WE GOT HITCHED 💍 | Mass Update and the Worst MRI EVER 

Congratulations!!!!! You both look fantastic. Best of luck to both of you. I have faith that you will both succeed in life!!!!!

Congratulations!!! Such a beautiful couple! I'm so happy for you both! May the Lord be your source of joy and strength.

Smart to go ahead as planned with the ceremony. What a COOL way to have your wedding - breaking it into segments! I would've never thought to do that. You both looked amazing! BTW, your gorgeous gown looked perfect on you. Liked the cute vows you read to each other & your father officiating (he did a great job)! Sorry for the painful MRI - hopefully you will get encouraging results soon! Congrats & TFS!

Aww!!! You looked so beautiful!!😍😍😍 Congratulations! So happy for you two!!

OMG...I am so happy for the two of u... congrats! 💘

Congratulations to you guys. Much love and prayers for you. ❤️🙏

Congratulations!! You looked beautiful!! I hope your back starts healing and you can avoid surgery. I know that is not something you want to do! Prayers that you heal on your own.

Congratulations, you looked beautiful 💕🌸

I'm English... we call "undershirt" (US) = "vest" "vest" (US) = waistcoat "pants" (US) = trousers... but our drawers (underpants maybe you call the non-furniture type) are often untidy just the same!

What a stunning dress!! Lovely people. 🧡God bless you both!

Congratulations on your wedding. You looked so beautiful when you married your handsome groom. I loved seeing your Dad as your officiant. Hope your scan comes back with good news.

Congrats!!!

Beautiful! Congratulations to you both ❤️❤️

I'm SO happy for you guys! Do you ever get to go on a honeymoon? As a watcher of your trials, tribulations and FAITH since 2017, you have inspired me beyond words, and I wish I could send you a wedding gift, or at least a card, without you having a reaction to it. Alas, what a joyous occasion, and now you have another reason to celebrate in February! Much love to you and your family (and adorable pets)🌹-melody

So glad you got married. It looked like a nice intimate gathering. Cheyenne you're so brave. I'll pray 🙏 for you to at least.get some releif from your pain Take care ❤

Congratulations and best wishes to you and Silvino! ❤️🌹

Yay girl

Awww... Congratulations on your marriage. You looked beautiful. I loved your dress. Blessings to you and your husband. ❤️

congrats

Congratulations. I've never sent such a beautiful bride.

💕 Congrats Cheyanne & Silvino, so happy for y'all 💕 I was glad you made the date that was important to you work w/Covid & the restrictions. Hopefully your ceremony & reception work out by Feb. I got all teary eyed watching you & S, you both looked so happy & giddy, you can tell that you adore each other. Also, watching your Dad officiate was super special too. Wishing you a lifetime of happiness & special memories together w/God by your side ♥

So happy to see the wedding, thanks for sharing!

Congratulations!! I couldn't be happier for yall. Me too!! I'm going through those episodes. I'm struggling figuring out which it is mast cell or the adrenal gland stuff...

Congratulations!!! I think you were bery wise to postpone the party! Sweetie they have pill form of buprenorphine that is 8mg. It can be cut or crushed and depending on how fast you metabolize it, you can split the daily dose up into 2-4 times a day. Interestingly enough, it’s only absorbed sublingualy, so if you swallow the pill whole it’s completely ineffective. A 1 month oop is about $100 if insurance says no. It also comes in a patch called Butrans. I tolerate the drug itself fabulous but the patches tore my skin up something awful! The films are extremely expensive for some reason, as are the patches. So far, mcas patients I know who have tried it find it’s tolerated well, provides excellent pain relief, and doesn’t make you loopy once you get past the initial week or so. 🤗 Its one of the few drugs that rarely causes a spike in prostaglandins and degranulation. Unlike the most common opioids, it has a long half life so if you need more for a day or two, you can take what you need without going into withdraws after a few hours. The other thing the pain clinic has me do is mix voltaren gel with emla cream and put a generous blob directly on my spine we wrap saran wrap around my torso until it feels better and repeat as needed. The voltaren is fabulous but needs to be used regularly to get maximum benefits of it. I know you have quite a few drug sensitivities ,as we all do, but thought I’d let you know about it if it is an option for you 🤗. My back is a mess too sweetie, so hang in there! I’m sending hugs, healing thoughts, and prayers your way!

So happy for you ❤️

Congratulations!❤️ You make such a beautiful couple.

Congratulations on getting Married. You both look very beautiful and handsome. Sending you both Much Love. A new exciting chapter. 💗💗💗💗💗💗

Congratulations to you both! I feel ya on the AI.

Congratulations.... I wish the best for you both.

Congrats you two! Your vows were so sweet. Wishing you happiness in your union. 💞💐

So deeply sorry about the pain!! If I can be of any assistance with the emotional stuff let me know. It's so overwhelming that feeling of doom. I feel like something takes over my body and my mouth its not pretty.

Congratulations!! From Garden City Beach, South Carolina..

Congratulations! You and your day look beautiful. You too new hubby. Thank you for sharing. I wish I had a magic wand to fix your pain and everything else you have to deal with.

Congrats to u both!

Congratulations Cheyenne!!! Such a beautiful couple. Sending hugs and good wishes 💗

Congratulations. You look absolutely beautiful.

I knew that you will look like a real princess. Sooo beautiful. 😍😍👰🏻🤵‍♂️i wish you all the best.

I know that pain! It’s horrible.

Congratulations! Happy Valentine’s Day to you both too!

Congratulations to you both and may you two have many years of happiness❣💞💗💞

This is just beautiful peace be with the couple

You picked the perfect dress!!!! Congratulations from Canada xo

Beautiful dress!!! Congratulations!!!

Congratulations! Wish you a ton of happiness. Grab all the good moments. We men always get fewer drawers. After all, all we need are a few shirts, one or two pairs of pants and socks and underwear. Lots of love to both of you.

Congratulations best wishes and prayers for you to get better so you can enjoy your new hubby.

Congratulations!! Your dress is beautiful!! Silvino looks good too. Stay safe.

CONGRATULATIONS!

You both are awesome and blessings 🙏 ❤ God bless you 😇😇😇😇🥰😍

Congratulations!!!

So happy for you both. Your vows were beautiful and you made lovely bride and Silvino was very handsome. I pray that you and Silvino have a wonderful marriage.

Awe beautiful angel 😇 💗 💖 congratulations 👏 😘 💖

Hi Cheyanne, I have decided to follow you. I think we have a few things in common. I have muscle and joint problems and also have plenty of other medical conditions. I would like to keep subscribed to your channel your inspiring and im keen to add my flare of my stories when i get the chance.

Congratulations you two ❤❤❤❤ wishing you lots of love and happiness for the future .❤❤❤

Congratulations 🎊 👏 💐 🥳 💖

You are a brave soul!! Congratulations Chey!!

Congratulations! Looked like a beautiful day for you both!

Congratulations on your marriage!

Congratulations on your new hubby/wife...May you be happy together forever💖💙

Congratulations 🎊 🎈 👏 🎊 🎈 👏 🎊 🎈 👏 🎊 🎈 👏 🎊 🎈 👏 🎊 🎈 👏 🎊 you looked so gorgeous in your dress!

Congrats 🎉🎊🎈🍾

Bless you congratulations. I wish every happiness

Yay on getting married! Congratulations ❤️

Congratulations!!!! Love you and family💜💜💜💜

My endocrinologist has me on 15mg in the morning and 5mg between 2pm and 4pm. I feel she is not giving me the right dosage. She had me listed as second adrenal insufficiency now she had me at just adrenal insufficiency. Prayers for healing on your back. And congratulations on getting married 🍾🥂💒

Congrats 👏 I have insomnia as well while my wife can professionally fall asleep in 5 minutes also. If you can fall asleep in 5 minutes, I’m jealous 🥱

Congratulations to you both!👰🤵❤

Congratulation ♡

Beautiful wedding. Congratulations!

wow what a beautiful wedding!

Congrats! Your dress is beautiful & I loved hearing parts of your vows :)

Do you take steroids before bed? That could be not helping with your insomnia. I take 30mg in morning and when I’m feeling rough we bump it up to 60mg. The government here in the UK 🇬🇧 are issuing people who are ‘at risk’ of severe complications from covid for example people on steroids/oxygen/non invasive ventilation 4 months supply of vitamin D to help with bone and muscle health. I get a infusion every couple of months for my osteoporosis. Congrats 🥳 on your wedding, you looked stunning!

Yay this is awesome congratulations 🥳

Has anyone from the family come out and say she passed away been watching for years and only found out weeks ago

Congratulations and all the best from Cincinnati 💕

Congratulations 🎊 May i ask a question what will happen if the g-tube balloons comes out? And we still use it without changing it. Because hospitals now are needing a appointment and covid test before we can go there

Congratulations 👏 God bless you both 🙏

Congratulations guys!!

Congrats!!! I always tell my hubby that Whats mine is mine and whats his is mine. Tho he was the first one to say it 🤣

Congratulations to you guys

Congratulations!!!!!

Congrats GOD bless you

Congratulations on getting married 🍾🥂

Congrats to both of u❤❤

Congrats..you guys are very beautiful couple..💜

Congrats love! 🤗❤

First off, CONGRATULATIONS on your wedding!!! Secondly, don't feel ashamed of your back pain and not being able to tolerate the MRI. If you're having back pain from your fractures and you are required to lay on your broken back for 2 HOURS, of course you are going to be hurting. It's horrible they couldn't find a way to do it where it wouldn't be so uncomfortable - like on your side, propped up with pillows or something. I would say your stomach, but you have your GJ tube, so that wouldn't work. Regardless, I am glad it's over and I hope you won't have to go through it again.

Congratulations!

Congratulations 🍾🎈🎉.

Congratulations!!!!

Poor you Hun

Hey congrats 🎉🥳🥳🥳 happy for u both

Congratulations on your marriage

I have adrenal insufficiency and steroids are the pits

Is it likely that your osteoporosis will reverse if your health takes an uptick in general?

Adults make 20mg-30mg daily. Not a strict 30mg. It depends on age and total body mass. I have primary. The fact that you have so many GI issues mean you probably don't metabolize oral steroids normally.

I was put on 50,000iu of vitamin D weekly for the next 2mo.

There is people who get the COVID who have no symptoms at all.... there is a very very wide spectrum of symptoms

its so weird everytime I think you havent posted in awhile you post the next day

Angel Get you some Sea moss bathing soda and water . Minerals are your best friend hun It goes down like this minerals vitamins . I spent most of my life livening about like you just different circumstances but at one point I was at 186 mg of steroids for over a month I was on so many medications I was getting so sick I was going downhill so bad so fast and one little thing will just throw me right over the edge I keep going to the Dodgers keep going to the Dodgers keep going to the Dodgers and never once ever felt any better just kept feeling the same nothing got better because my Dodgers were treating me by covering up my symptoms and my problems instead ofGetting to the root cause of the problem which is you minerals which was me minerals my body was over intoxicated from too many pharmaceutical drugs you keep going that route it’s not gonna be a very pretty sight you need to heal your body angel my prayer that you fine this message and it help u . There is healing doctors that you can go to that will help you . . But your doctor is Unfortunately an educated like mine was in true health my thoughts and my prayers go out to you hun So happy for you

Congratulations!!!