Thank you for this episode. I have EOE, but the closest gastroenterologist services are over 100 miles away so self care is critical. Our rural gp's wont address it aside from an option by local surgeon to stretch the esophagus. Helpfully, he spoke of the study on dairy. Eliminating it gives some relief, or at the least an allergic reaction decreased. Thanks to you tube sites like yours I can get a broader picture. My decades with providers in general is most are not curious to search out data or refer out. I wasted years explaining symptoms to no effect. Even online it took years to finally find a Univ of Washington State site that specialized in gastro. There I finally found a description of my symptoms of Jackhammer or Nutcracker esophagus cramping. So painful. I wish us well. Collaboration is a win.
Thank you for sharing your experiences and the kind words. The challenges you face with access to GI care for EoE are all too real. Please see these evidence-based resources for additional info: apfed.org/ education.giondemand.com/collections?q=eoe gastrogirl.com/health_hub/eosinophilic-esophagitis/
Thank you for your comment. We can certainly make a note of this and address in a future episode. Please let us know if you have any other questions/suggestions for our experts. We appreciate the feedback!
