Hey! We are The Ladd Family! This channel is going to be all about our two precious blessings Kennedy and Lincoln. They both have a rare genetic disease, MPS 1 Hurler Syndrome. We want to show the world all about living with Hurler Syndrome as well have Informative videos as well for other Hurler Families. Thank you for visiting our channel! We can’t wait to tell you all about Hurler Syndrome and show you our beautiful family! Please visit our other channel “The Kennedy Ladd Foundation” to learn how you can help us find a cure for MPS 1 Hurler Syndrome.
I have to tell you that this was the worst video you have done. The kids noise was impossible to hear you with! It was a very obnoxious and it drove me right of the video. Please try to make it more conducive to hearing for my old ears. I love you and pray for you, please keep us up to date.
I think it would be good to meet you since I have a medical disabilities and think meeting you would be very helpful to help with my disability and starting a non-profit program for people with dofffersmt disorders and what they need
I am so sorry to hear this. We have a place on our website @kennedyladd.org for families to tell their story. We love to hear stories of all hurler families. It truly helps the whole MPS community.
The transplant would allow her to live a longer life, so that if in the future, if she was physically able to care for and give birth to a child, she would have the possibility of doing that.
My granddaughter was just diagnosed with MPS-1. She was diagnosed at about a week old. I am just wondering what this process is going to be like any advice any help we would appreciate 🙏 thank you for sharing your journey.
I am so sorry we are just now replying to this. I hope that your child has received care and is doing great! Please reach out to our foundation @kennedyladd.org if we can help in any way.
I I have a 7 year old with this diagnosis, I just had a baby 2weeks ago and they’re saying that he has this disorder at first I was heartbroken, but now I’m just waiting to see what the creato has in store
Hello Folks !! 🙋🏻 Just found your vids today. My nieces baby boy has been diagnosed with Hurler’s. He’s 3 mos. old today & receiving his 3rd enzyme infusion. We’re all awaiting his transplant journey & ‘learning’ as much as we can. Thanks for your candid approach & courage to share your journey with Kennedy. I’m looking fwd. to watching more. btw - I love your advice about asking forgiveness rather than permission - it’s my standard rule of thumb!! 😁 🌸💜✨
Praying for your family found you today and started following I don't know exactly where you live but I live in Livingston about 25 miles from cookeville bless you all
I am so grateful that you have faith in Jesus, you are so special and loved. I am so thankful you are a firefighter. So is my son-in-law and I pray that you can support him.
I am sending you both love. These videos are so important. Thank you so much for taking the time to film this. Our grandson was being tested for Downs. How I wish it had been Downs. The MPS 1 Hurlers diagnosis has been the hardest thing we have had to face. Thank you so much again. You are so courageous!
