In 1958 at the age of 4 I was diagnosed with encephalitis and sent to the Hospital for Sick Kids (Toronto, Ontario Canada).I had contracted the red measles and it was believed that I had a severe allergic reaction and that resulted in encephalitis. At some point I was given a new drug (cortisone), which was used to stop the swelling of my brain. It worked!! Within 14 days I was ready to go home but not before 4 Doctors from around the world came to see me with their eyes. I bless my family doctor at the time (Dr. Irving Kirsh) for his quick diagnosis of me and later found out that encephalitis had been his thesis in grad school! Our paths were meant to cross.
Did your dr isolate the aspect of measles to cause what sounds like a type of anaphylaxis. More importantly, did you develop a type of sleeping sickness?
There was a sleeping sickness on a small village in Kazakhstan a few years ago where people would just suddenly fall asleep and sleep for days but they had other symptoms including dizzyness and nausea and it affected the majority of the villagers. It took a year to pin point the cause which turned out to be the fumes from a nearby disused uranium mine and the entire village was evacuated but some of them are still showing side effects
My grandma was born in 1914. I remember her talking about some sleeping sickness when I was a child however she believed it had to do with flies or mosquitoes transmitting it.
Makes sense . My issues started innige US at 18 after being bitten by a mosquito to which I reacted worse than normal. My entire lower leg was red, swollen and itchy. Our camp nurse didn’t have the time to have a look right away but when she did it was already like a normal mosquito bite. It was like my immunesystem overreacted or just reacted to something not normal. It we just a few days after that I could only continue my work (or be fired and needing to pay my own ticket back home to Europe) if I could sleep a few hours during the day and just early at night. I never recovered. I firmly believe there is a link between whatever the bite was and my Auden extreme need for sleep causing major issues during my two week travel. I slept for 36h when I came home but could have slept even more if I didn’t have to go to university the day I had to wake up. From 2016-2017 I slept 20-22h per day for a year despite being on Ritalin. I’m still have issues, but the Ritalin for sure can make a difference between sleeping or being awake a bit drowsy.
As a child I spent much of my time with my grandma (who was born in 1908) , as such, this meant I spent much of my time with the older generations. If mosquitoes were bad they'd tell you to go inside or cover yourself so you'd not get the "sleeping sickness". I'd say someone had a firm theory the virus was transmitted by mosquitoes.
mmm, my grandmother also born in 1908. her husband died from what was believed to be some kind of mosquito-born sleeping sickness. to this day my mum is quite anxious around mosquitos
Gramma had this before 1920. Her rememberance was she was ironing and felt tired. Lay down for a nap and woke a week later. Her family told her they fed her liquids and such while she was asleep.
I read "Awakenings" and realized that my grandfather may have had encephalitis. He suffered from Parkinson's for many years and then slipped into a state of rarely broken mutism.
Ophthalmologist here. There's no such thing as "muscular weakness of the optic nerves" (9:08). The optic nerves (cranial nerves #2) simply carry visual information gathered by the retina, into the visual cortex in the brain. Optic nerves don't have muscles. Now, the only other thing in the eyes that have muscles are the extraocular muscles, the ones that move the eye around, and they are inserted around the sclera, beneath the conjunctiva. Most of them have innervations from the oculomotor nerve (cranial nerve #3), except for two, which are the lateral rectus (cranial nerve #6, abduscens nerve), and the superior oblique (cranial nerve #4, trochlear nerve). These are the muscles that weaken with encephalitis lethargica.
I normally only read fiction books. Many people are saying that this book is really great. I’m interested in reading it but I’m worried that they may talk about different diagnoses and I won’t understand a lot of what they’re speaking of. Is an entertaining book from beginning to end? Is the vocabulary too far out to understand? It’s not like I’m illiterate or anything. I read adult fiction but this would be something that might interest me and I may like it.
@@765lbsquatHe did? I figured he was gay, having met him a few times in the Bronx. He had an adult male companion about whom he said nothing, just his name. I don’t remember it. Or he may have been a boy himself. He was sent to a boys’ boarding school during WWII when children whose parents could afford it were expected to make their own arrangements. The schoolmasters were not only cruelly abusive in every way, but most of them were pedos. A lot liked watching boys doing it together. He was away from his parents at key times in his development, so it kind of makes sense him being gay. I highly doubt, however, that he was a pedo as an adult.
My mom was afflicted by this when she was a girl, and it affected her for her entire life. She was unable to drive because she would fall asleep so easily. She could actually fall asleep while standing up. She missed an entire year of school because she could not stay awake in the classroom. They did not understand the illness then and I guess they still dont completely. I did not know its was a form of encephalitis.
Even into the 1970s as a kid, if someone was lethargic for any reason, "Sleeping Sickness" was mentioned even though no one really knew what they were talking about.
I contracted Mono in my mid twenties and uncharacteristically could sleep anywhere. I have a lot of PTSD and usually can't sleep around people or strange places. Can't sleep on 12 hour fights. But I got in trouble and questioned three times for sleeping suddenly and in public. My doctor was kind and said this could happen and be aware of where you are. I had no transportation so I walked to clinics, coffee shops. It was impossible to stop and sudden. I could feel it coming on and on a super busy street I chose to get off the sidewalk and sit on a couch on the veranda of a house where I had once lived instead of falling asleep on the bus stop. People would not be kind about it. It passed after about 3 months. Ironically at a mental health clinic I was threatened with arrest as with the cafe. I would completely black out. But it usually only took 15-30 minutes was I would look at my watch and note where I was. I wish Robin Williams brain had been saved for science since he had Lewy body dementia.
@@doeeyes2 damn. I gained 60 lbs over the first 5 months of 2016; when I slept up to 22h a day. All my docs ever said was not to eat as much as I did when I with the utmost difficulty still had my job as a pharmacy technician until that one day Feb 17 I just literally couldn’t keep my eye open. Sorry but I can barely get out of bed and you say I should not eat as much as usual saying essentially the weightgain was easily explained. Theater on they blamed it all on my diet because without proper diet of course I would be tired. Tired is an understatement, but only my psych therapist understood something was wrong and she made my GP refer me toch sleepspecialist. My own begging for it ended in “you have CFS diagnosed in 2012, so we know what it is. I’m not sending you there.” Luckily my therapist had leverage because she could tell my doc she needed to know to see if maybe the therapy was too heavy or if there was something wrong with my sleeping. The latter could make therapy harder burnet least then it wasn’t something that needed to be adjusted (in accordance with the psychiatrists who also said this did not fit with psychiatric issues; not even the depression.) My sleepspecialist knew I had mental help for it but luckily he also saw the sleep as a separate issue. Because I have been nagged about it all those years after until I told them the neurologist knew and also that they couldn’t say “but you use Ambien, so I am discontinueing the Ritalin. It makes no sense. “ I told her she could see the Ritalin and the diagnosis were from 2016, the Ambien from a year later where it was used when suddenly I had weeks of insomnia followed by weeks of sleeping till 6pm again so to try and keep it balanced we tried the Ambien to stay on track. She didn’t care. She only saw that it was contradictory to take Ambien and then Ritalin to stay awake the next day. No discussion with the neurologist who prescribed it, she (psych ward) had discussed it with the geriatric doctor (I was there for less stimuli) but that was the same doc he without even asking why I took antihistamine, just scratched it off the list saying it was an unnecessary drug. Just like my ibuprofen and motilium for occasional migraines. No questions why, just: scrap,unnecessary meds. So much ignorance I have encountered about this, it sucks big time. I always have to explain in hospitals and stuff why I use it especially with the use of sedatives. Or even when I’m hypomanic: it’s the Ritalin so let’s stop those. No let’s just not. Those do not cause my hypomanic breakdowns or else I would be like that every time I took it, which by far I am not. I remember my Sleeping Beauty date so well because they day before I had to put my cat to sleep. Him and I had a very deep, instant connection when we met at the shelter, the way he reacted to me was very out of character. Instead of “ok bye, thank you for the cuddles 😢”. He went completely into “no no wait what? Where are you goinggggg? 😱😱 I was just promised you would take me with you. You just said it but I also got my sign from my new friend over the rainbow bridge who lived with you for years and said she would send you to me because we’d be purrfect and I would get lots of cuddles and laptime! You can’t leave me here! *pressed nose against the glass and scratched it with all his might*. He straight up bolted into the carrier. At home no need to find a hiding spot or discover my home. I hadn’t fully sat myself and he already had jumped on my lap. But then he walks supergentle in his ways, he pressed his head against me with some force like he was thanking me and every day he would butt my neck left and right and climb back again from the sofa. His food was like gone onn3 seconds but he went back at least 5 times to lick it cleaner than clean. He also ate his kibble which he barely touched at the shelter and with a fast thyroid that “would be an issue”. Nah. Two days in he ate and ate and ate to the point to check my vet if that was ok with his kidneyproblems. It was. After he had settled down to a more balanced way of eating the kibble he did what the shelter said he probably just stopped doing and wouldn’t start because he just didn’t feel in good health. He started grooming himself again, which he had visually not done for a bit -yet his fur also visible got shinier the last two weeks of the 4 he sadly only ended up having left without knowing that, but I have no regrets about adopting him at all. I saw the change in him and knowing he passed lovingly while I was there and fell asleep on my lap as a safe haven instead of the cold streets or the shelter where he was still basically alone- My cat just changed from a depressed “is this my life forever? :( “ to “is this my life forever?? :D” It was almost as if him being put to sleep gave me those dormicum injections over and over too for that next year. Like that was the closest I could be to Mickey, almost sleeping the entire day for so long while still being somewhat alive. Well breathing I guess was basically all that was different from not being up there with him. But I lost cats before so I knew it wasn’t grief. It was just a strange thing to notice. Then again my entire encounter and weeks with Mickey were different anyway. ❤️ But I know in 2015 I also had issues already with weeks in my vacations of only sleeping and then working. The 3 days off a week helped just enough not to fall apart the other 4 days, as said right back up until Mickey my cat passed. It wasn’t grief, it was just…. Like I was getting constant sleepmeds stronger than your physical ability to stay awake no matter the willpower you put in. I guess my body just gave up being pushed over the limit all the time, all those years after the initial sleepattacks after the mosquitobite. They say I could have had mono, but that’s all the suspect it was back then. Not why it would last. Oh right, being overweight. However when I lost the weight I still seemed to get worse and worse. Then I collapsed and also gained the weight back I was at the onset of it all. Weird. This whole thing with me is weird. I feel people have more understanding of narcolepsy (not much perhaps but definitely more than what I have) than primary hypersomnia. My doc just says to start getting active when my body says to go sleep NOW. I have explained her time and again that doing that is not safe as I feel disoriented, walk like a drunk, can be lost in my own neighborhood, vomit from the sudden extreme exhaustion and have difficulty finding home and then when I’m home I crash and be gone in less than a minute. Only disability seems to get that thinnest work is just impossible. That is likely all the get but it’s better than “go against it and get active!” which may work if you get a bit tired from reading a book or computer and you could use fresh air. That I know too and adhere too. But I surely know when it’s too dangerous to go. Chances are I won’t be able to get to my floor because of my muscles giving out from the wandering. Then what? Or I lose my balance going up, which happened before and nearly went down head first backward. I guess I just have to accept that nobody, not even myself, really knows what’s going on. PH is just a term for the lack of a true diagnosis really. I don’t wish to have narcolepsy. I guess I just wish for now that people don’t view me weirdly when I need to explain what it even is and what it looks like for me.
Reading Priscilla M's comment made me think of a teacher I knew during 1969, kansas. I was only in second grade, and that teacher taught 6th grade. She was around age 60, not retired yet. My parents said she had sleeping sickness, dad said it had something to do with mosquitos. She was in the hospital for 2 months, but returned to teaching afterward, and seemed as normal as before her illness. She taught for 2 more years, and retired. Weird. I never knew of anyone else who had sleeping sickness since.
The histort of Parkinsons would be neat. I know you touched on it but a full length video would be dope. My Grandpa was diagnosed with it at 48 years old. Which apparently is young.
One day a guy decided to drink the gasoline left over from the meth manufacturing process that normally get thrown in the trash and energy drinks were born, they added some flavor: end of story
That quote is what made me dislike this video. They obviously don’t know anything about legitimate history and are just reciting the bullshit that we are taught from the victors’ version propaganda in schools and media. I’m not surprised in the least that the OP who condoned this is a 3 month old shiII/bot sock account.
The only time in my life that I could compare this to was during all of my pregnancies, I would literally run to the recliner, couch or bed. I could sleep for hours, it was bizarre. Thank Goodness my precious Grandmother was with me during that time to help with my other children. My anemia was so bad that she would struggle to wake me.
I have hypothyroidism and when my levels have been low I have been known to sleep for 15/24 hours. I've stayed in bed for days on end. This isn't what this videos about, but it's definitely a sleeping sickness imo. Get your thyroid checked folks!! X.
I have Hashimotos Thyroiditis and ever since I got put on meds the fatigue has been blackout level. I've blacked out at work during lunch and seriously thought I was gonna pass out so many times while working. I've even had to set an alarm because I was too exhausted to make it to my bathroom but I still needed to brush my teeth/wash my face. I've passed out in my dinner and almost fallen out of my chair and my dining set is bar height. The thyroid is so small yet such a huge twat lol
Funny kind of that nowadays there are “Long-Haulers” which are people who have had Covid and a lot them have serious chronic fatigue and brain fog. I know I only work and sleep these days after contracting Covid. Seems eerily similar after the Spanish Flu a hundred years ago.
Yes, its so strange, we had a family friend mention that her taste and sense of smell hadn't fully come back months after having covid. Another friend had lasting back pain. And A few weeks after getting covid my dad couldn't tolerate any kind of smoke, dust or he would have a coughing fit. Luckily his lungs are back to normal although covid seems to have worsened his immune system because he gets sick more often. Its so strange how it affects people, sometimes generally healthy people get it and pass away, and people with preexisting conditions return to normal.
@Lexis Hendrix - Very much understand what you are going through. Am 6 weeks post hospital discharge and still sleep a lot!! Today is a holiday for me and I awoke at 7:30AM, and was napping by 10AM. Re-awoke at 12:30PM and struggling to make myself clean and do chores. It’s crazy. Fell asleep even through re-run of a favorite show. Am I doomed to do this for life or does it get better?
In so many ways this epidemic was lost and overlooked because the flu. This was such a horrible virus. I have read so much about it. If I remember correctly there is still a victim alive but he's probably gone by now. The book Asleep by Molly Caldwell Crosby is a great read on the subject.
I had this when I was three years old in 1959! And I remember it so well. I would "come to" while in the hospital and see the people in my room (waiting for me to die!) But I couldn't speak. Thankfully I survived. So interesting. Glad I ran across this!
Just yesterday I saw a video about this on one of Simon Whistler's channels. You touched on many of the same points and brought up some points not in the video I saw yesterday. Again, your channel has done a great job. Suggestion: The social changes in America following WII, including, the dawn of Rock And Roll. My Mom, who grew up during WII, told me that her father did not like Elvis Presley. Mom started high school during the fifties. My Dad, who lived on the other side of town, was actually in a street gang. When he came to visit my Mom's brother, Dad had to take off his gang jacket, being that he was on rival turf.
I was diagnosed with Narcolepsy and Sleep Paralysis a long time ago which is why I decided to make a DNR as well as leaving my deceased body for donating anything worth having to help others . Experiencing Sleep Paralysis is ones worst nightmares because all senses are still working except for being able to move or open ones eyes or cry out . Thank heaven for my medication which prevents attacks and I have only had four over the past thirty years .
My mother's brother got sleeping sickness which is encephalitis, from the 1918 virus pandemic. He was roughly 12 years old then. he had that for the rest of his life,. he died at 31 .he was never able to get married and lead a normal life. he was his parents only son . I never knew my mother's parents.. this sleeping sickness did not happen only in New York, like the article said .it happened to my mother's brother in Wisconsin.
I would like to recommend a follow-up of the late 14th-century disease, "" or English Sweating Sickness. It is said people could wake up healthy and energetic and dead a few hours later.
@@90randomgames Thanks for that Megan must go back and have a look. After reading David Quammen's book I have been fascinated with diseases that disappear.
I had Mono a few years ago, I slept for nearly two weeks straight. I only woke up to eat/drink but still lost nearly 20 lbs. Couldnt believe how much I slept.
I did the same, but for me it was about 3 weeks. Weirdest thing to sleep so much!!! Only got up to use the bathroom and eat a little and that took SO MUCH ENERGY! I had to force myself to do that!
NY started to become very crowded and filthy in late 1800s because of the economic growth. Most residents were poor immigrants who had to live in dense apartment complexes with no plumbing . It was probably bacterial meningitis or some sort of prion epidemic, propagated by unhygienic environment.
@@Queen365 nope, not at all, idk how the billions of people who have suffered to death worldwide thanks to capitalism could ever be considered funny but you have a sick sense of humor 🤮🤮
Nah, if it were bacterial they would have been able to see and culture the bacteria. I'm sure that the poor hygiene did make the outbreak much worse, but bacteria are off the table. Also, the mengicoccal bacteria that typically cause bacteria tend to be a lot more aggressive, often spreading to the bloodstream and causing necrosis of the limbs, and sometimes cause a distinct purple rash as well. Prions I'm hesitant to consider, because some people did in fact survive, while prions are 100% fatal - at least as far as we know. That said, we still don't know much about them, so I won't deny the possibility that some hypothetical prionic disease might trigger a better immune response or something, allowing some patients to recover. As far as I know, the only prion that could potentially be spread by poor hygiene is CWD, which may spread via saliva and excrement; Mad Cow, Kuru, and (if I remember correctly) Scrappie all require either consumption of infected brain tissue, or eating something that came into contact with the infected tissue, and even at its worse I doubt there were many corpses just lying around everywhere in New York...
This was so interesting. I wonder if the disease is prion based, as these were more decently discovered as disease causing. And I also wonder how many cases are now diagnosed as depression and other mental illnesses.
The latter perhaps falsely so. It may cause depression which can then be seen as the cause to sleeping so much when in fact it started with sleeping and just not being able to lead any form of a normal life which for most sufferers is frightening and depressing as hell.
@@layna-heyhey prions can be spread through bodily fluids, so its possible it could have been spread through contaminated meat...ie mad cow disease, or from people who worked with ill animals. Prions are not as well understood as other modes of infections, so its possible.
@@aliencat11 The time between contraction and onset of symptoms is 1-3 weeks, awfully short for prion disease. Plus it has been shown to be caused by two varieties of the parasitic kinetoplastid Trypanosoma brucei
Aren't all things like this caused by a reaction to viral infection? Wonder if it's treatable with anti parasitics, like they work for African sleeping sickness
I not only watched awakenings I own the movie. Two superb actors performing at the top of their game, not to mention support from Julie Kavner, Anne Mira and many more that brought this medical story to the forefront of unsolved mysteries.
I had encephalitis as a 10 year old child in 1964, as a complication of measles. I was in a coma for a week, and when I woke up, my vision was changed. It looked like dusk, even in broad daylight. My whole vision was dimmed. It was like someone turned on a cosmic dimmer switch. I saw that darkness for 11 years, until it vanished the moment I crossed the boundary of the property of a monastery. The darkness I physically saw through for that 11 years fell away. I was a little bit afraid to leave the monastery property, for fear that darkness would come back over my vision...but it didn't. Glory be to God, I see fine now. I would so like to understand the mechanism of action whereby measles turns into encephalitis. I had no idea this was an outbreak in the 1920's. Thanks for bringing that to light.
I know that this disease is terrible, I wish there was a 'non-damaging' version for those of us who don't sleep well and are permanently exhausted, sleeping for a week straight sounds heavenly... how sad :( or my company could just give me a regular amount of vacation days so that I can try to rest
I had Asian flu and bird flu? Was that what it was called?, back in early 60s, but have not had a ‘real’ flu since. Instead, when others around me have fever, vomiting, diarrhea etc I just go to sleep for 3-5 days. My family could wake me for fluids and bathroom breaks but I would just go back to sleep. No pain so it was just rather heavenly to be allowed to sleep. Have you been tested for sleep apnea?
Simon and you are low key collaborating unofficially 😂 this is the second video that you both post about the same topic almost simultaneously. I love it!
@@cjtherou4427 which one? He has like 8... Today I found out, too tenz, biographics, geographics, megaprojects, side projects, into the shadows, the casual criminalist, and brain blaze. I think there might be another new one not sure.
@@cjtherou4427 he has a great many, I mostly watch Today I Found Out. But this is his video ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-nJTB_6qfqrk.html He's a good egg.
My initial thought, as well! Everybody who reads this: just a few more months in masks. We just have to get through the winter. Does this one mention the movie 'Awakenings'? Simon's didn't...
I wonder what dopamine has to do with paralysis. I saw a documentary recently about a set of boys in rural Pakistan that would become completely paralyzed when the sun set. It was a genetic issue. The family’s previous babies has died because of it. When the family was able to get the children to an advanced hospital a neurologist gave them some type of medication with dopamine. They were able to move at night with that medication. I wonder if it was a derivative of L-dopa and if this means the boys will experience Parkinson’s disease later on in life.
Very interesting. I wonder if anyone has sat there and really tried to line up every similarity between a good number of people who went through the sleeping sickness (from birth all the through to their present day). Like that outbreak of Legionnaires' disease in Philly, where it was narrowed down to everyone who had spent time at the same hotel, I think.
Just out of curiosity, how many videos has Weird History uploaded? I'm not complaining, but I've been working on them for a while and there's still a pile I haven't watched. It's great though, because they fill time that I can't fill otherwise, like when I was in the hospital with nothing to do. Thanks for being there for me, Weird History!
It's help me understand one of my uncles who was in a state hospital for 17 years. They always said he slept and never was the same. He died when I was 2 years old .
I have narcolepsy and this is 100% how I feel. That woman saying it was heavenly to sleep all the time, but it’s physically impossible to stop. However narcolepsy isn’t contagious so idk what it could be. However no ones really uncovered WHY we get narcoleptic. Maybe it can be contagious??? 🤔
I have it too. Don't drive and sometimes I fall asleep during classes at university. I always explain and apologize. I often feel they don't believe me 🙁
I have a related condition called primary hypersomnia. They say that you can benefit from a 20Minute nap and be ok for at least a few hours again, whereas “we” would never have enough. I have had naps of 5 hours and still was like “wait why did I wake up after 10seconds, I just need to sleeeeeep.” Yet we have the ability to postpone if needed, as next to impossible it sometimes can be. I have attacks where I literally need my bed right then and there and I fall asleep immediately. This can happen even 1,5h after having slept for 9 h and my Ritalin also 1,5h and suddenly it is like something snaps in my head and I walk like a drunk, have to hold on to everything and I slept through strangers needing to do some odd job and walking in And out of my home and also very heavy concrete drilling. Normally I could never. Either the strangers or the drilling or both but I was just knocked out fully for 3 hours. I doubt even a depression-driven sleep could make me go through that.
I have narcolepsy, was diagnosed when I was a teenager (20+ years ago now) and it’s not contagious (medically speaking) but it’s super annoying how many people think that we must be so lucky to get so much sleep. It doesn’t matter how much sleep we get, we’re always tired and our bodies never really feel rested. The only time I wake up feeling good is after a nap.
I actually suffer from narcolepsy, a very similar disorder to encephalitis lethargic, and the two are actually extremely similar and studies from each have helped benefit the other. Unfortunately the true cause of both of them is still not 100% known, although researchers of narcolepsy believe they are very close to finding the true cause of the widely unknown disorder
imagine the plague who make you sleepy.. just sleepy without pain... and passed away in sleep without worying about anything and with good dream about the past...
60 odd years ago people in the small town I lived in (rural Midwest) stayed indoors throughout one summer fearing sleeping sickness born by mosquitoes. I wonder if that drove statewide insect spraying programs. No one got ill by the way.
From my experiences with hypersomnia it is. Suddenly one day no matter how hard I tried, I could not remain awake to go to work. I do still have those days and the feeling of being unable to stay awake is still scaring to me. I accept I have days of 30-36h with nothing but sleep (I may just be in time to empty my nightbag because I have a urostomy and therefore won’t wake up to pee.
Nice soundtrack and extremely appropriate (Mozart's Requiem). Also very interesting video. My father was a general practitioner and I remember telling me about this when I was around 10. I believe the disease is transmitted via the tsetse fly and possibly hprse fly (the latter would explain the outbreak in the IS. The bit about Hitler's Parkinson's being an aftereffect of sleeping sickness does make sense and is an intriguing hypothesis.
Growing up I generally slept about 8 hours a day and never experienced any sleepiness during the day. From kindergarten unable to sleep at "nap time" to 19 I couldn't nap, it wasn't in me. I never got drowsy. Then I joined the Navy. Starting with only getting 4 -5 hours sleep (often broken up mid-way for a 2 hour watch) each night in boot camp. Then going to a tech school getting 6 hours at most for 1 1/2 years, then going to sea where you could go 2 days without sleep, where I got random periods of sleep at rotating times, never amounting to more than 6 hours on any given day. After that I was always drowsy. I could sleep anywhere at any time if all I had was a chair. My work even past the Navy kept ramping it up with even crazier schedules and the side-effects kept getting worse. I am permanently broken from bad sleep schedules. It's not like the sleeping disease, but it sucks on its own. I'm so messed up now I could sleep for 18 hours and wake up tired. Or try to sleep 8 hours and can't go past 6. I normally go 4-6 hours of sleep at night and fall asleep at random times during the day. If I sit down I start getting drowsy. I tried doing Lyft and Uber for 2 1/2 years, that helped continue screwing up my sleep as the best times to drive are late at night or very early in the morning, hours of quiet, sitting in a car. I used to fall asleep while driving home all the time. Sometimes I'd wake up in random places. Tiredness can be a real bastard. It feels harmless but when it starts taking control, it can fuck you up. It's necessary, but something at best we manage and submit to every day. Imagine if breathing were like that. If your body could overrule you and decide whether or not you're going to breath. Something mundane becomes nightmarish pretty quickly.
You may need vitamin B12...re fatigue Check out your vits and minerals levels for deficiency. Also, thyroid function. My friend was in poor health. Rested. B12 deficiency. Injections over a few weeks. Looked and felt like a new woman within a few days of first dose.
Have you ever had your thyroid checked? I have hypothyroidism and the similarity between our experiences is uncanny. I'd thought it was just fatigue from a really horrible 5 year period I had in my life, which was probably true, but I later found out my symptoms were also exacerbated by low thyroid
How weird. I’m suffering from a mysterious sleeping sickness right now. For more than a year, I’ve slept 12-14 hours almost every day. I feel exhausted all the time. I’ve had dozens and dozens of blood tests and physical exams. Nothing shows up. The doctor is calling it "chronic fatigue," but only because he can’t come up with a more specific diagnosis. I get to take pills to wake me up and keep me alert for a few hours. I’m not thrilled to hear about Parkinson’s and worse diseases that followed to 1920 outbreak...
Ever heard of "Myalgic ENCEPHALOMYALITIS"??? No? Ever heard of "Chronic Fatigue Syndrome"? It's the same thing. Cept these days, people with ME are just brushed off and disbelieved by doctors and most people. I got glandular fever when I was 15, and (after countless amounts of chronic trauma) was diagnosed with ME when I was 20. I should mention, I also got diagnosed with Endometriosis when I was 15 and I definitely believe there's a link there. Now days, I have a whole bundle of diagnosis, from Lupus, Fibromyalgia, PCOS, Hypothyroidism, Arthritis and MORE! Lol. But funny how viral infections plus extreme trauma (that the human brain simply cannot handle) results in myalgia and immune issues and often chronic pain as well. Most people with some type of chronic pain have PTSD or some type of trauma as well. It's very complex, but even an average person can see the pattern there. WWI and II were extremely stressful times plus viruses rampant. Extreme trauma and poverty, your life and the lives of your loved ones were at risk every day. Don't be surprised if we see some type of encephalitis epidemic emerge during and after this COVID pandemic just a heads up
I am almost the same as you! It was viral meningitis that started my ME! I don’t think people understand at all how debilitating it is! Funnily enough I also have severe endometriosis! I really wish people wouldn’t just think we are lazy or stay up too late! I once had a flare for 2 months where I couldn’t even walk to my bathroom!
This made me think of Physics Girl, Dianna Cowern. She’s had to endure a long, very sleepy season apparently due to Long Covid. Doctors are seeing Long Covid patients who suffer tremendous weights of fatigue, the kind of tiredness that makes a person nearly/fully motionless. Perhaps it’s purely coincidental that the sleeping sickness happened in the 1920’s, just after the events and losses experienced through the 1918 Spanish Flu. My brain automatically looks for patterns in things, this is an observation from the peanut gallery, nothing more. It would be so incredible if we could bear witness to awakenings. The phrase that spoke about ‘opening up your eyes and realizing you’re alive’ is a powerful illustration. Well done, God bless. 😊
I've heard it theorized that Parkinson's may not be a disease at all, but exposure to a particular chemical toxin. I wonder if that was was the case here 🤔
Can you do one on the Kissing Disease, (mononucleosis)? (There was an outbreak in Puerto Rico in 1990.) My husband got it (and a form of hepatitis) when he fell into the Reedy River here in SC. NO ONE GO IN THAT RIVER STOP LETTING YOUR KIDS PLAY IN IT IT’S WATER RUNOFF FROM THE STREET.
I always wondered if you can get mono from other than kissing. I feel like I have it now. Have to drag myself out of bed and then just want to go right back.
@@pandorapinebox7817 yes, you can get it from sharing utensils, food from the same plate, straws and drinks. I’ve had it since a child and I’m one of the unlucky ones to have chronic EBV. Basically, I’m always tired and sickly because my body can’t fully get rid of the Epstein virus (mono). You should go to a doctor and ask them to run some ebv antigen tests.
It wasn't Parkinso, it was dystonia due to damage in the brain which handles movement and balance due to the swelling. It can be from a virus or bacteria. It's hard to diagnose by Dr's.
When I was 2 or 3 years old, I slept for like a week; they couldn't wake me up at all until one day, I randomly woke up on my own and asked my mother to drink some milk as if nothing had happened. Parents were told by doctors that it was "the sleeping sickness", although I don't seem to have any of the symptoms mentioned in the video (yet) so that really makes me wonder if that was the case.
I would like to know more about Guillian Berre Syndrome. Why is it connected to the flu and COVID vaccines even though there is no known cause. How can these vaccine companies claim people have full recovery when I watched my Dad fight the affects for over 30 years. My Dad was one of the lucky few who survived it from 1988-2021.
interesting.... I came across a research article that thinks there may be a link between a portion of people with MS having had a viral infection in their teens. (specifically in adolescence. They didn't seem to find anything.. or enough cases.. to suggest younger ages lead to having the disease).
But some young people today, get Parkinson's so? Maybe this is just natures way of thinning out the population, cure one disease and a new one pops up.
My father and uncle were born in the 20's, fought in WWII, and both died of Parkinsons. Another acquaintance who was born in late 20's died from Parkinsons about 7 years ago. Don't know if they had sleeping sickness as children, but quite a coincidence for that generation.
This is an enigma wrapped up in a mystery it must have confounded the medical staff of the day and even to this day still baffles them it must have been a shock and very hard to adjust to going to sleep in the nineteen twenties and waking up in the sixties so much in the world had changed in those fourty years they even missed the great depression and world war two thanks for the video you never stop finding out something new do you!