Why Chronic Illness Grief is Complicated

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I believe, chronic illness grief to be one of the most unacknowledged and underappreciated forms of grief. It often tends to be classified as complicated grief because of the many various and diverse ways that we experience loss in a cyclical fashion.

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28 сен 2024

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Комментарии : 24

@anneturner8439 3 месяца назад

💯 A person breaks their arm, oh everyone sympathizes… have Chronic Intractable Pain.. they run for this hills 💔😭 Thanks for explaining & understanding. I’ve lost everything I loved to do, things I need to do. Ppl just can’t comprehend pain 24/7.

@ayemiksenoj5254 2 месяца назад

This is me. This is my life. This made me tear up. I was born disabled and have suffered through chronic trauma. My disability is invisible and I don't show pain in the "normal" way(s). I was never really believed by people in or outside of the medical community. I've never had a real support system and am left to do most things on my own. It's so frustrating and sad. People don't really want to help, don't really want me to tell them how. They just throw platitudes and conventional wisdom at me. I'm doing as much as I can. I've lost so much. I've had to give up so much. I struggle with passive SI because of everything. I've accepted it's just part of my life and grieve for myself, by myself. There needs to be more channels like yours that talk about things like this and have more views.

@susanbrush758 Месяц назад

Very well articulated. It's so Sad that humans lack proper empathy & compassion. We are now living in a time like no other with an explosion of chronic illnesses without a cure. Soon healthy ones will not be the norm. We have a hidden Chronic Lyme Epidemic soon to become a Pandemic, 22 million Americans with Long Covid, Chronic Fatigue Syndrome, explosion of autoimmune diseases. I CANT HELP MYSELF to go here BUT HERE GOES....RFK Jr has this chronic Illness on his radar to tackle. Sending you all love, strength and light. ❤

@ayemiksenoj5254 Месяц назад

@@susanbrush758, thank you very much for your response and kind words. I agree with you about health. I've been watching how many people now have mental illness or cognitive disorders. I can't help but think about how lack of proper nutrition and connection(s) is slowly erasing us. Yet... most of us are too stubborn(perhaps ignorant and/or deceived) to recognize we need each other now more than ever. Balance & Blessings to you. ❤️

@bobbybero7452 Месяц назад

@@ayemiksenoj5254 If I were in person I would help you out. You deserve to be heard and cared for.

@ayemiksenoj5254 Месяц назад

@@bobbybero7452, I believe that's the sweetest thing anyone has said to me on social media/internet platform (like this). I honestly don't know how to respond without sounding perhaps weird because we aren't in person... Saying thank you is obvious, but beyond that.. I wish I knew what the right thing to do is... I'd like to know more about you, but it's not just so you can help me. If you're interested let me know. I met one of my best friends online, but they live hundreds of miles away. I don't have much of a presence on social media. If you find it odd or don't respond I won't take it personally. I know how awkward this kind of thing can be. Either way, Balance & Blessings to you. ❤️

@ayemiksenoj5254 Месяц назад

@@bobbybero7452, that's probably the sweetest thing anyone has said to me on social media/internet platform. I honestly don't know how to respond. Thank you is obvious, but I'd like to know what made you say something like that. What kind of person you are without making it weird or awkward because we're not in person. I actually met one of my best friends online, but they live hundreds of miles away and it was years ago. Nowadays, things seem more difficult and you never know if it's safe to put yourself out there online. But, if you're interested in talking more just let me know. If not, I understand. If you decide not to respond I understand and won't take it personally. Either way, Balance & Blessings to you. ❤️

@deebee7605 Месяц назад

This rings so true for me. It is complicated and it is hard to grieve because you're trying to deal with your symptoms while trying to function and do the things you need to do. I have shared this with my family. I know I have their support but I'm not sure they fully understand the complexity of living with this.

@sandraklatt7610 Месяц назад

I so relate to this. And my life changed in an instance. It’s going on 12 years.

@danielstamegna2391 3 месяца назад

Your channel is a gem. You are a gem. Thank you 🙏

@anitamills9569 Месяц назад

Thank you so much for your video. I can relate very much ❤

@victoriawhite3662 2 месяца назад

Relationships always require some kind of participation, I never know if I can even have a short conversation by the late afternoon 😢

@josieramirez9483 2 месяца назад

Waoooo exactly all that I greiving.

@bobbybero7452 4 месяца назад

Would I do better seeing a grief counselor over a Chronic Illness Therapist?

@susanbrush758 Месяц назад

I'm considering it as it seems to be a significant part of the healing journey. Especially because chronic illness leaves us all isolated physically, mentally, emotionally. There are counselors/therapists who specialize in chronic illness. Best wishes.

@bobbybero7452 Месяц назад

@@susanbrush758 Thanks for the comment. 😃 It has been helpful knowing that I am not alone in terms of isolation. I have been in therapy for 3 months with a chronic illness therapist and I’m dropping my therapist next week. It has only made me feel worse about my predicament. My therapy experience has made me apprehensive if not outright against going to therapy altogether. The best thing I can do for myself is rough it out until I am well enough to work and take it from there. Hope everything goes well with you 😃

@susanbrush758 Месяц назад

@bobbybero7452 I hear you. Therapy made things worse for me half my life ago 😆 go figure. I can see merit in waiting to take the healing of the emotional illness journey last after cure or improvement in the physical. I Agree it's just too much.

@bobbybero7452 Месяц назад

@@susanbrush758⁠Thank you for sharing your therapeutic experience. I am sorry you had to go through that. I no longer feel alone in my bad therapy experience 😃. Most people do not understand chronic illness even a lot of therapists. It is a great idea to take time to heal. That’s what I’ll be doing upon improvement. Wishing you the best. 😃

@ImagineLifeTherapy Месяц назад

@@bobbybero7452 it could be if that’s the primary concern you’re coming to therapy with. Chronic illness specializing therapists aren’t plentiful so in lieu of that grief therapists and trauma specialists can be helpful. I usually advise to let the grief and/ or trauma therapist to look up the ‘enduring somatic threat’ model of trauma (which I feel overlaps with how we experience grief as well)

@susanbrush758 Месяц назад

Excellent Video & thank you Very well articulated. It's so Sad that humans lack proper empathy & compassion. We are now living in a time like no other with an explosion of chronic illnesses without a cure. Soon healthy ones will not be the norm. We have a hidden Chronic Lyme Epidemic soon to become a Pandemic, 22 million Americans with Long Covid, Chronic Fatigue Syndrome, explosion of autoimmune diseases. I CANT HELP MYSELF to go here BUT HERE GOES....RFK Jr has this chronic Illness on his radar to tackle. Sending you all love, strength and light. ❤

@brendamagallanes5959 2 месяца назад

My body, my face.. I don't know if it's possible for me to get rid of the "Cushing's " appearance. I don't know if I can ever feel cute/attractive again. I'd like to not look pregnant....Noone understands proximal myopathy. At least Noone I know in person.. It's invisible and to tell about it just will sound like complaining