My brother recently passed away from this. He had sudden rigidity and fell, resulting in a skull fracture. He was a good man, and every cent he had was donated to this research, because he was afraid that maybe I'd end up with it. I loved him very much: and the fact that he stood up to help others in his final hours proves that there's nothing better than getting up and doing something for the cause, instead of sitting and "hoping" or "praying" for something to happen. Rest in peace Dante.
Thx for this video. I have 5 members of my immediate family with HD. Two have passed and three are currently suffering with various stages. I can testify to the heartbreaking effects this disease has on victims and the people who love them. We MUST find a cure NOW. Please donate to the cause.
I am doing my HD research project in my college and I am really looking forward to helping the people with HD and finding out the cure. Hopefully, people who are suffering with HD will be back to heath!
My mom has this, she's 54 and lives in a mental health care home, me and my brother will have a 50/50 chance of getting it unfortuantly.I'm only 14 and I'm in care due to my mom and my dad fighting when I was younger because of the kickstart of her illness.
My Mum passed away in February. She suffered from Huntington's for 10 years. This video shows how the Disease effects the sufferer. From being completely independent to needing 24 hour care. Not only does it effect the sufferer but the family too. But just like me Mum it looks like she kept a smile on her face no matter what life threw at her. I prey for a cure xxxxx
My sister in law's dad has HD,but I don't think any of them want to get screened for it.I just wish there was something regular Joes like myself could DO about it.Like maybe be assistants in a lab or something.I would volunteer in a heartbeat if there was an opportunity.I pray all the time that there will SOON be a cure for this horrible disease.
My workmates wife has it and I feel really sorry for him. Hes constantly having to worry about her having falls while at work. Its like watching her slowly die before his eyes. Hes too scared to get his 2 daughters screened in the fear that one or both may have it also.
Thank you for making this video. You did such a great job explaining it in a way all people can understand What H.D. is. My 21y/o cousin passed away from J.H.D. 3 years ago now. I am VERY active in my local HD Chapter and will be sharing this with them at our next Chapter & Team Hope Walk meeting!!!
Is there ANY way ya'll can do one on Juvenile Huntingtons? This is wonderful! And while they are very similar, there are, as you know, crucial differences such as they normally do not exhibit Chorea and the life expectancy drastically reduces. I have been invited to do a short awareness shoot with our local new channel and would love to use this and actually one more directed towards JHD as my son has it. Please let me know if you could possible do one! THANK YOU for all that you do!
Is the chorea in HD caused by a restless sensation? That is to say, is it sort of voluntary in that the restless sensation builds up to the point where the person needs to move in order to relieve it? Or is it a completely involuntary thing like some sort of convulsion or I suppose severe spasm? I've also wondered the same with Parkinson's disease, if the excessive movements are the result of restless sensations and moving in such a way relieves it. The reason I ask is because I suffer from akathisia almost constantly, and I often wondered if such motion disorders had to do with akathisia at all. Which seems to relate to a deficiency in dopamine, so Parkinson's comes to mind. Mind you I would expect symptoms of such disease to be far worse than what I experience. Which frankly, is absolutely terrifying.
Well after doing some reading on HD it seems it's entirely involuntary. But I would still be curious to know if Parkinson's is also entirely involuntary or more like a severe form of akathisia. Cuz to be honest, when I look at the motions people with Parkinson's make, they're eerily similar to some of the motions myself, or other sufferers of akathisia I've seen. I'm not saying I have Parkinson's or anything. I'm just wondering if it's similar, but more severe. edit: I also found out that HD is actually characterized by an excess of dopamine, rather than a deficiency of it. So I found that really interesting. It also causes a decrease in GABA. All of which leads to excitotoxicity.
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I also will find the cure. Looking outside the box, the sea of infomation is daunting so lets see the hitchhiker on the 4th chrome take leave. What attracts the hitchhiker to the 4th? not the other 22, is the cure lying there... new ideas keep it flowing. My thoughts always go back to the hitchhiker, what is the hitchhiker dna?
You will never understand because you dont have a chance for it I do. If I get tested that is life changing I am only 13 and don't want to think about it now. I will most likely have kids they are making breakthroughs in research it will probably be done before I get symptoms or atleast my kids.
omg i might have the disease :( after some years i have noticed that i have problems with conversations and i cant make up sentences properly or understand and remember what other people say
Fuck I'm sorry this is for someone who I just found out has it but I did not no yesterday and I thought she was on some substance and I was wrong but I am so sorry I really am I should have paid attention I'm so sorry young lady who I can't name I hope that things are bad for u I'm so sorry.
