Hello! I am a young mom of 2 boys and motherhood has been really different than what I was expecting! My second son was born with a bilateral cleft lip and very severe cleft palate. Since he was born we have also discovered many other problems that he has had to deal with. For this channel, I want to offer help from my experiences and share tips and tricks that have helped me as I have dealt with my son. Keep watching if you're interested!
I know this is older but I really appreciate you making this, I’ve watched it before my girl had surgery and after. I was a nervous wreck and this helped We are day 3 after surgery, she is still very sore so I’m hoping soon she will be back to herself
My 4 yr old has begun to press the buttons on the key pad at school during naptime. I know how to lock the rate setting but how do I lock the keypad while running during continuous feeds? HELP
I am 21 week and I went to see my baby 20 week report and my doctor told that my baby also have bilateral cleft lip but they are not 100% sure about it as my baby was not facing front it could be misdiagnosed as well. It is so hard for me to think about it. I don’t have any genetic history. I feel so sorry for my baby. 😢
I know this video was a few years ago but I was wondering how his baby teeth turned out with having a bilateral cleft lip palate. My daughter has a very similar case and I was just curious of what is to come when she grows baby teeth. Thank you!!
You are an awesome and brave mom.im a nurse with a little girl that has a gtube and you have helped me to be comfortable caring for her and the tube and this only my second video
I thought thickit couldnt be used before a year old? We are using gelmix as thats whats recommended for our 3 month old with down syndrome. Are ANY of these covered by insurance? The gelmix is expensive!!!
Respected mam, my baby 18 days old is just taking 2 ouncs each day while our pediatrician says that the child must take 12 ounces esch day..can you advise with best how to achieve 12 ounces for a cldft palate baby? @aspeciallife
My son has a G-Tube it’s a balloon shaped G-tube and I don’t have him in care he’s in DSS and they want me too know how to use this when I get him and his sister back but I am not sure it’s a but hard for me because she does it at night time and I don’t really know how to feed him with it so is there a way that I can buy one of the pumps myself or do would I have to wait until I get my baby back
My baby also have the cleft palate only boy baby weight 2.420 gram 1 month ago born he notsucking how to feed milk he notget straight feeding then using cleft palate bottle that also not use how to givemilk
Thank you so much for making this video. I have just had my scan recently and been told my baby will most probably have a cleft lip. This has helped out my heart at ease a bit.
my son was born with a cleft palate and its been now three weeks since the surgery and when i found u when i getting overwelmed with everythin u in a way helped calm my nerves and such his surgry went like planned still has a small hole in the sof palate but it looks like its healing up like it needs to
My baby have this problem too and he is 2 weeks old they put him on a ngtube I hope he will learn to drink milk again like normal way is this treatable l?
@@firdausfathima5744 it just takes time step by step you have to pace feed your baby every time you feed him or her. You can do it at home but ask doctor too. Take you baby to a GI doctor for follow ups as well.
@@firdausfathima5744 my baby is getting better since this is 11 month after my comment so yours can too. What’s up with your baby what he have the problem? Can you explain to me more?
@@noemimendoza3143my son is doing fine and his surgery done last week 08/24/2023 take only 1 hour and his surgeon was pretty good and his stitches are healing now and he continues taking soft food after his surgery he drink apple juice that gives by the nurse and he drink a lot but he so fussy and pain meds after surgery he cried little bit but I can’t sleep I been holding him for a week now days and nights as long as he’s okay then I’m happy to watch him over so keep fighting guys ❤❤❤❤❤❤❤
I needed to hear your words so much today! My daughters hard and soft palate is affected so feeding her solids has not been easy and i feel like im doing it all wrong (even though eating is pretty straightforward 😅) thank you
Thanks for making & sharing this video. Getting ready for my son's surgery in a couple days and this definitely makes me feel more confident in his smooth operation & recovery.
Great video. My son is one week post op and I JUST discovered a hole too. I was so devastated this morning. It's sort of comforting to know that it's fairly common but still not what I wished. How Levi doing now?
Thank u so very much for this vedio am from Uganda honestly this is my second child and he has cleft hands and cleft palate this is really hard to see him pass thru this his four months now and 4 kgs gaining weight is tough but all in all am getting stronger each and every day
hello! thank you for creating this video, it is certainly making new moms feel more at ease having someone/a story to relate to. I am a Biomedical Engineering student at Georgia Tech and I am currently studying the user needs and impacts of infant nasal cannulas. I am currently reaching out to parents with children who use cannulas and asking them what their experience has been like, what they despise about the product, things they wish could improve in terms of the design, problems you've ran into, etc. Please respond if you are able. I'd greatly appreciate it. Peace and blessings to you and your family.
