♡ Terrible POTS Day, Tips to dealing with POTS! (15.08.17) | Amy's Life ♡ 

There are some really nice pots Facebook groups that help me not feel alone with my symptoms. Good luck

Yeah I'm jist about to go to the doctor to get checked out I been experiencing most these symptoms for like 2 or 3 years.

Annalee Langnes yeah my doctor said I need to eat a lot of salty food and drink a ton of water to retain the salt but I have this weird thing that I never eat foods with added salt.

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Kelly Roberts Not true. Yes, there are subset conditions but many people have EDS and do not have POTS/Dysautonomia.

Iesha Paige go to a cardiologist with a specialist is electro something I got diagnosed first appt after testing

Iesha Paige same the doctors don't take it serious an hospital only the doctor that told me I had it but the last medicine I got on made it worse I almost fell down the stairs I was so dizzy an light headed

Iesha Paige some one I dance with has POTS and this year for her solo she recorded a speech about pots and all of us were crying. Her next dance she passed out and I felt so bad

Thank you for the suggestion on the pulse oximeter! I just added one to my online Walmart buggy! Found a pretty purple one with a silicone case, lanyard, & batteries included. Great reviews & affordable enough. I have all the symptoms of POTS but no diagnosis. My heart rate goes high enough, my boyfriend can physically feel it. Sometimes you can see this like sight “muscle spasm/twitch” in my boob. I see black, my head pounds, & I get really dizzy. I either pass out or almost pass out & fall. Get dizzy to the point I look & feel drunk trying to walk. That’s pretty much any time I’m upright. It all started after some severe head/face trauma that I never went to the dr for, long story. The night it happened, I had been laying in bed for awhile & had just finished posting something on FB. I got up slowly (I was in a ridiculous amount of pain), & all I remember is the things I mentioned above. I woke up slumped against the wall FTFO trying to figure out what happened. After I realized I had passed out, I checked my FB to find the time stamp on the post to figure out how long I was out for. I was out almost 40 minutes. Been having those issues ever since. 🤷🏼‍♀️ Took me 10 + years to get my fibromyalgia diagnosis. My gut instincts tell me that diagnosis is either incorrect or incomplete. I’m hoping if I can show my dr physical proof of what I’m experiencing, that maybe, just maybe, she’ll look more into it & help me figure out wth is going on.

I know you posted 3 years ago, but energy drinks is usually a big no no with people with pots. She even says in the video she usually avoids them.

Madison I hear you 🙏🏼✨

Before I was diagnosed I was rushed to the hospital because my dad had caught me after I passed out in the kitchen I was so hysterical

April Alcantar me too, I jave gotten WYA worse blacking out 3-4 times a day

April Alcantar same😫😫😫

Yes sounds like POTS

HelixShape I have both xx

HelixShape for me the finger monitor is more accurate then the wrist band

I found a good odometer at Walmart for $20. Smart watches & fitbits are a lot more than $20. That was my reason for going that route. At least for now. :)

I have had memory loss one time.. but it was only temporary, and came back after a few minutes.

I think the feeding tube is for her gastroparesis but I'm not entirely sure

My doctors told me to do gym as much as possible. I was diagnosed when I was 12, and they did put me on meds, they didn’t work and gave me Insomnia that still lasts today, switched meds, didn’t work, took me off for about a year, and now I’m back in the stressful journey of finding meds. I wish you luck! Also, don’t believe anyone if they don’t believe you, or belittle you for ‘being too young’

Look up DNRS by Annie Hopper for POTS recovery

Oliver Likes Cats I'm on two types of blood pressure medication and 3 beta blockers they do help loads before the medications I was fainting 8+ more times a day, somtimes you just have to stick with them to see a difference, but on bad days or if I'm in a flare they don't help much haha xx

Oliver Likes Cats Have you taken anything like Propranolol? I offset it with Fludocortisone which keeps things under control.

Oliver Likes Cats I was on atenolol (beta blocker) for probably a year and a half and experienced no relief. I went to a new specialist who put me on propranolol. He said atenolol didn't work for me because it works by lowering bp and mine is naturally too low

How are you now? A few thoughts for you or anyone else who may come across this: 1. My EP suggested thigh high compression, but the physical therapist said abdominal compression, like Spanx, is actually better. (I use both.) 2. To give you some hope, I earned a doctorate while having severe issues. (It wasn't easy. 😫 ) That said, I'm now disabled from all the fainting and head injuries, so while my message is to maintain hope, also be flexible and allow yourself to adapt to whatever type of life and work best supports your health. Sometimes in life, our plans get derailed, and that's ok. You need to live the life that makes sense for who you are NOW, not who you were X years ago. 3. I hope by now you've joined some online or in-person support groups. 4. Don't expect most healthy folks to understand our struggles. It would be great if they did, but it's usually just not gonna happen to the extent we really need it to. (And, similarly, we should all remember that others out there are going thru things WE can't understand. So, we all need grace and compassion.) 5. Speak up about WHAT you need, but remember that you don't owe anyone a detailed explanation for WHY, especially if they're questioning you less from a desire to understand and more from a desire to "prove" that your "why" isn't valid.

Fortunately, I didn't really have that problem, but maybe see a different GP and asked to be referred to a cardiologist xx

If you haven't been diagnosed yet, I suggest dr gall at kings college London. He can be seen privately and on the nhs. I was lucky and diagnosed in hospital due to my heart rate being so high and fainting. I hope you find help

Seeing a neurologist can be a help also. They can send you for a tilt take test & sweat test among other tests you'll go to what's called an autonomic lab and that can give them some answers as to if you have dysautonomia /POTS

I live in the UK and none of my gps listen either

I think when she refers to feed, she refers to the nutrition running through her feeding tube!