How annoying. Not only is the playlist backwards, but it's a #deceptivepattern clickbait video for expensive medical treatment that tno medical insurance overs.
Dystonie cervicale avec tremblement depuis 2016 injection de botox je narrive plus a supporter ont dirait cest pire avec injection maladie pas connue pas comprise a t il un traitement pour les tremblements ?? Ou autre traitement a la place du botox
@@madnis.2147 ¿Tienes distonía? Sé lo difícil que es. Al parecer está muy relacionada con el manejo de las emociones dañinas y los pensamientos negativos. En fin, estoy seguro que me ayudó muchísimo orar en silencio por largos minutos cada día.
I live in Amsterdam and there is no physiotherapist who's familiar with the exercises that could help to lessen the symptoms. I found out myself that the right diet help me manage the symptoms better. But it's impossible to find an expert who can help me figure out what is best for me. The combination of physiotherapy, diet, neurologist. I feel I'm always on my own looking for solutions. My life is limited cause any social event is almost impossible to attend. My head shakes constantly. It's a nightmare. I'm reaching the point that I want to give up. Living like a hermit is not a solution. But not functioning socially is extremely depressive. I feel like I'm stuck. The only thing that makes my life bearable is taling diazepam. But my doctor is against it. I even ordered it illegally on line which is very risky. Those pills only make me sleep. It started when I was 13 years old. I'm 74 now so I'm just tired of living such a limited life. I know it also has something to do with a youth trauma and emotions play a big role. I'm just so sick of looking for solutions.
Yo tengo 6 meses con Distonía Cervical ya me vieron traumatólogos, fisiatras y neurólogos. Tome toda clase de tratamiento. Incluso para Parkinson que lo que hace es mas daño. Ahora estoy con terapias alternativas naturópata. Efectivamente el stress complica mas los síntomas. Botox ya me colocaron 2 veces. Perdida de dinero. No hacen efecto. Yo recomiendo control mental y emocional, meditación y medicina alternativa hasta que los médicos se pongan de acuerdo y entiendan que la causa y como controlarla
I have several types of dystonia and I had vocal dysphonia like he did. I retired from a stressful job in which I had to talk all day and moved to an subtropical island for almost 3 years. My voice was cured in the first 6 months after leaving that job and moving there. Now for the rest! :) I just started Dr. Farias' program.
Thank you. I’ve had progressive dystonia. My neuromuscular specialist didn’t tell me how bad the cervical dystonia can get. It’s affected my bodily functions in multiple ways as it’s progressed. It’s turned to literally twisting my body at times and quite scary, besides excruciating pain and dangerous. When it’s happening “here and there” is bad enough. It’s been over 10 yrs since dystonia diagnosis, but I’ve struggled with other diseases including epilepsy and none have been controlled well. I have a rare gene that prevents many medicines to not work at all, some very little. I have peripheral polyneuropathy and that gets worse than many things I’ve read and luckily, has minimal times. I have home PT, but learned about neuro PT and neuro chiropractor this year. I’m learning things I should’ve been told years ago. My seizures increased in frequency and new seizures on top of ones I already have since I was a kid. I’ve learned about dystonic seizures after triggering them by massage in certain area of my neck. I don’t know how many times I’ve done that because they are very much same as my epileptic ones. It’s only by VEEG that we know. Abnormal spikes and abnormal waves recorded during monitoring many times. I don’t come out of all seizures on my own anymore. I was left twisted, back bend, neck huge and backwards. It started curled forward, but after EMTs pushed me back towards regular position, my body kept moving. ER dr refused to call my neuro specialists again. I wasn’t given rescue medicine until near an hour of things at their worst. If they don’t recognize it, must not be real (in their minds) I live in a small town with only one hospital that’s been called “don’t come here” by many residents of the area. DCH, Dickinson county hospital and for at least 20yrs. Too many people died there from neglect, inexperienced, and more. So other people call it “don’t come home” my husband drives me out of town, depending on how bad and by protocol EMTs have to go by and why I end up at local hospital at times. A hospital over 500 miles away is putting a team of over 5 types of specialists together. I have vasculitis that was diagnosed leukocytoclastic vasculitis. My other specialist said it’s already caused permanent damage and could be why several neurological disorders and autoimmune diseases have progressed the way they did. Yes, I’m confusing. Called a “complex” patient. But that doesn’t give them the right to not inform me about a handful of things. At least give referrals as needed. It’s been over 20 years of “my body hates me” 20 yrs “somethings wrong with me” (treatment resistant) but some things started over 30 years ago. But there’s treatments, including natural medicine, that I can’t try due to certain conditions I have and medicines I take. But there are things I can try, like looking for more information. Medicines not tried that are ok for me to try. Try my neurologist “you need to ask your primary” then “you need to talk to your neurologist”…. I get I’m not their average patient, but my gosh. Thank you for the information.
I have DYT11 Dystonia. Left neck, arm and hand are affected and cognitive deficits are present. Study in 2006 suggested possibility that white matter in the brain exhibits the capacity for activity-dependent plasticity after Botox injections in patients with focal dytonia. I received botulinum toxin injections in my arm and neck and my cognition returned to normal. How about that for scientific advancement!
I am suffering from yips in playing Snooker for last 9 years. I am quite passionate about it and have tried many therapies. Can you suggest how I resolve this? Thanks.
I had cervical dystonia in November 2022 and got Botox Injection every 6 months. I know hundreds of dystonia patients in China who didn’t get Botox treatment or DBS surgery but still lives a normal life. They keep exercising everyday and use Chinese traditional treatment. Hope everyone gets better!
Hi I have had dystonia for 20 years find stress is definitely a major problem for making me feel worse , did you get a pressure in your head feeling 24 7 and did you find stress made it worse and did you have really bad anxiety a fight or flight 100mph feeling inside over nothing And how did you u calm it down please
Hi, I'm from India and I've been suffering from dystonia for 10 years. In India, there is no specific treatment for dystonia other than botox, nor is there awareness among people. Please help me in overcoming this illness.
Zarąbiste, że tak prostacko powiem!! Aż mi bioderka poszły. Mam nadzieję, że moje chodzenie też idzie w tym kierunku. Z całego serduszka dziękuję za ten kawałek ❤
This felt really nice. I am from the netherlands and those were indeed the words that I got no recovery. Only botox. But I to have to believe that you can recover. What are your oppinons on the botox? I myself would love to start to find a solutation. Your speaking of an whole team? How do you start? Thanks for this video and its indeed true dat the whole world is different now.
Hey friend just want to encourage you. My dr told me no recovery 1.5 years ago and since then Ive learned how to hold my head up again! And stopped needing a cane. And gone back to full time work. And dont have to hide symptoms from people. And got back ALL the things dystonia took from me. AND became a much better version of myself. Keep your hopes high!
@@macintoshimann9892 thanks so much.. i have been diagnost 6 months ago. But have this much longer as I didn' know what it was. I hope it will work out for me. Like you. I am into botox and do alot of extra things. I am improving. I can communicate again. My voice just sounds bad now. Each period for me is to learn. I keep on dreaming. I hate it when the tension comes back but it's alot less then before
Personal info… not able to move in the morning as usual from CPTSD from horrific experience of being held down by 3 people while Dr. put stitches in my lips and gums without novocaine or any type of anesthesia. I wake up with dystonia every morning unable to move… Also from recovering from 2 broken legs broken right foot, should be recovered by now. I’m hoping to take my daughter out to get her a car for transportation to her job at the hospital. I’m hoping this will work… to get me up and moving! 💜🙏🩷
Ive had dystonia since age 5 after a stroke that paralysed my right hand I have limited use, can't type with it My right foot twists in when overused and tense
Frage: kann mann etwas tun beim simpatikus und parasimpatikus?? Koeper in ruhige fase zu halten... Biokibernetik macht ao was....wo mann korpwr in Reset macht. Danke fur ihre beitrag und das sie sich fur des interessieren ❤
This is great! I don't like going for walks everyday but this could make a form of exercise more enjoyable for myself....I'm going to give it a try! I started tapping my foot and bopping my head a few seconds in!
FWIW: I would get cervical dystonia EVERY time I take stimulants or anything even hormonally that reacts like a stimulant and once triggered, can last for weeks.😢 I researched for years because i have ADHD and finally came across a video by a Dr who said adding choline to your diet helps!!! I tried it and it def helped!!! It doesn't mean i can take stimulants daily, but I can take them more than before. Thought I'd toss this out there. Choline is a major amino acid also known as B19. It's found in egg yolks among other foods, but I now supplement it. Thank you
Hey. Thank you for these videos. It's been a blessing to find videos on this for dystonia. I've been experiencing it in my eyes and it seems that Dr. Faria's overall of treating dystonia might be useful for my problems. I've been getting very down about this but Dr. Faria's program is giving me hope.
