My granddaughter was just diagnosed with MPS-1. She was diagnosed at about a week old. I am just wondering what this process is going to be like any advice any help we would appreciate 🙏 thank you for sharing your journey.
I am so sorry we are just now replying to this. I hope that your child has received care and is doing great! Please reach out to our foundation @kennedyladd.org if we can help in any way.
The LaRue Family Homestead Hello! I’m so glad you found us on RU-vid! Thank you for following us in this difficult journey. I miss my work peeps! Who is your mom?