CreakyJoints is a digital community for millions of arthritis patients and caregivers worldwide who seek education, support, advocacy, and patient-centered research. We represent patients through our popular social media channels, our website creakyjoints.org, and the 50-State Network, which includes more than 1,500 trained volunteer patient activists.
As part of the Global Healthy Living Foundation, CreakyJoints also has a patient-reported outcomes registry called ArthritisPower® with nearly 30,000 consented arthritis patients who track their disease while volunteering to participate in longitudinal and observational research. CreakyJoints also publishes the popular “Raising the Voice of Patients” series, which are downloadable patient-centered navigational tools for managing chronic illness. For more information and to become a member (for free), visit creakyjoints.org. To participate in our patient-centered research program, visit arthritispower.org.
I was told I had a very mild case of Spina bifida at 18. At 55 my disc herniated I had to hear a different diagnosis each time I saw a new doctor. Same situation osteoarthritis, spinal stenosis, si joint dis function, finally I asked if I had AS and was told yes. I can definitely relate to this story.
I too am a black woman with AS. I have sero negative arthritis and arthritis meaning it doesn’t show on blood tests but it’s present. I have chronic AS because I can’t even get out of the bed because of my back pain. I hurt! And I don’t get any family support because they don’t understand. Older woman in my family doesn’t even have arthritis and they can’t fathom the pain. Like I am making up my pain. I am having a year flare up with no relief. I was on skyrizi with no help. I am on humira now! Methotrexate and prednisone didn’t work for me.
Un médico pakistaní me dijo que si me pongo ozono 5 a la semama rectal por 2 meses, se para la enfermedad totalmente. Voy un mes con una mejora poca. Cree q eso reemplaze los DMARDS? :(
Gracias Dr. por su valiosa información. Es tan importante conocer la 20:36 enfermedad, entenderla y tratarla. Tengo los mejores médicos en HCAM, Ecuador.
My back is always sore af and I'm only 24.. I'm a machinist so I stand 10hours a day and constantly put heavy material into my lathe. Wish I could use my other side of the body but my spindle is always on the same side 😥 I wake up on Monday after not doing anything all weekend and my back is wrecked some how
These big pharma doctors are the REAL quack doctors. I was misdiagnosed for 7 years even while screaming for specific blood tests which were denied. When I went private and ordered my own tests "dr google" was right while the big pharma quack doctors were wrong. I've lost all hope in the big pharma doctors. If your doctor refuses to listen, then fire the dr and find another one. Keep on until you find one that listens vs one that lumps everyone into the same category. Be sure to leave a bad review on their site as well. It helps patients avoid those doctors.
Have severe Tinitus together with whatever is going on in my neck. Affects my left glands, behind my ear, left and right hands pain and tingling and severe in left foot. 24/7
ive had this since Nov 2020, change my mattress three times. haven't slept properly in years. Its killing me. developing other health issues as a result. im 36.. i eat and exercise too (cardio) so no idea what im doing wrong. If anyone knows how to cure this curse of a problem, please let me know
This story reflects mine on so many levels. It’s become so frustrating to be taken seriously, even after MRI confirmation of AS, 9 months after two of my thoracic vertebrae collapsed onto themselves spontaneously (no accidents or falls). I pray all women get diagnosed sooner, before their spine collapses 🙏🏻
Thank you Dr. Woodard. I have psoriatic arthritis and this stretch is very good. I will try it every morning. Thank you for taking your valuable time and make these videos.
wow, thank you so much. I'm 33 and have had arthritis in my C7 vertebra for at least a decade. i found myself crying tears of relief after second stretch. i massage my scalenes all the time too, but man...that last stretch was miraculous. i was sure i would only find scams after looking up arthritis exercises on yt, but now i have this pleasurable tingling feeling all over my neck and upper back. i had no idea how much pain i had become used to. cant thank you enough ❤