Godbless you. I just found out someone dear to me has bone cancer. She doesn't know that I know yet bc she wants to be the one to tell me. Idk how im going to pretend not to know. Ive never been good at pretending with ppl. I'm scared for her but more for myself losing her. Shes definitely a fighter but shes been through so much already. I'm not ready for this. Life has been so difficult lately and now this. Thx for the video.
We're so sorry to hear about your friend's diagnosis. Please know we are always here for you 🧡 If you would like to speak to a member of our Support & Information Team, please phone 0800 111 4855 or email support@bcrt.org.uk.
Please tell me, what will happen if there is a tumor in bone tail? From recent biopsy test, my father is diagnosis with chordoma. Is it life-threathning? 😢😢😢😢 We have to go tomorrow for OPD. My father is everything for me, please need some information😢😢😢
Sorry to hear: that make shore your dad eats helfy food like orangeries and tomatos and over stuff that has vimin c vimin c helps the immune system and make shore that he dose exercise I hope he will be OK.
We're so sorry to hear about your father's diagnosis. Please know we are always here for you 🧡 If you would like to speak to a member of our Support & Information Team, please phone 0800 111 4855 or email support@bcrt.org.uk.
We are so sorry to hear about your friend’s diagnosis. Please know we are always here for them 🧡 If they would like to speak to a member of our Support & Information Team, please phone 0800 111 4855 or email support@bcrt.org.uk.
I wish you well Jade. My only child Tosh was diagnosed in 2012 with Oesteosarcoma aged 21. He went through lots of chemo including MAP. Sadly nothing worked for him and I lost him at 23. There needs to be more awareness and more research.
Hi Jane, we are so sorry to hear about Tosh. Please know we are always here for you 🧡 If you would like to speak to a member of our Support & Information Team, please phone 0800 111 4855 or email support@bcrt.org.uk Best wishes, #TeamBones
Hi Abbie, we are so sorry to hear about your child. Please know we are always here for you 🧡 If you would like to speak to a member of our Support & Information Team, please phone 0800 111 4855 or email support@bcrt.org.uk Best wishes, #TeamBones
I had chondrosarcoma of the rib I had to have ribs removed and complete breast reconstruction 😢 it’s a very life changing thing I’m cancer free 5 years now but the pain I suffer is challenging to say the least. Your amazing just always remember that it’s not an easy thing to life with and 7 years mine was growing they wouldn’t listen to me kept saying it was nothing and then when it was found it was 21 cm on my rib cage under my right breast 😢so I feel ur pain about them not finding it quick enough I really do xx
I'm from India. I'm suffering from Admantinoma. I am gonna have a treatment of this known as ECRT of resected tiibia with reconstruction in our prestigious medical institute AIIMS new Delhi. Really the diagnosis of adamantinoma is very difficult, I faced a lot of problems for finding correct diagnosis....
I’m so sorry to hear this. It must be devastating to have a child who has had cancer, and he is so young and such a cute little guy. My sister has metastatic cancer now, but she is older. Her prognosis is not good. Peace and blessings be with you, Freddie, and your family.
Thank you for your video Sarah. This gave me a bit of comfort knowing you’re also under the the same hospital RHJH with dr p cool as myself. I was diagnosed with a GCT of the sacrum at 21 which was 7 years ago now and it’s also not been easy.
Hello, we're sorry to hear about your daughter's diagnosis. Please know we are always here for you 🧡 If you would like to speak to a member of our Support & Information Team, please phone 0800 111 4855 or email support@bcrt.org.uk. Best wishes, #TeamBones
Sad to hear that. I'm also going through the similar situation. I'm based out of IN. I'm happy to discuss with you and share knowledge/solutions on possible treatment procedures if you wish.
Hi Darren! May daughter has osteosarcoma since June. I agree that conversations matter w/ those who really understand. And of course with those who are still going through the emotional and mental challenges of their situation maybe as part of the "healing", but more so to enable them cope with their new reality.
Hello, we're sorry to hear about your daughter's diagnosis. Please know we are always here for you 🧡 If you would like to speak to a member of our Support & Information Team, please phone 0800 111 4855 or email support@bcrt.org.uk. Best wishes, #TeamBones
My son Arran had Ewing Sarcoma... It was in his right scapula... It had attached itself to the plate wall of his chest... Unfortunately it had mastisised... and spread to his collar bone... He passed away after a courageous battle... aged 23yrs...im so glad this young man has survived... Much luv... Peace and light to you Nick.. Xx💕🦋
Hi Lianne, we are so sorry to hear about Arran. Please know we are always here for you 🧡 If you would like to speak to a member of our Support & Information Team, please phone 0800 111 4855 or email support@bcrt.org.uk Best wishes, #TeamBones
Hello Darren I’ve just watched your video and it’s heartbreaking. Liberty’s legacy is undoubtedly doing what she wanted it to do and being a recipient of a special fund in the Bone Cancer Trust, I know how vitally important it is to you and your family to carry her memory and raise money and awareness in to these horrible diseases affecting those so young. My very best wishes and condolences to you and thank you for sharing. X
Hello I'm robs son and I'm happy to see my dad again I been missing him for a long time thank you for making this video so so much: Rob 1983-2021 rest in peace
We also have a Facebook group you can join which offers a safe online place where people bereaved by primary bone cancer can connect. Our group enables you to share your experiences, access support and connect with others. facebook.com/groups/1031499208258364/🧡
😢how i wish to take back time where my son was still alive. How i wish he was also a survivor BUT NOT! Until now i can’t accept that he’s gone because of Ewings Sarcoma. It only took 6 months after he was diagnosed of stage 4 ewing sarcoma. I did everything i can to save him 😢 unfortunately he didn’t make it. It was a nightmare for me. He was only 18 years old. Have a lot of dreams and goals in life. A very good son and brother to his little sister. Until now i don’t understand why him? 😢😢😢💔💔💔😭😭😭
Sorry for your loss😢... my son was diagnosed 9 months ago. He already had 14 chemo rounds and a scapula and joint of right shoulder removal. The last chemo was two weeks ago. But two days ago a chest CT scan showed that the cancer in lungs has relapsed 😢😢😢. He has a little chance to survive as the doctor said 😢😢😢😢. I can't believe it and I don't understand why, everything was going well. 💔💔💔
Thank you 😔 really hard for parents seeing their child suffering and fighting to live. Until now i still can’t accept everything. I still cry a lot. I still remember everything especially the day he told me he don’t want to die yet. He still have dreams and goals to achieve especially for his baby sister. He’s very family oriented and obedient son that’s why it’s hard for us to accept that his gone 😭
@@germaineguevara2812 I'm sorry you lost your child. It hurts forever. I pray Allah ALMighty ease your pains and help you through these hard times. My son is my only child. I raised him alone since he was a day 😢😢😢😢
@@arenglish8906 oh! Praying for your only child too 🙏 Hoping for his fast healing. Hope he wins his battle🥹 i know the feeling as a mom 😔😢 We are also told by then that he has so much little chance to survive but we still hope and pray that he can especially him. He has this very strong personality and believed that he will survive even though 75% of his body was already paralyzed that’s why we as parents should have more courage for him to see that we are not losing hope. Until the very last day he really fought for his life that’s why we really admired him more… Keep praying and believing for your son. You must make him see and feel that his mom is his strength. That you are there for him no matter what. Make his everyday very meaningful and feel loved. That’s what we did for my son. We even celebrated his bday everyday in 2 weeks. And gave everything we know that will really make him happy and feel special. His our only and eldest son. His a proud mama’s boy 🥹 Be strong 💪🏻