When the Nausea is That Bad... | Let's Talk IBD 

28 years ago i was pregnant and lived on phenergan. I was losing a lot of weight and stayed on it the entire time. I was hospitalized last Dec with acute kidney failure due to dehydration and asked for it because zofram did not work. I did not mind that they injected it in the hip. I did not know that it could be abused. Honestly its maddening that abusers make it impossible for legitimate patients cant get it when we truly Need it! Feel better Maggie!

Nausea is absolutely the worst! I have Lupus and Chronic pancreatitis. I am on 4 Phenergen and 3 Zofran a day, in addition to Protonix and prescription Pepcid at night. I have had instances in the hospital where a doctor refused to give me Phenergen. When I am really sick, I have to get IV Phenergen to stop vomiting. I truly feel for you and pray that you are able to get the meds you need to help your nausea. You have the best attitude and have gone through so many traumatic things. Thank you for being so open in sharing your health struggles. It really helps to know that other people go through similar things that I've experienced.

i ALWAYS get really nauseated when i have friends over or are on vacation or trip or on a plane, etc. It seems like the pressure to have fun and have friends and stuff makes it worse!

I hope you feel better soon. Your fur babies are so cute.

I can relate to this. Combination of chronic illness and my body’s reaction to heat. Some friends of mine asked me to do their wedding invitation photos. They wanted to do the photo shoot at a local park. In the middle of summer. Arizona summer at that. My thyroid and the heat went ape on me. Zofran was my best friend that day. That and green tea with peppermint. We got a video of the behind the scenes stuff to be used for the reception. In said video you can hear me wretching in the background because I didn’t quite make it to the bathroom.

For me, nausea is one of the most brutal parts of crohns. Ive gone on car trips too in order to mitigate it, like you said, sometimes it works, other times not so much. Phenergen is def a lifer saver. Irritates to me to no end that docs don't prescribe it more to crohns patients. Had a hospitalist that refused to give it to me in-hospital. I fired him and had the GI specialist prescribe it. Had no idea that it was or could be abused.

Nausea is the absolute worst!!!!!! But I’m happy that you were able to get through it and the nausea subsided and you got through the day 👍 You certainly have inspired me many many times to push through tough situations and I thank you 😊 Your pups are precious!! Love seeing Zak in your videos too! ❤️

900 pictures??? Holy guacamole

Dixie is so sweet love seeing the doggies

I am glad that you are feeling better. I know from experience how awful the nausea is. Hopefully that is behind you now. Take care❤

I have gastritis and nausea every morning Zofran did not help me but Phenergan did after I took the Phenergan I felt like a new person

Awe Maggie 💜 I'm glad you didn't have the discomfort of throwing up but feeling nausea ducks nice to hear your sta is behaving your dogs are soooooo cute i ju6lpve how you talk to them love and big huge hug Maggie 💜

Today I was working in the office, which our company makes us do for reasons beyond me (I do basically data entry. I could do it on the moon). I threw up 4 times and went home at 12:30... Thanks body! I didn't want to work today anyway. I'm glad you're feeling better both physically and mentally, thats so great!! TIL phenergan is one of those medications for you guys. It's an otc antihistamine here (Australia) and I take it daily (thanks body. I didn't want go outside anyway). Do you have easy-able access to maxolon? That is my go to my body doesn't want to keep anything down tablet and has no judgement from the not my primary doctors. That blue pepper looks so cool!! I love it!

I'm sure you're an awesome person anyway but your love for your fur babies just makes you shine 🥰💚 I cannot afford to have a puppy or a kitty because I couldn't afford the vet if something went wrong so I just love them from a distance lol. Hope you can smoosh yours for me!! 😁🥰💚

It was nice to see Zak for a bit. Glad to hear that you were able to start feeling better.

Hi Maggie, that nausea is absolutely horrendous, kudos for you pushing through it. Thank you so much for sharing with us. Have a blessed day. 🌷 🌷 🌷 🌷 🌷 🌷 🌷 🌷 🌷 🌷 Hugs to You, Zak and the furbabies.

I get that! Yes, I do. My irritable bowel makes me SICK! I always have Zofran with me but just throwing up isn't always enough. It lasted 17 hours last time and I could not move, eat or drink, even think about anything when I was like that. I feel for you Maggie. Very long lasting nausea puts me into a panic attack. Awful. Cut off my leg. Anything, just not long lasting nausea.

I'm glad to hear you're ok. I was worried too. I hope your Dad's operation goes well.

Sorry to hear your day was a bit rough Maggie. 🙁 I too have Crohn's and an ileo, and still get occasional nausea. I am always anemic and last time they checked I was severely low on iron, I got 2 iron infusions because the oral iron supplement made me SUPER nauseous... BUT, I wanted to tell you to try an over the counter iron supplement called Feosol Complete. It came recommended to me by other patients that had a difficult time taking iron and IT WORKS! They are 28mg pills and I can take 3 a time (even on empty stomach) and I don't get a lick of nausea! Please give it a try if you haven't already, it works well for many people. I get mine at Walgreens, but you can find it almost anywhere, Walmart, CVS, Amazon, etc. You've given me such great advice for the last 3 years (I'm 3yrs post op) I just wanted to give a little back to you if I could! 😊 Thanks for all you do for the IBD community Maggie, we love you! 💜

Nausea. Story of my life with IBD. I've been on a double dose of Zofran, 3x/day for 25 years now. Every time I try to go without it, or skip a dose, I'm suddenly reminded that I need it! Sorry that you deal with this too, Maggie. ❤️

When I'm nauseous (but not on the verge of vomiting) smiling can actually help. My amazing husband actually found that little tidbit of advice for me. Apparently smiling helps to suppress the gag reflex and it does work sometimes. I get nausea that comes out of absolutely nowhere where I get a really flushed and my mouth starts to water. Smiling helps until the Zofran can kick in.

Nothing more embarrassing than throwing up on the table in the restaurant before I could make it to restroom to throw up again. Sometimes it can’t be avoided.

I have horrible nausea sometimes too. I use gravol a lot. I also drink ginger ale with a lot of ice in the glass. That seems to help. With my crohns the nausea can be quite debilitating.

I had a surgery nurse tell me to sniff a alcohol wipe and sometimes that helps with nausea.

I also make otherworldly barf sounds! Gotta have those bags on hand. Dog poop bags have saved me once or twice, lol. Feel better!!!

Love seeing a glimpse of Zak barely see him

Like that u have Dixie to keep u company

I have emetophobia and nausea for me is terrifying. With my bowel problems I feel sick often, and I'm not gonna lie, it makes me suicidal. If I get nausea any more frequently than I currently do I don't know how I can carry on living. Sounds dramatic but I'd rather lose a limb than vomit. Currently watching this feeling so proud of you Maggie, you really inspire me x

Ask them for it. The worst they can say is no. And I say that as someone with a GI issue that needs that medication

I'm from UK and had 3 surgeries and once a bag which was reversed 10 years ago since then I have refused medication now only managing with diet and I'm struggling to maintain my weight, wish you good luck

I went in my Kroger in Texas today and they had a sign saying they would no longer sell drugs with a combination of Promathezine/Phenergan and Codeine. I guess there is a cough medicine. This may not help but when I had Cancer, I took Meclizine for nausea. One Dramamine has Meclizine, the other doesn't but my doctor gave me a prescription. It really helped and I still take it even though I don't have Cancer. Also, I took Levsin for my stomach----and still do. My stomach has bothered me my whole life.

I remember as a kid, I loathed throwing up so bad (not that anyone enjoys it) that I'd fight it & fight it to the point that when I did finally throw up, I'd be so exhausted that I had to lay down & sleep for a bit. Thankfully, now as an adult, if I feel the need to barf, I just get it over with & puke & carry on! Hope you feel better.

Feel better soon Maggie. Hi Zak!

The most embarrassing moment was when I threw up in my local pharmacy picking up my anti anxiety meds. I ended up going to the ER with a bad kidney infection. They thought I had kidney stones. I have GI issues and it is annoying.

When my acid reflux made me nauseous all the time, and I was afraid to actually eat, gum was a lifesaver. Usually spearmint, so it wasn't super intense, but definitely worked wonders.

Maggie how about IV iron??? I hope you feel better soon!!! Can't wait till you go live!!!

When I'm get sick in the car, the best thing to do is take the wheel.

I have had no problem with getting these meds. I would ask. Like you say if you don't think a doctor don't understand you or feel heard. Find a new one that you can have a good relationship with.

I had a nice weekend, say hi to Zak for me. Take care of you ! 🙂

Glad you didn’t throw up😻❤❤❤❤❤

I think nausea and abdominal cramping are the 2 worst things to deal with. Question for anyone; my new GI tested me for a few things and I've been diagnosed with excessive bile in my large intestine and SIBO. She prescribed cholestrymine (I only got a tiny swallow down and it upset my stomach), and an antibiotic that exacerbates heart conditions(I have 2 heart conditions, POTS, and was just diagnosed with SVT)and causes palpitations. I emailed the GI office to tell them I can't take those meds. What's an appropriate time frame to wait for a response before calling the office? There was also another script I won't take as it has a bad interaction with 1 of my meds plus I already have severe dry eyes and dry mouth (it's commonly used as a drying agent for excessive sweating, but can be used for abdominal pain).

I’ve had to take iron in the past and have gotten severe nausea from it. I’m wondering if you just take half a tablet for now and see if that helps.

Give you Dad a hug for me.

I don't understand wht trhey would think your drug seeking when you ask for pheneragain. My GI Doc and other Docs throughout my adult life have always given me Phenaragin,since Zofran does not work well except with codeine,which was totally unexpected. It's always on hand just in case. It helps with IBS flair pain too. I'm also a loud vomitor, (is that a word?) as is my brother,so I do get that.

Have you ever looked in to the properties and benefits of taking ground flax seeds for your gut issues and lots of other benefits .

Hi maggie, have you still been experimenting at all with helminth therapy? carnivore diet? Thanks.

Iron supplements made me so sick I had to stop taking them. I remember one night waking up thinking I was dying over it and had to beg my boyfriend to get me crackers while I laid on the bathroom floor because food seemed to help. I lied on my side, eating crackers next to the toilet while my cat balanced on my hip in a loaf. It was awful at the time but now I laugh at the scene lol

Lol I hate being in front of anybody if I throw up! I am a severe Celiac and if I get a speck..I throw up for two days! It’s a whole body, bang your head off the toilet heave! Long trips are the worst for regular nausea…you poor thing..you have had so many things going a wee bit haywire..to say the least! 😊

There such sweet hearts they love u Maggie

does Zac work from home to help you?? (I'm new.)

Hey Maggie, worried about ya ❤ it’s been a couple of weeks since we heard from you….you ok? Hopefully just a busy bee 🐝

I was missing you.

thanks for the update! i wanted to ask... very politely in case i missed it and its on another channel or platform...you mentioned in one video there is a big video about the barn situation...did that come up and i missed it or is it just not the right time at the moment?

hey dear waiting for ur video ....and also concern about you r u fine????

I have Dysautonomia and CRPS and other stuff as well but the nausea has hit me hard the last several weeks. Idk what happened or why but ugh

Was it nerves 🤔?

How do I go about asking for IV fluids? I have Gastroparesis and my GI system is slowing down even more. I am jejunal feeding tube (j-tube) dependent. I get all my calories(formula), meds, and fluids via my j-tube, I am lucky to get 1,000mLs of fluids in a day. I’m supposed to get 1,500-1,700mLs of fluids and that’s just not happening. I used to be able to sit down and pour water into my j-tube and function fine. Now if I flush more than 30mLs at a time I get nauseous, and pain in my jejunum. I was wondering about IV fluids a few times a day. I have a port as well, I don’t know if I could manage it at home as well

Nothing is worse than nausea. I don't understand why all these medications are approved by the FDA. I've yet to find anything that helps once the nausea rears its ugly head.

I would ask about the phernegain and just be like straight up that it took you 3 years to go through 30 pills and that you ONLY take it if you have to, and half a dose when zofran doesnt work. You have severe Crohns.

I am having troubles with my stomach, it makes everything I eat turn into something that smells like eggs and I end up throwing violently up and when it starts i keep throwing up every half hour, for up to 5 day and night constantly, and it's not possible to sleep at all really, due to crazy discomfort(like a horrible pain in my solar plexus) and it doesn't help when I throw up (often one gets a bit relieve but not in this case, i am often even worse in between throwing up,can only lay and say weird sounds), i am so sick I can't talk or crawl to my bathroom that is only a few meters away from my bedroom it's horrible Had it happen for decades and still not wiser on what it is, had them look in coloskopy and down the throat too, but no diagnosis It's soo frustrating I am also only 44 kg and many days without being able to eat or drink it goes quickly with loosing weight 😕when the trowing up stops, then diarrhea starts 🙄 My sister has Crohn's and stomi like you

I have gastroparesis and am so nauseous this moment. Zofran doesn’t work and I try to limit using phenegran for fear it’ll stop working if I use it too much. I so sick of being sick.

Your dogs know you have not felt good.☺️

Is this medication available in UK? anyone know

My dr is funny about zofran!

Love Dixie

It’s sad that we only talk about medical crap 💩 lol 😂 I know for me it’s true

Is Dixie as huge as she looks?

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