a bit about me: - a late 20's gal who recently moved back to Sweden from New Zealand - a second-hand shopping enthusiast, trying to buy less and love each piece more - partner to Richard, my longtime love, who currently lives in London - learning to date myself while we sort out visas and begrudgingly do the long distance thing - an art history and english graduate who is looking to specialise further - a gal who loves to dress up and sometimes takes the theme a little too far - a recovering people pleaser who is learning how to live a healthier lifestyle while navigating chronic conditions - trying to prioritise slow living and creativity through painting, making pottery, and organising cozy spaces - a pear shaped gal on the hunt for the right accessible pants and a top that looks good sitting down
come along with me as we spread awareness about what it is like to live with Ehlers-Danlos Syndrome (a little-known genetic condition).
Hi Emelie, I would like to share the following six videos with you about salvation and two videos about evolution. Best regards Chris Evolution vs. God ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-uc_W9VtzJ0A.html DESTROYING Evolution In Under 3 Minutes ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-sWecPwrQv2c.html Watch the Holy Spirit Work in Her Heart (Very Moving) ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-iBEoI2u6kII.html Fearing The Lord, God’s Discipline & Sharing The Gospel ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-dES5WW66Mro.html A Clear Gospel Presentation by Pastor Steven Anderson - How to go to Heaven ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-IXEeMWCxyrQ.html The Plan of Salvation ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-PmkhRMPvt_0.html How to Get Saved ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-ajWdkuvrT6s.html The Truth About Hell (Selected Scriptures) ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-AVzbh_dLq3s.html “For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life”. John 3:16 (King James Version Bible) Jesus Christ is the only begotten Son Of God the Father.
Congrats on your new wheelchair! Having the right fit makes a difference. I have my first fitting with a new wheelchair OT on May 1st. It's an excellent way to kick off Ehlers-Danlos Syndromes and HSD awareness month! Can't wait to have a lightweight titanium rigid frame chair! I'm going for fold down push handles. Don't want them available to strangers to randomly push. Had a rental for a week last year and two men randomly pushed me without asking or announcing what they were doing. I'll be trying to get a RGK Freewheel covered by healthcare. It's a 12" front wheel that attaches to your footplate and the sides of your chair. When locked it pops the casters off the ground making it easier to go over tram/streetcar tracks, broken pavements, and construction. I'm holding off on getting power assist until I've had a chair for a bit. That way I'll know what I actually need. I've tried a Smart Drive and they're great. For full-time power assist out of the house electric hand bike attachments like the "PAWS Tourer" by Rehasense are fun. PAWS has cruise control and a walk function. But because it's an electric bike attachment that requires your hands to be around heart height it's not a good every day option for me. There's a nice shorter RU-vid video showing how it tackles snow.
I've got the Unawheel Maxi, a different electric bike attachment. I absolutely love it, was a bit cheaper than other options. Does really steep hills, and It's manouverable enough that I can even use it inside most shops. The handlebars keep my arms in a pretty neutral position, around waist height, which may be more tolerable for you? (However, I'm short and if I fully lean back into my backrest, my arms end up fully extended, which may raise a different issue)
That looks be some great wheels! Must be nice to relieve your shoulders of the constant pushing? And it makes me so happy (as a complete nature lover) to see accessible nature paths
Congratulations to your new chair 💐👍🎉! I'm in an O4 chair with Alber EmotionM25 smartdrive. A negative is, that I couldn't do wheelies with the smartdrive. But without it, I'm exhausted like you mentioned. I only can push myself inside on smooth ground. I have a dump, but this would the only thing I would change on my chair: Having more dump. I sit more stable and it's easier to handle the chair. My AlberEmotion came with thin pushrims... Eventually I would change this, because my hands are hurting. On my normal wheels I have Carbolife Gekko (thicker, with rubber). But actually I haven't the capacity to go thru this process (insurance stuff). I love videos about different chairs. They saved my life, getting my first chair and he is only so good, because of youtube! I would love to see more videos about your smartdrive, if you have tested it. Pros, cons etc. Greetings from Germany😊.
It’s interesting to see the difference and just how personal a wheelchair’s fit can be! I have a Ki Rogue2 as well (i’m in the USA) and personally, mine has a bucket/dump as well as bigger casters. I have the bolt-on pushrims which are just like the ones on your new panthera, but the ki version lol. Had a slimline cushion as well, also borrowed, and I personally hated it- so stiff 😭. I also have EDS and i’ve faced similar issues with thinner pushrims, but it’s more of a tendon and wrist problem for me than dislocating my fingers. I ended up getting thicker pushrims but they haven’t been delivered yet. A tip for the smartdrive: you can adjust the speed settings and the velocity that builds up to that speed in the app. Out of the box I think the speed limit is 70%
you did this really well, my professor didn't even bother explaining and said, "orthostatic hypotention" look it up online so yeah i actually appreciate the simplified explanation
I just subscribed! I’ve been chronically ill for three years now and am diagnosed with POTS and ME/CFS. I have a lot of joint and muscle pain and hyper mobility and EDS like symptoms so I’m trying to figure out what’s going on. I have never (that I know of) dislocated anything before, but I know there is more to EDS than that. Do any of your videos explain symptoms and things to look out for that indicate EDS? I’m trying to learn more, I’m sure you know how it is with doctors, it’s important to have knowledge because they don’t know much. I just traveled for the first time in my wheelchair in September. I’m traveling again on Sunday to my specialists so hopefully it all goes smoothly. I wish the sunflower lanyards were used more in the US. People don’t know what that is, so people here don’t use them. It would be nice for airports to have quiet rooms for disabled people, but I don’t think most airports do here. Im always happy to find new chronically ill RU-vidrs!❤
it's kind of difficult to think of symptoms that could indicate EDS, since i've had faulty collagen all my life. i guess smooth soft skin, hyper-extendable skin, flexibility, which can be measured by the beighton scale. dislocations and joint pain are definitely some of the main symptoms. i have a video on my channel discussing the different types of EDS. i also just put out this video about dysautonomia which discusses some of the overlap between EDS and POTS. ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-YAmv26hKvnw.htmlsi=lntS2bi0E4OWUNm6 hope your travel went well!!
@@emelie.elizabeth Yes my trip went well. I was diagnosed with EDS. I saw one of the best neurologists in the US and he diagnosed me no problem. Thanks for replying!🩷
Hi! I'm also a wheelchair user and I like your table and chairs. I have a desktop pc in my little apartment and there is no room for a table,dining table.I always eat at my pc desk I'm jealous of your table. :) I hope you are doing well,have a nice day.
Thank you for this video and for speaking out. Steph and Ruby were both my best friends and i was incredibly close with them both, they fought so incredibly well despite all the awful things and trauma they had to deal with and experience. The health system needs to change! This can't keep happening! I hope your well and again thank you for sharing this video <3
It depends what disability you have. In New Zealand where I live you can get compensation through ACC if you have an accident and they will pay for your chair. You can also get them through the public health system i think, or be assessed by someone from the ministry of disabled people. They can help cover the costs of some equipment. But the reality if you have a pre-existing health condition in many countries is that you will need to pay a large portion of the costs if you want a decent chair.
The Ki Mobility Rogue 2 starts at $1887 US. May be less if you can get a prescription for it & depending on your health insurance company how much they’ll cover. More than likely, in the US, you will have to cover most of the costs.
