Bloody EXCELLENT video Ian!! My wife and I have just watched it on our TV! Thoroughly enjoyed every minute and watched to the end (as always). In fact Teresa says she gives it 10 out of 10. Super informative about Tec, and I’m so happy that Tec is suiting you really well. Isn’t it Amazing what suppressing the immune system does, I don’t think it’s a coincidence that your headaches have vanished and pain has overall improved. Thumbs up 👍 from us. I hope you don’t mind but I’m going to share your video on my RU-vid Community.
@Neil Bradley Thanks alot for your kind words mate. You always say the nicest things and I definitely don't mind you sharing it. Everything has been against me with this video and even to the point where on the day I couldn't use my Canon to film because of the rain. Luckily I took my GoPro so I don't mind that getting wet. Even putting the drone up was risky as it was wet and very windy but that location was chosen for the drone footage so it had to be done. Thanks alot Neil and Teresa and I look forward to your next video 😃
Great video! Would be great if they made polls like this with 100s / 1000s of users :) would definitely help with the decision making process - I was diagnosed last week and want to now take Tecfidera as well :)
I'm starting Tecfidera Saturday, after endless research. I'm sick of needles, and i'm so happy to be starting this medication. Update: I've recently transitioned to the 240 dosage and was doing great. Then just today, I was hit with some common symptoms, sore throat and stomach problems. Not unbearable but rather uncomfortable. UPDATE: I had to stop Tecfidera and switched to Ocrevus. It wasn't strong enough for me. It did good for me at the start, but it wasnt the one for me, in the end.
@Cha Cha Real Smooth, I was injecting for 11 years. It is so refreshing to have the tablet. I have some side effects but honestly it is so better than the constant grind of injecting. This has really improved my life and I hope it does for you.
@@0307EveI'm doing great! Ever since starting, I haven't had a relapse. The the symptoms aren't as frequent but still happen, but it's doing good for me.
@@chacharealsmooth8004 Hey Cha Cha I was diagnosed last week (Found multiple spine/brain lesions) and I am wanting to also try Tecfidera - still doing well on Tec? Wish you all the best :)
@@__Wanderer yes I am! It was the best decision i'd made, personally. It is rocky at first, and you'll feel sick for a bit. I'm still left with flushing from time to time, but just remember to eat something with it to keep that side effect at bay. It does a much better job at keeping me stable and relapse free than Copaxone did. I would definitely give it a shot! I wish you luck with MS and hope that if you try tecfidera, that it works out for you.
Hello Ian, I am Peter from Holland. After seeing your video i decided to start with tecfidera. I was diagnosed August last year but probably had ms since 2007. I didn't want to take drugs because i doubt If i have rrms. I was more thinking spms. But after a second opinion that had the same outcome I give it a chance. I am in the first week and had one flush. No further side effects untill now! Thanks for your video, it really made a difference for me. Cheers, Peter.
Hey Peter, nice to meet you! Thank you for such a lovely message. I do make these videos hoping that they will help others in some way. I'm glad to hear that you are getting on well with Tec. I found that every week was different until about 4 months so just enjoy the ride for now. Now I have found that a lot of the side effects have settled and I'm really used to them. I feel so much better now than I have for years and I hope that you can see this for yourself too. Also im really happy to see that my reach has stretched all the way to Holland 😏 please feel free to share anything you like and hope we can speak again soon.
Hello Ian, how are you? I want to give an update about my tec expierience. After 7 weeks still no side effects. I had a few flushes but nothing else. I feel exactly the same as before. Nothing better and nothing worse. Maybe a bit more muscle pain sometimes. We all have to stay in the house as much as possible due to covid-19 so i don't ride my bike as much as I want. Maybe that's the reason for my muscle pain. Who knows. I hope you're allright! Stay healthy, cheers Peter from the Netherlands
@@theSeekerguy hi Andreas, I'm still taking tecfidera and I'm doing alright. Only a light flushing once in a while. No disease progression. I try to stay as fit as possible. I walk at least 12 km every day to keep fit. I'm not free of symptoms but it could be much worse. How are you doing?
@@peterjansen3056 Hello Peter , thanks for your reply, i appreciate it a lot. I am diagnosed 3-4 years now but i am mot taking any meds, the reason is first the side effects and secondary i doubt there efficancy. Despite that i am in general ok, but i have periodically some attacks related to vision , some times directly on optic nevrve and others nearby. Thats why i started thinnking of this drug. My main syptom was extreme fatique and brain fog. These almost gone with anti histamine drugs, i have problem with histamine and if you know gut is the immune , gut is the brain. Weight lifting, 90 percent on varnivore diet and wim hof method, you could try those to see if you can improve your current status
Hi there!! Just found you and am very happy I did, I cannot tolerate this med, dizziness, vomiting, rashes, itching, beautiful scenery by the way!! Ireland? My name is Bree, I'm from the United States. Message back if you ever need to talk or vent, God's Bless 😇❣️🙏
@The End Of Me thanks for the comment!! Nice to meet you Bree and it's a shame you didn't get on with Tec, it has completely changed my life. What treatment do you use now?? Thanks again and if you ever need to talk I'm here too 😁🧡
Thanks for this video! Hope you’re doing well. My mom is struggling with a sudden sore throat 3 days after starting Tecfidera. Do you have any tips that can help her?
@Lisa Baily Heidt 🧡 Thanks for this 🧡 its comments like this that make it really worth me making these videos. If i can help one person with each video then that will be all I could ever wish for. 🧡🧡
Thanks so much for the video. I was on copaxone for 6 years and everything was perfect I was doing very well until I had a very bad reaction to the drug and couldn't take it anymore stoped in July 2021 and recently been prescribed tecfidera but I'm so scared to take it because of the side effects im still working full time doing well l, have two small children but for last few days I'm not feeling my best so I think is time to go to the chemist and start the medication 😔
I have flushing head to toe, nausea (which has lessened as time goes and depending on food), itching, hair loss, skin in mouth and tongue peeled off. I do however think it is better than taking a needle everyday. 💗
@Lisa Baily Heidt it sounds like you have been dealt a full house when it comes to side effects!! Where were you when i did my survey for the video hey, tongue peeling is a new one for me. The good thing is it sounds like you have plenty of good spirit and that is something I like to think I am bursting with and that gets me over most things that are thrown my way. I had the joy of needles for 11 years and since moving to this big blue capsule I've never looked back. It sounds like it has had the same effect on you too. Out of interest how long where you using needles and how long you been taking Tec?? Hope to speak soon 🧡🧡
@@MyMSstory I was diagnosed in 2017 and I started Copaxone injections in 2018. I started having severe injection site necrosis where I would take needles. Even as I rotated sites and followed protocol.I definitely think a positive attitude helps with dealing with any set backs. I have been on Tecfidera for under a year but I too have less headaches taking this medication. I still do have the migraines but not as bad. So that's good in my book ha ha. Look forward to keeping in touch. ❤❤
