Shift.ms is the social network for people with multiple sclerosis. Founded by MSers, for MSers, the charity supports many thousands of recently diagnosed people across the world as they make sense of MS. It’s independent and it’s free.
Our philosophy: Founded by MSers, for MSers, we believe in the value of information from experience. We encourage members of the community to be involved in everything we do.
Where we came from: Shift.ms was launched in 2009 by George Pepper and Freddie Yauner, following George’s diagnosis with MS at the age of 22. MS is the most commonly diagnosed neurological condition in people in their 20s and 30s in the UK. Despite this, George found it difficult to find other MSers of his age, even online. This frustration led him to set up a website, where MSers could meet and share experiences. This later became www.Shift.ms
I started using Lions Mane daily last year and have stopped having any fatigue. Obviously to this is with the help of following the Overcoming multiple sclerosis program by George Jelinek. I have MS, MS does not have me 😊
they forgot to show someone with MS excelling at the sport of "running" to find a bathroom bf said athlete pees their pants AGAIN for the 10th time that day. Oh wait, that athlete cant run 😭. Maybe barely hobble along, looking like frankenstein, while using a crutch - praying she doesnt trip on her drop foot causing a fall that shes unable to get up from 🤬
Hi Dean, I’m in the process of getting diagnosis after about 6 months of symptoms - I call mine my party leg 😂🙈 thank you for sharing - it makes me (and probably some others) feel a lot less isolated cos it’s a scary thing to go through. Keep spreading the joy my guy ❤
I have seen what MS does not only to those affected by it but as well as to those who care for those afflicted. I am a musician and I have used this video to project a message of hope to you all. Stay together and fight the good fight because it is better than facing it alone or having to deal with the aftermath of THE STORM. I am a survivor of MS which came upon my then wife before we were married and have witnessed everything that MS can take. Sometimes it robs each of us of more than our abilities to function. ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-CGqyX6JskQQ.html
Thanks for sharing. I think that although every ms is unique, that the impact of the official diagnosis can be similar with a lot of persons. Depends on the circumstances. Like to watch u guys. Greetings from switzerland
I have CFS and brainfog is a prominent symptom. It makes congnitive tasks very slow. I think in my case its the result of neuroinflamation, which I am trying to control now.
#CCSVIMedNews Time for Learning Science #BloodFlowMatters Apparantly nothing else matters critical Healthcare CCSVI TREATABLE Congenital Science Confirmed Recognized Medical Condition STUDIES show causative factor SO called MS!!! MAKE AVAILABLE RESEARCH LONGEVITY QUALITY LIFE DEPEND!
Thank you for presenting a beautifully well-made film. My mother was diagnosed at age 57 in the fall of 2004. She independently gave herself Rebif and used a walker until the summer of 2015. After a heatwave she developed aphasia and the inability to write and worsening symptoms with bowel and bladder and needed a wheelchair She's now at the end stage of MS, a stroke with paralysis on her dominant side winter of 2017 left her bedbound with worsening aphasia and inability to transfer to and from her wheelchair.
I have secondary progressive MS & I have gotten worse pretty quick.My memory is bad,pain is very bad,Legs don't want to move very much anymore.So many things to say.Im tired all time.Great film.Its hard but you have to keep fighting & stay strong.😊😊
The loss of dexterity with your fingers is really frustrating! I thought it was just writing but it's typing , holding on, etc. Thank you for this film.❤
wow nice short film, glad I watched it now, was diagnosed in 2018, could not sense it coming, though MS symptoms were on an off from 2011. I can relate a lot to this film, married and now a family of 4 (1 boy and 1 girl), but mobility is a biiiiig thing, have not stepped out from 2018, did go to hospital for yearly check ups and nothing much, COVID taught me a lot, actually helped me a lot on many things. Extended my family to 6, poor lab passed away around Christmas time (2023) My Chow Chow (6 months) keeps me occupied. But ya the question still hovers in my mind too - whats next....
I go on April 3 to my first neurologist appointment. An MRI in September showed possible lesions. I have tremors now. Weakness in my arms and legs, numbness and tingling. Brain fog. Fatigue. Bladder issues. Dizziness. Sleep issues. Depression/anxiety. Chronic pain. … all I need is a diagnosis and then hopefully some sort of help for this monster that has taken my quality of life away.
My spasms made my legs jerk to the point I sometimes tumble down the stairs or almost fall down, I never feel any pain I just feel a feeling I can't quite explain.
I am glad to see this. My ms flares before I come on my period. I feel so weak, I'm in pain and tired. Also I do get depressed where I don't want to be around anyone or talk to anyone.
how it affects speech?? i scared ed if I can't speak well , will it affect my singing too? i was just diagnosed with MS 2 years ago. but now it only affect my vision and i realise my speech is not good , i mean i have trouble to say something, i sounds like mumbling 😮😢😢
It feels me with saddness how much MS can rob us of wanting a kid or more kids. I was fortunate that the wife and I had our only son and he was born on October 2019, but the 'relapse' that lead to a diagnosis of MS happened 1 month before, I was then diagnosed with MS 3 months after he was born. However we've got through 4 years, but it did stop us from having another as I don't think we can cope going through it again (but that's the shitty part, I'll never know, it's all because this disease is unpredictable). I'm now 38 btw. Genuinely wishing you guys all the best. Much Love
Optic neuritis can be driven by B1 &/or B12 deficiency. Too many of the MS symptoms mirror those of undiagnosed B12 &/or B1 deficiency for it to just be a coincidence. But it all too often gets missed or dismissed because the testing procedures are very poor f potentially misleading, & because most doctors know diddly-squat about the clinical symptoms. They have all the dots but no one is joining them up…….. B vitamins are crucial for nervous system (& myelin) support & repair. And many of us are woefully deficient for various reasons.
I question my Neurolgist through the Portal. All her answers were given to her nurses which read Tell the Patient…… So I signed everything “The Patient” which then escalated everything. I ended up on the phone with the head of the Department ! I also don’t care for one of her assistants. When she was going over the MRI I had previously before coming to the MS center and the one I had with them she kept on flipping back and forth between the two. Telling me what a poor quality the first one was compared to the one I had there. I have no idea where I have lesions . It just goes on from there. When I told her other assistant about it his response is why do you want to know? I am supposed to go back in April of this year hopefully I will actually see my neurologist!
I’m 16 years after diagnosis and have 10 year old twins with a very supportive husband. He’s the one who will say stop and rest especially when I’m doing things that aren’t absolutely important. We did find the early years exhausting but on my part learning what to prioritise definitely helped me so much as even now I still try and do too much on my really good days. You will know when/if the time is right.
Currently having this issue with my MS neurologist and working on getting a new one, but I'm not a woman. I feel horrible about how women have been treated and the extra level of chaos hormones add to MS. 🫂
