I love your videos. I have battled c diff twice, once at 20, and once now, 27-28. It’s been going on 11 months of pure hell. They are actually considering I have Crohns because my GI symptoms are wild and don’t correlate with my age. Thanks for sharing, hope you are doing well.
Awe baby ! people worry about having kids with Crohn's I had 2 so far they nor my grandkids don't have Crohn's thankfully I have to say kids make you push on bad days & horrible days ! I just say I'm bigger & stronger than you back of Crohn's lol
The only anabiotic take Cipro I think they have cut back way too much on them ! This disease is super tricky can have high white blood count & them it close to normal! Trial error over & over with food the pain it a bummer I would rather take poop test than small bowl followthrew or Colonoscopy ! I hate both! Hopefully you get better!
I’m glad you’re getting good results. I was diagnosed with stage four liver cancer in December of 2022. The liver biopsy was well differentiated, grade 2 neuroendocrine tumors. It started in my small bowel and metastasized to my liver. PET scan confirmed it had not spread to any other parts of my body. I went to an interventional radiologist at Penn Medicine in Philadelphia who specializes in my type of NETS (Neoroendocrine Tumors) and he started me on Lanreotide, performed three TACE (Transarterial Chemoembolization) treatments, removed my gall bladder, removed 12” of my small bowel along with the origin tumor. I continue monthly Lanreotide injections and an MRI every three months. The tumors have greatly reduced in size, my liver has returned to normal size and function, my chromagranin A (NETS marker) count is down to 260 from nearly 6,000 in the beginning and the tumors are not growing or spreading. My current prognosis is incredibly good. I had upper right quadrant pain and thought it was gall bladder, but it turned out to be an enlarged liver since more than 50% of my liver was/is occupied by the NETS. There is currently not a cure for NETS, but the treatments are successful and will prolong life. Never give up hope.
Yall please lemme tell my story 😢 ok, about 5 months ago i got so sick, from 155 ro now 121. Im so sick and they said i have this. I had to take an antibiotic and now this. I cant eat, I'm sick hurting alot & now waiting for the meds hopefully rheyll help. Pkease talk to me about whats next yall ????
I dunno what’s next. i’ve been at the hospital a week on meds dicivir and trying to eat fermented foods with probiotics. hoping it goes away soon. i still have runny bowels and am social distancing away from family because they have challenges. This is anxiety filled and isolating. I guess there was nothing that I could do to prevent this. It’s starting to wear on me :( I hope your out of the woods and better.I’ll pray for us today. Get better soon.
My 19 yr old son got prescribed 10 day heavy antibiotics for H. Pylori . Those antibiotics destroyed his gut, gave him c.diff and now he also got diagnosed w CU! It all stared w the antibiotics. For something you could live w to something that doesnt have a cure. In January he had a colonoscopy to see what was wrong and it was super healthy except for a very barely there bumps that gi said was H.Pylori. After the awful antibiotics for H. Pylori everything escalated fast. Did another colonoscopy now in August and suddenly his colon is destroyed w UC! In 7 months! Dont take antibiotics for non deadly gut stuff
My dad has crohns. I get nauseous very frequently and acid reflux to where I feel like I’m in the verge of puking when I move. I’m scared of all the -oscopies 😢 not diagnosed with anything but “acid reflux” right now
I'm glad it helps you it's help me years ago getting ready for more ! Steroids unfortunately are amazing for Crohn's! Surgeries plenty of those them hopefully I can escape them 30ish years of crohn's! Having a great doc helps
I'm so sorry you had to go through this! I'm 71 and having my first infection and just diagnosed with C-Dif. I haven't have horrible pain like you did so far. I just pray this doesn't come back. I've already had 30 inches of my colon removed after a colon blockage in 2016. That you got your story. You're a lovely young woman!
Thanks so much for sharing, your information is so helpful. I am recovering from c-diff. it's been about 3 months now and getting better. Taking probiotics, more whole foods, more protein and fermented foods, hydration with electrolytes, vitimin D, sunlight and walking more. I still know the c-diff. is trying to fight back it's very stubborn, but we have to be stronger and fight back. With God on our side we will find comfort and prevail. God Bless you
I'm no doctor. But i am a problem solver. Taking probiotics while taking antibiotics should with a high success rate (but not always and some people have allrgies to probiotics) keep you from getting C-diff. I wonder if PRO-STAT will cure Chrones? Pro-stat is a consintrated liguid of Aminos acids to promote internal wound healing. Chrones desease are ulcers on your intestines.
Thank you so much for sharing your experience. I had C Diff for nearly 6 weeks before getting my test results back and getting prescribed antibiotics and it was horrible. It was a pain and discomfort like I had never experienced before. It’s good to know that I am not alone
I caught C. Diff while on vacation in Mexico recently. I shipped to OCS a week later thinking git was just temporary cramps not knowing and turns out not only C.Diff but also E. coli. They really screwed me up and got dropped. Now I'm trying to get back to boot camp but it's still messing with my stomach three months later and I'm worried it'll never go away and keeps delaying my chances to get back to boot camp. Read about the infection and everywhere I look tells me it's almost untreatable. Really hope I can get some answers.
Thankyou for your video it’s so nice to see someone who look like me is educated like me and experienced the same as me . This video answers a lot of worries I have . It also is like having some truly in my corner that really understands what we go through! Most people around me assume I eat bad , dirty and brought this on my self and just say that’s why I eat salads and blah blah and I just want to choke everyone and tell them shut the fu.. up! I’m 43 years old successful union plumber and pipe fitter and I’m a landlord and I run my own LLC . I have a 16 year old son who lives me . I have a lot of people who depend on me and can’t afford to be sick ..in others words I’m not trouble maker or a loser but doctors and many always prejudge me dew to my appearance of being a black male with dreadlocks.. and I have to espy my story just to be treated with some dignity and respect… I sorry just venting…Don’t have anyone who understands me. God bless you and all your love one and thanks again
My dad, who's about 83, and was in really good health contracted c. diff last October, to be honest, it was kind of his own fault, he'd been having lung problems for a while and he took a few old antibiotics that he hadn't finished from a few months before and yeah, killed all the good bacteria in his gut which made it easy for c. diff to take over (advice for anyone on antibiotics, always always, always finish all the doses you're given and never take any old antibiotic that wasn't recently prescribed, bad stuff will happen). Anyways, my dad was in and out of the hospital for months. He hasn't tested positive for it in a bit, but physically he hasn't ever really recovered, and has basically been bed bound since then. He's had other health issues come up the same time as this which just makes everything worse. He had been a fit guy that didn't even look like he was in his 80s before getting sick, this bacterium is maybe one of the worst things ever.
Thank you for sharing. I'm so sorry to hear that your dad is going through this. This is a very tough infection to overcome. I'm glad to hear he's no longer testing positive at least. I really hope things improve for your dad 💟
During C-diff my kidney's started hurting from the antibiotics. Lots of aloe vera juice, cranberry juice, smoothies, lots of water, keep flushing out the toxins. Good luck 🙏
Dang this is me, worst feeling in the world and I had a kid naturally! Feeling like you’re gona vomit and diarrhea at the same time along with chills, intense stomach pain and dizziness is just too much. I’ve passed out several times bcuz of it. Fell right off the toilet and busted my head open. I can’t tell you how many times I’ve been carried out of my apartment by firefighters half dressed cuz I fell off the damn toilet again 😭😭😭😭😭
I have been struggling with stomach problems from high school first i had diarrhea and now i have constant diarrhoea along with stomach pain and vomiting but i dont have blood along with my diarrhoea and i have a minimal inflammation in my intestine and doctors tell me i have bacterial infection and ibs but they end telling i dont have any problem physically its just stress because of my uni so someone please help me with this
@@tainatai. hey I am better, last week I had a scare but it was just post-IBS. The vanco worked for me so far but I have also been eating very strictly for the last 6 weeks. I hope you make a full recovery and are feeling better now
I feel like IBS is a wastebasket diagnosis. That’s my recent diagnosis, and I’m on Prilosec. But I suspect that my symptoms are an early onset of Crohn’s. My mom has it 😔
i’m sick with this rn. on dificid and taking florastor probiotic. i didn’t have any of the tell tale symptoms at all!! for the last 3 months, my docs didn’t even think it was an infection. gastro and primary thought it was IBS or IBD. just constipation, w/ very slimy mucus riddled stools. sometimes i had blood in my stool w/ the infection but wiped a bit of blood before, but w/ this it was more. i couldn’t eat, still can’t or even feel like i want to. and i only ever had a fever once. my doc still wants to do a colonoscopy i think bc the only thing that showed up on a CT scan was inflammation of the lower half of my small bowel. hope i don’t have an underlying IBD but if i do i wanna just go ahead and get treated for that. only thing i’m scared of is reinfection and the recovery seems intimidating 😬 don’t even know how i got it. i’m guessing from food. but no idea still. i took flagyl for BV that was caught from a pap-smear by chance, but i had been having constipation before the antibiotics. which i also never had before, both BV and the antibiotics. but that didn’t cure c diff and now my BV is back. but imma apply flagyl cream now bc the flagyl pill was awful for me, and now i feel like it aggravated the c diff 😭
I have health anxiety (hence why i am watching this video...because I think I have everything lol)...but I admire your courage. How are you strong through all this pain?
Thank you so much for sharing, I'm currently in the process of being diagnosed but it is a long and grueling one. Even with immediate family diagnosed and the disease being hereditary I'm still being pushed away by hospitals and specialists because they wont take my "invisible" symptoms seriously. I think my stories very similar to yours in a sense that i was also working child care when my symptoms became so sever that i ended up in the hopsital and had to leave my job a few months ago.. since then ive been on a number of meds prescribed by my PCP and nothing has helped. My doc thinks i have an abdominal hernia from the constant flaring so i have a ultrasound coming up that im PRAYING will give answers/push me in the right direction. 9 months of flaring and ive lost 40lbs. Pray for healing soon, your story made me feel more hopeful and less alone. ❣️
Thank you for this video. It was very informative. Just one bit of criticism... It's hard for me to hear your soft voice over the music. The music is competing with you, and I don't think it's necessary.
Finally going to get my Crohn’s screening done after watching this. I’ve had severe IBS symptoms along with gluten intolerance since I was a child and I learned to just “tough it out”. It has now gotten to the point where I have very few normal days where I’m not in some kind of pain or discomfort. And there’s been days where the pain has taken me to the ground like I’m giving birth. I’ve started taking some medicine for intestinal spasms to help with the acute pain in my colon, but yes GI issues are unseen, but debilitating if they go on for years. I originally thought my current issues where caused by a punctuating kidney stone, but after the removal of the stone, my left flank pain came back and that’s when I was told to see a GI to get a colonoscopy. Crohn’s and IBD of any kind can cause nutrition malabsorption in young “healthy” adults, and can result in things like kidney stones and gallstones. Don’t minimize your pain people! Get some insurance and get checked. I went months not knowing what was really wrong, and ended up taking medicine and supplements that made it worse.
The clindamycin didn’t give you cdiff!! Clindamycin made your body hospitable/ made you at risk to CATCH it from your environment. Cdiff lives all around us especially in hospitals. 😮
I am 73. I keep getting c diff from antibiotics. I’ve been sick again and suspect I have it again. So so sick, it’s horrible. Chills, body aches, stomach cramp, diarreah, I feel like I’m going downhill. Did you get really sick in general from c diff. Extreme body aches, very sick digestive stuff, chills, headache, etc? I’m scared I’ll never get better..bon
I was hospitalized for 5 days after a 14-day round of Dificid failed within three days of stopping it. Had Vanco in the hospital, then a 21-day taper of Dificid. The day I took my last Dificid pill, I tested negative for an active infection, but I am still quite ill with all of those symptoms. I have burning from my stomach to my lips, brain fog, cramping off and on, extremely tired and weak, dizzy at times, etc. I don't have diarrhea any more (maybe mush occasionally). I don't understand why I feel so bad if there isn't an active infection. It feels like I'm being poisoned. I wish my doctors could give me more clarity. My kidneys and gallbladder have been scanned and a CT scan was done in the hospital. I know my blood work is still a mess.
I've done Vanco and Dificid, both didn't work, im very worried at what to do next. The doctor wants to try Vanco taper but Im afraid it wont work. I just rather go straight to FMT
فى بلادنا ليس لدينا اطباء متخصصين فى النوع من الاورام واريد اى احد يساعدنى فى خبراته حيث ان زوجتى تعانى من هذا النوع من الورم فى البنكرياس وهناك نقائل فى الكبد
Thank you for your Story. If only more people would share vs. hiding the true fact of something embarrassing as "poop" to talk about. I was diagnosed early this year. I was visiting my mother in a nursing home. Talk about the saying "I brought you in to this world and I can take you out". I'm trying not to be so cold but the pain and hurt is so real. I rather have not known how I contracted the disease. I have just finished on my second round of Vancomycin, and I am 59 years of age. I have two more weeks before I can get into see the Gastroenterology. I'm trying to stay positive but it is becoming difficult. I go into health care and I feel unclean and dirty especially since it came back. One thing that I am trying to do is work on my good gut biome. Probiotics are good and all but focus on more of prebiotics. I have made fermented garlic with honey and Elecampane tea from roots and eat the roots as well. Three times a day, to help promote the good health in the gut. I haven't made the announcement yet of this disease but hope to soon after I see my Doc in gastro. For any updates of my herbal help in healing this horrific disease and other herbals, look me up on FB at Homesteading_for _two also on Instagram. Prayers for continue healing and look forward to following you on your journey as well.
You dont get C diff from an antibiotic…you ingest C diff spores from public restrooms or restaurants or hospitals. Its an opportunistic bacteria. So if you have C diff spores in you, when you take any antibiotic, you kill off all bacteria including good and thats when C diff thrives since there is no more good bacteria to keep it in check. So not everyone will get sick if they take Clyndamicin or any Fluoroquinolone nor Cephalosporins unless tbey have C diff spores already in them. I had undiagnosed C diff for more than 10years. I was 18 when I started with Symptoms…Doctors kept gaslighting me and sent me to psychologist and psychiatrists and kept telling me it was ibs and that I was a hypochondriac. etc. After 3 sinus surgeries which I had to get because the C diff caused sinus after sinus infection and the gerd, I was prescribed tons of antibiotics and the C diff thrived! Took me 4 years to get rid of it and no antibiotic was working. FMT didnthat Job.
