Follow my story as I recovery from my third major surgery due to having Crohns. I share my experience and helpful tips on how to deal with this disease.
Clean the skin any mucus will prevent adhesion. Dry the skin with a small fan until totally dry. Cut appliance as precise as possible, Install appliance using a mirror for alignment. (modify the bathroom for this it really helps) Hold the appliance/bag to bring the cohesive to body temp. Works well if the skin is even around the Stoma. Even after 28 years that still doesn't work all the time. Being prepared is key as you mentioned - keep going.
Really glad i found you. Im a new ostomate and also enjoy working out but having trouble getting back into it. So far your the only male ostomate that still post. Big tha ks from west virginia usa
I am using a 1 piece cause that is the only one my insurance will pay for what would you recommend for me my is for urine only not sure what to call it
Great help for new Ostomates, but please do it over the Toilet, if it does start dripping you don't want it down the Sink were you have to clean your teeth and after some time it would smell really bad.
Any dripps should go into the bag underneath. But I would rather I was over the sink, I have had my stoma work during a change and its projectiled. Which would be a lot of cleaning up around a toilet. So a sink its the best that I have found. Never had an issue with smell or plumbing of any kind anywhere I have lived.
Sorry for bringing up an old video but just had an end colostomy 4 weeks ago, I used to weight train four times a week and push as heavy as possible but now worried about when to start introducing resistance training back in. This video has given me hope it will be possible with the correct belts/form and care. Just been measured up for the same support belt you use in the video but it's not arrived yet. Great to see it's still possible to move weight.
I have colostomy for seven months now but recently i started experiencing blockage in my poo that makes it difficult for stomach to be free pls you throw light on this? Secondary what is the best sleeping position sir. Thank so much for the information.
Hola soy de Argentina estuve viendo tu video!!! Yo tengo una Ileostomia definitiva desde el año 2019 en ese entonces tenia 52 años!! Es verdad que se termino mi sufrimiento, mis constantes diarreas, sangrados, dolores no poder comer bien y en variedad y yendo permanentemente al baño!!! Y esta Ileostomia si bien me salvo la vida porque me habia salido un polipo adenomatoso cerca del ano!!! Para mí a pesar q ya son casi 4 años q llevo la bolsita todavía me cuesta aceptarlo y me cambio mucho la vida ya que me siento muy limitada ya que el llenado de la bolsa es permanente coma lo que coma se me llena inmediatamente la bolsa y a cada rato tengo q estar vaciándo y es por eso se me hace dificil llevar una vida normal!!! Por lo que queria preguntarle si Ud le pasa lo mismo con el llenado de la bolsa si es permanente y continuo cuando ingiere cualquier comida??? Gracias desde ya!!
I started wearing an illiostomy pouch a month ago and my skin around the stomach kept getting burned around it giving me misery constantly….I was using powder and barrier spray and the barrier ring donut underneath the wafer plus the purple Marathon liquid …..it all did no good…Even if the pouch wasn’t leaking my skin kept getting burned…I even had nurses changing it for me to no avail…. Finally by accident I happened to see a squeeze tube of barrier seal paste by Cloplast among all my medical supplies I had….I didn’t know what it was…..So I googled it up….No one had ever even mentioned it to me in or out of the hospital… So I tried it when I changed the pouch instead of using the barrier ring seal…..And Amazingly….IT WORKED!!!!! NO MORE BURNING ON MY SKIN….!!!! I can’t beleive it….After a month of misery…..No more pain from burning…… I hope this info will help someone else to avoid what I been going thru…… Coloplast barrier seal non alcohol paste …..Instead of the adhesive barrier seal donut…..
In short it’s permanent in the sense the way your body stores fat. You can only mitigate slightly with working out or calorie intake, but fat will naturally build up in these areas unfortunately.
@@JosephGreenly have you thought of maybe using metformin even if you don’t have diabetes, Im sure it could help with bloat and body fat since cause is mostly likely the prednisone makes the person sensitivity to sugar probably a preventative measure even to diabetes.
Hi brother I have ulcerative colitis , currently on Remsima injections , my symptoms got better , but still lost some weight, and bone pains , anxiety and depression, Im really thinking to get the operation done , does it makes life better regards bad colitis symptoms ? I train boxing myself , few years ago even wanted to compete ,and also because of fatigue , is been hard working jobs , is there any help i could get from government with UC ?
I wouldn't want to try to persuade someone as my situation was having the bag or losing my life. I know people who tried the medicine and then had the bag and felt like it was an improvement. But it all depends on your situation and how much you flare up, but also if you have active colitis all through your bowl surgery isn't a cure. Also I'm no doctor so I would speak to someone to get the most information. There might be help from the government but I am not aware of how to go about it. Probably on the gov website. I wish you all the best.
Great video! I second everything you've said here. I take 2 spare bags with me everywhere (even for a meal) as you never know when a leak might strike 👀 I've made a video of what I take in my handbag 💖💪🏻
Hi i live in south africa. 2020 my trouble started with getting my ileostomy bags. Tried everything they tell me convatec has closed down. My favourite bags. I have a retract stoma so now south african big pharmaceutical companies tell me sorry you have to take a new bag and pay double for it. I am 65 this problem i can't solve is there anybody out there overseas that can help.
I’ve been taking prednisolone for 5 months for RA. Down to 7.5 mg daily. I’ve lost a stone and a half with cutting starch and sugar but my face is round and bloated looking so it’s not caused by extra calories and must be swollen due to the steroids.
There are different products that could help. I have a collar that goes onto my skin before the bag. You can see it in my how to change an ileostomy video. There is also other types of barrier types of products you could maybe get samples of to try.
Great information, thank you.. I have had a colostomy for about 10 years now, I had colo-rectal cancer. I have had some challenges., but the information you have shared, are fabulous, thank you.
Hey Just Wanted to know If Everything going Great..! Iam Nayem From Bangladesh I was having a colostomy Bag For 4 months in 2022 I started my fitness programme and i need consultantions and i need it badly enough Iam not sure about lifting weights and things is it going to be harm myself.? Just Needed Some Help Just need some advice for my health I hope you would be kind for that and have a conversation about it That Would Be Great Hope Your Doing Well ❤️🙌
is there any exercises u couldn’t do due to the bag? Been worried I may not be able to do exercises like the leg press or seated rows because the pad rests on the front of u
I have crohn and I can’t do any squat my knee hurts so bad but every other exercise i can do it easily i try every time to do squats but more than my body weight I can’t
If your uncomfortable using machines where the bag might have pressure on it there is always a variation to try. For rows you can do it with dumbbells or a barbell. Leg press you could try squats or single leg exercises. If you can a coach could be really helpful to find what works for you.
i was heavily into the gym before i had a very bad flare up of Ulcerative Colitis, I just turned 21 so it was hard to get into gastroenterologists to see me and assess the situation so the flare up went on for over a month and got really bad leading me to get an ileostomy just a few days ago, I was and still am in shock, they said it had a good chance at getting undone tho. Watching ur videos is inspiring and making me realize having the bag isn’t the end of the world and people can still live normal lives and do everything everyone else can, i’m still in the hospital bed recovering and can’t wait to get back to lifting
I'm glad my videos have helped with your recovery. I hope your recovering well still I am sure you'll be back to lifting soon. I know people who live with a stoma and are fine but also know people who have it reverved and again they are happy as well. So there are options from this point for you and I wish you all the best in your recovery.
Thanks Joe had my stoma just over 2 years picked up a couple tips the bag idea plus I always put the protective seal on the baseplate before I fit it will try putting it on my stoma first then fit the bag on
