My heart hurts so bad after the news of Amy passing away.. can't believe she's not in this world anymore. And now this was recommended to me and I want to cry. I hope she is in a better place, free and running. I'll miss you 💗
I found out she passed why I was at work yesterday. I almost cried. Then this morning this was recommended to me as well and I was like, why does RU-vid hate.
@@Schrodingers_Kat no. Don't apologize. Honest mistake. I was trying to find a way to explain it and couldn't. I wasn't trying to sound like a dick. I apologize.
Having this recommended after you find out that this beautiful soul has passed on crying is a understatement hurts my heart God bless all her loved ones and family. Friends this is a huge loss such an amazing person 🤍🙏🏼🫂🥺
❤️😥❤️😥 I know I can’t even process the emotional stuff anymore I just keep telling myself that she is no longer suffering and she is in a better place 😥😥😥I still can’t believe it tho
@Jim Blogs yes and that is sad it is just that this video is about her and she passed as a very young lady and well known! Lots of people are sad and lots of people are also dealing with other people passing too I’m sure so we also need to except that some people are going to take it more seriously then others! You are right tho just this is about her!💕
All the girl wants is to have a good life with kids and travel, then her last yr of life there's COVID, aka zero traveling.... Gosh, I really hope u're visiting every place u ever wanted to see in the afterlife. RIP Amy.
I wasn’t diagnosed until I was 50. Yes, I’m in pain, yes I have dislocations, and other issues... but they are small compared to this young lady. Rest In Peace.
Oh Amy! I miss you already!!! My heart is breaking of hearing of your passing, I have a daughter your age and my heart breaks for you mother. You are so loved and I will miss you forever.
I love the way your finger braces look. They actually look so high fashion, they’re super badass. I would totally wear them if it wasn’t morally wrong to do so (I don’t need them so I don’t want to make them fashion when people need them for serious things).
@Gold Gold exactly. People don't realize if you hype it up and make it popular it actually helps us. If it wasn't for it being a fad being gluten free us celiacs would still have no options and the food would still be nasty
My heart breaks for her family, Tom, and friends. I cried on and off all day when I found out she passed. She was such a bright beautiful soul. She was so brave and always tried to have such a positive outlook no matter what she was facing. She was a one of a kind. We'll miss you sweet angel. My prayers go out to her loved ones.
@@sgough83 not Tom hasn't said but I'm sure it was something with her heart. She has been in and out of the hospital since Nov or Dec because she had a massive heart attack. Do you follow her on Instagram?
@@McCreaFamilyHomestead there’s a new video that says she’s had a few blood clots and her heart kept stopping I believe. So it was most likely her heart and the blood clots. I don’t want to assume anything though as I don’t want to upset Tom and the family.
I think RU-vid recommended this because I was searching Ehler-Danlos disease because my best friends child has been diagnosed with it and I want to know more to be able to support her more. Thank you so much for this video. Edit: Now reading the comments I've realized that she has unfortunately passed... I'm so sorry for everyone who is feeling her loss
Damn, Amy! I'm a T-7 para with all the complications you could have that go along with it. I was in a motorcycle accident 31years ago this year. I was 35 when I was hit by a hit and run driver who t-boned me when he blew through a stop sign. They never thought I would survive through the night because of the massive trauma. Through the years I have contacted awful diseases and complications from the VA health system. I have bags and tubes for my bodily functions. I jokingly call it "my plumbing". And in the spirit of the video topic, my doctor told me "you're defying the odds"! With all the complications, I'm still here! But despite all that and being paralyzed, I gotta give you credit Amy. You have a better attitude than me despite all the adversity you face. I have a lot of respect for people like yourself and how you deal with your health issues. You are so educated about your health and self sufficient. All the best wishes to you... John
I am southern granny. I was rushed pretty badly y thieves chashing each other. Now 25 years later I am enjoying my grandchildren and being lazy. I find something good because I lived.
@@markotik2 Hey Mark, I wouldn't call what you describe as miniscule! When you have a life altering incident like we both had, it's not like fracturing an arm or leg bone and having it heal up and you move on with your life as it was. You and me were active people and if you were like me, you were a type A personality. I was an adrenaline junky. I crewed and flew a Black Hawk helicopter, was a Paratrooper, motorcyclist, etc. This year is my 32nd year of being paralyzed only in the last two years am I coming to grips with it. I spent 30 years angry and contemplating suicide. But, I had a family to support. A wife, two small children. I just took two years off to get used to being paralyzed then went back to college, learned a trade using computers and went back to work for the military as a civilian. Like you, I have to make enough trips to the VA hospitals that they all know me personally now. Thankfully, they have cleaned up the horrible conditions in the facilities I go to. A little to late. I have to deal with the unsterile conditions they were in 30 years ago. I survived a couple of killer hospital critters, thank God for my strong immune system. But it left me with many complications. Like you. It sucks and I take many meds to keep functioning, like you. I'm 66 and retired now. I wish I had some words of wisdom to give you, but I don't. You will find a way of you want to. If you're strong enough and motivated. Look at Amy. She's so strong. Man, I give her props for being a fighter. Know your limitations and learn to accept them is all I can say. It took me several decades to find that out. Try pushing it from time to time. You might get frustrated. So use what you can. If you can feed yourself and do anything that makes you more independent, do it. You'll feel like you accomplished something. Let me add something. Everyone used to tell me how lucky I was to survive. I always thought my excessive chase for the next adrenaline rush would either bring me satisfaction or kill me. I never thought I would be stuck in the middle like this. So people used to tell me there are others that are worse off than me. But it never made me feel any better knowing someone else was worse off than me. What a dumb thing to say, I used to think. Well, Mark. Best regards and stay safe... John
John Brady Thank for your kind words - it all means a lot. I contracted MRSB in hospital and was so ill - was in for 3 months that time. Yeah it sucks taking so many meds - and I have =to take OxyContin 3 times a day, Pregabs along with the strongest amount of gabapintin allowed in a day - 1200mg - 400 x 3 times a day for really bad nerve damage / /= 24 hour lasting Fentanyl patches are on my arm all the time and I have prefilled morphine syringes I end up needing to inject 3 or 4 times a day. Plus Xanax and Bromazem, Xanax for during the day and Temazepam for night with Ambien for when I have restless nights + when the pain gets unbearable keeping me awake. Also 16 x dihydrocodiene 4 times a day, plus a few other various tablets of unpronounceable names. I’ll admit ?I have a huge opiate addiction but at least ?I don’t have to pay for them currently. I too should have died - ‘I died twice on the table but am glad ?I’m alive but need edjing a carer is shit - I can’t go shopping, nor cook tea, repack up for things when I do Manage to go shopping I can’t reach the shelves. Bad days and good days but believe I’ll be on large amounts of opiates forever and go into withdrawal if I’m even just a few hours without them. I liter7finally came terms with it at the start of this before this crap happened and now I’m in high risk category. Now I just can’t go out at all as my local shops moved an extra mile away and there’s hardly any taxi services to help. Your comments are great my friend- really have cheered me up a little so thanks a lot for that ✌️ Yeah I loved bikes and because I was a Flight Attendant for KLM airlines so could travel round the world every week but in japan I found a special edition, tuned to with mm’s of the legal limits I found a Yamaha eliminator in custom blue yellow with red highlands limited edition unable to buy here so go it sent back and it was my xmas prescient to myself - but toook it out on SMS’s even on quiet roads - was opening it up and leaning down on the windy country roads befor the pissed idiot hit me - then left th scene immediately. Sometimes AI give up but thing well. Im Alive and that’s a blessing. I too was a junky for the extreme - tried wingsuit flying and have BASE jumped about 50 times. Raced bikes and my Nissan GTR round the Nurburgring Nordsliefe a lot of times. I do miss my bikes but it’s annoying more that I won’t get to take my Ariel Atom and my race replica Ducati round the track. I used to do extreme sports like skydiving and racing in fast cars but obviously a II never to theres again. And the illness regarding my stomach needed tubes and bags give me huge anxiety- scared if they leak. Worse in a wheelchair.. But yes that you for sharing this- 35 years is a long time for you. That’s not good.AT ALL. Anyway one more thing - it’s been reading your replies. Gives me hope fir the future.thank so mush.
She definitely had alot of suffering in her life and she handled it like a champ.. I pray she is with Jesus, that he is hugging her and telling her how much he loves her.
I have followed Amy for years & I’m so upset she’s passed away. I’m glad she’s no longer in any pain. Amy’s legacy will continue for years to come. The number of people the news of her passing has reached is obvious by the comment section of her videos. She’ll continue to help, educate & spread her positive outlook with millions of people to come. I hope you’re resting peacefully & my thoughts & wishes go out to Amy’s friends & family ♥️
You touched the lives of so many Amy. You don't realise how much you contributed to chronic illness education. You will be sorely missed. An angel is now in heaven. Condolences and prayers to your loved ones.
Shhhhhh Jared D....Amy wants everyone to believe she's going to die young. Of course she'll die young from either Sepsis or another infection, she won't die from her supposed medical issues. Most of these people die from Sepsis or other types of infections. You have to realize most of these Anorexic people want feeding tubes etc. so they don't have to eat real food. I haven't a clue why doctors allow this, it's ridiculous. Doctors can only 'guess" your life span. I had an uncle diagnosed with cancer and was told he'd be dead in 6 months. (he was 70 yrs old) Funny, he lived to be 95 yrs old and died in his sleep.
holiday 2406 she’s not anorexic she has a condition called EDS her stomach is physically paralyzed. She physically can’t digest food. She tries to eat as much as she can. Stop trying to self diagnose others. Doctors don’t give out medical attention to people who are faking. I don’t know how she could possibly fake a multiple doctors, scans, nurses, surgeons, and solid evidence but ok Dr.Holiday2406 😂
@@holiday-td6hx idiotic moron. Quit commenting if all you're going to do is insult this amazing young lady. Your ignorance is astounding. Go educate yourself. If you're capable.
This poor girl. How could someone have so many horrible illnesses? It's just not right. I hope shes no longer in pain and I'm glad she doesn't have to deal with this stuff anymore but she didn't deserve any of it.
This video keeps popping up in my recommended and keeps reminding me of her passing. So, so sad about this news. Amy inspired me so much, I'm in nursing school because of her. I owe her a lot and I hope wherever she is now she is at peace 💗💗💗💗
@@lyt6732 That is one of the bad things I’ve noticed about chronic illnesses is people get used to them pulling through a lot of health scares, but sadly, eventually, their luck runs out. I say that as a person with chronic health issues, myself.
Yes...I hate that every single time I go to the hospital or see a new doctor they always either ask "have you been diagnosed with anxiety" or say "i see you have a history of anxiety" Yes, I do have anxiety, but I can tell the difference in the symptoms. Sigh.
@lada zibarova Fake what? Most of these conditions have very objective, measurable symptoms and signs that you can test for. The only reason why they don't do that is because they are paid the same money regardless of actually helping anyone. If you go to a private doctor and pay them, they will have the incentive to actually try and help you because it nets them more money.
@lada zibarova Problem is not faking. It's imagining diseases you don't have (hypochondria) and the sick brain causing actual problems elsewhere (psychosomatic problems). Because noone has a complete understanding of the human brain, lots of doctors will wrongly guess that all your real physical issues are just complications from your mental issue and not do tests that cause any difficulty (like a tiny risk of needle infections when drawing blood).
I agree. I have anxiety. I went in to the ER with symptoms not at all fitting to anxiety and they were sure it was anxiety and I was being paranoid. I pushed for tests. Turns out I had a blood clotting condition and if I got sent home I would have died within the next day or two. I got hospitalized for a week and need transfusions. I had bruises that turned black, blood blisters in my mouth and throat and ridiculously heavy menstrual blessing, like every 15-30 needing to change my tampon bleeding. But it was just anxiety they thought
So sad to learn she passed away.😥 Despite her shortened life Amy did a tremendous amount to educate and increase awareness of this disorder. May she RIP! ⛅️ 👼 ⛅️
I really hope that God keeps you here for a long time. Your positive soul is just inspiring and you are way too nice to go early. Life is sadly too fragile, but we will cherish every moment you share with us. 💕
My heart hurts reading my comment back. I can't process this, I wished for a longer time for you here. Hope you are know pain free darling. Sending lots of prayers, love and strength for Tom and her family and friends. ♥
I totally agree My mental health was affected by my illnesses So much so At 21 I spent 5weeks in a Mental health hospital At 50 I still work through them I for the past 20 years Have also helped others with their Mental health issues Asking for help is hard Yet the biggest step Loving today’s Q&A lovely ❤️
You are going to be missed so much, sweet girl. I am still in shock that you're gone. I hope Tom or your family can fill us in on what you had planned on telling us later. What happened? God speed, sweetie!!
It's so strange going back and watching this. She's talking about it, but if she only knew she had just under 2 years left. She really did fight so hard.
I miss you so much sweet girl. I can't believe you're really gone... I truly cannot wrap my head around it. I just can't. I'm so sad, my heart is broken to pieces. I never thought this would happen, I just didn't. It doesn't seem fair. Amy brought so much positivity, love, light & strength to everyone. She was the brightest light & the world is a bit darker without her here. I'll miss her forever. I wish she wasn't gone, but I hope she's in a much better place & is no longer in any pain or worry. I love her so much. Prayers to Tom & Amy's family. She was so wonderful, a truly beautiful soul! Forever & Always.
I have Elhers Danlos too (but a different type) and PoTS. It's amazing to see you doing so much despite these conditions and it lovely to see you spreading awareness about EDS because nobody ever seems to get it!! ❤️❤️❤️
It’s beautiful and very sad that we still get to see you. It’s especially good when you are looking so healthy and you’re just chattering away!! Missing all your joy.
Just happened upon Amy and found out at the same time she passed away..from what I seen, she fought hard to stay here, sometimes you just get tired and stop fighting!! Sweetie you’ll be missed by many!!
I'd love to hear other people with chronic illness, what are your life goals? I've had severe mental illnesses since I was 9 (31 today) and my goals are: - Live on my own again - Have enough energy to take care of both my apartment and myself - Get my books published - Have a girlfriend I think these are realistic goals for me. I've kind of given up children sadly, but I have my cat purring in my lap right now and that's pretty good too
I'd like to get a bachelors degree and have good health insurance. Buy a house, and spend as much time as I can with my family and friends before I go.
it feels lik yesterday i found out you passed. ive been in and out of hospital the past 3 years being tube fed for a severe eating disorder that i likely wont recover from. i found your videos and i just really want to thank you for everything. i would always watch your videos in hospital and even though we’re both struggling with very different illnesses but years ago finding someone who also had an NJ tube helped me so so much. i always felt embarrassed going out with my tube and you have really helped my confidence. i dont know why im talking to you, its just really hard to imagine you’re gone, youve helped so many people and you were so so brave in the face of chronic illness.
I don't know you but dont stop fighting 😢🙏🏻 or try not to. I'm not in your shoes so I don't hold or know the full weight of what you're going through but I hope you do recover, and feel better soon. 💕
Gosh, I would get so excited when I received notifications that Amy had posted a new video to her channel. Wasn’t ready for her last post. Absolutely heartbreaking. 💔 Sure will miss receiving that notification. Rest easy sweet Amy, you deserve it. 😢
What the hell girl, I found your channel two days ago and can't stop viewing. I don't even have any connection to the topic, it's something I've never really thought about before until now and I'm finding it so educational and interesting. Keep it up!! You're super inspiring :)
My docs took a while to accept that my physical illnesses weren't all in my head due to previous diagnosed mental illness. Which meant I had to fight a lot to say, "look hey no! I feel x, y and z, and no it is not all in my head, please test me to prove/disprove its all in my head and don't just assume, yeah, thanks." Takes time sometimes to stop that association so I can totally understand the difficulties you faced with trying to get that sorted out
LiveForever I understand this, the neurologists I’ve gone to still say my seizures are just anxiety..they happen in my sleep as well as when I’m awake so like how does that make sense..?
@@kaylaquick590 I had a primary doctor tell me the same thing,(for YEARS) that I was anxiety-ridden due to horrendous headaches and vomiting issues. Come to find out I was dealing with Hydrocephalus, that I was born with.(this was prior to CT-scans. I was in a Neurosurgeons office the next day after this was diagnosed. Since then, I have had 28 shunt revisions and the headaches and the vomiting is still happening every day. You might send your medical records to a larger Medical Center if you have something close to you. This may help you. I am not saying you have what I have been diagnosed with, but for a doctor in this day and age to tell you it's just anxiety....is ludicrous. (BTW this Primary Dr. apologized to me after this was found out.....as well.
LiveForever I’m currently going through this and have been for the past three years. I’ve been in hospital recently and they wouldn’t let me see the physiotherapist or occupational therapist when I asked, but forced me to see a mental health specialist which was so humiliating because I’m doing well with my mental health and the mental health specialist even apologised to me that they forced me to see them. I’ve since been back to a&e and they were nicer to me. It’s just so difficult to get your points across about the pain you go through when doctors presume that it’s all in my head, when I know it’s definitely not.
My heart hurts upon hearing she passed. It’s also important to let people know how much they are loved and cared about........life is so short and we never know when someone’s time is up.
It's so frustrating at times because my EDS affected my mental health, and then Doctor's believed that my physical health problems were in my head, when both were having a knock on affect on each other, thankfully now my Doctor's understand the difference but also the way they overlap. I'm now working really hard on repairing both, they've been neglected of help for years but I feel I'm starting to move in the right direction. Thank you for educating, raising awareness and sharing your story, it's comforting to know you're not alone. ❤
I was diagnosed with POTs MCAS and Fibromyalgia along with mental illness. Two doctors kicked me out of their office telling me everything was all in my head and that I was faking being sick. We finally got a great team of doctors and I’m trying to get back to normal. It’s hard with chronic illness but I try to stay positive and keep others that are struggling just as positive. Thank you for shining a light on chronic illness! It really makes people feel less alone. P.S if you want to travel you can always call the airports ahead of time and they can help you figure out a way to accommodate you. I travel a lot in the states and have had help from air lines. The longest trip I have planned is Australia in September so that’s going to be an interesting trip with chronic illness.
Joo ei se ole vielä tullut mitään muuta ku ei ole mitään infoa kun ei oo vielä ihan hyvin menee menee ihan mukavasti menee ihan mukavasti menee ihanin mukavasti menee
Rest In Peace Amy. You will be missed terribly but glad you aren’t in pain anymore. I bought my electric heat pack because of you about a year ago and I love it.
This popped up for me to watch , after your passing. I miss you so much Amy!!! I hope your running free and doing what you want up there. I love you!!! 🥺🥰🥺
Well if she didn’t believe that Jesus Christ died and shed his blood for her sins then she’s will not go to heaven and she made it very clear in the past she didn’t. I just hope she had a change of heart before she died otherwise she’s in hell right now. Sad but it’s the truth
@@debradonley3825 that’s right sis and when things like this happen it should encourage other people to think about their souls as we are not guaranteed tomorrow !!! God bless u
@@MomentoJorie I really don’t care to be honest, the truth is the truth, and if reading this can help just one person think about their soul and come to faith in Christ Jesus then it’s all worth it. Have a nice day !!!
Really sad that this has popped up now. Amy, I hope you are at peace, you were a true warrior and helped so many people along the way. You will never be forgotten, fly high angel. Tom, what an amazing young man you are too and have been in my thoughts, along with Ellie and the rest of your family. Sending you so much love from the UK. I have followed you all for years and you are so inspiring. Take care of yourselves and know that we are here all here for you.
I think your emotional parsimony is elegant and that “gives” us a stance of acceptance of a “robust” maturity that impresses me. Many years of living for you, the imponderable is more visible than predictions.
I often forget that I'm not hooked up and push around my IV pole when I don't need to. I have even wandered around outside with it when it's no even hooked up to me. Its always good for a belly laugh when someone finally notices.
This is such a random comment, but I love how expressive you are when your talking. 😅 Some people find it annoying when people use their hands a lot when they're talking, or they use a lot of facial expressions, but I love it. I think it just shows off your happy, upbeat personality a lot better. 😙
Watching this video after having her last video recommended to me, just breaks my heart. I wish I could have got to know you before this happened. 😥 I wonder why I was only shown your channel now? RIP Amy 🙏🏻🤍
Watch Amy's entire story......its quite a watch and you will learn valuable lessons, not just about what others endure but also what courage looks like. RIP Amy.
You are a warrior and an amazing advocate for this condition. Thank you for sharing your story and personal life with us. You handle everything with such grace and poise. Thank you for being the face of never giving up.
That concern you had about not telling a professional about mental health issues because they could ignore physical issues by dismissing things as mental health issues is completely valid. That exact concern was the reason i was undiagnosed for years. I have dysautonomia, but it didn't get severe until i was 14 and already attending regular psychologist sessions and diagnosed with severe depression and anxiety. Every time a medical test came back normal, i would be told i was fainting from anxiety, i was fatigued cause of depression, i had chronic nausea from anxiety. It got to the point where i started to believe that i was faking my own illness, which sounds fucking crazy but its what being told over and over again that youre mentally ill and nothing else does to you when you actually do have an underlying physical illness. I actually did see a cardiologist who shouldve been able to diagnose me with dysautonomia when i was only 15, but he dismissed my low blood pressure cause on that particular day it was just out of range of being diagnosable, and my chronic joint pains as "growing pains". My mum holds a resentment to that cardiologist to this day.
I just got diagnosed with hEDS this summer, and bc the drs all knew I had a history of serious mental health issues I always found myself feeling the need to specify that "no this is not in my head, I actually see my joints go out of place, my friends do as well" and it was always so terrifying for me bc I felt like they wouldn't believe me. And can I just say the last few months have been a real mess for me with my health, it seems like it's all deteriorated so fast. It's been especially difficult with my mental health, just being trapped in the thoughts of how I will never function properly and I can never do the things I want or be a "useful" part of society (whatever that even really means), but my friend pointed me toward your channel and it's so nice (in a cruel way) being able to have someone that understands the physical problems I have. So just thank you for existing through this I guess. You're doing good with your life
I know your comment is old but... I know how you feel. I live w chronic illness and mental health issues combined and for the longest time I beat myself up for not being able to hold down a proper 9-5. The best thing I ever did for myself (starting in my 30s) was accepting my limitations with chronic illness and chronic fatigue. Don't set yourself up for failure by trying to fit the mold of what you or others perceive to be 'the right way'. My health has actually gotten better with knowing my limits and refusing to go past them. Listen to your body 💕
I loved her videos. She is such a positive young woman and did a great job bringing awareness about these conditions. I hope she is at peace. Beautiful soul gone too soon ♥️
Hi! I have gastroparesis. It's nowhere near as bad as yours. I've also suffered from a lot of depression and anxiety all my life... I just want to say that I love you because you are such a strong, determined, intelligent beautiful woman. Your boyfriend is very fortunate to have you.
Amy you do a fantastic job in explaining EDS. You being positive and spilling that over to your viewers is wonderful. I to have some major health issues I deal with on a constant bases. Sometimes you can start to feel beat down. I just get up take a deep breath and realize that it could always be worse. I've had people ask me how do you do it? I just tell them it is, what it is. You just have to get out there and live your life to the fullest. Take each day your are given and enjoy the little things that most people take for granted. Thank you for your videos. You are a survivor and a warrior. God speed.
I keep coming back to her videos because I miss her :/ I wish I could give her my life instead because she was such a beautiful, strong person and she deserved to have a long and happy life
I don't feel sorry for you. I admire you girl! I admire your positivity and how strong you are. You are amazing! Stay strong and never stope being you! I really hope that soon enough you will have all those things that you wish for xx Lots of hugs and love to you 🤗😘
I am so thankful I found your channel. I have POTS and a connective tissue disorder (though not EDS) with a lot of the same complications other than the digestive system paralysis. It is so fascinating to hear your experiences with these conditions. Thanks so much for sharing.
It's really interesting what you said about how some doctors will ignore physical problems if you present a mental health problem. I 100% know that's true, but my boyfriend had to be hospitalized for familial hypocaluric hypercalcemia, but he was also struggling a lot with panic and depression and they kind of refused to deal with that because he had a physical issue too. Obviously both were important for his recovery, but it was frustrating when he was suffering unnecessarily because they wanted to find a long term fix before providing him relief from panic attacks
I know someone who has EDS, is trying to recover from an eating disorder, and is currently pregnant 😬 I can’t imagine what she’s going through but I’m happy that she’s getting the chance to bring a sweet little boy into the world!
I'm hopefully going to get an EDS diagnosis next month and it blows my mind that my bladder issues (which sound eerily similar to yours) could be caused by EDS. As soon as you described it I felt so relieved that I wasn't alone!
I would like to thank you for the videos you make and your willingness to talk about your EDS. My niece, a 16 year old in high school, was just diagnosed with EDS about a year ago. It took at least 2 years of persistent advocacy from my sister before they arrived at a diagnosis. Because she's overweight, they kept insisting that all of her symptoms were from insulin resistance and not getting enough exercise. She has been diagnosed with POTS, MCAS, depression/anxiety, and now they are trying to figure out the source of her frequent, debilitating stomach pain. Her colon seems to be emptying ok, but there may be a hernia that comes and goes. She's determined to become a sign language interpreter and is taking college-level classes while in high school. She finds it really hard when the days of fatigue hit and she needs a wheelchair to get around her school, because she "looks" healthy at 5'10" and 200 pounds. My sister has gone to bat for her several times with the school and teachers when they appear reluctant to accommodate her needs. Thank you SO much for your efforts to educate people! I will be passing on the information about your site to my sister.
Thank you so so much for bringing those splints to my attention! I ordered mine before the video even ended. You've saved me a lot of pain and discomfort! Love from South Korea! x
Hey Amy! I'm 14 and I have EDS and I've been having a lot of problems with my stomach and bladder, and my mum and I believe I have POTS. I've been watching you for a bit and I love your channel and how upbeat you are! Thanks for making videos!
Meif'wa Lover! hey, I’m 19 now, I wasn’t diagnosed until I was 17 but I wanna say, please stay strong cuz I know how tough it can get, especially with trying to get diagnoses and help for all the problems. There’s always ups and downs but your mindset can change everything! Wishing you the best.
Thanks for the Hot Pod recommendation, got myself one from my local chemist warehouse and it warms up to just the right temp and that thing has stayed warm for literally HOURS! My frozen feet Thankyou so much x
I'm a nursing student and your videos help me so much in understanding the patient's side, and you also explain so much about the illness, how it works, all the interventions. Thank you so much for all the vids and all the best, stay strong
