Shane is stopping his treatments of Spinraza and beginning a new oral treatment called Risdiplam! We share the frustrating process of the last few months, and explain how this new treatment became a reality for Shane.
Hannah and I absolutely love making videos for you. If you would like to support our work so that we can continue sharing our life and relationship with you for years to come, you can do so on our Patreon: / squirmyandgrubs
Thank you to our Advocacy Partners on Patreon:
Dillon C.
Juli M.
Roger B.
Antonio M.
Jeffrey M.
MORE INFO ABOUT US AND OUR CHANNEL:
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Shane: / shaneburcaw
Hannah: / hannahayl
Chloe: / chloesayspetme
Our address:
Squirmy and Grubs
PO Box 16411
Minneapolis, MN 55416
GRAB A COPY of Shane’s latest memoir, STRANGERS ASSUME MY GIRLFRIEND IS MY NURSE, featuring many never-before-told stories about Shane and Hannah’s relationship, right here: us.macmillan.com/books/978162...
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Intro animation made by Pinkietoons! Check out her Instagram page to see more of her awesome work: / pinkietoons
Shane was born with a neuromuscular disease called Spinal Muscular Atrophy that requires him to use an electric wheelchair. He is the author of several award-winning books, the President of a nonprofit organization called Laughing At My Nightmare, and a renowned public speaker who has performed across the country at places such as Harvard University, The University of Florida, The University of Connecticut, Princeton University, and many more.
Hannah just graduated from Carleton College, where she studied Sociology and Anthropology. Her future aspirations include attending graduate school and owning a goat sanctuary. She films and edits the “Squirmy and Grubs” vlog.
Shane and Hannah have been dating for 4+ years and living together in Minneapolis for 2 years. On June 15th, 2019 they got engaged!!!! Their interabled relationship often confuses people, because much of society still cannot fathom people with disabilities being involved in loving, intimate relationships. Anyone who watches these episodes will quickly see their relationship is just as “normal” as any other. Sure, Hannah helps Shane use the bathroom and brush his teeth, but those activities do not detract from the emotional, intellectual, and physical connection they experience together.
13 июн 2020
