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(2017) Living with a Partner Who has ME/CFS and Fibromyalgia, Part 1: When Your Wife is Ill 

Bateman Horne Center
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Chronic illness and marriage is a complicated combination. It’s rare to see or hear a healthy spouse’s perspective on their partner’s disease because it is a topic that can be very difficult - as much for the one speaking as for the one hearing it. With an estimated divorce rate as high as 75% among couples where one has a chronic illness, it is an important topic for discussion and understanding. In this session, the panel openly and honestly speaks about the challenges, hardships, blessings, and lessons learned from their perspective as a spouse and care-partner.
Even if you are not married, there are sure to be some take-aways and lessons learned that you can apply to any meaningful relationship in your life.
Bateman Horne Center is a non-profit clinic and research center, advancing the science, treatment, and education of ME/CFS, fibromyalgia, and related conditions.
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This video is not intended to be a substitute for professional advice, diagnosis, treatment or the medical recommendations of your medical team.
We advise viewers to carefully review and understand the ideas presented and seek the advice of medical providers with any questions you may have as it relates to your patient-specific situation.

Опубликовано:

 

12 мар 2017

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Комментарии : 34   
@allie54774
@allie54774 Год назад
I appreciate the guy who was explaining how to deal with his daughter when his wife is ill. I have 2 small kids & I feel awful sometimes when I can't keep up with everything they want me to do with them.
@charansahota4065
@charansahota4065 7 лет назад
Hi I'm from the uk. Thank you for sharing your understandings. I'm a single mother of 3, I have my kids to help me. I have to think all of the time about what I need to do today. Paying bills, washing machine, dishwasher etc. I only dream to have someone who can help mentally physically and emotionally. You are great men, but also very strong emotionally. A lot of the time men just don't want to understand your erraticness or stress or even understand why are you say things because you don't understand. Stress is a killer whilst having cfs. Thanks guys can't wait for another video on how your partner has cfs, how it has effected you socially. The relationship with family and friends. Do they really understand Much love ❤️
@IExpectedBSJustNotThisMuchBS
@IExpectedBSJustNotThisMuchBS 7 лет назад
It's not just men that don't understand. Both men and women leave partners with ME/CFS because they either don't believe their partners, can't seem to cope, or believe life should not be so hard.
@lorrainedeacons503
@lorrainedeacons503 7 лет назад
Charan Sahota Hi I'm also in the uk . Not much help here . Wish we had a Dr Bateman here . She truly is a god send . These guys are great your wife's are lucky to have you . I got married 6 years ago . My husband knew I was sick and had rest days but I still held down 2 jobs my pride wouldn't let me give up . I'm now not able to work and am a shadow of the the person I was . I no longer see my friends and spend most of my time on my own . I have 2kids still at home . There.older now so it's a bit easier now . Age 22 and 20 . My husband works long hrs and don't the really like having the conversations about me/cfs . I wish he could see the turmoil that goes I in my body . I think most most people think it's exaggerated . It's hard to imagine so much going on with 1 person . I don't blame him . We had a lot of things to look forward too . It's soul destroying . I don't have a choice but he dose I don't want him living this life . I've changed so much . It's so unfair .
@charansahota4065
@charansahota4065 7 лет назад
Lorraine Cochrane ❤️❤️💕💕 If you want anyone to talk to in at sahotack@icloud.com ❤️❤️ U r not alone !
@lorrainedeacons503
@lorrainedeacons503 7 лет назад
Charan Sahota Thai you so much . 💜 much appreciated xx
@neenaadams4301
@neenaadams4301 Год назад
Most precious beautiful examples of the divine masculine bless you all and may God 🙏 bless us all with gift of awareness that causes these karmas in both physical and emotional form. Evolution of subconscious and conscious past present and future of the evolved God cell of unlimited ability.
@SuellaPostles
@SuellaPostles 7 лет назад
Sadly for me the sound is often both muted and not very sharp at the beginning. Thanks for fixing it about 25 minutes in. This is a very important video and I am so glad it is now audible.
@survivingfibromywhat2615
@survivingfibromywhat2615 5 лет назад
Im crying so hard. My husband does the same for me. Im having a hard time accepting that fibromyalgia has taken my life
@MP-uo6qd
@MP-uo6qd 4 года назад
try thyroxine treatment 250-300 MCG. The debate is still out there about TSH tests and clinical signs should be taken into account as well as biochemistry according to Dr GOrdon Skinner
@Truerealism747
@Truerealism747 Год назад
@@MP-uo6qd this cured my father's CFS I have fybromyalgia I had CFS 26 years but drs Wong give it me so taking over the counter
@maverickworld8192
@maverickworld8192 8 месяцев назад
I'm having a difficult time struggling with my wife, who suffers from Fibro. I'm trying to be there for her as much as I can and I'm there for her and help her with anything she needs. She was diagnosed with fibro and bi polar in 2019. Her fibro is also taken a toll on me, and I'm very stressed out, and I feel awful for her. Can you please help me cope 🙏🏼 😢 😭 I love her 😭 my health is also being affected by her fibro and bi polar
@k.i.w.6307
@k.i.w.6307 2 месяца назад
Its a good thing to hear from men in caring positions but I look forward to the day that men don't need chore lists and continued instruction on how to do basic housework. Most of their wives are still doing all the prep and planning and house management while managing their own illness.
@CricketGirrl
@CricketGirrl Месяц назад
Excellent point. I'm severe, and it's been a struggle trying to get my husband to be more independent when it comes to housework, grocery shopping, and home maintenance.
@MP-uo6qd
@MP-uo6qd 4 года назад
Try thyroxine treatment 250-300MCG. The debate is still out there whether people with viral onset ME/CFS are hypothyroid or not.
@rebeccapadmore8528
@rebeccapadmore8528 Год назад
Check copper metabolism genes.
@a.k.6410
@a.k.6410 4 года назад
no sound!
@chickerbeball
@chickerbeball 4 года назад
I would love to see when the roles are reversed. Thanks for the video
@Skottiejay_Music
@Skottiejay_Music 3 года назад
Was disappointed to see only men up there.. my wife has plenty to say about me I’m sure.
@jayturner3349
@jayturner3349 2 года назад
For what it’s worth, here’s the link to the panel where wives spoke about their husbands. ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-JWCcFCu3ZD8.html
@CricketGirrl
@CricketGirrl 5 месяцев назад
There's another one for when your husband falls ill.
@avtircaritas8229
@avtircaritas8229 2 месяца назад
See part 2
@neenaadams4301
@neenaadams4301 Год назад
Superman s 🦸‍♀️ other powers.
@Yashtcm
@Yashtcm 2 года назад
Here, let me fix your video title: "Living with a WIFE Who has ME/CFS and Fibromyalgia". You're welcome.
@3fishesinatank806
@3fishesinatank806 7 лет назад
the first two men come off as patronizing,and laughed at the thought that he needed health issuance for his soon to be wife. That father was lookin out for his dau. that requist wasn't funny
@TheCoachjj3
@TheCoachjj3 Год назад
My fil literally said the same thing to me.
@rtlamb
@rtlamb 3 года назад
When Your "Wife" is Ill?? Oh cool now I feel totally discounted... This is NOT solely a female issue folks!! SMH This is one the worst fallacies about ME/CFS and it really annoys me!!
@jewelleryaddict
@jewelleryaddict 3 года назад
true i started and facilitated support group for 23 years and had many men in our group with fibro and cfs. partners and family members were all welcome. it was good for women to hear guys get this too, guys that look very well as we do, and to hear of their struggles. and to share experiences. we kept it a group that didnt all sit and complain as others i had attended and just came home depressed myself . so I started another. had 440 people over the years.
@jayturner3349
@jayturner3349 2 года назад
I believe they did a panel with women/wives a month later. I’ll see if I can find a link.
@jayturner3349
@jayturner3349 2 года назад
Here you go. ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-JWCcFCu3ZD8.html
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