Dr. Yatin Vyas, a hematologist/oncologist and scientist at UPMC Children's Hospital of Pittsburgh discusses his research published in the June 23, 2010, issue of journal, Science Translational Medicine.
hi I enjoyed your lecture about WAS, and just want to inform you that I've been living with it all my life, I am now 28 years old turning 29 and it's been very difficult to live with, I live a normal life, with a wife and 5 kids and it's very difficult to be a normal husband and father, I'm glad to see that this isn't just a little subject and see my blood disorder is all over the Internet and isn't taken lightly, I pray everyday that someone can find a cure for it even for the adults living with it. I understand that there's a some what cure or something only for little ones, just wish someone can help with the older people with WAS, thx you
This was an amazing breakdown. My son was diagnosed with WAS & had a cord blood transplant. It was a 5 out of 6 match. The stem cells grafted but he had acute graft vs host disease the remainder of his life. In a sense he traded one disease for the other & as a result he still suffered tremendously. His new immune system attacked all of his organs whilst dealing with side effects from over 13 medications he had to take daily. He was diagnosed in 2001 & passed away in 2006. They didn’t know nearly as much about WAS then as they knew in 2010.
