A. Pat Choothesa is a Managing Producer-Director at the Education & Research Media, Division of Trauma/Surgical Critical Care/Burns, UCSD Health System. To see more of his posted educational videos, please visit trauma.ucsd.edu or UCSDTraumaBurn Channel at RU-vid.
I could hardly lift a towellout of washing machine to put into dryer after visit to shop unable put shopping away for days so tired cant make cup of tea or close curtains have started coughing very short breathe. Best make sure arranged your choice of funeral in my case direct creamation it is cheaper eat what you like you will lose appitite cut out salt keep up fluids always have water beside you your spirtual believe is strong play music laugh😢😊😊give thanks be aware you are dying
A concern that needs to be addressed revolves around the universal advice to "call your doctor if..." any of several problems occur. Our experience has been that "your doctor" is not available. We may get a call back from a nurse practitioner. We may be offered a "first available" appointment 30 days out. Sooner or later we have had to just go to an ER, when I believe the problem could have been solved with routine but prompt attention from a physician. I believe we have an excellent cardiology team, but they are so busy that a problem doesn't get attention until it deteriorates to a more serious situation. Just calling to say "I gained five pounds this week" would not get any meaningful response, leaving the patient to wonder, "should I take another diuretic?" "should I wait and see?" "what should I do?" I wonder if other patients have a similar concern.
If you’re just gonna use medical jargon, abbreviations, and other medical esoteric shorthand you might as well do it out in the hall. The patient is just as out of the loop in the presence of your two-way discussion as he would be if he wasn’t there.
Yes, I came here to find info that my cardiologist who rushes through my visits that are months apart . I saw her once after being in the hospital the first time and was found to have cardiac issues. Second appointment was quick and only discussed upping my lasix and then it was “ see you in six months. “ This video gives me more information than my Dr. gave me. I didn’t get to even discuss my sudden episode of syncope that sent me to,the ER. …I think I need to find another, but my HMO probably won’t ok or pay for it.
Had heart attack and lost 25% of heart muscle. Meds like Xanax, Lomotil and hydrocodone for back and numerous other maladies I held my own with an EF rate of 37% as I reached 80. These meds along with normal heart medicines allowed to continue good diet and plenty of exercise for 10 years. In the last two years doctors have cut off Hydro, lomotil and xanax. Too much advil created a bleeding ulcer. Now I just sit around in pain, poor sleep and depressed and am on a fast slippery slope down currently passing 30% EF. Thank you doctors.
Look for various other options to help yourself and research other alternatives. Body mechanics, massage therapy, diets, exercise, relaxation techniques, hobbies. Physical therapy do all you can and God will bless the rest!
I'm right here with you. I feel a little helpless very vulnerable and misunderstood people look at me like I'm normal and ask me to do things which are impossible for me to do and then they think I'm just being lazy. I hope you are at least happy in some way. I just couldn't imagine being taken off them meds that they had you on. God bless you and hang in there I'll eventually see you on the other side my friend.
My daughter 6 years old ckd patient with 35% ejection fraction heart failure. She has edema on her face feet and legs now. Her bp remained high she was taking bp medicines now her bp remaining normal and she has cough as well
Is this a joke? I have heart failure and let me tell there is no way you can learn to live with it. If you have heart failure you are dying, some slowly and some sooner than later. I was diagnosed a few years ago and I can barely take care of myself now, I can't even vacuum the floor. It's not that I want to die, it's more like I don't want to live like this anymore. Basically, I don't call what I'm doing LIVING! TheReaper!
@@gregorymalchuk272 I've had 32 years first open heart then lots of stents, then an ablation that didn't take then a defibrillator/pacemaker etc. Can you believe it someone gave me a thumbs down? I guess they couldn't handle my truth, this all depends on the condition of your heart at the time. Because some hearts are in better shape than others results vary. On the meds, on April 17th I took myself off my last 2 heart meds, one of them the Amiodorone had my heart pumping so slow that I could only take 3 steps before I had to stop to catch my breath. If some of this stuff works for you consider yourself lucky, I think my heart is just too far gone? I don't want any more surgeries or medication, nothing has worked for me in fact some of this junk has just made me worse. What I would tell my fellow CHF club members is, it's a crapshoot. I'm sure you've seen those Entresto commercials? I was on it for almost a year even though it was making me worse, then I finally gave it up. It's good to talk to other CHF patients but like I said we are all different. Don't expect the same results as others have had, and if your meds are making you worse or giving you side effects that you can't live with do something about it. Doctors may know the standard protocols but they don't know you because they are NOT YOU! What I have learned FOR ME is not much of this junk works. I'm OK with that I'm going to be 74 next month it's not that I want to die, I just don't want to live like this anymore. TheReaper!
@@Reaper1947 Do you feel better now that you are off your medication? What is your ejection fraction? What does the cardiologist think? Look into a medication called Rapamycin. It is an old transplant medication that now is being used as a general-purpose anti-aging medication. It increases lab mouse and rat lifespan by 25 to 30%, and it has been proven in several studies to reduce the inflammatory chemical cascade that causes heart failure. Also look into resveratrol, which is an easily available supplement found in grape skins that has similar anti-aging effects and positive effects in heart failure.
@@gregorymalchuk272 All year I was going downhill until I could only take 2 or 3 steps and I would have to lean on the wall because I was GASPING for air. If I would raise one or two arms to get something out of the cupboard my arms and legs would turn to rubber and down I would go, and come very close to blacking out. It’s a really weird feeling and it was happening every day in early April. What happens is I guess my heart can’t pump up as fast as gravity pulls it out of my arms. The best I can describe it is it I get a quiver and it feels like my battery is going dead. Now to answer your question do I feel better off the meds. The answer is HELL YES! if a walk slow I can actually walk up the basement stairs without HAVING to stop to catch my breath, when I get to the top of the stairs I sit down and rest a bit and catch my breath but nothing like before. On the 16th of April I started reading up on Amiodarone 200 mg, I knew right away it was the Amiodarone but at the same time I quit the metoprolol ER too. Just about every heart medication I’ve ever been on has made me sicker. I have an appointment with my Cardiologist on the 10th, my best guess is he is going to be pissed and think I’m nuts, but I don’t care it’s my life. When I quit the meds on April 17th I figured I might last a few more days at best. I always took my meds at night when I woke up on the 18Th my first day off the meds I was back to my old normal. TheReaper!
@toni camaro OK for the record I don't smoke, I am not on statins, I do take some vitamins, as far as the sodium goes I am on 80m of Lasix daily so I spend about 4 hours a day pissing every 15 minutes. TheReaper!
Cheers for the video content! Forgive me for chiming in, I would appreciate your opinion. Have you thought about - Lammywalness Winning Terrorism Guide (should be on google have a look)? It is a great one of a kind product for learing how to secure your family during disaster minus the hard work. Ive heard some decent things about it and my best friend Jordan after many years got amazing results with it.
jordan wienzveg exactly! I had a patient family member ask me during report to explain bigeminal pvc’s. I have night shift nurses try to explain how the kidney’s function in relation to the heart.
After an Afib event I ended up in the hospital and a cardiac conversion was done. I was pretty sick for several weeks before going into full blown Afib. After the Cardiac Conversion I could tell I was feeling a bit better. But then I was told my echocardiogram showed my heart had weakened. Seven days later I had gained 7 pounds! I was short of breath and my chest burned inside when I did anything, like I had run a marathon. I always become very fatigued in everything I do and have developed a raspy unproductive cough. I have to use a cane I am so weak. I have another echocardiogram in December. The doctors then said they would give me a dx!!??!! Really? If I am in heart failure..tell me so. Telling me my heart didn't bounce back from the cardiac conversion just doesn't cut it! I'm 64,...I think I can handle the truth!
