912. MOG Antibody Disease: Diagnosis and Treatment Guidelines

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SRNA's Krissy Dilger was joined by Drs. Eoin Flanagan and Rohini Samudralwar for an Ask the Expert podcast on "MOG Antibody Disease: Diagnosis and Treatment Guidelines." The experts gave an overview of the diagnostic tests used for MOGAD and how it is differentiated from other demyelinating conditions. They explain the acute treatments used following an attack, as well as guidelines for ongoing preventative therapies. Finally, the experts discuss research into MOGAD and future considerations for treatment.

Опубликовано:

6 дек 2021

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Комментарии : 23

@adeshpatil4792 2 года назад

Great session. Thank you so much for such a informative podcast.

@Voiceguitar Год назад

Hi, I am an Anti MOG encephlitis with seizures patient. Currently on Phenytoin, and an extreme regime of supplements/ vitamins targeting reduction of inflammation ( regime constructed by family Rheumatologists/hepatologist). 23 hour intermittent fasting + vegetarian keto diet. Initial treatment was 5 X 1000ml steroids, 2 treatments IVIG. Reply to my comment if you have questions. Thanks for the content.

@wearesrna Год назад

Hello, we're sorry to hear about your diagnosis. If you aren't a member already, please consider joining as a member of SRNA. Membership is completely free and allows you to stay informed and connected to the rare neuroimmune disorder community. You can join here: wearesrna.org/join/.

@Voiceguitar Год назад

@@wearesrna Joined. Thanks again

@chithrasundhar4238 Месяц назад

Thank you for this information, my hubby got effected by Anti mog, he took the steroids and injection of tocilizumba for 6 times, monthly period.. He got effected on his bladder, he has the numbness in the lower body , unable to manage stuffs.. so what will be the treatment for issue

@wearesrna Месяц назад

Hello, we're so sorry to hear about your husband's diagnosis, we know how difficult this diagnosis can be. You can find a variety of resources on symptom management, including bladder and bowel dysfunction, in our Resource Library: wearesrna.org/living-with-myelitis/resources/resource-library/. If you are not already a member of SRNA, we encourage you to join here: wearesrna.org/join/. Membership is completely free and allows you to benefit from all of our resources and programs.

@susanfischer6155 2 года назад

Hello please help ! How long do Attacks typically last

@wearesrna 2 года назад

Hi Susan, we asked Dr. Samudralwar your question, and this was her response: "Clinical attacks in MOGAD last at least 24-48 hours and are constant in nature without too much fluctuation. Without treatment, depending on the severity of the attack, symptoms could remain long-term. With treatment, especially steroids early on, can provide partial to full recovery within days. Many times this might also involve physical and occupational therapy to help."

@susanfischer6155 2 года назад

@@wearesrna and has been going on for over a year

@susanfischer6155 2 года назад

Who is the Dr asked

@wearesrna 2 года назад

@@susanfischer6155 Dr. Samudralwar is a neurologist at UT Health in Houston. She is one of the speakers on this podcast.

@susanfischer6155 2 года назад

Thank You

@shivaadumakala9993 2 года назад

Hi i am suffering from transfer myelitis and there is no strength& sensation in my both legs what should I do plz replay me i lost my two legs sensation suddenly in my sleep

@wearesrna 2 года назад

Hi Shiva, you may find this presentation on "What is neuropathic pain, numbness, and tingling?" from our 2021 symposium helpful: wearesrna.org/resources/what-is-neuropathic-pain-numbness-and-tingling/.

@susanfischer6155 2 года назад

Thank You for your help and reply!! I have been experiencing several light sensitivity and its incredible

@susanfischer6155 2 года назад

Delete

@gamersmark_yt4387 2 года назад

Is MOG In any way, shape or form, deadly ?

@wearesrna 2 года назад

Hello, we asked an expert in MOG antibody disease, Dr. Michael Levy, and here is his response: "While an attack associated with MOG has the potential to be fatal based on location and severity of the attack, MOGAD in and of itself is not considered to be a fatal disorder. We also don’t entirely know the risk of recurring attacks in MOG, as we know they will occur in NMOSD without ongoing treatment." If you have any further questions, please feel free to email us at info@wearesrna.org

@dianewebb8461 8 месяцев назад

My son was diagnosed this summer. We live here in oklahoma city and have been sent to two neurologist after discharge from hospital. We need help getting Jim to the right neurologist.

@susanfischer6155 2 года назад

What happened to my Thank you for the reply and help

@wearesrna 2 года назад

Hi Susan - your message seems to have been put in response to our reply to another commenter.

@susanfischer6155 2 года назад

Thank You