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It must be good to get back from Rochester. I personally have not had to be in hospital for myself, but been in there helping others. People who aren’t around hospitals a lot have no idea how many sick people there are in this world. That’s why I like to call it “Hospital World” , you have to go into a hospital to understand the reality for so many people like yourself who have to spend so many days and all the appointments that do wear you out physically and emotionally. Much respect to you for what you have to deal with and letting us understand what this illness entails.
I am surprised the doctor didn’t discuss having the tube changed from a gtube to a gjtube so you can do jtube feeds into your intestines instead of your stomach. Praying things improve for you gastroparesis is no fun for sure -fellow GP and EDS warrior
I have similar issues with my stomach, the thing that helped me immensely was an NJtube/Jtube. Anyways, I really hope things get better for you! Great video♥️
Lauren thank you so much for sharing all these details with us. Can I ask about how much it costs for a week there? Just doctors and labs - not including hotels, meals, travel… I might need to go get a diagnostic and not sure what to expect (and we don’t have insurance that extends outside my state, in states where Mayo is available). I hope you are well!!! ❤
Hi! I go to the Mayo in Jacksonville. Can I ask a question if you don’t mind sharing? Was your gastro appointment with a actual gastro doctor or a nurse practitioner? They only let me see a nurse practitioner and I’ve never seen the doctor. Mayo told me gastro patients at mayo never see the actual docs because all they do are procedures? Is this your experience in Minnesota? Hope you’re doing well and I love your videos.