrapped everything they could at that time. It was a bit everywhere. When operating, they didn’t know what I had yet, they had to send it to the lab to be sure so I also had to pleasure to have the “it’s not cancer but we don’t know yet what it is”. Ahh what a roller coaster that time was. It is good you know now what you have so you’ll be treated appropriately. I personally never had lower gynecological pain that you usually pair with endometriosis but it really messed my body. And because doctors did not believe me for almost a whole year that no, usually I love to eat, something is very very wrong here, I literally almost died. A few more days and I would have. It is infuriating to think about. At least once I got admitted to the hospital, the doctors were great (the one that admitted me came to apologize to me once it was clear what I had was very serious) Oh and another fun fact about the New Zealand experience: I learned just before I left that country by getting the summary from the last time I had gone to the ER that they HAD suspected a partial blocage/occlusion…and yet they did send me on my way. It would be two months later that I would fly to France so they could have actually help then just chose not to do it (and did not gave me the full summary with that information on it, I got that one via a GP I went to before flying) Anyway sorry for the long post, I just wanted to share, especially because my symptoms, like yours, were a bit unusual compared to what you usually hear about endometriosis. It can go everywhere, especially if untreated. I personally never experienced very painful periods associated with endo (though I usually would be very sick and tired but no pain) so never knew before this happened. Now I’m on the pill non stop and I’m lucky to not have experienced side effect. I don’t have my periods anymore which is such a bonus! I wish you all the best for your incoming surgery. It’ll be fine!
That's such an awful experience, I'm so sorry. I really hope it serves as a lesson to the medical professionals who dismissed you but later learned what happened.
@@Frogface91 thank you. It was certainly intense. But I was so tired at the time I didn’t realize the implications of so many doctors dismissing me. I’ve always trusted doctors before (still do now) who really helped me a lot in various situations so that was really new for me and the lesson I really got from this is that I know my own body and I have to advocate for it. It’s unfortunate that the first time it happened to me was in a life threatening situation. And while I also got some attitude from the doctors in France, I am really grateful for our health care system. In less than a week, after the fiasco at the first hospital I want to, I was hospitalized as soon as they saw my results and had really good care and attention from that point forward. I think as a foreigner in NZ, they just didn’t want to bother (I did have insurance though…so I was not opposed to more testing, they just didn’t even mentioned it).
I’ve been through this pain, it’s horrible! I’m so happy you found a Dr that finally listened to you!! Love your channel, I lurk but just had to comment, sending good vibes your way. We will always be here when you come back after surgery, I hope they can do it soon! Happy Reading ☀️💕
I'm so sorry to hear about your health issues! I have a friend going through the whole endometriosis diagnosis process and... it's been a wild ride. She finally was able to go to a specialist, got an ultrasound after a few months, and with the results the doctor just told her "oh yeah, you have a tendency for this, just take the pill" which she wanted to avoid doing... No other alternatives. It's awful. She's going to keep trying other things, and maybe even the pill again, but the fact it took so long to be taken seriously and then that's the response is so disheartening.
Yeah I never wanted to go back on the pill due to my terrible experience. I was offered two options. 1 hormonal pill which would hopefully not give me too many side effects (so far so good) or another pill that would basically give me symptoms of menopause... Hopefully surgery happens soon and helps lol
I'm so glad you finally got a diagnosis. I'd been suffering from excruciating pain since I was 14, but on got an endo diagnosis when I was 28, so completely understand your frustrations with the medical industry telling women there's nothing wrong with them. I'm still fighting to get my ovaries removed because I can't take HRT due to a history of blood clots.
I have endo too. I'm in the UK and it took them 10 years to diagnose me and when they did it was an accident. I had been going a lot to tell them how much pain I had, I was told it was normal but I knew it wasn't, I was screaming sometimes as I felt like I'd been stabbed in the pelvis. I had a blood test for something else and one of the results came back really high for a cancer marker for ovarian cancer, CA125, but it is usually elevated mostly in women with endo. They did a scan and found, just like you, a 4 inch chocolate cyst on my ovary. It actually ruptured internally as they left me with it afterwards. I also have EDS and I was overlooked with that and misdiagnosed many times. A physio actually told me as soon as I walked in with pain as I have the typical body for it. Stay strong. One thing I find is just giving yourself the permission to do what you need to to get through. Rest when you need to, don't put too much stress on what you expect you should be doing. If you need to take a day just in PJ's and a dressing day, go easy on yourself and allow yourself to do it.
Girl I feel you on so many levels. Had a 6 sm cyst on an already polycystic ovary and got told I can't possibly feel pain and it's probably just some bowel irritation .. sure, sure.. Hormonal pills were a blessing .. tho it is hell when you try to stop them. I'm so happy you got a diagnosis! How tf you had to wait for 1 year for an appointment is beyond me???
I'm so sorry :( Panini and busy busy apparently... I wish the hormonal pills helped with the bladder but I was told it could take months for that. At least I don't feel the pinching anymore. It's so frustrating when doctors look at you like you're insane when you tell them something is wrong. I could literally feel my left ovary being pinched ffs -_-
I really hope you get the best treatment and the issue is resolved! The struggle to get taken seriously is a part of it but the good thing is you are already past that stage :) Sending positive energy your way
Hope you can have surgery soon and be back to feeling yourself! Nothing worse than not being able to do the things you love and not feeling well!!!!! Love your channel take care of yourself!!!! 💕📚
I'm so sorry you have to go through this 😑 i feel you! I've been suffering from heavy periods and anemia since my teens. It's been affecting every part of my life. The only thing the doctors can tell me is "gain some more weight and it will sort itself out!" when I was skinny. And now that i have gained weight (AND IT HASNT HELPED) they tell me "oh just lose some weight and it will sort itself out!" Edit: just wanna add that I don't equate endometriosis to a heavy period. I'm just commiserating about female health problems and them not being taken seriously ❤️
I think Wheel of time was OK as a series. Not great but ok. But I don't really have a strong relationship to the books, so that might influence it. I would say that it continues along in the same vein, so if you're not feeling it I'm not sure you will like the rest better. Sorry about the health issues and the crappy treatment, hope everything works out for you 🤞
It took my gynecologist a full year to believe my pain and do testing. I had cysts on both ovaries, one was 6 and thr smaller cysts kept bursting. Makes me so angry that women are not believed. Feel better soon.
I have the same issues you do and they do nothing for me either. 🤦 its so aggravating! I will say over the last few years I have learned, diet wise, what irritates it more. Fizzy drinks are a no! If you like sparkling water try not for 2 weeks and see if that takes pain down. It did a lot for me. Still have cysts. Still have pain. But there are ways to ease it. Find out what irritates it and heating pads are your new best friend! Also im on anti depressants and no it doesn't help at all!!!!!
Luckily I’m not big of bubbly water but I avoided coffee for a while and it helps a bit but my probably isn’t the inside of my bladder since it’s so much worse when I sit than when I stand 😓 Fingers crossed I get a date soon
I go through the same health issues as you say here and ive also been waiting for a dr for 3 years with lots of opinions saying for years pain was all in my head ... 😔
Mat's family was pretty wholesome in the books. His dad is a horse trader, bff with Tam (Rand's dad) and his sisters are teenagers that snitch on him when he does pranks and his mom is nice. Nynaeve's parents died when she was a teenager, like her mom died when she was younger, and her dad afterwards, and the Wisdom took her in as an apprentice, but she still has some relatives in the Two Rivers. The Wisdom who raised her also never tried to go to the White Tower, who accept anyone who can channel, at least to try to train as an Aes Sedai. Tbf for the Moiraine et Lan thing, they tried to show more how they were really close, but they're not a thing in the show. They matured the characters in general, to make the show more "adult", like Egwene et Rand, but to me the main problem is not just loosing the naivete, it's that it skips ahead on character development. They kinda smoothed some character flaws too that make some characters fall flat.
I'm so sorry you had to experience the "medical gaslighting". Sadly too many women or female presenting people experience this. In 2015 I went to the doctor because I had headaches all the time, and I've only just yesterday been told that I have a cyst in my jaw and that it could be the reason. If they had scanned my head back then.. who knows. I was told "it's just anxiety" "it's just your allergies". It's been 7 years of daily headaches and migraines and still no solution, but at least someone is trying now.
The changes in the first episode of Wheel of Time aren't even the most significant differences.... It's a rough ride if you've read the books.... Also, sorry to hear about your health issues. Hope everything goes well.
On a related note, it's unconstitutional in the US to require spousal consent when a woman wants her tubes tied, but too many doctors will still refuse to perform tubal ligation if your partner doesn't consent. Or if you're not married. Or childless, have only one child, or are "too young."
Yes it's a big problem. I had asked about it years ago and my doctor just didn't think they would operate on me so he never put my name on the list -_-
8 y into shoulder pain. went through some diagnosis journey at first but I have MD so it was pretty clear and basically conclusion seemed to be 'just deal with it'. For my MD i have yearly checkups and weirdly enough it seems like the moment I stopped asking for help with the shoulder and started acting nonchalant about it, that's when they started to actively push to have it reexamined 🤣 "doctors" sigh. But 'just relax Emily, I'm sure all of that pain will just magically disappear if you stop being so damn anxious' 🤬
Oh wow I’ve been having a very similar health journey between 2020 and now. Started having pain and discomfort in my pelvis in early 2020, went to tons of doctors and had a bunch of tests that showed nothing (so of course I was “faking for attention” and “had depression”), finally was able to get diagnosed with endometriosis after finding a doctor who took me seriously and got me a surgery, and then ended up having to have a second one done by a different doctor for everything to be properly removed at the end of last year because the first surgery wasn’t as aggressive as it needed to be. Meanwhile I’d been having bladder issues, weakness, continuous increasing pain, and a bunch of trash symptoms that I’m sure you already know about lol. Trying to find a doctor who believes you, takes you seriously, and treats you like your case is urgent is a freaking nightmare. anyway thank you for sharing. It always makes me feel validated when other people share similar stories :) Wait I forgot to add, on a brighter note: I’ve started improving now! I hope it’s the same for you!
Girrrrl thank you for sharing your experience. Fellow severe endo gal over here with chocolate cysts, bladder issues, etc.. the works. Life post surgery is much better for me. Luckily I didn’t experience as much medical gaslighting as you did, but I know that’s a very real issue. I hope your surgery goes well. If you ever need someone to chat with about it all, don’t hesitate to reach out!
@@BookswithEmilyFox I’d say I felt fine after 3-4 days post surgery. It wasn’t too bad given they can go in laparoscopically. The scars definitely took longer to heal up but they’re small and nearly invisible now. This was back in February 2019, so coming up on 3 years ago!
I‘m sorry to hear about your health issues I‘m sending you good and positive health vibes ♥️♥️ I loved the Wheel of Time Show but I haven’t read the book yet. 😅 That‘s why I always watch the movie / show before reading the book 😂 because if I read the book first I guarantee you I will be disappointed by the adaptation. But as I don‘t care about spoilers I don’t mind reading the book afterwards.
1 an pour avoir un rendez-vous avec un spécialiste ou faire un examen ? C'est long ! Je pensais que le système de santé canadien était meilleur que le nôtre mais finalement peut-être pas. Remarque, ici c'est pour voir un ophtalmo qu'on doit attendre plus d'un an, sauf s'il y a une urgence. Anyway, je te souhaite bon courage en attendant l'opération car ça ne doit pas être facile d'avoir mal tous les jours. Thanks for your videos by the way! Love watching them! Discovered amazing books thanks to you. 😊
Medical gaslighting is terrible, and I'm so angry you had to go through that. A few years ago I saw a dermatologist and she was so kind and considerate of the pain I was in, I ended up crying after the appointment because I'd never experienced it before. I have a friend who whenever they *know* something is wrong she makes physicians write down in their notes that they refuse to treat it. It's a liability issue, so they'll change their tone real quick.
Your health update - the situation is absolutely outrageous! I'm so pissed at the doctors on your behalf 😡🤬 I hope the surgery goes well for you and you get better soon 🤞🏻💗💗
I'm flabbergasted that it took you a year to get an appt with a gyno and a pelvic ultrasound ,and I thought out third world health care system was slow. I have PCOS and found out because one of the cysts bursts and it was insane pain so ended up in ER which at least sped up the process a bit. I'm super grateful my family doc is someone I know so they always pay attention to me, but man once you get to basically any other doc, it's all anxiety/depression, you are fine, stop whining and just straight up ignore everything you say. Endo sucks hardcore and should check your pancreas if you suddenly started with the hypoglycemia since endo tissue could have gotten all the way to the pancreas. Hopefully things go more smoothly for you from here on out!
Canada healthcare system is great for a lot... but not to see specialists. I'm glad you have a good doctor, they're pretty rare! Hopefully surgery happens soon and fixes everything!
Get well soon Emily. Ok not only I did not find the sugar testing part funny, I actually got teary eyed (I'm going through menopause right now, so hormones :( sorry for TMI) I hope you get well soon and get rid of the cyst. I did not like the first book of The Wheel of Time and not surprisingly, I loved the show. There is much longing coming from at least three couples (and one love triangle) so do not give up on it yet. I eagerly wait for the next season and will not be continuing the series (yes I have checked the wikipedia for the plots of the other books and no, this is just not for me (well I'm a bit sad about it because if I'd have liked it then I would have so many books to get excited about but alas). Joe Abercrombie is my favorite fantasy author. I have read all of his books and loved each one. I like his twitter posts as well. Again, I highly recommend to get the audiobooks for him if you can. The reader (Mr. Steven Pacey) is amazing. Again get well soon and thank you for making great videos despite your health problems.
Hej Emily! I’m so sorry to hear about your bad experience with not being listened to. Glad you got an answer in the end and fingers crossed for surgery and smooth recovery! It was hard to listen to your story. I recently read Unwell Women and Pain and Prejudice last year and they address these issues very well. So I was getting angry while listen to the audiobook but at the same time learned a lot. Thank you for sharing. It means a lot and might help others with a uterus or not. Really hope you get better! All the best to you! PS: I had the exact same thoughts on the first episode. Three days later and I’m still angry :p
Hi Emily!! I hope everything goes well with your health issues. Last year I was diagnosed with insulin resistance, pre- diabetes basically. ( change my diet and my physical activity and doing better). And to begin 2022 I currently having covid which has affected me a lot since I suffer from fibromyalgia since I was 16 years old. Believe me, in all these years I wanted to punch many doctors! Again, hope you get your surgery soon and get better. ❤❤🇦🇷
