What Is An Autoimmune Disease Flare? What Does It Feel Like? 

Thank you so much for this! I've always felt alone, like "am I the only one that goes through this?" Alone. You did a thorough job describing every little thing that we go through during a flare up. Glad I came across this🙏

I appreciate you having a channel and you having all this autoimmune problems I have them too and you inspire me

Was just recently diagnosed with Hashimoto’s disease, RA, lupus, Sjögren’s syndrome , and psoriasis. I knew I had a thyroid problem and had been on thyroid medication already but until my GP sent me to the Rheumatologist I didn’t know which kind. I had been telling me my GP for a couple years about my achiness and he just contributed it to age but when he ent me for blood work I had a positive ANA and he sent me to a specialist. Thank goodness I now have some answers of why I feel the way I do. Finally getting some relief with the meds and don’t have as many bad days.

I truly believe that we as autoimmune patients KNOW MORE than the doctors because we live with this on a daily basis. We live in our bodies, they don't. Another thing is medical doctors are taught to "prescribe" medications to treat the symptoms. They rarely talk about nutrition and proper diet. They are many foods that "trigger" flareups!!! I don't want to be on steroids. (I don't want to deal with long term side effects.) I would rather manage my flare ups through a proper diet and stay away from inflammatory foods.

Flares do you feel like they’re gonna last forever! I have mixed connective tissue disorder and things that regular people do hurt me all the time and it rather depressing. However, I always try to focus on the positive and how blessed I am to have the body that I do, that I’m able to get up and move around , when so many others are not.

Thank you for sharing. I'm going through one right now and no one understands here at home so I want to show them this so they will realize it's real.

Thank you so much for your explanation of flares. I am in my early 80s and was diagnosed with fibrosis of both lungs, given a five years prognosis over the phone at that time and recently been told I have Connective Tissue Disease and Interstitial Lung Disease. Have also got psoriasis in my hands and feet. I am a retired RN and have cared for patients with fibrosis. I live in the UK and cannot fault the investigative process that has led to my diagnosis. Am at present waiting for a physical assessment soon. Friends and family ( my daughter) are kind and supportive, but find there is a lack of support for someone who is dealing with symptoms on a daily basis, support groups tend to be those who are very ill with the fibrosis, ( mine is stable at the moment) and not those like myself who try their best on a daily basis. Thank you so much for you info on flares, they effect me more in wintertime and when under stress, I am a widow and life is hard sometimes. Your clear explanation and how you care for yourself has been a great help. Thank you.

Yes, thank you! I’m going through one now. Extended Family drama and a weather change at the same time. I’m in so much pain. It’s awful to have. Bless you all!❤

I try to show affection to myself as if I'm a child. I envision myself as a young girl running through meadows. I try to learn things that are easy to pick up, but new to me so I feel like I'm still improving. And I "try" to keep the faith that it will be short lived.

The things you go through, and yet still such a positive attitude ❤️

You’re so amazing Elaine! The way you explain this is perfection! Thank you so so much for bringing our fight to the forefront! Praying for you! 🥰🤗

I too have an autoimmune disease I like to read and write thank God for books 📚

After watching many videos on Fibro, Lupus, RA etc, U are the first person who i agree 100 % with. U totally understand it and know how it feels to deal with these illnesses. Thank u for explaining it so well to people.

Thank you for this ❤️ I got diagnosed with Psoriatic arthritis, psoriasis and hypothyroidism within a couple n months of eachother it’s been almost 2 years now and I’m still learning how to cope… still working with my doc to find what works because I’m constantly going through flare ups… it was nice to hear you breakdown what we go through during a flare… hope you feel better soon ❤️

Its hard because there is a loss of control when you have a flare. Its like you can feel just okay and cope okay, but then you get a random flare and either have to go on while feeling horrible or cancel plans. Also, not knowing how long the flare will last is so frustrating because you cant plan anything ahead.

You gave a clear presentation, describing just how unpredictable flares are . Thank you for doing these. Fight on, Sweet Warroor!

I just love your positive attitude. Thank you for teaching us. Love the videos.

Amen continue to stay positive God Bless you.

I appreciate you describing flares the way you do. I have PMR and RS3PE. I'm only into this 8 weeks. It came on instantly and now each night when I go to bed I fear what kind of morning I'm going to have. My "good" mornings are very painful. My bad mornings are painful times ten as you described. The flares can be one to six days. It's nice hear that somebody out there understands.

Thank u. I go today for my 1st infusion for Neuro Sarcoidosis. Currently taking Prednisone. Your videos have really be helpful in preparation of what's to come. THANK YOU. BLESS YOU.

I just ran across your video. Wonderful! I am into Genealogy, so it helps somewhat in distracting in a flare. Sometimes the flare gets to much but it helps.

I've been suffering from it for last 16 yrs.Agomy of Flareup has been very well discribed by you.You had psoriasis, I've Peripheral Neuropathy for last 2 yrs.Like steroid Methotrexate and NSAIDs also lead to Osteoporosis.Now my Right Shoulder requires Reverse Shoulder Replacement surgery.But I am 82 years of age.Recently 12 days of severe Dry Cough led to Disc Bulge & Fracture in my spine leading to Low Back Pain and complete bed rest.Since last 2 weeks I've got Flareup adding fuel to the fire.RA is a monstrous disease,I pray to God that Nobody gets this disease.

It’s ok to be real, love you more for it. You are a truth teller😘

I can feel your pain. Im going thru it as we speak. Your video showed up and I sincerely appreciate this. I felt everything you said. Im praying for you and if your ever in a hard time read the book of james and Jeremiah 5 14-17

Try to have a Thai massage and it was a great relief . God bless you 🙏

im going through the flare for last 2 months, its the worst pain ever im having in my life. upset stomach, tongue ulcer, nausea, stabbing pain in my back, inflammation on all my body parts, fatigue arms, headaches blah blah, every day crying with pain. now on padnasilone snd mathotrexe, which will take weeks to work on my body.

My neurologists recommended taking moringa capsules i was surprised because medical doctors never recommend natural herbs😮

I’m currently waiting for my second hip replacement. I had the left one done two years ago, and now I’m having the right one done

so hard to explain this to anyone normal i have had it for years mine is mouth ulcers, temperature/ flu every day

Thank you. My AI causes me to have feverish, flush symptoms that truly disrupts life. Malaise but I have energy. I felt good for 5 weeks and been down now for 3 days.

❤

Thought I'd never find someone with flare ups, what i just simply cal pain!!!!!! I've suffered 19 years continously!!! Needles in head uncontrollable arm movements. Pain in shoulders shins. Hot burning hands n feet. Hot needles in one thigh. Stabbin̈g pain in feet. And all this traveled all over even̈ hands!! I thought i had hiv until 2015. I was shitting bricks!!! Got tested and was negative. I was so relieved. But then i thought what then do i have? Well recently after corona about 2022 my dr did bloodwork. Found out i was vitamin D deficient. Noticed major improvement. But im still getting pain in arthritic left knee and hip. As well as right side hip with no cartilage. For the longest time i just wanted to jump off a bridge!!!! I prayed hard!!!!

I don’t think my doctor takes me seriously. I KNOW I HAVE THESE THINGS no one listens to me. I’ve been going to the same doctor for 20 years and if he asks me one more time, if I still menstruate after I recently had a hysterectomy three years ago keep in mind same doctor.

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