Episode 6! The Ladd Family - Our Journey with MPS 1 Hurler Syndrome - Ep. 6 

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TheKennedyLaddFoundation@gmail.com
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About the Kennedy Ladd Foundation
• A little about The Ken...
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Kennedy and Lincoln have MPS 1 Hurler Syndrome. You can read more about Hurler Syndrome here.
mpssociety.org....
Kennedy and Lincoln received bone marrow transplants at a very young age (Kennedy 11mths and Lincoln 3mths) to slow down progression of the disease. There is no cure for MPS 1 Hurler Syndrome. When we were able to come home from Cincinnati (post transplant) with our daughter Kennedy, we started The Kennedy Ladd Foundation, Inc.
The Kennedy Ladd Foundation, Inc is a 501(c)3 non-profit to raise funds for research to find a cure for MPS 1 and to provide iPads to Hurler patients going into bone marrow transplant. You can also follow the foundation page here / @thekennedyladdfoundation and learn more on the website at www.KennedyLadd.org
Kids with MPS 1 have 3 options. 1-transplant before the age of 2 (in most cases after the age of 2 the disease has done too much damage) 2-Enzyme Replacement Therapy (an artificial enzyme infusion, done weekly, for life) 3-do nothing (Bodies will deteriorate and usually pass away by the age of 5-10).
The Ladd family will continue to fight and spread awareness to find a cure for MPS 1! We need your help! You can help by doing one or all of the following! Donate to The Kennedy Ladd Foundation, Inc., If you shop Amazon go to smile.amazon.com and setup The Kennedy Ladd Foundation as your charity, Donate to the MPS Society www.MPSSociety.org, Tell a friend about MPS 1, share our page, follow/share our Facebook Page @ Kennedy and Lincoln Ladds Prayer Group, follow/share our Instagram @ KennedyandLincolnLadd, subscribe to our channel, share our channel, and lastly but most important if you don't do anything else, we ask that you Pray for our babies and the rest of the families. We can't wait to share more with you!
www.KennedyLadd.Org
www.MPSSociety.org
The Kennedy Ladd Foundation Channel- / @thekennedyladdfoundation
Become a Donor- www.BeTheMatch.Org
Cord Blood Donation Info- www.parentsguidecordblood.org
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