grabe day 32 😭 thank u for sharing this with us, kahit na napakahaba at napakahirap (at napakasakit) ng pinagdaanan mo. grabe ‘yung contrast ng first vid to last jusme. glad that the scars have healed na kahit paano and that you’re feeling better now. palakas ka and we miss ü 💙
I was diagnosed with Reactive Arthritis in May 2021 and was put on Methotrexate and Preds. I had shingles about 3 months into the meds, parang kasing laki sila ng raisins. What was explained to me is that the meds we take for our autoimmune disease is actually the ones causing the dormant HZV to activate bec they suppress our immune system :( But I was not allowed to stop taking the meds despite the shingles and my non-stop begging. To address both the ReA and my shingles plus the pain that came with it, I had to take 27 pills in a day! took about 21 days before the blisters started drying, several days more before the scabs fell off. It was too long I even named each blister! The moment I healed from the shingles, I had covid kahit hindi naman ako lumalabas at all! Yung nagbabantay sa akin non na hindi naman lumalapit sa akin ang lumalabas lang to buy meds. Grabe, the things we go through noh? That time, I was not as positive as the way I see you in this video diary. Naggrieve ako para sa sarili ko. Sana napanood na kita dati pa para di ako nagstruggle nang sobra. Now, I am your newest follower! I happened to stumble upon your channel bec I recently got confirmed to have SLE. Yun palang ReA ko dati SLE pala. Nakakatawa na lang ang takbo ng buhay😂😂😂
Hi Karla! Grabe yung roller coaster ride mo! I can super relate to what you went through. It's a never-ending up and down for us lupus warriors and that's why I learned to try my best and stay positive. There are a lot of moments when I also struggle to keep myself in the right headspace but that is alright. We learn to ride the waves and feel even the negative emotions because that's what helps make us stronger. 💪 I'm so glad you stumbled upon my channel! I found your comment saddening because of what you experienced but also heart-warming to know that you found comfort in my video. I hope to see you more here on YT. But feel free to connect with me through FB or IG. Links are in the description box. I'd love to chat with you and get to know you more as a fellow lupus warrior! 🦋 Stay strong and positive! 💙
I feel you whenever you say lupus flares and yes, the confusion with the immune system. Watching your vlogs and the food you eat....feeling ko ako na pinakapasaway na patient. 😭 Anyway, you really inspire me. Let's keep fighting! 💪🏻💜
Hi Abby! Di ko alam kung matutuwa or malulingkot ako pag may nakakarelate sakin hahaha 🤣 pati yun, confusing! Pasaway din ako! Try mo watch iba kong vlogs 🤣 dapat pakabait na tayo! Praying for you! 🙏
Oh!my God! we are the same. I am also a lupus survivor, and these days I also had shingles. Everything you said is what I feel now. and it really hurts. 😢It's my fourth day today and yesterday the worst pain I feel started. I hope I can get over it too. 🙏
Really admire your courage on dealing with this, Juls! Also, super pretty mo pa din kahit ibang hairstyle! 💙 I’m glad you got better and I hope you keep going strong! Laki ng improvement from Day 1. Also, I loved seeing the everyday foods 😅 love how healthy lagi ng combinations tapos ganda pa ng plating, ang thoughtful ng family mo💙 Praying for healing and good health lagi!!! 💙
Awwww 😭 I'm so touched by your words, Martina! Thank you for watching! All these are very much appreciated and taken to heart. 🥰 I hope you are doing well! 🙏
Hey, love. I found your channel after researching if there’s anyone who’s began having lupus symptoms after having shingles. I see that you had lupus before getting shingles, but I do wonder if there’s a connection. I’ve had awful complications since getting shingles- it took me 2 months to get over it, I had disseminated shingles (meaning it spread over different areas of my body), & a lot of nerve damage, among other things. However, I’ve also had a lot of other new symptoms pop up that don’t seem to be related to my shingles complications & I’ve had other older symptoms worsen. I had to get autoimmune testing once I felt better anyway because doctors think that I have an autoimmune disease that made it harder for my body to fight off the shingles despite taking 2 rounds of antibiotics & other meds. But I just wanted to say that, shingles isn’t airborne. If you’ve already had the chickenpox, you can get shingles. & You can get shingles either by touching someone blisters & getting the liquid on you, or by reactivating the virus on your own due to stress/low immunity. Once you get the chickenpox, the virus stays dormant in your spine & then the previously listed conditions can bring it out. Since it lays dormant in your spine, it’ll follow the nerve pathways that branch out of your spine & then it’ll “settle” on one or more nerve areas & that’s why the rashes often look “patterned” in a line, circle, etc. I had my breakouts in my left inner ear, left side of my neck, on left arm pit/behind armpit, & along my belt line. I know how it feels & I’m so, so sorry you had to go through that, especially dealing with your lupus on top of it. I sincerely hope you’re doing/feeling well now. Please always give your body the rest & love it deserves & never let anyone tell you to “push through” if you don’t want to/can’t. I wish you all the best. ❤
Hi Brittney! Thanks for sharing your experience and knowledge on shingles. It will help a lot of people going through the same thing. I hope you figured out what autoimmune disease you have so you can treat it accordingly! How are your shingles scars now? Do you have phantom pains? Mine get itchy when the weather gets hot. But in general, I'm doing much better. Thank you for the well wishes and the reminders! 🥰
Patatag ka po . Lagi po kayong manalangin Wala po impossible sa MAHAL NA PANGINOON.. Pamangkin ko po 10 years old kaka diagnosed Niya lang na may lupus siya .
I can relate with what you've through. May SLE din ako last feb. nagkaroon ako ng herpes zoster/Shingles sa braso sya. It's so painful at times nagigising ako sa madaling araw b'cos of the pain at the same time swollen pa yong palm and fingers ko. Sa ngayon nandyan pa yong numbness sa mga daliri ko at minsan pain na mararamdaman. Am feeling frustrated na baka d na babalik sa normal at grabe na yong nerve damage sa kamay ko.
Hi Lucy! I feel you 😭😭😭 super hirap matulog sa shingles Ako until now nangangati parin yung batok ko kahit parang healed na sya huhu sana mawala mga nararamdaman natin
Ako mam kaka healed lang ng mga shigles ko sobrang sakit and kati nung first day to the point na naiiyak ako and then ng leave ako 2 weeks from work talaga ksi tumubo sya sa kanang bewang ko now. Scars nalang natirira ksi ng pop na sya and magaling na
Hi ate! I was also diagnosed with lupus. And I'm just 15 years old. Puwede po mag tanong? Pano po mawawala Yung maiitim na bagay na tumubo po sa muka ko, lalo na po sa kilay at ilong sobrang dark niya po. Ganon din po sa mag bandang bibig ko po. 3 months ago lang po ako na diagnosed :/
Hello Dolly! Di ko pa naexperience yan kaya di ko masasabi sayo paano mawawala. Ask mo rin doctor mo kung ano yan. Baka kasi lumala kapag kung ano ano ilagay mo na pampagaling. Sana okay ang pakiramdam mo 🙏🏼 laban lang! 🤗
Grabe ang sakit meron ako sa bibig ko hanggang baba napakasakit ulo ko parang gusto mo ng iumpog sa pader lalo na pasumpong sumgpong ang sakit grabe im 61 years old na sobrang sakit d mo maipaliwanag ang sakit
Oh no! Sorry pinagdadaanan mo rin to. 😭 Naiintindihan kita huhu ganyan din kasakit yung akin. Pagdadasal ko ang mabilis na paggaling mo 🙏🏼🙏🏼🙏🏼 kaya mo yan, Luzviminda!
meron ako nito now. nyemas na pakiramdam. parang binubuhusan ng mainit na mantika ng paulit ulit tapos may sili ang balat at binabarena ang laman.pucha ayaw ko tlaga mapunta ng impyerno. eto yata pakiramdam dun.😅😅. prescriptions: derma acyclovir branded calmoseptine ibuprofen or alaxan. tiis simysine😂 napaka sakit nitong sakit nato, traumatic experiece. update! para mag dry agad ang butlig, damp ng cotton na may deluted na asin. sa tasa mga 5 full na kutsarang asin, tunawin sa malinis na tubig. dapat concentrated solution at i lapat sa blisters, dampi dampi. pangalawang tip. mag lagay ng tubig sa ice bag. ilagay sa freezer at patigasin. tyaka gamitin sa affected area. napaka epektib pang sooth ng pain. pampatay din sa burning sensation at pang patamlay sa nerve endings.
dpt po dyan dahon ng bayabas illga po un pra ipaligo at langis niyog na my luya un ippahid m bawal po cream na gamot lalo mgglit sugat ngkaron n po karanasan sa anak ko
Very practical suggestions, thanks, yes, having clear, youthful and most importantly: healthy skin is just pure bliss. There's no way to get rid of zoster or shingles overnight though. Having said this, you can definitely improve your condition by following the guidelines in Kaena Ramingler's Shingles Guide.
Las hierbas del Doctor Ani John curaron mi virus de la culebrilla después de años de luchar con diversos tratamientos. Doy gracias a Dios por mi recuperación inmediata.
Hi Justin! Stay strong ka lang huhuhu! Viral din sya kaya bawal talaga magwork. Try to distract yourself with other things muna to forget about the pain and itch. Praying for your fast healing! 🙏 Messaged you on IG na rin. 🤗
Hi maam juls..😢haizt now q lng nkita post moh..na sad nman aq.akala q your ok nha already..pagaling k po..me po sobrang thankful aq now kasi d nagpapasaway si lupus skin now.siguro dhil malaking tulong yung food supplement. Q now..pagaling k po..god bless
