I also got BWS.. Today I look like a normal teenager but when I was born I looked like the baby in the video. My Tounge is bigger than the normal and my one leg is bigger than the other. But that’s okay. I learned to live with it.
I have twins one has the syndrome I used to cry everyday after they where born had no support other than my husband's it was reli tough but we reli trying our level best to be there
Good day sir..im from Philippines, my pregnant wife was pregnant she done of ultrasoun and then we found out that our baby is suffering a macroglossia,frog eyes and omphalocoele inside her womb..can you please help us?thank you and GOD BLESS
my sister baby also born with this problem and we are from ethiopia. Now her baby is 5 years old without any treatment because of poverty. So any one can help us pls.....just for medication.
