Mine also came from a motorcycle accident. C5,6,7 were also reconstructed in me. I’m 4 months in and barely getting movement back. This video gives me hope. Best of luck mate💪🏽
I was born with this problem. Since I was born, at 3 year old, started swimming, ar 8 started doing surf, until 15 years old, I wal swimming and surfing, 5 days swimming 1 day surfing per week. At 7 years old had an surgery. At 16 started gym, building muscle aiming back, shoulders and chest. Nom I'm 20. I'm in my best physic in my life, no one (now) say to me that I have an strange body. And people say to me that they would lije to have my physic, this is good to hear, but I don't think so haha, I have a lot of struggle, when I'm in the gym and I compare my self to others, I can't do all types of exercises, which was frustrating at the start. When I was younger my body was crooked. Now it's OK. I do a lot of bar stand, it aligns very well the back over time, reduces the back pain and improves the mobility. I'm still in progress:) but I'm happy in my 20 with my body
Thank you so much for this great testimonial. My son had a similar accident a few months back. We still don't know the full extent of nerve damage but this gives me hope that his arm will work again
I crashed my motorcycle from my own foolish act back in July. Avulsed C5, C6 and partial C7 but with continuity to C7. Underwent a triple nerve transfer. FCU ulnar fascicle to biceps branch, medial head triceps branch to full axillary, and distal accessory to suprascapular micro fascicular transfer. I'm really struggling with the mental aspect of my injury, as the accident was essentially my fault. Only me involved. I'm in my early 20s, and like someone else I saw comment, I feel like my life is 'over' before it even began. Especially after being told sensation would not return, and that some muscles will remain denervated, it is an extremely tough pill to swallow. Hardest part was I was told in the hospital that it would all heal naturally and no surgery was needed, come my EMG test a couple months later, I was told I had avulsions and my arm would never be the same as it was. Quite the roller coaster... relief, to grief... I keep reminding myself it could have been a lot worse, but as I'm sure many of you resonate with, even that doesn't really help. My hopes is that technology and medicine will innovate and come up with some sort of treatment (even for those injured a long period prior) to heal and 'reconnect' the nerve roots and restore the original nerves. But as we know the atrophy is another problem, and so I suppose two problems would need to be solved to combat this. Reversing denervation atrophy and reconnecting nerve roots to the spine safely and effectively. I've been going to physio every week for two sessions, and trying to stay on my home exercises consistently. If anyone has any advice, motivation, or even other treatments or information I would love for you to share it, as I think talking about it helps a lot. Hopefully in these next few months, and years I can get back good function.
interesting, mine was over 30 years ago, I'm doing a series on RU-vid covering the experience etc, you might find it interesting how far the medical side has changed but life and its 'issues' hasn't ! ru-vid.com/group/PL9TtFELbC8fVg-vydO9XdOaofrdGUbrS-
Tnak you Mister. You give so much motivation to me, after my plex us injury in September 2019. Now, 4 Years later i enjoy my live. and iam happy to have this second live.
Great video Steve, very inspirational stuff! I developed Parsonage Turner Syndrome three years ago which has left me with permanent paralysis of my left infraspinatus and supraspinatus. Although I'm still able to deadlift, having worked my way back up from 60kg to a single rep with 170kg, I have a horrible nagging feeling all the time that my risk of a dislocated shoulder is significantly increased given that these two rotator cuff muscles aren't functioning. Is this something that concerns you at all? I'm struggling to find any other real sources of information on this so would be great to get your thoughts!
Steve, Inspiring story, the best of luck in further recovery! I had an axonotmesis on the c5/c6 nerves. (so they are partially intact). I am now a year after the happening (a medical mistake putting to much tension on the nerves, bad bad luck. I didn't have any nerve grafts as the nerves where still partially intact. After 12 months i don't feel much recovery anymore. For how long can you expect recovery. After 18-24 months motor endplates die (and there will be no more new nerve connections being made). Can i still expect a bit of improvement after 18 months, maybe the nerves that alreadey connected innervating in a better way? I so much hope for more improvement (doing my excercises every other day and using a massage ball very often), but i dont't notice it anymore compared to 2 months ago. I always have musscle knot and very tight musscles, as all my rotator cuff musscles have difficulty raising my arm. Any tips for me? (for how long can i expect some improvement?)
4.5 month in to a bpi injury from Moto accident . Surgery up in the air but great hand strength and can move my arm from the triceps/elbow down no lifting of the shoulder abduction yet . You give great hope thank you 🙌
Hello Steve, 12 years ago I crashed into an electricity pole suffering the exact same injury. I broke pretty every bone on the left side, from my leg, ribs, scapula, vertebrae, teeth and skull. All recovered over 5 weeks in the spinal unit. However the brachial plexus injury has remained. Whilst my wrist and hand are a little stronger, I have no improvement in the shoulder. I still struggle with nerve and shoulder bone pain. I feel I could have tried harder to recover, I see how well you have done.
Steve your injury wasn't complete right? your t1 preserved right? because if it was preserved, there is a surgery that makes you raise your wrist and open your fingers, I don't know if you know that
Steve your injury wasn't complete right? your t1 preserved right? because if it was preserved, there is a surgery that makes you raise your wrist and open your fingers, I don't know if you know that
Hey Steve, you’re a great inspiration to me. I have had a major car accident about 4 months ago. I suffered from a similar brachial plexus injury. I have had a nerve grafting surgery about a month ago, still no progress but I’m positive and working for it. But sometimes it gets emotional & negative i think you know what i mean. It would be great if we can talk/connect. I would appreciate someone to talk who knows what I’m going through. Lots of love & respect to you & all of you who are suffering from this. ❤
When I lift my hand up my fingers curl, my dominant hand is destroyed I can't do anything. I have no feeling in thumb pointer or middle finger and I can't grasp anything with thumb.. its over for me I'm 39 and useless.
Thank you so much for this video. It's an inspiration to me. I'm 14 yes. Old and suffered a traumatic brain injury and Brachial plexus injury after an ATV accident. I had my first nerve surgery 1 month ago and scheduled for another one next week. I'm in daily pain and was wondering how that was for you. Are you still in pain? Does it get better?
Hi Nicholas , was going through comments and seen your comment , if its a burning sort of pain it will get better with the passage of time as its due to the sensory nerves damage . and as far as recovery, it will also get better and better over the time , Eat active and healthy food . blessings
Wish I'd recover like you I got in the same accident like 12 months ago but I don't see a change I think I'll just be like this forever and it sucks 😞😢
I got in my motocycle accident fathersday this year i just turned 20 some months after, im losing hope but I get my 3rd surgery the second of December my life feels like its over before it even started im hoping this video can help me deal with this
Hai sir..im from malaysia And one of the patient Brachial plexus injury On my left hand Since 2014 till now.. I just can move a bit my shoulder But the lower part from shoulder All become palsy...can we do some surgery for this situation? Please help me..suffering till now.. Or give me connection Email or everything sir🙏
So happy to see your recovery over time; my daughter just had a car accident and is pretty discouraged with what this injury seems to imply. I had never heard of it ever before, but we are learning as we go. She has hand motion, although they said her nerves were severed at places... she just started PT today. Thanks for helping to inspire us!
Thank you for the kind message and I am sorry to hear about your daughter's accident. I wish her all the best in her recovery - great to hear she is starting her PT as exercise and movement really helped me early on and still to this day. There are some amazing people in this space and if you have found this video I am sure you will have many positive interactions to help along the way. I check this site periodically but if I can help more and provide info in any other way I will pass all my knowledge as best I can. Steve :)
Been having this injury for 14 years, motor car accident, is been long and tough , but something tells me not to give up and remain hopeful, I’m happy to chat if you are available
@@stevebloyce8790 yeah, had nerve grafting procedure and they opened up a 10 inch incision on tricep, bicep, shoulder to rework the nerves. So far, still cannot lift the arm. Looks similar to your video. There is also a limitation to the bend radius even if someone lifts it for me as it is "brachial plexus" in combination with a "frozen shoulder". Surgery was done 5 months ago and you started feeling tingles in 6 months. Will report back once it tingles. Take care, A Li
Almost 2years done, I'm suffering from same injury. And also the surgery have done too. Still I can't abduct my hand till 90°. Further how long it'll take to get recovered 😪?
Hi Asif, Recovery is very unique with this type of injury as every individual set of circumstances is very likely to be different. What surgeries did you have and what nerves did you injure? Best wishes, Steve
