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What You Need To Know About Tecfidera®

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This video was created in June 2013 and features Gabriel Pardo, MD and Bruce Cohen, MD. Information is accurate as of then. Please visit www.nationalMSsociety.org/meds for the most updated information. To learn more about Tecfidera and other disease modifying therapy options, download the Consensus on Disease Modifying Therapies online at www.nationalmssociety.org/DMTconsensus.

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10 июн 2013

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Комментарии : 50

@debothoms67 11 лет назад

Same here I thought I was having allergic reaction at first. After first pill notthing happened. It is a blessing!

@bltbree 11 лет назад

I start on it next week. Wish me luck,

@gjop-xm2xe 7 лет назад

Lorie Mediina how did you do

@andie221 11 лет назад

Been going along really well...trial 2009 then onto extended study...I am happy and feel great. Side effects ( flushing & abdominal discomforts) abate and were very mild in my case...I have been stable with improvements

@harmcity9934 Год назад

how are you still doing in 2023?

@andie221 Год назад

@@harmcity9934 I’ve been doing well …stable with improvement. Of course I’m aging as normal but it’s been good for me all these years.

@harmcity9934 Год назад

@@andie221 so glad to hear it, i will be on tecfidera after a month of aubagio (unsuccessfully) your reply just gave me so much hope and positive thoughts for my future :)

@tamianderson123 11 лет назад

This was really helpful, thanks for posting.

@dorothyhamilton8110 11 лет назад

I had abdominal pain and diarrhea from the 240mg bid. I stayed on it for three weeks. Tried to fight through the abdominal discomfort. I was hoping I would build up a tolerance. I had to stop it yesterday. I just needed a break from the discomfort. I have had MS for 30 years. I'm not a whimp. For some reason just could not tolerate this. I'm just disappointed that I could not tolerate it. :(

@chrmng1 5 лет назад

Did u find something that worked

@Brenda90210 4 года назад

I now trying for the 4 th time to take this . Failed 3 times before . Going to try to slowly build up tolerance this time . I discovered that I must be very careful what to eat together with this medication. Will try again this time

@Petra44YT 3 года назад

Amazing. I never had any issues, and in fact I am still taking it on an empty stomach twice a day. (No-one told me I should have it with a meal because no-one knew yet - I was in the study group. So, of course I never did.) Well, you'll find something better. :-)

@theresecowap7333 2 года назад

Never fee bad because your body reacted to the drug. I would say, my body rejected the drug out of my body because it is causing my body to have unpleasant reactions . This is the body telling you, do not take this medication it is having the opposite efectct to my body. The more of this medication I put into my body, the sicker I feel. Stop taking the medication immediately. Now sit quietly and bring your attention fully focused on your breath. Feel it going up your noise stay with your breath as it extends your stomach, feel it swelling up both of your lungs, throat and slowly releasing your breath out through your mouth slowldyour your lungs and then up into

@fretboardstumbler 7 лет назад

On tec for 3 weeks. Just hope it works.

@allentrost8464 6 лет назад

Roddy Fraser hope you can afford tec. When it becomes a burden I got a answer that's 40 dollars a month that works. Montel Williams uses this for his m.s..hear from you soon GOOD LUCK

@Shark999i 2 года назад

How are you now?

@theflossi56 11 лет назад

My first day was rough. I had flushing on and off all day. My skin felt like I had a chemical burn. I've just started my 3rd week and I am doing great on the medication. My fingers are crossed about the long term being safe. I received so much help from others on MSFB who are taking the drug as well. I'm so grateful to all

@chrmng1 5 лет назад

Did you stay on this?

@dontiveros9795 11 лет назад

(PLEASE EXCUSE CAPS/VISION PROBLEMS) I WAS TOLD THAT TAKING A BABY ASPIRIN 30 MINS PRIOR TO TAKING A TECFIDERA PILL WILL EASE OR POSSIBLY ELIMINATE THE FLUSHING . THIS IS JUST WANT I WAS TOLD FROM MY DOCTOR. I MYSELF HAVEN'T TRIED THIS MED YET BUT SHOULD BE ON IT VERY SOON. I WISH ALL THE BEST . =)

@chrmng1 5 лет назад

How did you do?

@Katie-vy5rd 2 года назад

Hi did you go on Tecfidera? Did it help? How were side effects if any?

@diamondsngold64 10 лет назад

Can I ask a couple questions for all who are taking Tecfidera? 1) What type of MS do you have? 2) What were you on prior? 3) Did you ask your Neurologist to switch therapies, or was this recommended to you? 4) What is the cost difference with the pill opposed to the injections? I have been on Rebif for 13 years now, 1 injection 3x/week. (On Copaxone for many years prior). I really would love to just take a pill and no more needles. Thank you!

@chrmng1 5 лет назад

I have been on rebif for 7 years. Did you switch, has it helped? I have relapse remitting ms diagnosed in 2003

@robin9876 2 года назад

I've been on Tecfidera for about 8 yrs (Betaseron injections before that). Helped me alot. But I read it doesn't work much after 6 yrs! I've gone downhill & scared because they ALL have horrifying side effects. I don't know what to do. Drs. are no help.

@jjkouper5163 8 лет назад

Dr Cohen. You teach so much I feel like you have lost your touch giving a DX- You missed my DX. When you say someone has RIS they should be on DMD'S- That's your written word ..

@shepdonald 11 лет назад

Just took my first pill (1/2 dose) after 5 years on Tysabri. Reactions as predicted: immediate flushing that dissipated after about 1 hour. I had not eaten, so will try eating next pill. I had taken 81mg baby aspirin. I expect the reactions to increase temporarily as I increase to full dose and then reduce over time. Crossing fingers.

@robnickolson89 6 лет назад

so, how are your observations after 4 years of taking it?

@Katie-vy5rd 2 года назад

Did eating help? And how long after starting did side effects go away? Thanks

@Katie-vy5rd 2 года назад

Also did aspirin help?

@Petra44YT 3 года назад

Schön, kaum nimmt man das Zeug mal zehn Jahre, erfährt man wie es funktioniert. :-)

@martinschultz2631 Год назад

Funktioniert es gut?

@Sportdog1000 11 лет назад

Sounds like a relatively safe alternative to those who have to go through the daily injections. The convenience of taking 2 pills combined with the low side effects make this an exciting option. Any idea how it compares to other treatments as far as cost is concerned?

@robin9876 2 года назад

I've been on it for 12 yrs (took injections before that). It really helped! But side effects - like all MS drugs are horrifying! Brain diseases, PML, etc. I read it may not work after 6 months! I don't see any new drug to take that doesn't have scary side effects. Gonna talk to my neurologist but they don't know much.

@sleyv66 11 лет назад

Google the science article entitled "Multiple Sclerosis: Tecfidera (BG-12), tBHQ, SFN and Protandim Compared" To quote from the summary, “BG-12, tBHQ, SFN and protandim are well-tolerated and strongly induce Nrf2-driven antioxidant enzyme production in oligodendrocytes, with protandim showing the most potent induction.” Then, go to worldwidewebdotNaturalSolutionsdotprimetimeabcdotcom to see all the patents and tier 1 peer reviewed studies that prove Protandim is better.

@colleenobrien8817 3 года назад

Thank you so much for this information!

@kamilaansari3213 6 лет назад

There are a few components to reducing multiple sclerosis quickly . One plan I found which successfully combines these is the Denelle Multi Care (google it if you're interested) definately the most helpful plan that I've heard of. look at the interesting information .

@lilpandanesegirl 11 лет назад

No side effects, so far.

@Keaton411 11 лет назад

2 days into my intro and I feel itchy all over although I'm not broken down out in hives. Also I'm also eating but still feeling nauseous. but I understand that's pretty standard. Was previously on Tysabri for 6 years and have been found positive for JCV so switching to see how this medicine will work for me.

@marinamovsessian9177 4 года назад

Lynn K Hello! I am currently going through the exact same thing. If you see this comment, I would appreciate a response. I would like to ask a few questions.

@itsmeShathaE 4 года назад

@@marinamovsessian9177 May I ask you if the side effects fade after time?

@marinamovsessian9177 4 года назад

S Hi! I’m 12 weeks into Tec. I had severe joint pain the first 6 weeks, but none of that anymore (very surprising, as the pain was unbearable). Currently experiencing some nauseousness, dizziness, and loss of appetite, but hoping they will fade with time too.