My message to all brave lupus patients: do not ignore regular heart checks! My beloved wife died 2 weeks ago in 44 years of age. I am in despair I feel horrible. I miss her unbelievably. Do not ignore Blood clots and heart murmurs. Take care and fight!
Years ago 35 I was diagnosed with lupus and fibromyalgia and now kidneys not much information in South Africa 🙏🧎♀️🌺🌺🌺God bless you for the work you do🧎♀️🧎♀️🇿🇦🇿🇦🇿🇦🇿🇦🇿🇦
I did have my daughter with lupus . How ever she did end up having neonatal lupus for the first 6months of her life . Im very blessed to have two babys an im fine with just two . But i have struggled as a solo mother to not be able to play with them in the park an run around with them due to fatigue an pain . The pain is constant . At night time i cant lay on one part of my body for long due to pain in the joints so im constantly waking up . My lupus ended up turning into rhematoid arthritis as well an fibromyalgia an one that affects the mucus membranes in the eyes an ears an nose an mouth . Resulting in tooth decay an lose . My teeth were fine on the outside but slowly decaying from the inside out . My ears are constantly blocked due to inflammation, my eyes are constantly in pain an needing eye drops . Sometimes they get so heavy i cant keep my eyes open . Always tired but sleep makes it worst . 1 in 3 end up with heart disease after 10 years an im now on two strong heart meds only at the age of 33 . And yes it took 3/4 years to be tested but i had to demand the test be done myself. Ive tried multiple immune suppressants but all of them damage my liver i tried steroids an they have made me gain allot of weight affect my period cycles an give me stomach ulsers. Ive had mine since 2011 after just getting a sore throat . A sore throat that was negative for strep . But i heard its the very virus that gives you strep also gives u lupus . I was told i didnt have strep to stop taking the antibiotics an very fast an quickly after i ended up with my first lupus symptoms an they progressed very quickly into 2012 . I had my daughter in 2013 an my lupus was left unmanaged till the diagnosis in 2014 after my daughter showed signs of neonatal lupus . I cant place any blame on the doctors due to having no proof of how i ended up with lupus and no way of finding out .... My son was asked when he was 7 what was his biggest fear.....an his was seen me sick 😢😢😢 he was 4 when i got this condition so seen me get sick was something he would of seen .....
