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My Experience with Severe C. Difficile Infection| Inflammatory Bowel Disease| Crohn's Disease 

Ira's Crohnie Diaries
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28 сен 2024

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Комментарии : 215   
@janycebrown4071
@janycebrown4071 9 месяцев назад
The C Diff spores are almost untreatable! I caught C DIFF in July, 2023. I was in the hospital after blood loss. I haven't taken antibiotics for about 6 years, but I had a compromised system so I caught it! Hand sanitation will alcohol DOSE NOT KILL THE SPORES! You MUST use soap and water! Im am in a 70 day study using Egg Yolk Antibodies! Wish me luck 🙏 ❤
@briardevito1811
@briardevito1811 2 месяца назад
How are you doing now? Did the egg yolk antibiotics work?
@janycebrown4071
@janycebrown4071 2 месяца назад
@@briardevito1811 I am cured from C Diff! Unfortunately it wasn't the the egg yolk antibodies that cured me. Three months ago my doctor put me on antibiotics, and then two weeks later I received an FMT 🌝 And that was what has cured me of C DIFF!
@trtheregular3732
@trtheregular3732 2 месяца назад
Thankyou for your video it’s so nice to see someone who look like me is educated like me and experienced the same as me . This video answers a lot of worries I have . It also is like having some truly in my corner that really understands what we go through! Most people around me assume I eat bad , dirty and brought this on my self and just say that’s why I eat salads and blah blah and I just want to choke everyone and tell them shut the fu.. up! I’m 43 years old successful union plumber and pipe fitter and I’m a landlord and I run my own LLC . I have a 16 year old son who lives me . I have a lot of people who depend on me and can’t afford to be sick ..in others words I’m not trouble maker or a loser but doctors and many always prejudge me dew to my appearance of being a black male with dreadlocks.. and I have to espy my story just to be treated with some dignity and respect… I sorry just venting…Don’t have anyone who understands me. God bless you and all your love one and thanks again
@emanuel0417
@emanuel0417 Месяц назад
Thanks so much for sharing, your information is so helpful. I am recovering from c-diff. it's been about 3 months now and getting better. Taking probiotics, more whole foods, more protein and fermented foods, hydration with electrolytes, vitimin D, sunlight and walking more. I still know the c-diff. is trying to fight back it's very stubborn, but we have to be stronger and fight back. With God on our side we will find comfort and prevail. God Bless you
@Gucci24736
@Gucci24736 Месяц назад
Thanks I needed that one just found out yesterday 😢I’m lost for words all I wanna do is pray
@jessicakimberly1996
@jessicakimberly1996 8 месяцев назад
Thank you for this. Was just diagnosed with C Diff. Came out of nowhere. We're trying to afford the medication. Wish me luck.
@kindermaus
@kindermaus 7 месяцев назад
@jessicakimberly1996 may you recover completely and quickly return to your normal life
@kayb50
@kayb50 3 месяца назад
Good RX
@kmaben8985
@kmaben8985 3 месяца назад
Multi strain, 18 strains at least, of probiotics, restore good bacteria. Oil of oregano helps keep bad bacteria at bay.
@danibohbot7066
@danibohbot7066 6 дней назад
I love your videos. I have battled c diff twice, once at 20, and once now, 27-28. It’s been going on 11 months of pure hell. They are actually considering I have Crohns because my GI symptoms are wild and don’t correlate with my age. Thanks for sharing, hope you are doing well.
@uadialesandra
@uadialesandra 2 дня назад
Thanks so much *MR OBALAR* on RU-vid for curing me from Herpes, keep saving lives.❤❤😊.
@machelanderson3885
@machelanderson3885 5 месяцев назад
Thank you for your Story. If only more people would share vs. hiding the true fact of something embarrassing as "poop" to talk about. I was diagnosed early this year. I was visiting my mother in a nursing home. Talk about the saying "I brought you in to this world and I can take you out". I'm trying not to be so cold but the pain and hurt is so real. I rather have not known how I contracted the disease. I have just finished on my second round of Vancomycin, and I am 59 years of age. I have two more weeks before I can get into see the Gastroenterology. I'm trying to stay positive but it is becoming difficult. I go into health care and I feel unclean and dirty especially since it came back. One thing that I am trying to do is work on my good gut biome. Probiotics are good and all but focus on more of prebiotics. I have made fermented garlic with honey and Elecampane tea from roots and eat the roots as well. Three times a day, to help promote the good health in the gut. I haven't made the announcement yet of this disease but hope to soon after I see my Doc in gastro. For any updates of my herbal help in healing this horrific disease and other herbals, look me up on FB at Homesteading_for _two also on Instagram. Prayers for continue healing and look forward to following you on your journey as well.
@tarahoude5135
@tarahoude5135 8 месяцев назад
I had c.diff for over 4 years before it was diagnosed. It wasn't for lack of complaining about my symptoms...I was put right on antibiotics. My doctor now has me on 10 weeks of prednisone, in hopes to reduce swelling in my colon from the colitis. I'm still in so much pain. This is a horrible disease!
@erical7131
@erical7131 5 месяцев назад
Prednisone can also make C diff come back. I know out of experience. Have you tried other alternatives like a Turmeric or ginger?
@tarahoude5135
@tarahoude5135 5 месяцев назад
@@erical7131 It did come back, tenfold! It was terrible. I'm positive it's back again. It's wearing me out! I have been drinking turmeric and ginger teas. That's it. I won't see my specialist until September, that's so far out!
@feefee3036
@feefee3036 4 месяца назад
@@erical7131can u explain
@ndidinwanaforo
@ndidinwanaforo 3 месяца назад
I don’t believe prednisone treats c-diff
@erical7131
@erical7131 3 месяца назад
Same here, I went a little over 10years undiagnosed. I was sent to psychiatrists, psychologists and told I was a hypochondriac. I was given so many corticosteroids, antibiotics and antihistamines but yet they never tested my stool. I felt horrible for years!
@yolivina445
@yolivina445 Месяц назад
My 19 yr old son got prescribed 10 day heavy antibiotics for H. Pylori . Those antibiotics destroyed his gut, gave him c.diff and now he also got diagnosed w CU! It all stared w the antibiotics. For something you could live w to something that doesnt have a cure. In January he had a colonoscopy to see what was wrong and it was super healthy except for a very barely there bumps that gi said was H.Pylori. After the awful antibiotics for H. Pylori everything escalated fast. Did another colonoscopy now in August and suddenly his colon is destroyed w UC! In 7 months! Dont take antibiotics for non deadly gut stuff
@mayflows12
@mayflows12 3 месяца назад
Thank you for making this video, I am actively in a C diff infection on Vancomycin- thank you for making this video as it gives me hope
@briardevito1811
@briardevito1811 2 месяца назад
@@mayflows12 how are doing?
@LayaliBaghdad
@LayaliBaghdad 2 месяца назад
Hey! How are you feeling now? any change in diet?
@irascrohniediaries
@irascrohniediaries 2 месяца назад
I hope you are feeling a bit better since you left this comment! Thank you for sharing
@tainatai.
@tainatai. Месяц назад
How are you now ? Im on the same medicine...day 8 ....4 times a day
@mayflows12
@mayflows12 Месяц назад
@@tainatai. hey I am better, last week I had a scare but it was just post-IBS. The vanco worked for me so far but I have also been eating very strictly for the last 6 weeks. I hope you make a full recovery and are feeling better now
@thebigerns
@thebigerns 7 месяцев назад
THANK YOU for making & sharing this video… we all know how hard it is to discuss this stuff and how welcome it is hear an actual human speak from a shared experience instead of just that cold and clinical doctor medical-speak. This disease and its treatment makes me feel so untouchable, so separated from other humans and humanity. It kills my spirit even as its killing my guts. Doctors can't really treat the isolation or shame C.diff produces, or hand out injections of courage when needed… just hearing that I'm not alone is so good right now, when all doctors can offer is medicine… don't get me wrong - love my doctors & care teen BUT they are all on the other side of shared human exprtornce. Thank you, sorry for rambling.
@irascrohniediaries
@irascrohniediaries 2 месяца назад
Please, ramble on! I completely understand how isolating it feels. I hate that I'm so late reading this but I'm so happy to hear this has made such a positive impact. Your kind words were much needed today.
@gasconnade9863
@gasconnade9863 8 месяцев назад
thank you for sharing your story. i had c diff for over two years- it must have been off and on, but i had to quit jobs because of it. awful pain.
@briardevito1811
@briardevito1811 2 месяца назад
I’m sorry. What finally cured you. I’ve been off Dificid since Saturday. Today is Tuesday and I already feel like it might be back
@gasconnade9863
@gasconnade9863 2 месяца назад
@briardevito1811 I'm sorry that your symptoms aren't subsiding. I don't remember what medication I was on- I can go find the name from the pharmacy if you'd like. I definitely recommend going back to the physician who diagnosed you and seeing if you still have it and their suggested treatment. Treating cdiff sucks and I really wish you luck.
@audreystarr6166
@audreystarr6166 7 месяцев назад
Girl not tmi at all. It's a relief to hear u be so open. Thank u. I was just diagnosed 2 days ago. I have ibd, recurring sibo, and autoimmune issues..and have zero care atm besides the urgent care I went to. How do u know when u need to be hospitalized? I'm still running to the toilet at least every hour. 2 days ago it was every 5-10 mins alllllll day and into the next day. I'm on antibiotics for it but it's really really uncomfortable/painful and I'm so swoolen.
@kmaben8985
@kmaben8985 3 месяца назад
Please get multi strain peobiotics.
@patriciagulizia3780
@patriciagulizia3780 5 месяцев назад
Thank you so much! Over 65 and on my second round of c-diff. Have been prescribed Dificid so I am hoping for success. Your video has been very informative!!
@joshborja8012
@joshborja8012 4 месяца назад
Did it work. I am on dificid right now. Third day taking it
@patriciagulizia9736
@patriciagulizia9736 4 месяца назад
@@joshborja8012 So far so good!!
@briardevito1811
@briardevito1811 2 месяца назад
@@patriciagulizia3780 Did it make it go away for you. I feel like 10 days wasn’t enough
@anjbum
@anjbum 6 месяцев назад
Ira, thank you so much for sharing this hugely important information!!! I literally got more information watching and listening to you than I did in all my reading. God bless you!
@parnazehsaan7918
@parnazehsaan7918 Месяц назад
Thank you so much for sharing your experience. I had C Diff for nearly 6 weeks before getting my test results back and getting prescribed antibiotics and it was horrible. It was a pain and discomfort like I had never experienced before. It’s good to know that I am not alone
@pinkish6154
@pinkish6154 3 месяца назад
i’m sick with this rn. on dificid and taking florastor probiotic. i didn’t have any of the tell tale symptoms at all!! for the last 3 months, my docs didn’t even think it was an infection. gastro and primary thought it was IBS or IBD. just constipation, w/ very slimy mucus riddled stools. sometimes i had blood in my stool w/ the infection but wiped a bit of blood before, but w/ this it was more. i couldn’t eat, still can’t or even feel like i want to. and i only ever had a fever once. my doc still wants to do a colonoscopy i think bc the only thing that showed up on a CT scan was inflammation of the lower half of my small bowel. hope i don’t have an underlying IBD but if i do i wanna just go ahead and get treated for that. only thing i’m scared of is reinfection and the recovery seems intimidating 😬 don’t even know how i got it. i’m guessing from food. but no idea still. i took flagyl for BV that was caught from a pap-smear by chance, but i had been having constipation before the antibiotics. which i also never had before, both BV and the antibiotics. but that didn’t cure c diff and now my BV is back. but imma apply flagyl cream now bc the flagyl pill was awful for me, and now i feel like it aggravated the c diff 😭
@nancyp4337
@nancyp4337 Год назад
Thank you so much for sharing your story. I went undiagnosed with CDiff for almost 10 months!! My final trip to the ER I was almost delirious, dehydrated, swollen and sore. A wonderful doctor finally figured out what was wrong with me. I just finished a 2 week course of Vancomycin and am waiting to see how I get along. I also got a related arthritis that CDiff triggers. Did you experience that as well?
@jenniferlloyd9574
@jenniferlloyd9574 10 месяцев назад
Undiagnosed for 10 months?! I'm so sorry... Were you having chronic diarrhea the entire time??
@nancyp4337
@nancyp4337 10 месяцев назад
@@jenniferlloyd9574 pretty much the whole time. At the end i was losing 6-7 pounds a week. I just found out I have colitis, maybe from the cdiff.
@Dwightinho56
@Dwightinho56 10 месяцев назад
Me too!! I am still not 100% over it but much better after I did an FMT (fekal microb. transplant) in June, and I’m slowly but surely getting there🤗. The arthritis connection you mention is very interesting🤔. After the C diff I have had a sudden problem with all joints. At once🤣. It is very weird. Do you know any more about this?
@jcdanforth
@jcdanforth 8 месяцев назад
I have this now. I super frustrated. I’m 52. Took no antibiotic to get it. But I was in a hospital for weeks with my mom and my dad lives in assisted living. I don’t know how this happened. I am on 3rd round of medication vancomycin. The dificid is 4000$. They want me to see GI on Feb 14th. I guess next would be stool sample. But I went to hospital twice when I thought it was gone due to heart rate and headache. My wbc is fine. Everything fine. But I have slight inflammation. This started last October. 😢
@aliarose2090
@aliarose2090 3 месяца назад
I have health anxiety (hence why i am watching this video...because I think I have everything lol)...but I admire your courage. How are you strong through all this pain?
@kristis4147
@kristis4147 7 месяцев назад
My nephew just got diagnosed with this. THA K YOU FOR SHARING YOUR JOURNEY
@charlottehayward5943
@charlottehayward5943 Год назад
My husband had this. His Dr. Finally put him on Flagyl long term. After 3 months he got over it. It is a probiotic.
@Dwightinho56
@Dwightinho56 10 месяцев назад
Flagyl is not probiotic but an antibiotic.
@nathanharper3896
@nathanharper3896 6 месяцев назад
I have it now, was diagnosed a week ago, waiting for the robotic surgery.
@tm5346
@tm5346 10 дней назад
The only anabiotic take Cipro I think they have cut back way too much on them ! This disease is super tricky can have high white blood count & them it close to normal! Trial error over & over with food the pain it a bummer I would rather take poop test than small bowl followthrew or Colonoscopy ! I hate both! Hopefully you get better!
@uadialesandra
@uadialesandra 2 дня назад
Thanks so much *MR OBALAR* on RU-vid for curing me from Herpes, keep saving lives.❤❤😊..
@bonchauvin5744
@bonchauvin5744 4 месяца назад
I am 73. I keep getting c diff from antibiotics. I’ve been sick again and suspect I have it again. So so sick, it’s horrible. Chills, body aches, stomach cramp, diarreah, I feel like I’m going downhill. Did you get really sick in general from c diff. Extreme body aches, very sick digestive stuff, chills, headache, etc? I’m scared I’ll never get better..bon
@whome1299
@whome1299 Месяц назад
I was hospitalized for 5 days after a 14-day round of Dificid failed within three days of stopping it. Had Vanco in the hospital, then a 21-day taper of Dificid. The day I took my last Dificid pill, I tested negative for an active infection, but I am still quite ill with all of those symptoms. I have burning from my stomach to my lips, brain fog, cramping off and on, extremely tired and weak, dizzy at times, etc. I don't have diarrhea any more (maybe mush occasionally). I don't understand why I feel so bad if there isn't an active infection. It feels like I'm being poisoned. I wish my doctors could give me more clarity. My kidneys and gallbladder have been scanned and a CT scan was done in the hospital. I know my blood work is still a mess.
@CynthiaBishop-tl4ib
@CynthiaBishop-tl4ib 7 дней назад
Have they checked you for sepsis?
@DRSRPrime
@DRSRPrime 12 дней назад
I remember one day i was eating grapefruit…. It was literally the only thing I ate that day… BAD IDEA… I was thinking “this can’t be life!”
@uadialesandra
@uadialesandra 2 дня назад
Thanks so much *MR OBALAR* on RU-vid for curing me from Herpes, keep saving lives.❤❤😊..
@MrDerekRobinson
@MrDerekRobinson 8 месяцев назад
It's a really great possibility that you could have caught c diff from the daycare. Its very common in children overwhelmingly. How can it be determined that you definitely didn't get it from daycare? My daughter had it alot in daycare and it's contagious amongst children but it's typically mild cases
@brendand8794
@brendand8794 4 месяца назад
I've done Vanco and Dificid, both didn't work, im very worried at what to do next. The doctor wants to try Vanco taper but Im afraid it wont work. I just rather go straight to FMT
@rhondaeverett8284
@rhondaeverett8284 24 дня назад
Did the vanco taper work?
@roxanapal6364
@roxanapal6364 Год назад
My son still take vanco in descaladation but also jaradiphilus probiotic so i saw great effects ceck that term all will be very happy find new heal.
@christyboyd1432
@christyboyd1432 9 месяцев назад
Just found out today that I have c-diff. Only found out today after messaging my dr to look at my test results that I had to have done last week. Of course I have some questions? Messaged the dr and waiting on a reply! Maybe you can help til I hear back from her. I have no clue how I got it! No clue if it’s contagious! I really need to know whether or not it’s contagious..if I need to stay away from my grandkids til it’s took care of? Would you happen to know?!? Thank you so much
@unstarsam5163
@unstarsam5163 9 месяцев назад
A lot of people get better with meat only diet
@jah0524
@jah0524 4 месяца назад
Thank you for this video. It was very informative. Just one bit of criticism... It's hard for me to hear your soft voice over the music. The music is competing with you, and I don't think it's necessary.
@tashieslots4379
@tashieslots4379 Год назад
Thank you for this informative video and your soothing manner of speaking. I was wondering if C-Diff is ever spread by workers in restaurants? I'm familiar with the antibiotic factor, but wondering how else you can get ill from it. TFS
@TheBiancalov
@TheBiancalov Год назад
My gastroenterologist told me I could have gotten it from meat. Chicken possibly. Alot of meat have antibiotics in it. I now only buy organic antibiotic free chicken with no hormones...vegan life sound real good right now. 😭. Pa I didn't get it from any meds I don't know how j got this
@irascrohniediaries
@irascrohniediaries Год назад
Thank you for your comment! In theory, it could certainly spread that way if someone hasn't properly washed their hands who is infected. It can also live on the skin and be spread that way. That's from my basic research.
@Dwightinho56
@Dwightinho56 10 месяцев назад
I got my infection from my hospital stay. It is a verrrry well known bacteria in hospitals, senior citizen homes etc. but anyone can get it anywhere as it is extremely contageous and survive on surfaces for at least a month. Regular cleaning procedures do not work on this bacteria. Pure Chlorine was the advice given to me. Patients infected with C. Diff should always be isolated in hospital environments. C. Diff can kill you depending on the Toxin you are contaminated with. But you can also be a carrier of this bacteria, and when your immune defense is lowered due to other causes you will get an infection out of nowhere. Most common cause is antibiotic cures that not only cures a bad bacteria but wipe out all of them. That’s when the evil/bad bacteria like C. Diff takes over extremely fast.
@CynthiaBishop-tl4ib
@CynthiaBishop-tl4ib 7 дней назад
It can be spread from any surface that someone has touched who has c diff. Hand washing is extremely vital!
@kimthompson6029
@kimthompson6029 5 месяцев назад
My husband got c diff after his kidney transplant 😢 it was horrible!
@lovelysosweet8386
@lovelysosweet8386 Год назад
Omg i hope I don’t get it again!
@erickiabartee6898
@erickiabartee6898 Год назад
I also had C_difff in 2016 I had it for 3 weeks before I went to the hospital I could not eat or drink anything. And to make matters worse I have cerebral palsy and if you think having having diarrhea is a cakewalk compared to c-diff with cerebral palsy
@smarstudyclasses
@smarstudyclasses 2 месяца назад
Aap ne kon si medicine use Kari thi medicine name please
@CynthiaBishop-tl4ib
@CynthiaBishop-tl4ib 7 дней назад
She said Dificid.Thats what I took.Best one for C diff.
@jessiegeee9577
@jessiegeee9577 15 дней назад
Yall please lemme tell my story 😢 ok, about 5 months ago i got so sick, from 155 ro now 121. Im so sick and they said i have this. I had to take an antibiotic and now this. I cant eat, I'm sick hurting alot & now waiting for the meds hopefully rheyll help. Pkease talk to me about whats next yall ????
@MamaYoKoMoKo
@MamaYoKoMoKo 3 дня назад
I dunno what’s next. i’ve been at the hospital a week on meds dicivir and trying to eat fermented foods with probiotics. hoping it goes away soon. i still have runny bowels and am social distancing away from family because they have challenges. This is anxiety filled and isolating. I guess there was nothing that I could do to prevent this. It’s starting to wear on me :( I hope your out of the woods and better.I’ll pray for us today. Get better soon.
@diegojaviersj
@diegojaviersj 8 месяцев назад
For anyone with immune system compromised, how can you take antibiotics and be sure not to catch (activate this)? what can be done to prevent this when you are sure you need to take a course of antibiotics? And why would have been the reason why you got it (I know you said Antibiotics, but were you prone to other diseases)?
@cghrios783
@cghrios783 9 месяцев назад
Thank you so much for your story. I wanted to ask I if I may a coupling questions. Is it true that the smell is very different? After you took flagyl and it did not cure you, was it as bad as when you first got c diff? How were your symptoms or chrons after this c diff infection? Do you know of any cure of chrons with the 💩 transplant? Thanks so much.
@irascrohniediaries
@irascrohniediaries 8 месяцев назад
Hi! Yes, the smell is distinct to say the least, it is very different. I will say the initial onset of c-diff was the worst and when it came back later no it did not send me to hospital like the first time but was still bad. Once I got on medication (remicade) at the time my crohn's symptoms were relieved for a while. As of right now, no there is no cure for Crohn's. I hope you are well!
@cghrios783
@cghrios783 8 месяцев назад
@@irascrohniediaries thank you fir replying. You got chrons before the infection then? Do you know how your diagnosis of chrons came about?
@aboutsummermsw
@aboutsummermsw 9 месяцев назад
What was the medicine you said worked best? Difficit? I couldn't understand.
@Mr5thWave
@Mr5thWave 5 месяцев назад
Dificid.
@flowerflower3398
@flowerflower3398 Год назад
Did you consider fmt !!
@BigDro1323
@BigDro1323 7 месяцев назад
I was just diagnosed today after dealing with what seems to be mild symptoms since December. Bubble guts, the diarrhea 2 to 3 times a day. I’m actually going to pick up my prescription of vancomycin. Any advice? My diagnosis came after taking clindamycin or however ya spell it as well.
@tarieC7
@tarieC7 7 месяцев назад
This is exactly what happened to me. I took clindamycin and now I have this just started vancomycin. How are you feeling now
@BernadetteRyan-k6y
@BernadetteRyan-k6y 6 месяцев назад
Same happened to me, how are you feeling now?
@BernadetteRyan-k6y
@BernadetteRyan-k6y 6 месяцев назад
​@tarieC7 how are u feeling now?
@tarieC7
@tarieC7 6 месяцев назад
@@BernadetteRyan-k6yI feel better now, I took vancomycin and florastor probiotic, drank kombucha and ate kimchi, just did all I could to get some bacteria in my gut. You will get through it
@DRSRPrime
@DRSRPrime 9 месяцев назад
Question: how does this work with going back into work?? Did you have to stay out or could you go back?
@DRSRPrime
@DRSRPrime 9 месяцев назад
Only symptoms I have are a little stomach ache when I need the bathroom but after I go it goes away. No fatigue or fever or chills…
@jessiegeee9577
@jessiegeee9577 15 дней назад
How are you feeling now ? I had to quit my job bc of this !!
@DRSRPrime
@DRSRPrime 12 дней назад
@@jessiegeee9577luckily it went away maybe 3-4 weeks after my comment. I had to go back to the hospital for a stronger medication and I had to eat only toast, yogurt and bananas for a bit. But after 3 weeks or a month possibly I started to form somewhat of a solid bowel movement. It would be somewhat formed one day and then back to diarrhea the next and then it consistently became solid and I started to test out eating foods I normally would eat and then it just went away. Not sure how I even got CDIFF. The doctor said maybe I touched a surface and someone else had it maybe. But I remember keeping it on the hush hush at work. I would wash my hands like crazy and I would wipe down my work station. I think I only took 1 day off to see the doctor and I wouldn’t eat until I went home. Just took the meds and drunk water
@DRSRPrime
@DRSRPrime 12 дней назад
@@jessiegeee9577I’m sorry to hear that. How long were you at your job before you had to quit? There were days where I would be at work and my stomach would be hurting so bad. And I had soreness as well. I could only lay on my stomach
@JacobAaliyahJordanCasarez
@JacobAaliyahJordanCasarez 7 месяцев назад
I got c diff about a year ago it was recurring,and my stomach has never been the same, i definitely have post infectious ibs now , i changed my diet to whole foods only and it has helped , i ended up having a FMT to clear the recurring c diff infection, but man my body has never been the same , it is a nasty nasty infection that messes you up. I got ulcers in my colon from it and it has been a battle tested year for sure just trying to recover from it still . I was in a bad place mentally also because of it , i am better now , but wouldn't wish this on anyone . Have a great day everyone GOD bless
@thebayareastandout
@thebayareastandout 6 месяцев назад
I have it now and had never heard of it. I did just finish a bottle of prescribed antibiotics recently for something else but I wasn't warned that antibiotics could kill the good bacteria in your gut. I did need those antibiotics though. I had diarrhea where I had to the go to the bathroom about 20 times in a 30 hour period. Now Im just had my first day taking vancomycin. The pain isn't that bad at least yet but too many trips to the bathroom, had a bad headache, and was feeling weak in general and bought a thermometer because I knew something wasn't right and when my temperature was 104 I drove myself to the emergency room and was diagnosed after testing. Those are my symptoms but some way low or high readings of anything associated with iron after having my blood tested
@rnnumi7945
@rnnumi7945 Год назад
The C-Diff poops are awful. No one understands the urgency until they catch it. Seriously, it is like 10 secs from "the feeling of need" to uncontrollably going. And that's like 20xs a day (if lucky). Great video.
@irascrohniediaries
@irascrohniediaries Год назад
That’s exactly right! An urgency I’ve never experienced before or after. It is truly awful. Thanks for your comment.
@LISA-iq6xj
@LISA-iq6xj 3 месяца назад
I JUST found out I have this. My NURSE told me. Not the Doctor. I can't go there right now. The death prayers, pain, humiliation. I'm in a rehab center now. I'm in isolation until 6-14. I feel like my life just flipped and will never be the same.
@brindabellabella2354
@brindabellabella2354 18 дней назад
My poops were on the hour, every hour, day and night for about 2wks. Hope I'm now recovered after using vancomycin. Stomach pain one afternoon reminded me of when about to give birth.
@colleenoaksferrigno
@colleenoaksferrigno 10 месяцев назад
That cdiff pain is like no other. The only way I can describe it is as someone is throwing a 50lb or more medicine ball at your stomach, while your intestines feel like theyre on fire, while a hot knife is searing through said intestines. 1st time I thought was horrid. It wasn't nearly as horrible as the second go-around. I made my peace with God that night in the hospital bed. Unless the docs and nurses could help me, I felt that I might've passed. It took months to get better and as a parting gift I now have IBS and take meds for it. 0 stars. Do not recommend.
@cghrios783
@cghrios783 8 месяцев назад
It sound like a unbeatable experience I’m very sorry. But do you mean that because of this you got ibs? After taking meds for c diff the antibiotics are so harsh on your gut. But most people do not try to populate bacteria. I got it after a salmonella infection.
@colleenoaksferrigno
@colleenoaksferrigno 7 месяцев назад
@cghrios783 I ended up with Post Infectious Irritable Bowel Syndrome. That has calmed down but I still take medicine for it, when needed, a few times a week. I take Bentyl. It works very well for me.
@colleenoaksferrigno
@colleenoaksferrigno 7 месяцев назад
@cghrios783 oh no, salmonella? Do you know how you acquired that? I forgot to add that I was on antibiotics for 20 years without probiotics. My microbiome is compromised at this point but I've made steps to try to improve it.
@kimmiller2156
@kimmiller2156 3 месяца назад
I 1st got this after a week if ICU for pneumonia from 2 antibodies they gave me horrendous now weeks later I have it again it's one of the worst things ever to have happy healing lovely
@kmaben8985
@kmaben8985 3 месяца назад
​@@kimmiller2156probiotics. Multi strain probiotics.
@franciegwin
@franciegwin Месяц назад
I'm so sorry you had to go through this! I'm 71 and having my first infection and just diagnosed with C-Dif. I haven't have horrible pain like you did so far. I just pray this doesn't come back. I've already had 30 inches of my colon removed after a colon blockage in 2016. That you got your story. You're a lovely young woman!
@valeriasamario
@valeriasamario 8 месяцев назад
Thank you so much for making this video! I unfortunately am currently going through my c diff recovery and was starting to get bummed out that I'm still having some pain and discomfort and awful BMs when I'm almost done with my medications. But hearing a human talk about this has really helped me feel more comfortable, that it may last longer than expected. So now I will know what my best next steps are. I hope you're doing great and feeling healthy ❤😊
@irascrohniediaries
@irascrohniediaries 8 месяцев назад
I'm so happy I could help you in some way. It is not easy but I really hope you feel better sooner than later. Yes, I did not know it could come back or last a while either so better to be prepared.
@diegojaviersj
@diegojaviersj 8 месяцев назад
what does BM mean?
@valeriasamario
@valeriasamario 8 месяцев назад
@@diegojaviersj bowel movement
@Mrsbribradley
@Mrsbribradley 8 месяцев назад
I am currently dealing with this right now too after being prescribed with an antibiotic. I just finished vancomycin I thought I was feeling better . But now I don’t have an appetite again 4 days after medication & feeling really tired . Loose stools In thr morning only use the bathroom 1 time a day . I’ve been dealing with this a month lost 10 pounds . It’s so hard
@lucindacarrasco6107
@lucindacarrasco6107 7 месяцев назад
​@Mrsbribradley same thing is happening to me now.Its been 2 weeks since I went back to work .Feeling sick again........
@TheBiancalov
@TheBiancalov Год назад
Oh yea..I did 10 days of vancomycin, doctor wants me to retest in a week..but my stool is still mucus like and green..yuck sorry guys 😔. I have diarrhea every other day. Constipated others..I've shed so many tears over this crap girl 😭
@irascrohniediaries
@irascrohniediaries Год назад
I know exactly what you're going through. Vancomycin is rough. I'm so sorry this is happening to you ☹ Hoping you find relief soon.
@doeidaho2101
@doeidaho2101 Год назад
I had c-diff 5 yrs ago after surgery. My doctor put me on a strong dose of vancomycin which didn’t help. She doubled the dose & then tapered me off gradually. In the meantime I washed everything in my home with a solution of bleach water. For the many bowel movements my doctor said to take Peptole Bismol, tablets, six at a time so I could leave my home to keep appointment’s & buy groceries. It worked. After almost a year of tryouts get rid of it, I am free. Spores stick around so really important to wash everything with bleach that you touch so it doesn’t come back. Terrible infection to say the least. Wish anyone who has it a safe recovery because it can be fatal.
@irascrohniediaries
@irascrohniediaries Год назад
@@doeidaho2101 Thank you for sharing your story! Wow I am so happy you were able to overcome c-diff. It is an uphill battle for sure & thanks for the tips!
@AntiOTRS
@AntiOTRS 9 месяцев назад
@thebiancalov did you get rid of it?
@TheBiancalov
@TheBiancalov 9 месяцев назад
@@AntiOTRS yes I did. Vancomycin helped and cleaning with bleach solution in bathroom
@briardevito1811
@briardevito1811 2 месяца назад
Thank you for the video. I have it now- from antibiotics. I’m so scared. Took Dificid- still feeling pain and in my kidneys too.
@Trendkill666
@Trendkill666 20 дней назад
During C-diff my kidney's started hurting from the antibiotics. Lots of aloe vera juice, cranberry juice, smoothies, lots of water, keep flushing out the toxins. Good luck 🙏
@briardevito1811
@briardevito1811 20 дней назад
@@Trendkill666 thank you so much 😊
@debramartin9396
@debramartin9396 9 месяцев назад
I have cdiff and sepsis. The stool tests are not accurate at all.
@everichards8480
@everichards8480 Год назад
So I currently am dealing With a recurrent C Diff, they have me on vancomycin again and like you said it’s strong! & I feel the side effects. I’m currently trying to find a probiotic to take to help or just some type of natural remedies if they exist… Crazy thing is I have no idea how I caught it either…I’m only 33 but I did recently have a baby and a c section but I caught The c diff months after giving birth I’m glad I found this video though because now I know I’m not the only “young” person who caught this. 😅
@irascrohniediaries
@irascrohniediaries Год назад
Thank you for sharing! Wow that is so strange as to how you contracted it. My dr at the time recommended Florastor which is what I took. I really hope you can get rid of it once and for all. I know how draining it can be especially with a new baby.
@doeidaho2101
@doeidaho2101 Год назад
Eat Greek yogurt daily. Fage plain since it is full of good bacteria . Do not eat sugar unless it is in fruit. Try to eat Keto until you get your strength back. Add fruit & whole grain toast to that so you don’t drop too much weight. I lost weight with C-diff. So sick I didn’t want to eat.
@Dwightinho56
@Dwightinho56 10 месяцев назад
A strong probiotic on prescription (in my country anyway🇳🇴) is something called Precosa 250 mg. Also goes under it’s real name Saccharomyces Boulardii. It has helped me a lot, especially if I have had to be on antibiotics again and presumably would be an easy target for a recurrence episode with C. diff. I used to have no faith in stuff like this, but for me they have worked wonders. Here they are a bit expensive though.
@DRSRPrime
@DRSRPrime 9 месяцев назад
I’m 33 as well and idk how in the world I got this! lol. Not on any antibiotics. I do work at a hospital but I work with ppl who want to donate blood , not with patients…so maybe somebody had it and I got it from whatever surface. It’s been 2 weeks now! I’m taking vancomycin hydrochloride right now
@renaew7181
@renaew7181 5 месяцев назад
I caught c-diff after having a c-section last year. My symptoms started 1 week after the c-section.
@_catelyst
@_catelyst 2 месяца назад
I caught C. Diff while on vacation in Mexico recently. I shipped to OCS a week later thinking git was just temporary cramps not knowing and turns out not only C.Diff but also E. coli. They really screwed me up and got dropped. Now I'm trying to get back to boot camp but it's still messing with my stomach three months later and I'm worried it'll never go away and keeps delaying my chances to get back to boot camp. Read about the infection and everywhere I look tells me it's almost untreatable. Really hope I can get some answers.
@NickGelo
@NickGelo Год назад
currently battling recurrent cdiff... went about 6 months undiagnosed and then finally got a stool test from my GI doctor. (Not her fault that I didn't get one. This was the first time I had ever saw her and I didn't have watery stools luckily so it wasn't really thought to be c diff. Nor had I had a history of Antibiotics) I failed Vanco, then Dificid, and am currently on a 25 day Dificid taper right now. Hoping for the best but this SUCKS. FMT is the next step if this fails. My symptoms before treatment were light stomach pains, EXTREME fatigue, night sweats, elevated heart rate and Anxiety. I never really under stood the gut brain connection until I had this infection, My mental health has never been worse....
@jenniferlloyd9574
@jenniferlloyd9574 10 месяцев назад
How is your C Diff??
@Dwightinho56
@Dwightinho56 10 месяцев назад
I did FMT in June this year and it’s the best thing I could have done for the damage C. Diff did to my intestines. It sounds gross but actually isn’t. It’s just like another coloscopy and you don’t see or smell a thing. It is done very proffessionally. The donors are thorougly screened for every possible thing and the Transplants are delivered by a company dealing only with this kind of treatment. Officially registered for safety. The whole procedure takes less than 15 min. It’s the prepping the day and night before that takes time and pain😬🫣.
@NickGelo
@NickGelo 10 месяцев назад
@@jenniferlloyd9574 seems to be better a month out from the taper! Only time will tell now…
@NickGelo
@NickGelo 10 месяцев назад
@@jenniferlloyd9574 I was honestly hoping for it… if the taper I was on failed that was the next step but I seem to be doing okay after the taper!
@irascrohniediaries
@irascrohniediaries 8 месяцев назад
I'm so sorry you're going through this. The fatigue makes it impossible to carry on but if you get a chance please update me on how you're doing.
@sonestia777
@sonestia777 Год назад
I’m going on 6 months, I’ve had Vanco 4x and Dificid once. It’s the dehydration that I’m struggling with now I’m trying to handle myself because I’m a hard stick and it’s hard to get IVs in me so I don’t want to be a pin cushion in the ER for iv fluids.
@amg4897
@amg4897 5 месяцев назад
I have Ulcerative colitis, and now I have cdiff, I have been on meds for 11days now, I’m afraid it’s not working but I have 4 days left
@DeniseZuber
@DeniseZuber 11 месяцев назад
My daughter just was released from the Hospital from having Sea Diff. She was very sick. Thank you for your video it was very helpful to fully understand this awful infection she was battling. It has been two weeks since she was released. My question is how long will you be contagious?
@jenniferlloyd9574
@jenniferlloyd9574 10 месяцев назад
You shouldn't be contagious after completing treatment provided the final tests are negative. Spores can live five months to years! I read that a 9:1 water/bleach solution is the only thing that kills the spores. You have to throw out blankets, clothes, underwear, etc.
@Dwightinho56
@Dwightinho56 10 месяцев назад
If she has been on antibiotics and they have released her, she is not contageous anymore. If there will be a recurrence she will be contageous again. It is a hard bacteria and infection to get rid of.
@sondrayork6317
@sondrayork6317 Месяц назад
Lol, medical stuff doesn’t even phase me when it comes to grossing me out. Nothing really grosses me out unless you discuss puking lol.
@aeolia80
@aeolia80 2 месяца назад
My dad, who's about 83, and was in really good health contracted c. diff last October, to be honest, it was kind of his own fault, he'd been having lung problems for a while and he took a few old antibiotics that he hadn't finished from a few months before and yeah, killed all the good bacteria in his gut which made it easy for c. diff to take over (advice for anyone on antibiotics, always always, always finish all the doses you're given and never take any old antibiotic that wasn't recently prescribed, bad stuff will happen). Anyways, my dad was in and out of the hospital for months. He hasn't tested positive for it in a bit, but physically he hasn't ever really recovered, and has basically been bed bound since then. He's had other health issues come up the same time as this which just makes everything worse. He had been a fit guy that didn't even look like he was in his 80s before getting sick, this bacterium is maybe one of the worst things ever.
@irascrohniediaries
@irascrohniediaries 2 месяца назад
Thank you for sharing. I'm so sorry to hear that your dad is going through this. This is a very tough infection to overcome. I'm glad to hear he's no longer testing positive at least. I really hope things improve for your dad 💟
@multisync7678
@multisync7678 Месяц назад
Did you experience any die off symptoms like anxiety fever chills from taking the antibiotics to get rid of it or the probiotics
@christinafrench2295
@christinafrench2295 23 дня назад
Wow. I have perianal Crohn's disease w/ 3 surgeries of fistulas repairs.
@mattmatthew2440
@mattmatthew2440 9 месяцев назад
C diff is awful,i have crohns and had to get a colectomy,i caught it after i went in for a colonoscopy and it keeps coming back every three weeks after taking vanomycin,ive tried dificid,as well but its expensive,im getting sick of this awful bacteria,has anyone had success with florastor?
@auntieanna
@auntieanna 6 месяцев назад
High dose Saccromyces Boulardi!!!
@allisonerickson3598
@allisonerickson3598 Год назад
I’ve been defeated for two years I still cannot get my doctors to help me 😢
@jenniferlloyd9574
@jenniferlloyd9574 10 месяцев назад
What's going on with your two year C Diff journey??? Doctors won't help???
@angelaprice3435
@angelaprice3435 7 месяцев назад
Mine was the worst got it in the hospital. I have IBS I stayed on probiotics for the longest time up until a year ago. I recently went to the er for a uti and kidneys. The minute they mentioned antibiotics my mind went back to probiotics. I'm taking these along with the antibiotics. Get to a gastrologist.
@brandileigh_thepoet
@brandileigh_thepoet 9 месяцев назад
Dificid is over $4000 without insurance. I just finished mine yesterday. I'm unsure if I'm well or not. I'm passing a lot of old blood.
@joshborja8012
@joshborja8012 4 месяца назад
How are you doing. I am on dificid right now
@brandileigh_thepoet
@brandileigh_thepoet 4 месяца назад
@@joshborja8012 I’m doing much better now but it was about 6 months of hell. I hope you feel better soon!
@JoshuaHampton-yt4sz
@JoshuaHampton-yt4sz 9 месяцев назад
I have ulcerative coltis and pancreatitis and chrons and cdiff and it sucks
@westonhuffman7908
@westonhuffman7908 8 месяцев назад
Well, I wanna get a fecal transplant.
@laniengonzalez3951
@laniengonzalez3951 8 месяцев назад
Thank you for sharing your story. I would first like to say that Im sorry you're going through so much at such a young age. I know your personal experience is going to help so many who are dealing with C.diff. My brother has been in the hospital for a heart attack, caught pneumonia, and now C.diff. I know this video will help him to understand what he will be facing for the years to come. Thank you again for sharing your story. I will keep in you in my prayers
@irascrohniediaries
@irascrohniediaries 8 месяцев назад
I really appreciate that and happy that this can help your brother. I'm sorry to hear that he's going through all of this right now. I'm sending all the love and positivity to you all and hope he feels better soon.
@harshshah2812
@harshshah2812 4 дня назад
Did it resolve ? If yes ? Then how?
@Goku_MuiThaGoat1
@Goku_MuiThaGoat1 10 месяцев назад
I am currently with c.diff entering month 7 😢 after IV antibiotic for appendicitis for 5 days. Failed vanco x1 , dificid x2 now on vanco taper but i can feel that i failed..... struggling with cleaming too much
@CynthiaBishop-tl4ib
@CynthiaBishop-tl4ib 7 дней назад
I know the feeling well.
@Roshe73
@Roshe73 Год назад
I have had c diff for over 3 months since the previous doctor put me on Pylera which was too strong for my body. I had vancomycin for 10 days after 2 weeks the diarrhoea started again. I am going back to the doctor tomorrow. I am getting fed up of the toilet and used over 6 packs of 10 of toilet paper 🙈 I had so many tests it’s so frustrating and exhausting. I’m tired so hopefully tomorrow I get some solution. I lost over 5 kgs and had zero appetite. Yes water diarrhea over 10 times a day lost count, no sleep fever and they did not tell me that recurrence can happen🥹 yes weak immune system. I had to pay for vancomycin as it’s not covered by insurance. The doctor might want me to get a colonoscopy. He might put me back on vancomycin again not sure 🤔 thanks for this video 🥰 it’s is a miserable experience as it affects your life and well being.
@irascrohniediaries
@irascrohniediaries Год назад
I'm so sorry you are going through this! It takes so much out of you, I understand your pain 😟Yes all of the testing is exhausting on it's own. I really hope you get some relief soon. Thank you for sharing.
@jenniferlloyd9574
@jenniferlloyd9574 10 месяцев назад
Google the protocol for cleaning with bleach. One guy threw out all his bedding, blankets, clothes, towels, etc... Those spores can survive for months to years and bleach in water I'd the only thing that works.
@AntiOTRS
@AntiOTRS 9 месяцев назад
How are you now?
@sheneathahollowell2750
@sheneathahollowell2750 11 месяцев назад
Man it’s so rough .
@alanzapotocky4607
@alanzapotocky4607 6 месяцев назад
Sorry about Ibd and cdiff diagnosis I’ve been in some boat since 2019 chrohns disease sucks, constant fatigue, diarrhea, fistula four of them, iron deficient and recently the current naturalopath im seeing determined that I have an infection raging in my intestines and butthole long sorry story short the herbal cocktail and charcoal protocol doesn’t seem too be working yet so in 2 months time it might be back too the drawing board.
@lindaschuknecht2063
@lindaschuknecht2063 Год назад
My son is going through this right now...Flagyl, Vanco taper, then a long Vanco taper and now just starting Dificid. How long was your treatment with Dificid?
@irascrohniediaries
@irascrohniediaries Год назад
Thanks for sharing, I hope your son begins to feel better. I was only on dificid for a short time I don’t remember exactly. But nothing compared to how long I took Vanco
@id6673
@id6673 5 месяцев назад
If one family member has it does that mean health family members living with them can also get it or do they have to be immuno compromised to get infected?
@CynthiaBishop-tl4ib
@CynthiaBishop-tl4ib 7 дней назад
Highly contagious. Use separate bathrooms if possible and hand washing is vital to prevent reinfection or infection to others. Clorox antimicrobial wipes and liquid are used to kill C diff spores.
@sondrayork6317
@sondrayork6317 Месяц назад
My cousin went through this very same thing, and she is STILL at the hospital now, she went by ambulance Tuesday, and hasn’t gotten any better!!!!!
@Alisha0413
@Alisha0413 Месяц назад
Hope your cousin gets better, how are they now?
@TheBiancalov
@TheBiancalov Год назад
Currently on month two of dealing with c difficile. I have no idea how I caught this. I haven't taken any antibiotics in years..my 4 year old niece came home with a stomach flu.. diarrhea vomiting the whole family.. everyone recovered but me. Did you experience any pain under your ribs. What was your diet like. Could you eat cereal etc.. also do you recall the probiotics you used..I'm taking saccharomyces boulardi. And floraster
@irascrohniediaries
@irascrohniediaries Год назад
I was advised to take florastor also. I had no appetite for months, I was put on a soft diet and ate bland foods that were easy to digest like white rice, baked chicken. I could not tolerate cereal at the time. Keep me posted on how you are doing in the future. Hopefully you can get rid of this sooner than I did. ❤
@everichards8480
@everichards8480 Год назад
So I currently am dealing With a recurrent C Diff, they have me on vancomycin again and like you said it’s strong! & I feel the side effects. I’m currently trying to find a probiotic to take to help or just some type of natural remedies if they exist… Crazy thing is I have no idea how I caught it either…I’m only 33 but I did recently have a baby and a c section but I caught The c diff months after pregnancy. I’m glad I found this video though because now I know I’m not the only “young” person who caught this. 😅
@TheBiancalov
@TheBiancalov Год назад
@@everichards8480 🤗 I believe it is the food smh. I take saccharomyces boulardi or floraster.. dairy free yogurt. And manuka honey from the health food store. I sprinkle tumeric on everything I eat
@everichards8480
@everichards8480 Год назад
@@TheBiancalovI definitely can believe that! So crazy…& I love turmeric I put it on everything as well hehe I haven’t tried the Manuka honey I’ll have to pick up some! Thank you for the response
@charlottehayward5943
@charlottehayward5943 Год назад
It is highly contagious.
@tommysherman7155
@tommysherman7155 6 месяцев назад
You was losing weight looks like you could do with another bout of c.diff
@BernadetteRyan-k6y
@BernadetteRyan-k6y 6 месяцев назад
If u have nothing nice to say keep your horrible mouth shut
@julieallen6367
@julieallen6367 2 месяца назад
What a rude comment!
@Pieisyummy999
@Pieisyummy999 9 месяцев назад
The way I wish I could forget my time with cdiff. I ended up having cdiff around 7 different times over 2 years when I was first diagnosed. I kept going in and out of the hospital every month and eventually we learned I have a genetic predisposition to get cdiff 😭 I also did so many treatments, flagyl, vanco, and multiple stool transplants
@pinkpanty10x
@pinkpanty10x 9 месяцев назад
Hi, I have c diff for the 3 time right now. I’m waiting to see a specialist in early January. I read the a fecal transplant costs approximately $9,000 ! Was this your experience??
@Pieisyummy999
@Pieisyummy999 9 месяцев назад
@@pinkpanty10x hey there! I’m so sorry you are dealing with that friend it’s truly the worst. At the time I was lucky enough to be young enough to be covered under my parents insurance and since they both worked for the state I didn’t have to deal with the out of pocket cost. That being said though I think there are some payment options out there (similar to if you have co pay assistance with an infusion medication)
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