What have I learned from speaking to 30 Parkinson's researchers?

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Beatrice Zatorska, Founder and CEO of the PD Buddy App, recently spoke with Michel Planquart, co-founder of the Parkinson's support group No Silver Bullet 4PD, about his insights from conversations with dozens of Parkinson's researchers over the past few years. The interview, originally conducted for the Young Onset Parkinson's Network newspaper, highlights Michel's journey in becoming a generalist who takes a holistic approach to managing his symptoms. He shares his excitement about current research and identifies which studies he believes will have the most significant impact in the future.
Michel also announced his continued collaboration with the PD Buddy App, where he will lead monthly video meetups. These meetups are designed for both newly diagnosed individuals and those who have been living with Parkinson's for some time, providing a platform to exchange knowledge and offer support. Join PD Buddy for free: pdbuddy.app/

Опубликовано:

20 окт 2024

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Комментарии : 36

@piapintus 2 месяца назад

No Silver Bullet has been a game changer in my life! I've learned so much from all the people you invited! And exactly as you do I added n my daily life the suggestions, the tools. the insights of your guests! Michel you and Marc are amazing people and it is with gratitude that I listen to each interview. And may all the merits of your practice make your life beautiful as you did with mine

@nosilverbullet4pd998 2 месяца назад

Thank you so much for such a nice comment! We have several great speakers lined up for the coming months and I hope you will enjoy them as much as you liked the previous ones. 😊

@nosilverbullet4pd998 2 месяца назад

Thank you so much for such a nice comment! We have several great speakers lined up for the coming months and I hope you will enjoy them as much as you liked the previous ones. 😊

@bradmaybury3747 2 месяца назад

Thank you Michel! I treat PD in the ways you talk about. I particularly like exercise and Keto diet per Dr. Matt Phillips. In the 3 years since diagnosis, there has been little or no disease progression.

@nosilverbullet4pd998 2 месяца назад

That's amazing. I wish you continued success!

@tonypickup2505 2 месяца назад

Thank you so much Beatrice and Michel. Very worthwhile and educational video. The work you and Mark do, is very interesting indeed and very valuable to the 'lived Parkinson's experience' community. You are a great resource, and no doubt great comfort to many thousands of people throughout the world. Thank you so much for everything you do. xx

@nosilverbullet4pd998 2 месяца назад

Hi Tony, thank you very much for your kind words and support! We have great speakers lined up for the next months, and I hope you will enjoy them as much as you enjoyed the previous ones. Michel

@steveh1460 2 месяца назад

Praying for you Michel! Thank you for your work and God Bless. I would love to see a video on people and the effect of prayer of those in the battle against parkinson's

@nosilverbullet4pd998 2 месяца назад

Thank you so much, Steve. Spirituality is very important indeed and is part of my routine as well. I will keep your suggestion in mind for future sessions.

@steveh1460 2 месяца назад

@@nosilverbullet4pd998 Thank you again sir.🙏

@gavinmogan9467 2 месяца назад

Great interview! Mastery of both the content and its application.

@nosilverbullet4pd998 2 месяца назад

Glad you enjoyed it!

@steveh1460 2 месяца назад

Merci beaucoup! 🙏

@naej1977 18 дней назад

RLT, Hyperbaric Oxygen Therapy and Methylene Blue are game changes for me

@garyc9908 12 дней назад

From what I have gleened is that like you said parkinsons is not one condition for everyone my guess is there are many different different forms of parkinsons

@normanrubenzer 2 месяца назад

you have hit a home run on this subject!!! excellent points made. my wife has advanced parkinson and she is dealing with the nuropthy in the feet as well as bad gut tightness and constipation as well. she was like you exercising everyday for the last 8 years but now, the discomfort in her gut or feet is stopping her please list any links to these subjects so i can learn as you did on how to adjust to this tough diesease.thank you very much for your help.

@nosilverbullet4pd998 2 месяца назад

Hi Norman, thank you for your support. I am very sorry for the struggles that your wife is facing at the moment. As far as the gut is concerned, I would recommend you joining the webinar that we are organising in September with Professor Filip Scheperjans, one of the world's leading specialists on the topic. We will be sending the invitations over the next few weeks. I know little about peripheral neuropathy but this article might be of interest. www.apdaparkinson.org/article/peripheral-neuropathy-parkinsons-disease/

@anne-mariecollins978 2 месяца назад

Michel. You mentioned Meditation. I have PD and shake considerably. I find that I cannot sit and meditate while shaking. Does anyone have any tips about meditating while shaking? Thank you so much for all you do on behalf of those of us with PD.

@nosilverbullet4pd998 2 месяца назад

That’s a tricky one for me to comment on as I am mainly rigidity dominant. I have some internal tremors that I sometimes manage to suppress via breathing and visualisation exercises. Also, I remember seeing a video of Tom Isaacs, one of the creators of Cure Parkinson’s, who was affected by severe dyskinesia and managed to sit down and calm himself until there were no more jerky movements. I don’t know how he used to do this, but maybe some other people on this forum would be able to comment.

@anne-mariecollins978 2 месяца назад

@@nosilverbullet4pd998 Thank you for replying. It means so much. I will look up Tom Isaacs

@bradmaybury3747 2 месяца назад

Anne-marie - I like Tich Nat Han's book "How to Sit." From this and other sources, I redefined meditation. For me it's not sitting perfectly still with a blank mind, which is impossible. It's sitting and watching the breath. (period!) When I do that for at least 2 minutes I've meditated.

@anne-mariecollins978 2 месяца назад

@@nosilverbullet4pd998 I will look up Tom Isaacs. Thank you Michel.

@kathleenmcnamara5427 2 месяца назад

Thank you sooo much Marc and Michel. I love your work. Inspiring.

@MiltBrewer 2 месяца назад

Michael …can you tell us where you put the TENS patches, how many times per day and for how long? Do you have a particular brand you use? I understand there are different currents. How much current does yours deliver? Being in the US this may all differ. Did you need a doctors RX for the TENS?

@nosilverbullet4pd998 2 месяца назад

Hi Milt. I put the patches on top of my hands, close to the fingers but not on the fingers. You can of course experiment with other locations like inside the hands. I am doing 20 to 30 minutes sessions three times a day. I bought my device (Avon) on Amazon. They are not expensive and there is plenty of choice. You don’t need a doctor prescription but please feel free to discuss it with him/her. Pregnant women, people who suffer from epilepsy or have a pacemaker of DBS should avoid this.

@bradmaybury3747 2 месяца назад

Hi Milt, I use a TENS for vagal nerve stimulation. A special clip attaches to the ear (an outlet of the vagus nerve) and the other electrode is a regular patch on the upper back shoulder. Dr. Google has info on this for treating PD and other neuro disorders. ~ Brad

@livintnet 2 месяца назад

@@nosilverbullet4pd998 do you feel the electric current? (i do not feel nothing from my ear-device)

@MiltBrewer 2 месяца назад

Thank you Michel for advice on TENS. I’ve watched most of your speakers and find them very interesting. My partner is doing high dose B1 therapy. Although we haven’t found his sweet spot we’re still trying.

@MiltBrewer 2 месяца назад

Michel purchased TENS for my partner. He has not used it on his hands but I’ve used it on his back many times and he loves it. Last night I put it on my back as well and must say it’s very relaxing. I seem to notice that stress and overextending himself seems to aggravate his symptoms. So we’ll keep using the TENS and extend it to his hands…

@nosilverbullet4pd998 2 месяца назад

Great. Please let me know how it goes!

@MiltBrewer 22 дня назад

@@nosilverbullet4pd998 Michel, my partner has been using TENS for about a month now. He uses it on his hands for 30 minutes in the morning and his back for 30 minutes in the morning and at night. We haven't noticed a difference in his symptoms but it certainly relaxes him. He really enjoys the quiet time that it allows. He is also on high dose B1 therapy and has been for about 8 months. We have noticed a difference in his handwriting, gait and arm swing. We do believe he's found his "sweet spot" and his dosage is going to remain the same. We went very slowly increasing the B1. Thank you for time and I'll keep watching you.

@garyc9908 12 дней назад

I tried sinemet Did not help I have freezing of gait only

@AFAblacksheepAFA 2 месяца назад

desperatly waiting for the Gloves. hopefully 2025. still fascinating by the Interview with Dr. Tass.

@anitajugwanth9524 2 месяца назад

Does acupuncture help with PARKINSON

@nosilverbullet4pd998 2 месяца назад

There is research that seems to support. My experience has been that it helps with my back problems but not really with anything else (its hard to tell). However, I find it very relaxing and I have acupuncture sessions every 2 weeks.

@garyc9908 12 дней назад

Sinemet did nothing for me