My Diagnosis Story: Crohn's Disease 

I almost cried finding this video. I am also someone with Crohn's and it is hard to find someone who looks like me that shares the same experiences. You definitely have a subscriber!

Also do take coconut water and goats milk -antinflamatory , avoid fatty food , carbonated drinks , alcohol , spicy food and eat on time. Try Homeopathy medication will help a lot.

Girl the pain with Crohn’s is SO UNREAL!!!! I say it’s worse than childbirth. Because it is!! There is no let up at all…. I’ve had a few flare ups again after my first one and the last one I swear I almost went home to God girl!! I literally said I give up out loud. I feel you 💯 and prayers for you ❤

I was just diagnosed today! I would have severe stomach pain and I was given IBS medication today I had an endoscopy and colonoscopy and was diagnosed with crohns

I think the worst part of all of this is bouncing around doctors and specialists, I've been to 14 now and still no actual diagnosis

Thank you for sharing!!! My colonoscopy told my Doctor I had Crohn Disease!!! Then I found out that my body is allergic to "anti-inflammatory" drugs!!! What helped me the "most" is I had to "accept" my body could "only" digest two meals a day!!! This took most of my "discomfort" away!!!! Everyday I must decide on breakfast or lunch and then dinner!!! My breakfast or lunch can be a "heavy" meal with 4 or 5 items!!! My dinner is a "light" meal maybe three items before 8PM!!! My goal was to "not" feel "bloated" but have a "calm" digestive routine after eating!!! I had to "implement (4) areas to improve my overall health!!! (1) Go to the bathroom every four to five hours (2) Eat two meals a day (3) Drink 90 oz of water a day (4) Must sleep 8 hrs straight at night. Setup a monthly "food diary" to list the "yes & no" food I can eat each month. On my "no" list: wheat bread, dairy products, tomatoes, bananas, oranges & spicy foods. On my "yes" list: yogurt-dairy free, watermelon, blueberry, sherbet, chicken, seafood, oatmeal, broccoli & pasta & brown rice!!!

I have it too and it started when I noticed alot of blood coming out and diarrhoea and I had to go to the toilet really urgently. I sometimes feel embarrassed about it when I have the symptoms but I always feel relieved when I find people who also have it too ❤

My goodness I've had this yucky disease since 2012 it took 5 months in the hospital before they diagnosed me. It was so scary. NG tubes biopsy this that diarrhea horribly 5-7 times daily incontinence at night just an awful mess. Right now I'm going thru a flare, super nausea's. I'm praying for all of us with this disease. I'm having kidney infections out of nowhere, no energy very depressed super super sad just all kinds of stuff. My eyes are awful distance is insane waiting for the eye doctor to see me it's all just so much.

The Struggle Is So Real And Most People Not Even Doctors Understand It 😲

I was diagnosed with Crohn’s disease in 2000. I too had a horrible time before my diagnosis

Thanks for your sharing info for all new sufferers.

I cannot express how seen it made me feel to hear your story. I took the same medication to combat a bout of strep about 6 years ago and also ended up catching c-diff. After I beat the infection I ended up still having symptoms and got diagnosed with crohn’s after a doctor found ulcers all along my GI tract. Thank you for sharing your diagnosis, I have never heard of someone with a similar experience to mine

Excellent talk, presented really well, very easy to follow!

Super relatable, I started having symptoms in 2013 but they were mild until 2014 where I started getting that "urgency" feeling where I had maximum 5 minutes to get to a bathroom or I'd need new pants. I had no control over my bowels and I would have to go multiple times a day and usually each visit to the bathroom would last an hour or so. Time and time again I skipped school cause of the pain and the amount of times I tried to make it to school but ended up "not making it" so that long bus ride would get really awkward and nasty if you catch my drift. Luckily I never got caught for it happening in school cause the bullying would have been relentless but skipping school all the time really didn't help my reputation either. It didn't help that the first doctor I went to visit about the problem told my mom straight up that I was lying. My whole family thought I was lying except for my mom cause it wasn't normal for a kid to keep going to the bathroom when they're at home especially when I had no kind of game I could take in there. It also helped that I had a family member who had crohn's as well but his is the worst case scenario where he has a bag attached to his side for the rest of his life, because of him my mom had an idea of what I had so she took me to another GI and after getting a colonoscopy and endoscopy she found my stomach painted with ulcers after seeing this she decided to give me..... lactose pills. Needless to say that didn't work and because of all the school I missed I was barely getting through my first time at summer school. Then I finally went the doctor my family member suggested and they diagnosed me with chron's disease. Everything you described being the pain, cramps, canker sores, diarrhea and constipation I dealt with for around 3 years until I finally got medicine but no one really ever takes the disease seriously. I never look for pity but having people completely disregard it as a serious issue was always an incredibly tough thing to go through even now.

This video is very helpful. While I havent experienced some of what you have experienced, I can relate in parts. I have Acid Reflux. About 3 weeks ago I did a colonoscopy and endoscopy, I was recently diagnosed with mild Crohn’s disease. I have my official doctors appointment tomorrow to discuss treatment etc. But I too would have had random periods where I was in pain, nauseous, feeling like I was going to 🤮. There was one specific time (long story short) where I didn’t eat much before going to my schools Gala (lived my best life). As soon as me and my man left instantly felt like I needed to go, my face felt prickly, nauseous, and I experienced extreme pain in my side, ovaries, and lower back. Showering did not help and moving made it worse. Let me not go on a rant. Thank you so much for sharing your story. It’s rare to find WOC or POC in general, who are raw and honest about their journey. I hope you are doing well. Sending prayers your way.

Thank you söö much highly appreciate new vidieos about your medication and present situation ❤

You are so relatable 💜 I was diagnosed w/ Crohn’s last week. Instant follow!

I love you, you are so strong. thank you for sharing

It's so relevant.. suffering from hell symptoms yet nothing significant in test reports kills us everytime..but finally when i had my Crohn's diagnosis, i was relieved i have a cause, atleast.

Thank you so much for sharing, I'm currently in the process of being diagnosed but it is a long and grueling one. Even with immediate family diagnosed and the disease being hereditary I'm still being pushed away by hospitals and specialists because they wont take my "invisible" symptoms seriously. I think my stories very similar to yours in a sense that i was also working child care when my symptoms became so sever that i ended up in the hopsital and had to leave my job a few months ago.. since then ive been on a number of meds prescribed by my PCP and nothing has helped. My doc thinks i have an abdominal hernia from the constant flaring so i have a ultrasound coming up that im PRAYING will give answers/push me in the right direction. 9 months of flaring and ive lost 40lbs. Pray for healing soon, your story made me feel more hopeful and less alone. ❣️

Very helpful just to listen to someone else talk about their journey. Thank you. Recently diagnosed and it's been a whirlwind! I really had very limited knowledge of this disease before recently and it's a whole new world now! Wouldn't wish this on anyone!

I’m glad I found your video. I was just about to ask if you had a colonoscopy. I’ve been dealing with similar symptoms for a while now. I’ll be calling the doctor’s office back Monday 🤦🏾‍♀️. It’s just the journey of dealing with the doctors and tests after tests.

Going through this too. I get bouts of canker sores up to five in my mouth at a time. The nausea. Urgency, constipation it comes in waves though. Sometimes I'll feel perfectly fine for two three weeks at a time other than having constipation and whatnot and then I go straight back to everything happening all at once. I have a colonoscopy at the end of the month I hope they can tell me what's wrong with me finally. It's definitely not fun having to know where the bathroom is every single place that you go and dreading going on long car rides.

Deff looking forward to the c diff video!

C-DIFF is extremely hard to get rid of it's insane. The antibiotic killed all of the good flora in your gut. I am soo happy you are okay. God bless you!

I am going through terrible abdominal pain and urgency every 20 minutes or so. While sleeping I can go an hour or two. I’m also too nauseous to eat anything solid. I get chills and am too dehydrated for my doctor to get blood sample. This has been going on for almost a week and I am waiting for a colonoscopy appointment. I have been struggling with unexplained joint pain and shorter lived bouts of pain and diarrhea at random. I am so scared and feel like I am dying. I am so thankful to see someone who has been through someone who has been through these symptoms and is finding ways to manage and live with it.

Love the glasses. Hope you’re better. 😊❤

My dear, thank you for sharing your journey ❤ I wish you all the best, stay strong!

I am so happy I found u. U look like me. Bless u &;Thank u

Pretty nervous to go through all this. But I had what I think was a flu, threw up and had horrible stomach aches. Fast forward a month, I’ll randomly get nauseous like once a day, have like a cramp feeling in my left lower area of the stomach or sometimes the right side. But this video kinda helped me relax and not worry as much. :)

So sorry that you have to go through this! Would love to see what you changed in your diet that may have helped with less inflammation.

Finally going to get my Crohn’s screening done after watching this. I’ve had severe IBS symptoms along with gluten intolerance since I was a child and I learned to just “tough it out”. It has now gotten to the point where I have very few normal days where I’m not in some kind of pain or discomfort. And there’s been days where the pain has taken me to the ground like I’m giving birth. I’ve started taking some medicine for intestinal spasms to help with the acute pain in my colon, but yes GI issues are unseen, but debilitating if they go on for years. I originally thought my current issues where caused by a punctuating kidney stone, but after the removal of the stone, my left flank pain came back and that’s when I was told to see a GI to get a colonoscopy. Crohn’s and IBD of any kind can cause nutrition malabsorption in young “healthy” adults, and can result in things like kidney stones and gallstones. Don’t minimize your pain people! Get some insurance and get checked. I went months not knowing what was really wrong, and ended up taking medicine and supplements that made it worse.

Wow! I have almost all of these symptoms down to a T! Including the symptoms being exasperated by antibiotics I was prescribed for mysterious red bumps that kept appearing and opening on my legs (doctors thought it could be staph infection but the antibiotics didn't work and came back negative for bacteria). Just got a colonoscopy done a few weeks ago and they found severe inflammation and ulceration. Doctor said it could be crohns and im going to get a diagnosis soon

Thank you so much for making this video, i really appreciate it! ---Hey does anyone else get those throw up reactions but while going to the bathroom, not necessarily from nausea like...contractions?

Thank you! Currently suffering like no other..simlar situation. GI issues for years thought it was ibs. The last 2 years horrible joint pain , positive ana marker, doctor after doctor came up short because i look and act healthy all the while same on off GI stuff. Recently for the past 3 months work up nauseated every morning and had spells through the day, felt full easy, burning and swollen upper abdomin. Blood work showed high H pylori.... treated for that which only helped a little with the upper burning. Finishd antibodics (which have always hurt me) tested negative but now everything is worse... pockets of horrible pain the same spots through my stomach but the worst is lower right abdomen all day pulsating cramping and aching. No appetite like zero, I am wasting away. Found blister like sores on my elbow and a few fingers, my eyes feel swollen and now my ribs hurt. I can barely pass anything remotely soild now... Currently waiting for a scope from both ends on the 24th. At this point I just answers. Appreciate you. Thank you if you read this far.

Hi, Ira.Watching your video really gave me courage to come out with my crones and ulcertive colitis. I was first diagnosed with crohns and ulcerative colitis when I was seventeen years old , january of twenty twenty three 1 years ago and now i'm eighteen years old , so 2 years ago and my symptoms were loss of appetite tired all the time. Lesions that were purple reddish Looking, they were on my face, my legs, the bottom of my feet, on top of my feet my armpit and my mouth. Blood in my stool. The scars really hurt myself. Esteem, because I don't feel pretty with my scars on the outside of my body nor on the inside of my body, it really does discuss me that I have those scars on the inside of my body. I had a colonoscopy March 2024 on the 14th. And they said I look good during my endoscopy and my colonoscopy. But the doctors want me to take treatment which I don't mind, but it is really hard to have a terminal disease. Because you have to have to get your mind in a certain mindset to where you know. You can beat this thing even on your bad days and I'm being honest. I've had more bad days than I have good honestly and? I need to stay close to Christ cause I know that he's my rock and my redeemer. And my very best friend and my healer? And this disease really affected me more than what it was supposed to. And that's what's the worst part about it and my real name is Samantha. And people say Samantha's are smart, attractive, funny and kind and honestly , don't feel attractive at all. And it's really hard to live up to your name when you have scars on the outside of your skin, which don't make you very attractive in my opinion. And I don't like having to wear long skirts and hide my legs and stuff. Because they are scarred basically and I have a scar on my cheek and I don't like that and I do get out in the sunlight and try to get sun to my legs and my skin and put coc butter on them to bribg color back and everything. but your story really did help me. And cause I really thought I was the only one you know, when you go through something you think you think you're the only 1 and that tends to make you angry but? To know I'm not the only one that had a severe case of the disease.Really does make me feel good and it doesn't make me feel like it's entirely my fault that I have ait yk.❤❤

I'd been telling these doctors for 2 YEARS that I have chrons! The PAIN...and I almost bled to death last year. They just diagnosed me last month with perianal chrons and HS. they said it's a rare form of chrons, I'm probably getting my rectum removed (got a colostomy bag unexpectedly in 2021, guess its permanent now). Gonna get my first infusion of remicade Thursday....lord help... AND I'm anemic with alpha thalassemia...

Hi im new to your channel. I hope you are better today I have this to it's also bc of my period but now I take tepo shots it works.

ALOT of antibiotics do that to me BE CAREFUL! My Dr always gives me a z-pack because they don’t tear me up.

You have been through HELL. Bless you

I just got diagnosed with Crohn's. And it's draining me out like hell..

I got diagnosed in 2019

Had to have an emergency CT scan. It showed my ileum is collapsed. I’ve had several of your symptoms. Shooting pain in my stomach. Pressure in my bottom that feels like childbirth. I haven’t been diagnosed yet, but I’m praying I can get one soon so I at least know!! Any recommendations for me to ask GI dr?

Hi I'm on week 5 of humira Tommorow. I've had a flare up yesterday. Does that mean humira isn't working for me I appreciate ur not a doctor. What week did it work for u. I've read it can take between 2 and 12 weeks. Does that mean still a chance I can see results as on week 5. Many thanks look fwd to ur reply.

Clindamycin is a STRONG antibiotic. Was that antibiotic necessary? Goodness. Off topic, I guess. Thanks for sharing.

we literally have the same diagnosis story. I am still trying to figure this disease out and my doctors are not being any help.

I am experiencing almost to a T what you had I just hope someone can find an answer 😭

I feel like IBS is a wastebasket diagnosis. That’s my recent diagnosis, and I’m on Prilosec. But I suspect that my symptoms are an early onset of Crohn’s. My mom has it 😔

Clindamycin sucks I’m allergic to it really bad. I’ve had E. coli many times. And I was diagnosed with lymphatic colitis now dealing with mostly likely Crohn’s

How can it dignoes

Do you guys have abdominal pain like all the time?

I have Crohns Disease Since 2010 I was Diognosed.

I struggle with constipation & horrible nausea every single day they told me it was IBS & acid reflux I lost 20 lbs. a week ago my appendix was inflamed and when they went in with the camera (laparoscopic) they saw my cecum & my large bowel was also inflammed so they took that all out & I most likely have chrons , I have to do a colonoscopy but I’m so scared to do the prep since I’m always nauseous

Allergies will create symptoms like you describe if you continue to eat the things.

Do you exercise? If yes then what kind of exercise suits you?

The acid medication they put you on was Omeprazole?

so i have like all these symptoms but i’ve never had like a “flare up” is there a chance i still have this? i’m going to the gi in april

Did you also struggle with bloating a lot? I feel like every time I eat or drink anything I get painful bloating

“… I would have to hold on for dear life … ” my god I know that feeling Also I never knew cake pops would change someone’s life so drastically and I shouldn’t have laughed but I understand completely. It was sweet potato that changed my life LOL

So horrendous. What an awful disease.

Wheat, Wheat, Wheat

Sister can you tell me that black stools are also a symptom of crohn disease?

Oh my god you're so beautiful😍😍🤩🤩🤩🤩🤩😇😇😇

Chrons disease never diagnose.